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MISSCUS's Photo MISSCUS Posts: 3,970
1/28/14 9:17 P

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Sophie, HELLO! I just saw your new post. We have a new DAILY CHAT 2014 started, so head over that way and post there. That way you won't be lost from the other's on the team. Hope to chat more with you soon.
Wishing you a month of NO pain!!
Phyllis MISSCUS

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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SOPHIERC's Photo SOPHIERC Posts: 532
1/27/14 12:52 A

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Me and the people from my church got caught in blizzard like conditions. 50mph wind blowing snow, sometimes 0 visibility on the way home. I was riding with someone who had experience with these driving conditions. The church is in an rural area of town. It wasn't so bad when we got back into town. This was my 1st time out in this extreme of weather conditions.

Thank you, Lord, for your protection. Amen.

Sophie

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With all the cold weather this winter i decided to focus on strength training exercises. Using the January fitness jumpstart challenge videos is encouraging me to look forward to working out every day.


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ANDILH Posts: 1,214
1/7/14 12:23 P

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Is everyone doing okay in this crazy cold weather?

ANDILH Posts: 1,214
1/1/14 8:24 P

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The new year brought us about 5 inches of snow and about a 0 degree temperature. Thankfully it's a light pretty snow so it was easy to plow.
Yesterday I went to a cool outlet mall with my aunt. To walk all the way around it is a little more than a mile, and we walked the whole think plus another quarter. Thankfully it was slow walking so I could breathe and it didn't make my back hurt. I found a couple of sweaters for an amazing price and shoes from a brand that I really like. So I was happy.
I hope everyone has had a good start to the new year!

MISSCUS's Photo MISSCUS Posts: 3,970
1/1/14 9:48 A

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2014

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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MISSCUS's Photo MISSCUS Posts: 3,970
12/29/13 9:39 P

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Hi everyone! Wishing you all a safe and Happy New Year. 2014, WOW.

i DIDN'T KNOW diet orange soda has caffeine in it. So I laid in bed wide awake all night last night tossing and turning. Slept a few hours this afternoon. Very tired tonight, no energy. TOmorrow will be a better day. Cannot wait to go to sleep tonight.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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ANDILH Posts: 1,214
12/26/13 5:26 P

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Thanks Phyllis!
I hope everyone who celebrates it had a wonderful Christmas!

MISSCUS's Photo MISSCUS Posts: 3,970
12/25/13 12:34 A

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Andrea, I sure hope you feel better soon.

Merry Christmas to all.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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ANDILH Posts: 1,214
12/21/13 6:24 P

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Today has turned out to be a truly crappy day. I started coughing last night, and today it turns out I have bronchitis. I am an expert cougher, and it usually involves my entire body. The couching touches off my asthma and things go down hill from there. Thankfully I got antibiotics and steroids called in by the fantastic family I nanny for (while they were at the airport no less!), and started taking them. My entire body hurts from the coughing, so my back is just getting worse. I keep hoping that maybe the steroids will help it, but we'll see. Hopefully tomorrow with more meds in me things will look better.
I made my mom go to Urgent Care this morning since she's been so sick for so long. My mom has been sick longer and hers is more intense so I had to do all of the errand stuff, and final Christmas gift shopping with my sister in the rain. I'm sure that didn't help at all, but now that it's done I can relax. I don't have to go anywhere or see anyone else until Tuesday. I hope others aren't feeling quite as crappy tonight. The other upside is that my mom came home with 4 prescriptions and they seem to be working as she's sleeping better than she has in several days.

ANDILH Posts: 1,214
12/21/13 11:18 A

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There's a difference between accepting infirmities and giving in to them. It sounds as though you're trying to keep moving and I admire you for that. I've had to relearn how to walk 5 times, starting when I was 9 years old because of severe knee disabilities. Every now and then as an adult the issues will pop up. For me it's hard because I'm so young and I have such physical jobs (I care for my sister and work with little kids). It's hard and takes a different length of time each time it happens. I hope you continue making progress, even if it's hard.
Did you like Saving Mr. Banks? I'd like to see it, but won't have time for a while.

MBRANSON's Photo MBRANSON Posts: 353
12/21/13 9:57 A

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I was out shopping all day yesterday, and then saw that new movie "Saving Mr. Banks". A wonderful day.

The sales people are so nice. A young salesman took me quickly to a chair and then went to obtain the items that I wanted to purchase. I am still working on looking like normal when I walk.

Are there others here that have lost the use of their legs and then had to work on recovery? How long before walking with a normal gait? How did you accomplish it? LOL, I'm probably just being vain and not accepting the infirmities of old age.

Edited by: MBRANSON at: 12/21/2013 (09:59)
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ANDILH Posts: 1,214
12/19/13 10:38 P

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Holidays can be very busy times for people. I know that I'm extremely busy in sort of hit or miss patterns. There are days when I don't have time to breathe practically, then others when I don't have anything going on. I'm always grateful for the break because then I can be productive at home.
I mailed a big box of presents to my brother, SIL, and nephew today. I probably would've only sent stuff for the baby but my mom decided she wanted to get them all presents. So, because my mom wanted it done I made it happen for her.
Today it was almost 40 degrees. After being in the negative degrees for so long, tonight it's about 25 degrees. It's almost like a heat wave. emoticon
Tomorrow I'm taking my sister and one of the kids I nanny for to see Frozen. I'm really looking forward to it. It's a nice way to start their winter break.

