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CATSDONTPRAY's Photo CATSDONTPRAY SparkPoints: (14,223)
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8/9/11 10:26 A

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I was 5.4 at my last lab, so I think they're going to switch me to just 5mg now. I wonder if we'll spend the whole 6 months trying to get this leveled out!

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BECOMINGDEB's Photo BECOMINGDEB Posts: 4,274
8/9/11 1:39 A

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Cats, I'm kind of in the same boat. I take 7.5 mg on M, W, & F and 5 the rest of the time. My last INR was a month ago and it was 2.9 at that time. I went today, and it was 2.1. Hopefully it stays within the 2-3 range.

"It is never too late to be what you might have been." -George Eliot



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8/2/11 9:04 P

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I was 2.6 at my labs on Monday. I'm supposed to alternate between 7.5 and 5 mg of Coumadin. I have the days written down, which is good, because it's a confusing pattern! Labs again in 2 weeks.

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CATSDONTPRAY's Photo CATSDONTPRAY SparkPoints: (14,223)
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7/29/11 1:05 P

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They didn't tell me an actual number, but they did say "too thin." I'm supposed to not take it for 2 days, take it Sunday, have labs Monday and then see where we're at.

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CATSDONTPRAY's Photo CATSDONTPRAY SparkPoints: (14,223)
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7/26/11 4:23 A

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2.4 at my first check. And that's with missing a day due to pharmacy error. I have another check on Thursday and I imagine my doctor will lower my dose after it. What am I going to do with all these 7.5s if he does???

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BECOMINGDEB's Photo BECOMINGDEB Posts: 4,274
5/31/11 4:04 P

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My last 2 INRs were still out of range (a little low). Hopefully I can get and stay in range! I may only be on blood thinners for another month to two months (except when I'm pregnant).

"It is never too late to be what you might have been." -George Eliot



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5/4/11 5:31 P

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My most recent INR was 1.8. I had missed my dose the night before the test. So I get to go back in 10 days, as they're still trying to see if this dose is right for me.

"It is never too late to be what you might have been." -George Eliot



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3/7/11 8:56 P

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My INR was 2.5 today. I'm still new to starting Warfarin again, so they're trying to find out what dose will keep me in range. I hope that happens soon! I'd like to only have to get checked once a month!

"It is never too late to be what you might have been." -George Eliot



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3/6/11 3:03 P

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My husband was just put on Pradaxa after having being on warfarin with his INR just all over the place. When he broke his ankle, they took it at the ER and it was 5.9. After being 2.7 just a few days before.

Anyway, on Pradaxa he doesn't have to test anymore!! Don't know how it works, but he is thrilled and so am I.

Nell
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SERENEMOM71 SparkPoints: (40,664)
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3/6/11 2:27 P

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On Friday I was in a car wreck, so I ended up in the ER, and my INR was 2.6, which it has been that for 3 weeks. emoticon I hope that you get into range soon, too, Debrapants!

Edited by: SERENEMOM71 at: 3/6/2011 (14:30)
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BECOMINGDEB's Photo BECOMINGDEB Posts: 4,274
3/5/11 9:01 P

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My INR on Friday was 3.7. I hope it gets and stays in range soon.

"It is never too late to be what you might have been." -George Eliot



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3/3/11 10:55 P

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I just started on Warfarin again on Thursday and have been working to get my INR results in range. They've had me go get my blood drawn every weekday since Thursday and have adjusted my dosage accordingly. The last time I was on Warfarin years ago I had to have my blood drawn each time the levels were checked, so I'm looking forward to only having to have my finger pricked (I had to have my blood drawn now because of the Lovenox I was taking, but I got the okay to stop taking the Lovenox now after having my INR result in range yesterday and a little high today). And I'm not yet sure if I'll have to be on it permanently or just for the next 6 months.

"It is never too late to be what you might have been." -George Eliot



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2/18/11 3:44 P

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Has anyone yet been prescribed Pradaxa? It's a new, very expensive alternative to warfarin, but doesn't need the regular testing. It's been in use in Europe for 6 years with good results, but the FDA has only approved it for one diagnosis here. Seems the warfarin testing lobby doesn't want to lose the business.

