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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,235
10/24/12 1:13 A

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Oh my goodness yes. Of course a GP could be good, if they are interested in that branch of medicine. My doctor is a pulmonologist who works only in the sleep clinic.



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AZPUGMOM Posts: 88
10/23/12 5:36 P

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Thanks for the tips. I am trying to learn as much as possible to better educate myself especially if surgery will be needed (never had any type of surgery done). The trying the mask during the day is an excellent thought...thanks! I think I also need to find a doctor that specialises in sleep disorders and not continue this with my general practice doctor.

GRAMMACATHY's Photo GRAMMACATHY Posts: 19,235
10/23/12 12:49 A

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Great idea about acclimating to the mask during the day. That is what we have preschoolers do with their glasses too.



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BIGHAIRTEXAN's Photo BIGHAIRTEXAN Posts: 1,040
10/22/12 9:28 P

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CATHY that's a perfect analogy about the underwire bra. Most ppl wouldn't say they were going to give up bra wearing if it hurts. They'd find a bra that fits. And a good fitting bra that feels good is FABULOUS (take it from a large chested mama!!)

The apnea surgery reminds me a lot of the lap band. You go through a major surgery which seems to work at first but then after a while you STILL have to go on a diet because it wasn't a magic bullet.

ANOTHER THOUGHT. WHen you get a mask, sit in a chair/couch, watch TV or read w/ it on and blowing during the day. Not when you're trying to sleep for the first couple of days. The TV or book will somewhat distract you, and you can get used to it that way. Start w/ maybe 15 minutes and work up to longer and longer times. Eventually you will be semi-oblivious to it and you then can try it at night. I'm about 4 months into using mine and sometimes I still take it off when I'm half asleep because it bothers me. But I do it less and less. It doesn't have to be an all at once kind of thing. Ease into it.

But do be aware that your insurance might ask for your data (scandisk that you send in) because they understandably aren't going to pay for it if you don't actually USE it. So don't take TOO long trying to get used to it!

Edited by: BIGHAIRTEXAN at: 10/22/2012 (21:33)
Don't take yourself so seriously. No one else does.

The definition of insanity is to keep doing the same thing all the while expecting different results.

Timing has a lot to do with the success of a rain dance.



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GRAMMACATHY's Photo GRAMMACATHY Posts: 19,235
10/22/12 7:25 P

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Sorry, but surgery does not work at all if you have central apnea, which is a brain disorder. You may have both obstructive and central. It is hard to tease out unless you have something majorly wrong with your palette. . I think I would work through the mask issues and at least give it a year before having the surgery. Everyone I know that has had the surgery had to get the mask a few years later.

You have severe sleep apnea. I almost died with 60 events an hour. The cpap opened up a whole new world for me, even if I did fight the mask for six months. I had to tie then thing on to keep it in place. I also had to use a chin guard. Eventually, time and a better mask helped. It is kind of like a bad fitting underwire bra. Painful, but you look better. Well you can still look good and feel more comfortable with properly fitting undergarments. Same is true of the cpap. There are so many choices now. Keep experimenting the first few months. Also, check out the bi-pap. It is for people that need high pressures. In fact don't be afraid to advocate with your doctor. I don't care if he gets a kick back from selling the outdated machines. They work fine for some people, but not those with the severe apnea.

freecpapadvice.com/Surgical_Treatmen
ts
_For_Sleep_Apnea.html
I could not find a good video about the differences between cpap and bipap. but Lanky Lefty has much better descriptions on the surgery and success rates. I know that Braveone has a bipap and she is doing much better since the change. Maybe and Apap would be enough to let you exhale. Best of luck on this. Just keep doing your research so you will know to ask the doctor the right questions.



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BIGHAIRTEXAN's Photo BIGHAIRTEXAN Posts: 1,040
10/22/12 5:24 P

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Wow I thought I was bad w/ 40 some events/hour. Girl you need to get this taken care of. You need to bring some relaxing music that you can focus on (like when you get a massage) and go to your "happy place". I do feel your pain because I am majorly claustrophobic. So perhaps they can try a nasal pillow for the test (the least claustrophobic). After that the nasal mask is less claustrophobic and last is the full face mask.

I can't use nitrous oxide (laughing gas) at the dentist because that is a nasal mask and it bothers me but the nasal pillows rarely bother me at all.

The thing w/ surgery for apnea is that it is the WORST sore throat for 2 weeks (though you will lose weight) AND it doesn't always work long term. Really try to do some meditating before you go so you can find that "happy place" and go there in your head. You'll fell SOOO much better if you get this sorted out.

Don't take yourself so seriously. No one else does.

The definition of insanity is to keep doing the same thing all the while expecting different results.

Timing has a lot to do with the success of a rain dance.



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AZPUGMOM Posts: 88
10/22/12 5:16 P

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Surprise, surprise. Drs office just called to say that I need to have a second sleep study done. This one is for the air pressure; no question that I have sleep apnea. Diagnosed with severe obstructive apnea....95 events per hour! Ouch, ok I knew I was bad but wow.
Anyway, I'm not looking forward to this study...they couldn't get the air pressure high enough to stop the symptoms (I have no idea what the pressure was at). I basically at a panic attack the last time and ripped the mask off. At this point, I'd rather go right into surgery.

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