MISSCUS's Photo MISSCUS Posts: 3,970
12/18/13 2:50 P

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Hi everyone! I guess a lot of our teams members are getting busy with the upcoming Holidays. SparkPeople teams always slows down over the holidays, and weekends. Hope you all are doing well. The winter cold is upon us. I don't do well in cold weather. Snow befuddles me. I've only lived in it one winter. That was enough.

Had several hours of being awake during the wee hours. Got back to sleep about 6am, awake at 11:30am. SO stiff and sore. All I could think of was take a pain pill and wait for it to start working, then move some. I've been up an hour now and feeling a bit better.
Last night I did 30 step ups, maybe 2 min on backswing, and 11 min on treadmill. It was enough for me, I think because I waited til too late to exercise. I hadn't been on backswing in such a long time, and I know it's the one thing that will help the most. But since I'm not used to it, I can't stay on it for very long. BUT, gotta start somewhere. I figure if I do at least some exercise each day, then eventually I'll be able to do more.
The PTherapist asked if I had fibromyalgia. I said no, I have just lost too much muscle from the cholesterol lowering drugs and the muscle I do have can barely haul my own weight around.
It's funny, I have more issues on muscle pain and low strength right now than anything else.

DH is on the 8-:530pm shift for the week. I hate it. He's home at 7pm cause of evening traffic, and basically eats and then goes to bed at 8pm. Other weeks he starts at 6am and home by 5pm. So it's every other week. He hates it too.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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LORAS67's Photo LORAS67 Posts: 3,228
12/17/13 7:57 P

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I so understand I have a tens unit a small one I love it. It works some days but not some days.

I shoveled a little today we got about 3 inches over the weekend Jim used the snowblower and I shoveled Sunday was the worst we had over a foot. About an hour or so south they had over 5 feet.

I was a little sore but soaked in a tub of epson salt and felt better later on.

Whatever we expect with confidence becomes our self-fulfilling phophecy. - Brian Tracy


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MISSCUS's Photo MISSCUS Posts: 3,970
12/17/13 5:16 P

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WOW Andrea, plowing does sound like hard work!! Snow is lovely though. I hope you have an easy winter and less plowing to do. Plowing like that would make anyone get sore, but people like us get more sore. I know the things I won't do because of being cause of pain.

Got a phone message from my MD this morning, just stating that the xrays showed the DJD is here and there up and down my whole spine. I kind of already knew that, but I don't know which joints except the lumbar since I saw the xrays myself. I have an appt on the 31st to discuss. I did go to PTherapist yesterday. He asked me if I preferred backswing or traction, I said backswing. He agreed, He put a muscle stimulator on my back. He called it a TENS on steroids, and also laid on a hot pack for 15 min. I also did squats, bicycling, a lower leg vibrating machine which I loved, and then steps. Only a 4 inch step, at home I do 6 inch. After I did PT, went to walmart and walked 5000 steps. busy day. Did 120 step ups while watching tv.

I woke up at 1am with a very sore lower back. It was time for pain med, and I took Aleve too. Used heating pad. Man oh man did it ever hurt and was 3 hours before I got back to sleep UGH. Today my lower back hurts and so do the front of my thighs from squats n stepping. I'll do backswing and treadmill, but no stepping.

SO, PT recommends using backswing 2 to 3x a day. Geesh, I thought once a day. I've been told. I will try. I'm all for taking less medication, but I'm not too sure that even the backswing will be able to do anything for my cervical discs. I am optimistic though about low and thoracic back being helped. Sigh, it's hard to remain positive when in pain.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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ANDILH Posts: 1,214
12/16/13 4:43 P

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Thanks ladies. I'm doing better overall, but am definitely sore today from plowing 3 times over the weekend. We got about 10 inches of snow. We plow with a Polaris Ranger (think golf cart on steroids), and it can't handle too much all at once. Then unfortunately the winch that raises and lowers the plow blade kept freezing so it took 4 tries to get everything plowed. The jarring motion is hard on me, there is no power steering so my left arm hurts from steering, and my right arm hurts from having to use so much force on the gear shift. But the driveway/road (all 1200 feet of it) look amazing. We were able to get in and out today without any problems. Plus, the snow is beautiful.
Phyllis, I hope PT is helpful to you. It's always nice to be able to reverse some of the pain without having to completely rely on medications. Then it almost seems like more meaningful pain relief since it lasts longer than the length of the medication efficacy.