Nell
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TASHANCARRION's Photo TASHANCARRION SparkPoints: (6,984)
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1/26/11 3:34 P

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MY LEVELS WERE AT 1.5 HAVE TO BE BETWEEN 2-3. I WAS ON A REGIMINE OF 2.5MG ON MON AND FRI AND 3MG THE OTHER DAYS, NOW THE DR WANTS ME TO TAKE 3MG EVERYDAY, IN 2 WEEKS I GO BACK TO TEST AGAIN.

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BECOMINGDEB's Photo BECOMINGDEB Posts: 4,274
1/14/11 4:47 P

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Being pregnant, I'm supposed to be in the .7 - 1.0 range, I was recently told. My most recent test had me around .9. I only had to reduce my blood thinner once so far in this whole pregnancy, and that was discovered after I had a really bad bloody nose that didn't stop for well over 5 minutes (luckily, it finally did).

"It is never too late to be what you might have been." -George Eliot



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1/8/11 2:16 P

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my relsults 5.1 in morning in went over to other hospital stroe paitint as I was feeling numb 4.2 how posible to different results one hour diffrence

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9/19/10 11:33 A

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wow, people are so different.
Makes me curious!
My ideal number is between 2 - 3.
I'm glad you were in your range!


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9/16/10 2:50 P

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hi I am back way home took 3 hrs lots of traffic longer then appointment itself was ok INR 3.7

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9/15/10 10:11 A

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hi i am newleader of to hospial to have inr done now

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9/9/10 1:23 P

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Thanks for the help. My number yesterday was 2.3, which is where I was supposed to be - (between 2 & 3). The women at the coumadin clinic are so helpful. I can call them any time during the week and they are always cheerful and enthusiastic about answering my questions.
I've been tracking my Vitamin K so that I can be at 100 mcg every day. This seems to have worked. I don't have to go for another test until Oct. 6. yay

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9/9/10 1:10 A

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Hang in there. You will eventually learn what you can and can not do as well as what affects the blood levels. I have been on Coumadin long term and have the advantage of having a medical background. It is really great the you ask the questions and are working at the learning process.

Eileen

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Try to be all that you can be. Work at it a day at a time.

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9/8/10 2:20 P

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WOW, so much to learn. . oh my gosh, my blood tests at the hospital are like. . 200 dollars! My insurance pays most of that.
I didn't know being sick would affect the INR. I have a lot to learn.
Thanks for the list.

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MAGNOLIA416's Photo MAGNOLIA416 Posts: 4,314
9/7/10 9:35 P

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Holy smokes, $40 for each INR test! I live in Canada with universal health care and am not aware of how much things like that cost.

Another thing to be mindful of is if you get the flu or stomach bug etc, if you suddenly stop eating and/or start throwing up for a couple days, that will seriously affect your INR. Sounds reasonable right? I should have known that, but the first time I got the flu after being on prednisone, I was so preoccupied with being sick that I forgot about the "consistency" and my INR skyrocketed to 13! My target is 3 to 3.5. I started getting nosebleeds and didn't know why, but it was because my blood was so very thin.

My nurse recommends that I drink a cup of carrot juice if my blood gets way too thin from not eating much.

Here's a list of high-K foods: www.ptinr.com/docs/Vit_K_registry.pd
f


Edited by: MAGNOLIA416 at: 9/7/2010 (21:42)
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9/7/10 8:38 P

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You will get more comfortable with your blood levels as you progress with them. I have been on Coumadin for 6 yrs. and it is life long. I too,(& I am a RN) was very cautious and leary of eating anything that upset the balance. A friend has been o it much longer than I and told me my comfort level would relax as I learned what & how much I could eat. I can also feel a change in my body when my INR gets too low or high. I have had to stop it for dental work and restart. I do okay myself. The one time I did have some major problems was when I had a bad bladder infection & was put on massive doses of antibiotics. My INR went from 3 to 8.7 in 3 days and when stopping the coumadin would drop to 1+ in 24 hrs. It took a yr. to get regulated again. I avoid Cipro like the plague. Just finished a round of Clindamycin and the INR is fine. So, yes you will have times you need frequent blood tests & times when you are long term stable. I am going to look into a home INR machine so that I can watch it without having to pay $40.00 for testing at the clinic. My insurance will pay so this is my next step. I wish you the best in getting stabilized & feeling more comfortable with levels.

emoticon emoticon emoticon emoticon

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
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9/7/10 1:55 P

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oh that "consistency" is quite a challenge.

