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AMETHYSTISAGEM's Photo AMETHYSTISAGEM SparkPoints: (6,028)
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1/18/14 11:18 A

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I've been on CPAP (Full-Face Mask) for just over two years. I didn't sleep decently for six months. I had a huge learning curve with leaks and itching nose and dry mouth and panic attacks, etc... I was finally able to cope and get some sleep. Not interrupted sleep, but at least a few hours between wakings. I never took off my CPAP. I just pushed through, cranky and tired (but I was used to that anyway). Once I finally learned the ins and outs of everything, it' got better. You do adapt and get used to it. You never love it, but my health is slowly beginning to return. Yes, it's taken two years to get here. Unfortunately, though, I had a sleep study recently and my pressure was just raised from 7 to 10 and that is requiring another learning curve, but nothing like during that initial one. The most important thing I remember reading when starting on this journey, is that CPAP is better than chronic debilitating deteriorating health. Don't give up. It does get better. You will feel better. It just takes time, and it's worth it, your're worth it.

Acts 8:31  And he said, How can I, except some man should guide me?


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MEME102's Photo MEME102 Posts: 11,898
2/11/10 11:40 A

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I agree trying different masks is the way to go.
I had to have one that covered my mouth and nose b/c I couldn't get the 'hang' of breathing through a nose only one. That fullface mask did bother me and I would use it off and on. Finally I went back for a different fitting and we tried the one with the nasal pillows and covering my mouth...and it's worked like a charm. I sleep through the whole nite most nites except when sometimes I do sleep on my side and if I don't put the pillow just right -- it pushes the thing out of my nose!! And then the swooshing of the air wakes me!! But I"m learning - don't give up b/c it's better to use it than NOT!

"If we wait for the moment when everything is ready, we shall never begin" Ivan Turgenev
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Lynn -- Indiana


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JXNCHICORY's Photo JXNCHICORY Posts: 2,756
2/11/10 12:00 A

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For me it took a long time. I usually sleep on my side, so the mask on my face really interfered. I'd wake up in the middle of the night, which I had not done before, and just laugh because I didn't see how I was getting any better sleep. After a few weeks of this, I decided it wasn't working for me, and just stopped using it at all for about 2 years. Then I found myself feeling so tired and sleepy during the day, I knew I had to do something. I went back and talked with the sleep doctors again. They arranged another sleep study, and this time they tried some different masks, including nasal pillows and a nasal canula. The canula turned out to be the type that works for me. That was all almost 10 years ago now.

I think, for me, one of the most important steps was coming to the realization that this was something I really needed to do for myself and my health and well-being. In addition to finding equipment that works for me, I needed to make up my mind that it was really important to do it.

If we are to go on living together on this Earth, we must all be responsible for it.
~ Kofi Annan

To cherish what remains of the Earth and to foster its renewal is our only legitimate hope of survival.
~ Wendell Barry

Nancy in Michigan


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JXNCHICORY's Photo JXNCHICORY Posts: 2,756
2/10/10 11:40 P

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Our newest team member, LJSONGAGAIN, writes this message.
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Greetings Everyone:
I am very new to CPAP. It will be two weeks this Friday. I've gone through so many different stages in that short time, but I still can't use it more than 2 hours before waking up and giving up for the night. It's a phobic thing, I think I can't breath, then it's a nose discomfort thing, it's always some THING. In the back of my mind I am aware that the insurance company is monitoring me for the next 3 months which adds to the anxiety!! I have the Resmed System One with C-flex, humidifier and a Swift LT for her nasal mask, also an Opti lite nasal mask that I got from the sleep study. I've been switching back and forth in desperation. Both have their + and -'s. My therapy level ramps up to level 7. Thankfully it seems that I'm already used to the air pressure as it is fairly low. My question to you all is how long does it take to get used to sleeping with the mask and CPAP System? Is it normal, at this two week juncture, to only tolerate the mask for 2 hours a night? Should I be further along? I welcome any tips that could help me get used to the mask. I appreciate any and all information that you could share. Thanks!

If we are to go on living together on this Earth, we must all be responsible for it.
~ Kofi Annan

To cherish what remains of the Earth and to foster its renewal is our only legitimate hope of survival.
~ Wendell Barry

Nancy in Michigan


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