MISSCUS's Photo MISSCUS Posts: 3,970
12/14/13 9:30 P

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Andrea, I sure hope you are feeling better today. Last night, we went and bought a huge new tv. I am enjoying it today, but I am still very sore after walking through three stores looking for the tv I wanted to be in stock. Finally found it. While we were going from store to store I kept telling DH that I was hot and sweaty and just feeling like laying down. He finally told me I don't do enough to feel good. UGH!! Today, Overall I am doing much better, but looking forwrd to starting with PTherapist Monday, hopefully it's not too stressful. Getting back on backswing today. Hopefully I can reverse the low back joint issues like I did back in the nineties, (I told some of you all about that already).

Overall a good weekend so far. Watched a couple Netflix movies today, and some nature documentaries too. Enjoyable. I did stepping while watching YAY! Really, I could do more.,

DH bought me a red bigshirt tshirt today that says, "I'm not LAZY, I just don't need to do nothing." He came back with it after his early morning trip to Walmart for coffee and creamer. LOL. I'm beginning to fear he might have me figured out.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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LORAS67's Photo LORAS67 Posts: 3,228
12/12/13 7:18 P

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Andilh I am so glad it did not last any longer and you are feeling better.

Whatever we expect with confidence becomes our self-fulfilling phophecy. - Brian Tracy


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ANDILH Posts: 1,214
12/12/13 11:05 A

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I've been doing pretty well in terms of flare-ups lately, but this one was a doozy. Had the nerve pain continued I would probably have sought out some sort of treatment, but thankfully the nerve pain only lasted about 24 hours, unfortunately though I do still have some residual pain from that.
It does seem that whenever I go out of my way to plan something that might be fun there is some sort of flare-up. I try to go about my day and do what I can without causing more pain.
Not sleeping is hard. I'm still having a hard time with that sometimes. It does feel like such a waste of a day when you have to spend it sleeping or resting because you couldn't sleep the night(s) before. Hopefully you're able to get some relief soon.

MISSCUS's Photo MISSCUS Posts: 3,970
12/10/13 5:23 P

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Andrea, I hope you get the nerve pain under control, seems like when we do fun things or even go to the grocery store it causes flare ups.

Actually it's the last 3 vertebrae that are sitting on top of each other. I had a better night last night, but slept a while and then was awake from 2am until 8am. Slept in til 130pm. I don't feel like I had a day to enjoy. And nothing got done. I'm cooking pinto beans and cornbread for a simple dinner.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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ANDILH Posts: 1,214
12/10/13 4:35 P

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Ugh, just when I was starting to get the pain under control, the nerve pain started up. I'm getting zingers going from my left hip down to my knee every time I put any weight on my leg. I was going to get a massage, but she can't see me until Friday (when I work 7-7) or next week. I'm seriously hoping that this goes away soon because I have to walk.

ANDILH Posts: 1,214
12/10/13 11:43 A

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Phyllis, I'm sorry you're having so much trouble. It's been my experience too that many doctors seem to dislike informed patients who are able to adequately advocate for yourself (or a loved one). Sadly, it seems like there are many professions where being well-informed makes things harder to handle. I hope that you're able to get some relief.
I was sorry to read everyone's stories of pain struggles recently and was super grateful that I'd been doing so well. Until Saturday night when I took my 11 year old cousin and the 11 year old I nanny for to see Elf the Musical. Turns out the theater seats have something against my back and nothing has helped it yet. I'm still glad I took the kids to see the show, but I'm very bummed out by the lingering pain that has happened since.
I hope everyone is able to get some relief soon. I know the cold is hard on everyone.

MISSCUS's Photo MISSCUS Posts: 3,970
12/9/13 5:32 P

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Today I went to my MD for pain meds, to increase dose from every 8 hours to every 6 hours. She told me if this doesn't work out then I will have to be referred to pain management MD, This is upsetting because then I would have another MD to support on my limited income. To Pain Mgmt MD so I can go to a longer acting med. Namely a 12 hour long acting med. Personally, I think I would like that, as sleep interruptions due to pain is a nightly problem. BUT, I am kind of afraid of long acting pain meds. Call it the RN part of me. AND I really don't like taking a drug that doesn't wear off for such a long time.

She also was upset that I quoted pain knowledge re short acting meds, normal dosing schedules and quoting the American Chronic Pain Association recommendations, my RN PDR med book, and the necessity of treating pain aggressively (I learned that in RN school). I could tell she was frustrated as I was on a much faster path of discussion toward my request for every 6 hour med.

She was irritable that I hadn't went for xrays yet (she only gave me the xray rx 3 weeks ago), I told her I was going immediately after my appt with her. And I did. AND there I learned that my last two lower back vertebrae are basically sitting on top of one another, hence my right leg sciatica. Although I already knew it was that way, I still felt a bit sad, as I now know for sure that I am degenerating further.

SO, after it was all done, I stopped and bought a bottle of beer and a pack of cigarettes. I rarely smoke, usually NYEve, and maybe once in the spring. IDK why, I guess I was just a bit angry.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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MISSCUS's Photo MISSCUS Posts: 3,970
12/8/13 10:16 P

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Sciatica, I got it too. Aleve morning and night helps dull the pain. Vicodin helps my chronic back pain, without it my quality of life would go downhill real fast. It took 3 MD appts for ONE vicodin Rx, thanks to the FDAs orders to stop making the formula I take. Plus the price quadrupled.