I'm going to go the easy way and not add anything to my diet. It's way too expensive going to the lab once a week. I don't take a daily supplement due to the Vitamin K. Now that I have my level kinda figured out, I'm hoping to not have to go for another test until October. Tomorrow is my next blood test. - the first this month. I'm really hoping I'm within my range.

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MAGNOLIA416's Photo MAGNOLIA416 Posts: 4,314
9/7/10 8:28 A

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I think it's ok to add something like that with a direct impact if you get your INR tested a couple weeks in a row so you can get your dose adjusted to that. And more importantly, to eat the same amount of flax EVERY day.

An example I heard is some patients don't eat much fresh food so their warfarin dose is tweaked to suit that, but then if they all of a sudden eat at a salad bar, that's too much of a spike in vitamin K. Consistency! I struggle with that too. I'm vegan and like to eat vegetables, but when I get busy sometimes I just eat peanut butter sandwiches and don't make time to get a salad in.

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9/6/10 11:01 P

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Good research on the flaxseeds. You can use them, but you need to follow your INR more closely until you know how the intake of the flaxseed affects you personally. Example, I take warfrin as well as ASA, VitE. Omega-3 & ibuprofen. With all these that are known blood thiners, I stay about 3.5-3.6 My Dr. is aware of the supplements etc. I use and as long as we can keep a level appropriate for my needs, it is ok. I do watch what I eat but don't overdo on foods with Vit. K. Do you take a multi-vitamin? There is VitK. in every multivit I have found. I used to get one without but the formula on that was also changed to include Vit.K so it's drugs/meds & foods to watch. The spinich(thickener) can offset the flaxseeds (thinner).

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

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9/6/10 1:04 P

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When I first started on SP I was eating all green veggies all the time, even for breakfast. . (my favorite breakfast was my 2 cup spinach omelet with 3 egg whites & some asiago cheese)

When I started on Coumadin in May, I started gaining back the weight because I had relied on all greens all the time to get me through every urge, every craving.
Being CONSISTENT was unfamiliar territory in my FOOD consumption plan.
NOW, I've decided since this is obviously a life long thing, I'd better "woman up" and take charge.
SO I research before I eat, or just have my 2 cups of cabbage every day.

TODAY I was going to make a strawberry-banana smoothie with fresh ground flax seed, wheat germ, and fresh ground whole oats.
CURIOSITY about the iomega - 3 in flax seed caused me to check the safety of eating flax seed while taking Coumadin.

This paragraph is from an article from a service of the U.S. National Library of Medicine, National Institutes of Health (www.nim.nih.gov)
;;;;;;;;;;;;;;;;;; Flaxseed and flaxseed oil theoretically may increase the risk of bleeding, and caution should be used when flaxseed products are taken with drugs that increase the risk of bleeding. Some examples include aspirin, anticoagulants ("blood thinners") such as warfarin (Coumadin ® ) or heparin, anti-platelet drugs such as clopidogrel (Plavix ® ), and non-steroidal anti-inflammatory drugs such as ibuprofen (Motrin ® , Advil ® ) or naproxen (Naprosyn ® , Aleve ®).

Flaxseed may also interact with muscle relaxants (such as metaxalone), drugs used for acid reflex (proton pump inhibitors such as lansoprazole), or prostaglandins (such as Iloprost or treprostinil).

NOTE: THIS is research for my OWN benefit - in no way am I giving medical advice.
I have 2 jars of flax seed in my fridge. I am going stop using fresh ground flax seed in my smoothies.

Edited by: MARSHASTAR at: 9/6/2010 (13:05)
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9/6/10 12:27 P

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I've only been on coumadin for about 3 months.
This is just scary for me all the time.
My numbers are supposed to be between 2 and 3.
I've been exercising A LOT since my last test 3 weeks ago, so tomorrow is my test day and I'm wondering how well I've done. My Vitamin K goal is 100 - 110 mcg a day, so I research everything. Yesterday I found out that those 5 basil leaves I put on my tomatoes were 10 mcg. I'm sure glad I checked before I ate them, so I could adjust my other Vit. K food amounts.