Otherwise, it was a nice relaxing weekend. Didn't do internet, just did fun things.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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FORESTPAL's Photo FORESTPAL SparkPoints: (5,157)
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12/8/13 6:21 P

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The cold wet weather seems to be negatively affecting all of us. Reading your posts is the only time I feel lucky about my arthritis. Shame on me for not exercising more. I am doing fine on calories, even tho I've back slid on the 5-2 fast -- to one 500 cal "fast" a week instead of 2.

My good news is that I'm discovering the tropical fish aquarium. My 1st thing in the morning is coffee with gazing at the fishes antics instead of the negative TV news.

Let the good times increase as the weight shrinks.


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LORAS67's Photo LORAS67 Posts: 3,228
12/8/13 5:40 P

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Hoping you feel better soon. I have billing disk and the cold makes my back and nerve pain worse. My sciatica is worse.
Take care and keep me posted.
BTW I get abrasions to help with the pain

Whatever we expect with confidence becomes our self-fulfilling phophecy. - Brian Tracy


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PENGUINWMN's Photo PENGUINWMN SparkPoints: (1,064)
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12/8/13 12:43 A

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Today was another really bad day for the pain in my neck.

After a recent (finally) Nerve test and MRI results, I have 2 bulging discs and 2 cysts in my neck, as well as carpal tunnel in both hands/wrists, right hand worse.

My neck has been giving me a lot of more full throttle pain lately and today ended up being a vegging out in pain day, with Vicoden being my friend.

I had to change insurances, so I am being sent to a Pain Management Dr for the pain in my neck. ... not sure what to expect there!

It hurts to lift up my head. Sleeping is difficult, and there are NO good positions, since I already have a tear in my L-5 disc and deal with sciatica there too.

Just popped in ... Havent felt like typing, and exercising pretty much is out right now... its too cold and my sciatica is going full bore, my neck full bore and my hands ache... cold weather seems to make things only worse.

Will check back in when I am up to it, typing hurts too... grrrr..

BUT.. it IS going to be better.. trusting God on this one!!!




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ANDILH Posts: 1,214
12/6/13 10:50 A

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I'm very grateful today that the pain seems to be getting better. Except when I'm laying down, it's mostly controllable without meds. But for some reason if I try to sleep in my bed, inevitably I sleep about 4 hours then wake up requiring, usually just OTC, meds to get the pain levels down. But hopefully it'll just keep getting better. At this point it is other teeth that are more affected and hurt more, so I'm thinking it is a nerve thing more than anything else.
In more cheerful news I'm going to see Elf The Musical tomorrow night with my 11 year old cousin and one of the kids I nanny for. The music from it is fun, so I'm hoping the show will be good. Tickets were crazily expensive, but considering all tickets were really costly we're sitting in the right center of the theatre close enough to the stage that it'll be a lot of fun. I'm really looking forward to it.

MISSCUS's Photo MISSCUS Posts: 3,970
12/5/13 12:01 A

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Andrea, it also takes time for the nerves to settle down after all it is surgery. I ended up with ALL crowns and root canals, after a couple infections that traveled along the nerves and infected the nerves of other teeth. I had to have general anesthesia to have it done. 30 odd years later I just got dentures. It was inevitable after all the work I had done over the years. I'm thankful now and have adjusted to dentures well, they made me feel very old at first, but once I got used to them, I was fine. During the 30 years, I spent about 3,500 a year on dental work/repairs etc, my money out of pocket. Yep, 100,000+. I could have had more bridges made, 12,000. I wanted to be put out of my yearly misery and opted for dentures. That money would have bought me a nice house. I now wished I had of gotten dentures way way sooner.



Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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ANDILH Posts: 1,214
12/4/13 1:25 P

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Thanks Phyllis. I had another temporary one made on Monday that seems to be better, but my mouth still hurts. I couldn't imagine having to get 12 at once. I have 3 others, and this one has driven me crazy.
I am always amazed by how foods affect people differently. For example, I'm lactose intolerant, and rich things (gravy, some sauces, some fruits, etc) make my stomach hurt quickly and cause food poisoning like symptoms. I have migraines caused my caffeine, MSG, UV light (I'm allergic to UV light actually), but I'm completely unaffected by wheat/grains. I've very grateful to know what causes my symptoms though.

MISSCUS's Photo MISSCUS Posts: 3,970
12/3/13 10:18 P

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LEAL, I would be excited to be a donor, I'm excited for you!!! I have leaky gut too, and probably have celiac but I refuse to pay for testing. I don't do flour, grains, wheat, gluten anything. I did splurge on Tgiving and had pumpkin pie AND the crust. I had the diarrhea for 52 years. It was crippling, I got to the point I wouldn't go anywhere. DH made me buy adult diapers. I used them a few times. Then I stopped grain etc, and for the first time (a year now) in my life I don't have the d all day long everyday and can come and go without worrry.
Oh, and I did go through a type of withdrawals similar to stopping taking addictive drugs all of a sudden. Grain esp wheat acts like opiates in the brain. So, withdrawals. And I had headaches. My son stopped his family on grains too. Gluten is not a good thing. There is a book called Wheat Belly by Dr Davis that really explains it well. Son and I got a copy. His wife had chronic migraines, but not since stopping grain and wheat. Go figure.
My leaky gut symptoms have gotten milder, some days no issues.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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MISSCUS's Photo MISSCUS Posts: 3,970
12/3/13 8:31 P

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ANDILH, Your crown is too "high", it gets hit by the opposing teeth and the pressure causes a LOT of pain. Which was relieved when you took the crown off. I have lots of experience with crowns after knocking out 12 teeth 30 some odd years ago. SO SORRY cause I know how bad tht hurts!