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9/3/10 11:11 P

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I had a 2nd oral surgery done. Normally run a 3.6 INR but the DDS wouldn't do anything unless below 2. That level kind of scares me but I got it down quickly to 1.6. Working to get it back to 3.5 or there abouts. It ususally comes back quickly and as previously said, exercise & what you eat really does make a difference.

Eileen

Slow & steady makes a winner of us. Even if we hit pitfalls, get up. Know that a new day is right around the corner.
Try to be all that you can be. Work at it a day at a time.

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MAGNOLIA416's Photo MAGNOLIA416 Posts: 4,314
9/3/10 9:10 A

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Maybe in the US you use a different measurement?

For mine, too much Vitamin K/green veg means a lower number and thicker blood.

Yes, consistency is key! Try to eat about the same amount of vitamin K throughout the week. I seem to see a correlation with sudden bursts of a lot of exercise with a higher INR too. So again, consistency is key! Easier said than done though.

If you don't like the road you're walking, start paving another one!

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9/3/10 7:51 A

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this week was 1.9

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9/3/10 7:49 A

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i notice when i dont eat vegtables every time same amount or none at all get to low or when i eat greens get to high

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7/31/10 9:35 A

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For the way I'm tested, my result is lower when I eat too many greens, and I have to take a higher dose of warfarin in the summers. hm!

I think when I exercise a lot my result tends to be higher (blood too thin). Anyone else notice that?

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DKOMADIN's Photo DKOMADIN Posts: 628
7/30/10 4:38 P

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3.5 today, lowering dose and retesting in 2 weeks. I have been eating more fruit than salads and green vegetables which may account for the higher INR.

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7/30/10 11:33 A

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My thrombosis nurse talks about "summer dose" because a lot of us eat more veg in the summer and that affects the INR, as you know. Balance is key, but so hard to find! Some days I eat loads of fruit and veg and other days if I'm busy I just grab a bagel or peanut butter and jam sandwich.

If you don't like the road you're walking, start paving another one!

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7/24/10 1:12 P

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Mine was 1.5 last month and 3.5 2 weeks ago. Retesting Friday. Must be more consistant with my intake of greens. Didn't realize that tomatoes are high in Vitamin K. I have been eating tons of them. Hard to diet when told to limit all these foods that are good for you. Need to find a good balance.




emoticon

Edited by: DKOMADIN at: 7/24/2010 (13:13)
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7/23/10 11:09 A

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I'm supposed to stay between 2 - 3.
I was so successful during the last 2 weeks I don't have to go back for another blood test until Aug. 5 (that's two weeks), so hopefully I can be consistent enough to start going just once a month.

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4/21/10 10:22 P

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4.0 told not to take my meds for 2 days and I have to go back on Monday.

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HEALTHYDIANAMB's Photo HEALTHYDIANAMB Posts: 802
4/21/10 12:07 A

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I just had my Inr(protime) and it's 2.93,last week it was 2.65. I'ts in range,but I wish it would stay consistant. Three weeks ago it was 4.7. I wonder if I am gonna stay consistant some day soon? Diana emoticon

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DKOMADIN's Photo DKOMADIN Posts: 628
2/9/10 2:08 P

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I too eat lots of leafy green vegetables. I will not give up my collards, spinach, cabbage, lettuce. I am currently taking 15 mg of warfarin 5 days a week and 12 mg on Mon and Wed. My dosage has remained pretty consistent as long as my diet remains the same.

I will have to look into the Antiphospholipid Syndrome. I am positive for Factor V Leiden, an hereditary blood clotting disorder. Have had two clots and one pulmonary embolism. Will be on coumadin for life. Not complaining, there are a lot of people worse off.

Thanks for the info. emoticon

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
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WHEREIS170's Photo WHEREIS170 Posts: 1,773
2/9/10 12:41 P

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I had a bad vehicle accident in 1984. After intensive care for two weeks and comma, I awoke to find I was blessed with a blot clot to boot. Two more weeks of intervenus Heparin and they sent me home on tara-warfin permanently. I have struggled with food, mainly green leafed veggies as they are my fav. I have to really watch how much I eat at it badly affects my INR. I don't know if you guys are aware, but there is a condition called "Antiphospholipid Syndrome". We all have it apparently. This syndrome is set off sometimes by accident (i.e. brusing, surgury etc.). What happens is your antibodies in your blood act against your blood clotting meds, which can cause problems. Not alot of people are aware of this syndrome, you should ask your doctor next time you visit. The blood test is specific for this, so you will have to make sure you are specifically asking for this test. Anyone have that problem? Have a wonderful day!