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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ANDILH Posts: 1,214
12/1/13 4:47 P

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Leal I'm sorry you're going through this. We tried the keto diet with my sister to help control seizures and it was a nightmare to manage. I hope this helps you though. My aunt was diagnosed with type 2 diabetes in the spring and she completely changed her diet and not has she lost a lot of weight (like 80 lbs so far!), but her cravings did go away. While she still likes all the things that are bad, she doesn't crave them the way she used to and she doesn't even really want them most of the time. So I guess it does go away.
My crown was loose and causing serious pain. Finally Friday I just took it off and felt immediate relief. I'm wondering if I should bother having them put the temporary one back on or just leave it off until the permanent one is ready. Although the current temporary one was supposed to be a permanent one, it wasn't right and didn't fit well enough to be permanent. I go back to the dentist tomorrow after they were completely unhelpful on Friday...what kind of clinical office doesn't have someone to refer to on the weekends or during emergencies?

LORAS67's Photo LORAS67 Posts: 3,228
11/28/13 4:19 P

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Leal good luck you are in my thoughts.
Keep in touch with me as much as can. You are a rock!

Happy thanksgiving to everyone (Lions won! Jim is in a great mood now, he is always great but this is awesome).

Whatever we expect with confidence becomes our self-fulfilling phophecy. - Brian Tracy


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11/27/13 1:44 P

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Andrea - I feel your pain - both in the mouth and with family. I am the next to the youngest of 6. Neither of my brothers would EVER call to say they were coming to visit me. That being said, my mom and I don't live together either!

My back has had a set back. I went to my PCP yesterday - he is very concerned that it is so bad and none of the other doctors are "doing" anything about it. I see a dietitian today and on Friday I see a rehab dr - he will probably tell me the same thing everyone else has - lose weight. I have also been seeing a nutritional therapist - testing shows that I have a slow liver and possibly leaky gut syndrome. I am now cutting out all processed foods, grains, soy (which is in EVERYTHING), sugar and dairy. Pretty much going Paleo. Wish me luck on that but she tells me that my cravings should go away in a few weeks.

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ANDILH Posts: 1,214
11/27/13 11:02 A

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The weather is slightly better...it's still only about 30, but since the wind isn't blowing it doesn't feel as cold.
Yesterday wasn't a good day. I went to get my permanent crown placed, and it turns out that not only did the crown not fit, but they had to cut part of my gums around several teeth to take a better impression. The gums thing is a family trait, my mom and aunt both have it done, but I'd never experienced it. It didn't hurt while she did it, but ever since my mouth hurts. It should mean that I lose some weight though since eating isn't a pleasant experience right now.
My brother and his wife are making noises about coming to stay with my mom and I in January ("Oh, we'll be there for Andrea's birthday"). Yeah, a better present to me would be if they stayed in FL for my birthday. I know that sounds mean, but I just don't want to deal with them. However, because I've said they can't bring their dogs, I'm hoping that they won't actually come.

LEAL536's Photo LEAL536 SparkPoints: (3,108)
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11/25/13 3:37 P

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Misscus: I have filled out paperwork (via internet) for the patient's doctor to review. Now I am in a waiting game to see if I will qualify as a donor. I am excited to be even considered as I have been on the list as a donor for several years.

I also made stew the other day. Loaded it up on turmeric (said to help control inflammation and pain). Yummy. I don't have a husband to steal all the goodies!! Wish I did but that is another story. I did not make biscuits though. I am trying to cut out processed food which means I am trying to cut out breads/pastas. I will miss them but my gut will thank me eventually - hah!

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MISSCUS's Photo MISSCUS Posts: 3,970
11/25/13 2:50 P

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LEAL, a bone marrow donor is mostly easy. you lay down, it's usually taken from the hip, Can be taken from the leg bone below the knee, but usually the hip. You can ask for a anti anxiety drug before to help you relax(I would). They inject a anesthetic into the skin as they make a small length cut. They use a large needle to aspirate (suck out) the bone marrow liquid that's inside your bone. THe hardest part is when they push the needle through the outer layer of bone to get to the marrow. I've assisted with it. The donor does quite okay. They always say it's the pushing the needle in that's the hardest part. You'll have a little stitch, maybe two, for the little short cut through the skin so the needle can pass through.
WHAT A GIFT YOU ARE GIVING!! To someone in need. Try to think of that while they are doing the procedure. I used to tell the donor a story of a person getting the transplant and how much they are helping a person in need to have somewhat of a normal life.