Eastern Standard Time in Province of Ontario, Canada



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12/10/09 8:02 P

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I have been on and off wafarin for almost 20 years.. This last stretch started in "05"... Now, it's lifetime, and that part bites.. The true silver lining I take a huge amount of responsiblilty in how I deal with this. One of the choices that I made is to treat it the blood clotting disorder, with no less disipline than a diabetic is expected too.
Key things for me is pay attention to what my body is telling it...
Ok, truth be told, I don't execise as much as I am needing too. Even while there have been periods of weight losses or gains, my first priority was to keep my numbers in check. Most if not all the time I would take a guess at what the range would be, 99.5% of the time I was right.. The time or to that I was off, we would make an ajustment and I would return in a week.. The other part of this is a do not like going to the doctors (nothing personal). So, I have made it my personal mission to stay in range....

PS... Yes, it truly is a christmas blessing...

Edited by: MICANDREU at: 12/10/2009 (20:04)
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Woman are like Teabags, you never know how Strong they are until they are in Hot water.
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DKOMADIN's Photo DKOMADIN Posts: 628
12/10/09 1:58 P

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You must have been a very good person for Santa to have given you such a terrific gift.

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
will come to know God because they know you


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12/10/09 8:33 A

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I had a blessing come with my PT/INR... For the first time in years, the dr. is allowing me to test in 2 months... I have kept my numbers in range for over a year, and this is wonderful news.. Also, the dr. knows that if I request a check, not a problem... This is a huge christmas present for me...

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Woman are like Teabags, you never know how Strong they are until they are in Hot water.
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B.MITCHELL Posts: 289
9/29/09 7:55 P

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2.5 this week. Testing monthly now.

"Just For Today Lord."

God, Grant me the serenity to accept the things I cannot change, courge to change the things I can and the wisdom to know the difference.

Trust in the Lord with all thine heart and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3 5-6

I Am Sombody in Jesus!


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PSTENSEN Posts: 34
9/21/09 8:19 A

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Aly...
Have you ever been tested for a clotting disorder? What caused your clot? Did you speak w/your PC about your INR?

I'm on warfarin for the rest of my life & have been on it continuously since 1989 and off & on from 1972 till then. I have Protein S Deficiency and since there's no cure, only treatment-warfarin, that's why I'm on it for life. (My son too as it's hereditary). I had a long history of clots before they diagnosed me, but have had none since '89. That one nearly killed me!! It was in the main vein in the intestine. Nasty stuff....

Do you test at home or at the lab?

God bless, I hope all goes well with you.

Have a great week.

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ALYMOR SparkPoints: (0)
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9/21/09 1:17 A

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my last pt test was 3.1.opas wants it 2.0 - 3.0. had to eat some leafy greens. I've been on warfin since the end of April. Can't seem to find clot anymore, but I have to stay on this until the end of Oct.

PSTENSEN Posts: 34
4/24/09 3:25 P

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2.1 this week.
I test weekly at home now. Got my machine in Aug and have been doing very well since. My dr. wants me to test weekly, oh well. I only have to call him if it drops below 2.0 or above 3.0, otherwise just do as I am and stay on the same dose. I'm much happier now that I don't have to make the 32 mi round trip monthly or semi-monthly as before.

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DKOMADIN's Photo DKOMADIN Posts: 628
4/17/09 6:11 P

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2.5 will recheck next month.

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
will come to know God because they know you


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RTMCCANN's Photo RTMCCANN Posts: 103
4/16/09 11:03 A

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I haven't been very active in the group lately...my apologies. I need to get my PT/INR checked, it's been a couple of months.

I take my coumadin at night, like I would a vitamin so I don't forget.

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DKOMADIN's Photo DKOMADIN Posts: 628
4/1/09 7:55 P

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I purchased a pill holder, that is slim with the days arranged horizontally. I keep it on the kitchen counter where I charge my cell phone. When I grab my cell phone in the morning I am reminded to take my pills.

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
will come to know God because they know you


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R8RMOM's Photo R8RMOM Posts: 267
4/1/09 7:49 P

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I have had the hardest time remembering to take my coumadin lately. my pt was 1.2 today. Not good. My doctor gave me a stern lecture.
I just get so overwhelmed taking care of my kids I forget to take care of myself. :(

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SMALLERMELORIE's Photo SMALLERMELORIE SparkPoints: (131,406)
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3/26/09 6:53 P

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2.1






emoticon

SUNNY GALS SHINE BRIGHTER AND LIGHTER

Lorie

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SWEET BUT SASSY AND IN CHARGE!

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B.MITCHELL Posts: 289
3/26/09 1:53 P

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2.2

"Just For Today Lord."

God, Grant me the serenity to accept the things I cannot change, courge to change the things I can and the wisdom to know the difference.

Trust in the Lord with all thine heart and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3 5-6

I Am Sombody in Jesus!


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DKOMADIN's Photo DKOMADIN Posts: 628
3/26/09 11:06 A

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2.5 due to my eating lots of cabbage, collards and salad. My dr. has me on low carbs due to high cholestrol reading. I didn't want to take medicine so am trying to lower it with my diet, will recheck in 3 months. It is difficult, no bread, pasta, potato, beans, corn, peas, cakes, ice cream. Only chicken and fish and must also watch the amt. of fruit and nuts I ingest. So it is lots of veg. and salad, Special K and Cheerios (no oatmeal-which is surprising)and decaf.

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
will come to know God because they know you


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4ANEWME2009 Posts: 15
3/26/09 8:50 A

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1.9, but I was on antibiotics and they had me cut my dosage in half while on the antibiotics. I usually test right around 2.5, I will test again in 2 weeks to make sure I bring my pt/inr # back up.

Next time I am on Antibiotics I will remind them that cutting my dosage in half was too much.


There is a difference between wanting to lose weight and wanting to do what it takes to lose weight.
DKOMADIN's Photo DKOMADIN Posts: 628
3/15/09 7:07 P

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4.0 high, cut back my dosage. The nurse at the Coumadin Clinic said they see that some people reduce their dosage when the move to Florida. Don't know if it's due to the change in weather or perhaps a change in lifestyle. I have begun to excerise which may be contributing to why I require less medication. My doctor has put me on a low carb diet to improve my cholestrol. I have increased my intake of vegetables and salad and expect my levels to go wacky next time round.

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
will come to know God because they know you


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GEAUXGIRL's Photo GEAUXGIRL Posts: 839
3/2/09 8:09 A

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Last week I was at 2.2 which is right in range for me.

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4ANEWME2009 Posts: 15
2/27/09 9:52 A

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2.5 on 2/26/09. I pretty much stay right at 2.5. I used to get tested every week, then they switched it to every other week. Now I just get tested monthly.

There is a difference between wanting to lose weight and wanting to do what it takes to lose weight.
DKOMADIN's Photo DKOMADIN Posts: 628
2/19/09 11:26 A

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They also had the article in this mornings paper. Very interesting.

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
will come to know God because they know you


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LASHERTHECAT's Photo LASHERTHECAT SparkPoints: (73,830)
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2/19/09 8:29 A

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New info in Health News section today...

http://www.sparkpeople.com/resource/heal
th_news_detail.asp?health_day=624234

"Complaining isn't considered cardio!!" - CASSANDRA_WYNN

Christ has no body now but mine. He prays in me, works in me, looks through my eyes, speaks through my words, works through my hands, walks with my feet and loves with my heart.
- St. Theresa

The only alternative to getting old is dying...be happy you're still here!


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DKOMADIN's Photo DKOMADIN Posts: 628
2/17/09 4:27 P

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I was alternating 16mg one day and 15mg the next. INR is usually between 2.5-3.0. I tested at 3.3 so they decided to cut me back to 15 mg daily.

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
will come to know God because they know you


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2/16/09 4:14 P

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What were you taking before 15? How fast did it go up? Personally, I would test next week, or two weeks at the most... What's your range again? Well, I guess you know yourself... I'm at 3 as of Saturday, on 15mg and I'll be checking in 2 weeks just to be safe...

"Complaining isn't considered cardio!!" - CASSANDRA_WYNN

Christ has no body now but mine. He prays in me, works in me, looks through my eyes, speaks through my words, works through my hands, walks with my feet and loves with my heart.
- St. Theresa

The only alternative to getting old is dying...be happy you're still here!