WOW, I have been a very lazy slug woman. I've spent most of my time these past 7 or 8 days in bed just doing nothing but tv and sleep and reading books. DH comes in and visits me off and on and I get up just to go see what he's up to, then right back in bed. It's been cold, I won't say how cold because you'll all just laugh at me LOL AZ is cold when it gets under 60. I love it when it's 80 or so. Today I forced myself to get up out of bed. My usual goal is to be out of bed for 12 to 14 hours each day. I didn't do too good lately.

I dressed warm and turned the heat on for a while. I'm going to spend some time sparking, and take Paco out for a walk. I am making slow cooker beef stew too. I cooked 16 huge biscuits early Saturday night hopefully to have them with stew. BUT DH ate most of them already. I had only 4. WOW, he ate 12 biscuits. I had to laugh because he told me "I spaced them out".


Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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ANDILH Posts: 1,214
11/24/13 10:29 P

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Ugh...I hate the dentist. My mouth still hurts from getting the prep work for a crown 3 weeks ago. I'm having the real crown put on Tuesday morning. Hopefully that helps in lessening the pain.
It has been so cold here lately. It was 15 degrees when I got home last night. Today I was lucky enough to be able to stay inside except for putting timers on my lights on the front porch and calling the dogs in. I don't think I would've liked being outside. Yesterday was extremely cold and windy, and of course I was out running errands in it. Oh well. Here comes winter.

LEAL536's Photo LEAL536 SparkPoints: (3,108)
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11/21/13 3:13 P

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I started my day out with a visit to the dentist - Many places I would rather go!! It was just a normal 6 month check up and cleaning. All is well with my mouth - except I put too much in it! I just received a notice that I may be a match for a bone marrow transplant - anyone know what is involved? What a chance to help perhaps save someone from a dread disease.

MBranson - take each day at a time for sure. Some times, it is one moment at a time. My dr told me to work thru the pain. That generally means I take each moment at a time and celebrate my successes. Seize the day!!

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11/21/13 9:25 A

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It's 6 AM now. I am just going to take a minute to write before I start my day. Today I'm going to do as much as possible with what I have.
There have been times when I waited for my care giver to come and move my arms as they were stuck in a fixed position and I couldn't move them at all.
I am going to play the piano, drive to the market and mall, I'm going to think up as many mundane tasks as I can, and do a little of each.
I'm not going to think about tomorrow, today is my day.

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ANDILH Posts: 1,214
11/20/13 4:48 P

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We've been having absolutely crazy weather here lately. There were actually tornadoes here Sunday and Monday. Thankfully we didn't even lose power, but a couple houses around me had trees fall on them, so there have been a lot of people without power here lately.

LEAL536's Photo LEAL536 SparkPoints: (3,108)
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11/18/13 8:34 P

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Misscus: I worked for the government for several years (long ago) and lived in S Cal, N Cal, WA, Nebraska, New Mexico and Arizona. One of the things I had to teach myself was to bloom where I was planted emoticon . Sometimes I was able to choose where I went but other times it was at the whim of the big guys! One of the places I disliked the most was Nebraska (no offense to those from that state! - I did meet my husband there!). That being said, I learned to like it a bit but was happy to leave for New Mexico! What a change. Anyway, my point is that even though you are now kind of stuck in Arizona, find the things that make that area unique and that may help you get over your disappointment. I am happy to have lived several places and know where I would not want to retire myself. Having lived in Arizona, I would not retire there. I would prefer Hawaii - have been there 3 times and truly enjoyed my trips but I find that the hot and humid or in the case of Arizona - hot and dry are too hot for me. Being from the Pacific NW (Washington state) I like the cooler more temperate climate - can get the hot and dry during the summer in Eastern Washington and the humid in Western Washington!

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MISSCUS's Photo MISSCUS Posts: 3,970
11/18/13 10:14 A

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Marty!! I'm jealous!! I love So Cal. I lived in the Hermosa, Manhattan, Redondo Beach cities nearly my whole life. And Arizona is SUCH disappointment to me. But I cannot afford to move back to So Cal since I retired here. Oh well....at least I can still visit my son there, he lives in Torrance, by Redondo.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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LORAS67's Photo LORAS67 Posts: 3,228
11/16/13 10:17 P

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We live in northern NY it was nice today snow gone and we got the chimneys cleaned lol

Whatever we expect with confidence becomes our self-fulfilling phophecy. - Brian Tracy


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MBRANSON's Photo MBRANSON Posts: 353
11/16/13 11:00 A

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I live in Southern California, less than five miles from the beach. The weather is always perfect. Our home will be decorated with lights next week, all white this year. It will help get us in the Xmas spirit.

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ANDILH Posts: 1,214
11/14/13 5:06 P

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I live in Michigan. Today it's about 50. I just don't understand the weather. We literally had snow two days ago and now today it's super windy and warmer. I do like the changes of seasons though, so mostly it's okay.
I'm happy for you that you were able to find something that will work for you to work out with. Anything helps and once you get started you'll start finding more and more that you're able to do. Just don't push it too hard and hurt yourself. Then you start out back at zero (or sometimes even worse than you were before you started).


LEAL536's Photo LEAL536 SparkPoints: (3,108)
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11/13/13 5:03 P

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Oh my - where do you live Andilh? I am not looking forward to the cold here in Western Washington. I know it is coming but oh I don't like the cold.
I was finally able to put socks on for the first time in 3 months. Had a pretty good day yesterday but today was a bit of a trial getting up and out for PT and chiro. My chiropractor puts me on the "rack" - a spinal decompression machine. Monday it was so painful that I cried but today, hardly any pain involved until I had to get off the table. Going from non-weight bearing to weight bearing is really difficult due to the pain.
In an earlier post, I mentioned that I had ordered a chair exerciser with bands. It came in on Monday and is very sturdy, capable of handling up to 400 pounds. It has bands at the shoulder level as well as from the floor level. The bands are changeable with stronger bands as strength permits. It also has a (I think) 4 inch step that attaches to the front or back for step exercise and a place to put your hands for stability. I will work up to that as my pain and balance become more and more stable. In all, I am very pleased with my purchase and will be saving my money to get the bicycle attachment and possibly the overhead band attachment. It feels good to be able to sit and watch TV while I get some exercise in. I will also be able to do most if not all of the seated (chair) exercises from Spark.

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ANDILH Posts: 1,214
11/13/13 2:16 P

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I'm glad you're feeling better. It's always hard to get back into the swing of things, but it sounds like you're on your way and happy to be there.
I'm probably facing a fusion in my future, no matter how hard I work so it's inspirational to see someone who is really making the best of it and trying to move on.
I'm still trying to deal with the aftermath of dental work and the change in weather. It's been about 30 here lately after being in the 50s and 60s for several weeks. I don't mind cold weather once it's here, but the back and forth is really hard on me.

MBRANSON's Photo MBRANSON Posts: 353
11/13/13 11:07 A

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I'm just so happy that I can wipe myself after using the toilet. With the hardware and spinal fusion there is not a lot of flexibility. I can stand up to take a shower. I can put on socks and tie my shoes, albeit it's a real workout. I have so many things to be thankful for. LOL, I do not have to find time to work exercise into my day, as everything I do is exercise. I am so grateful I can take care of myself and my home.

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LORAS67's Photo LORAS67 Posts: 3,228
11/11/13 5:19 P

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That sounds great Leal. Let me know how it works.

Whatever we expect with confidence becomes our self-fulfilling phophecy. - Brian Tracy


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LEAL536's Photo LEAL536 SparkPoints: (3,108)
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11/10/13 1:34 P

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Congratulations LoraC67. I am working towards 222.8 emoticon . It will be a while though. Tuesday I will receive an exercise apparatus. I cannot remember the actual name but it is a chair with a step, resistance bands and work out DVD. I will in a couple of months order the bike attachment. Since I am unable to exercise standing up, I thought this would be a good fit.

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LORAS67's Photo LORAS67 Posts: 3,228
11/10/13 12:59 P

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I am 122.8 today!!
I did some Pilates today it was great. I was on the inversion table yesterday and hauled a little wood up and did some housework.
Taking daughter to Thor today for part of her birthday.

Edited by: LORAS67 at: 11/10/2013 (13:00)
Whatever we expect with confidence becomes our self-fulfilling phophecy. - Brian Tracy


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LEAL536's Photo LEAL536 SparkPoints: (3,108)
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11/9/13 1:57 A

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Just got my tens unit today. Have not used it yet as the pain has been tolerable today. Let's see what the weekend brings on!

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LORAS67's Photo LORAS67 Posts: 3,228
11/8/13 9:06 P

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I have a TENS unit also, you can get them through physical therapy. I have been doing acupuncture my insurance covers it. Massage helps that is straight out of pocket. I am trying to get into physical therapy and find one that offers massage.
I am taking cymbalta and it really helps me. Well the pain is up but I went on it last spring and I went all summer without any real pain. (I had the mild stuff here and there but no huge discomfort).

Whatever we expect with confidence becomes our self-fulfilling phophecy. - Brian Tracy


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ANDILH Posts: 1,214
11/7/13 5:12 P

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LEAL,
I have used a TENS unit and it does provide me with some relief. Honestly though the unit is more helpful for my knees and shoulders than my back, but it does provide some help. I only paid about $75 for mine I think. It's definitely not a top of the line model, but it does what it's supposed to do. I've had prior experience with a TENS though, so I know that this cheaper one works well enough for me.
I had very good luck with acupuncture and massage, but those do add up after a while. Because my original problem was herniated discs that pinched a nerve, that was what I was originally treating. Now I have more herniated discs and some other issues and I still get a massage every other month or so. I always feel incredibly beat up afterwards, but after a few days I start to feel better. Has anyone talked to you about Cymbalta? It's an antidepressant with pain relieving qualities. Had I not started to get relief from Pilates I would have been put on this. I worked for a psychiatrist for a long time and she used this pretty commonly with patients who experienced physical pain in addition to everything else.
I think my best advice is to just keep trying things to see what will work. In the same way that our back pain is all so different, the relief we'll experience from different things is going to be very different. Right now I can tell before the day is out if I don't do my Pilates workout at home. It's amazing how much worse I feel without it, but someone I know with herniated discs doesn't have that same relief from the work out.
Have you looked into the website healthboards.com? There are a million different groups and topics and probably thousands of people who will answer your questions based solely on their personal experiences. When my pain was at its worst I got a lot of help from this site.
I wish you luck and hope you find something that works at least a little bit for you.

My mouth still hurts enough that I can't lay down without it beginning to throb, so I've been sleeping in my chair. At least my back isn't too much worse for the wear since I sometimes have to sleep in my chair to relieve back pain. I'm already pretty used to it. Today's Pilates session was done standing up which was a new experience for me, but still a beneficial workout.

LEAL536's Photo LEAL536 SparkPoints: (3,108)
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11/7/13 2:04 P

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Has anyone used a tens unit for their back pain? My doctor has prescribed one, insurance does not cover it so I am looking for advice before I purchase one on my own. Still searching for pain management. I told my doctor how the physiatrist treated me so he is searching for another one - preferably with the Virginia Mason Clinic in Seattle. It is a long way to drive for an appointment and traffic I DO NOT want to have to deal with but I trust them to be honest with me and give sound advise. I am also seeking herbal treatments and now using turmeric (when I remember - which does not help much but I will get into the habit) and drinking more herbal teas. My doctor also suggested bariatric surgery - thankfully my insurance does not cover this so will need to get with the program and lose weight. It is hard though when I cannot walk well and have so much pain. I am going to try to cut out a few things. I have been reading a lot about how gluten affects our weight retention and will try to cut out all gluten for 2 weeks to see if that has any affect on both my weight and pain.

Lora67, take care of yourself.

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LORAS67's Photo LORAS67 Posts: 3,228
11/7/13 12:19 P

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MISSC thank you I did not know. I have not been in much posting I am trying to get better again. Just been tired and achy.

ANDILH so sorry about your tooth. I hate going to the dentist. I have no excuse but have not been in ages. Hope you are feeling better now.

Whatever we expect with confidence becomes our self-fulfilling phophecy. - Brian Tracy


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ANDILH Posts: 1,214
11/5/13 8:06 P

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My dogs are pretty spoiled. I have a 20 lb shih tzu (although I think she's mixed with something else) and a 90 lb lab/shepherd mix. They box sleep with me every night and I make them food pretty frequently.
I've had kind of a crummy day. I lost a filling on Sunday and it turns out that when it happened my tooth was also broken so today I had to get the preparation done for a crown. For some reason I am super sensitive to any work done in my mouth and today I've had to take pain relievers every 4 hours, and ice my jaw several times. My face is still swollen and it's been 9 hours since I left the dentist. I'm so not happy about this whole situation.

MISSCUS's Photo MISSCUS Posts: 3,970
11/5/13 12:14 A

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LORAC, thank you for the compliment on my cute puppy picture. I love that picture. Paco is the most innocent sweet dog I've ever had. He doesn't even know how to bite hard. He's all grown up now, but still quite cute.
Oh, and I wanted to say, I noticed you have barely a few more sparkpoints than fitness minutes!!! That's awesome!! It was always my goal to have more fitness minutes, but that hasn't happened, yet.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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MISSCUS's Photo MISSCUS Posts: 3,970
11/5/13 12:11 A

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LEAL, I sure hope there's something that will help you with your pain. I've never had the injections that ANDILH speaks of, so I can't say. My problem with injections is I have so many areas that would need it (DDD)
Yeah, unfortunately excess weight can cause back pain and make it worse too. I have only lost weight when I did walking for 1.5 hours every single day. Less than that and I didn't lose an ounce. YouTube has chair exercises. They'd be good for learning the moves if you don't have the room to do them where your computer is (I don't have room) So I go in the living room and do what I saw on the YT videos.
Also, I can truly relate to your morning pain. Mine is horrible and I can barely move, much less get into the bathroom, but by necessity I have to do it. I honestly thought about getting a bedside commode (it's the RN in me) . I feel like I am 110 y.o. in the mornings.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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MISSCUS's Photo MISSCUS Posts: 3,970
11/5/13 12:04 A

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ANDILH, I went to my far back yard, and the neighbor behind me was sitting in his back yard. We talked. He said since he bought and moved in 4 months ago, his next door neighbor's dog is left in yard all day all night and then he said the people have never been outside nor played with the dog even once. Very sad for the poor dog, probably so lonely and miserable depressed. I think I'd bark all the time too from insanity. I don't know what can be done about this. Also, it freezes here in winter, and can get as high as 126 in the summers. Arizona.

I know one thing. My Paco is very well treated and very much a part of my family. I even put him in bed with me when he lets me know he wants to be with me. I guess you could say I pay attention when he lets me know he has needs. Plus I bug him when I get bored. LOL.

Phyllis
It turns out that an eerie type of chaos can lurk just behind a facade of order - and yet, deep inside the chaos lurks an even eerier type of order.


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