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DKOMADIN's Photo DKOMADIN Posts: 628
2/16/09 1:52 P

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3.3 today cutting back to 15 mg daily. Next test 3/10.

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
will come to know God because they know you


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GEAUXGIRL's Photo GEAUXGIRL Posts: 839
2/13/09 3:40 P

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I was on the finger stick method for a long time and when the ladies at the clinic discovered I had APS (why they didn't realize that before, I'll never know) they moved me to the lab for blood from the vein because it's a more detailed INR result. So from then on I've been a human pincushion.

BTW, my INR results are 2.2 as of yesterday. I've been in my range for about a month or so now.


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2/13/09 1:45 P

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There shouldn't be a difference... My machine result is basically the same as the lab result + or - 0.3 I think

"Complaining isn't considered cardio!!" - CASSANDRA_WYNN

Christ has no body now but mine. He prays in me, works in me, looks through my eyes, speaks through my words, works through my hands, walks with my feet and loves with my heart.
- St. Theresa

The only alternative to getting old is dying...be happy you're still here!


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DKOMADIN's Photo DKOMADIN Posts: 628
2/12/09 6:34 P

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After being rather steady for several months my INR is going crazy. A few weeks ago it was 1.7 (I think I missed taking my warfin one day). Two weeks latter retested at 2.9 (from vein), the following week it was 4.1(from finger). I moved to FL and the coumadin clinic I now go to does the finger stick and using the automatic machine. Has anyone found there is a difference between the two different methods? emoticon

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
will come to know God because they know you


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SMALLERMELORIE's Photo SMALLERMELORIE SparkPoints: (131,406)
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2/11/09 10:45 P

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3.0 yesterday, way out of character for me. I have been 2.2 - 2.4 for the last year and I cannot explain it.

SUNNY GALS SHINE BRIGHTER AND LIGHTER

Lorie

Sunny Gal For Life!


SWEET BUT SASSY AND IN CHARGE!

Co-Leader: Prepping and Survival Skills


MICHMARSAULLOPE's Photo MICHMARSAULLOPE Posts: 617
2/5/09 1:11 P

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I am happy with my results at 3.0. Three weeks ago it was a 1.3. I am a little wary of such a big jump. Medication was lowered slightly.

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MELZFIT's Photo MELZFIT Posts: 28
2/4/09 10:30 A

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Hi - I am a newbie, just diagnosed with DVT 01/27/09. I put my story up on the "intro" discussion. My PT/INR 1.3, tested again yesterday.


DKOMADIN's Photo DKOMADIN Posts: 628
1/18/09 1:52 P

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1.7-low being retested next week.

The most beautiful thing is to see a person smiling… And even more beautiful is, knowing that you are the reason behind it!!!

Live in such a way that those who know you but don't know God
will come to know God because they know you


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1/15/09 9:07 A

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Hi Monique,

Welcome to the team!

There are quite a few people here with clotting disorders... I have an artificial heart valve, and that's why I take bloodthinners.

Kat emoticon

"Complaining isn't considered cardio!!" - CASSANDRA_WYNN

Christ has no body now but mine. He prays in me, works in me, looks through my eyes, speaks through my words, works through my hands, walks with my feet and loves with my heart.
- St. Theresa

The only alternative to getting old is dying...be happy you're still here!


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MONIQUE33's Photo MONIQUE33 Posts: 7
1/14/09 9:01 P

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Hello Everyone I am new to this group. July 2003 I had a PE I was 28 years old I was in ICU 5 days. Doctors discovered I had Protein S Deficiency, I have been taking Coumadin for 6 years as we speak.Anyone else Dx:with the same ilness.My PT/INR normally 1.8- 2.5

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1/10/09 8:30 A

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2.4 on Wednesday... I think I missed one dose though... so it's no mystery...

"Complaining isn't considered cardio!!" - CASSANDRA_WYNN

Christ has no body now but mine. He prays in me, works in me, looks through my eyes, speaks through my words, works through my hands, walks with my feet and loves with my heart.
- St. Theresa

The only alternative to getting old is dying...be happy you're still here!


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B.MITCHELL Posts: 289
1/9/09 7:22 P

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2.0 jan. 5th.

"Just For Today Lord."

God, Grant me the serenity to accept the things I cannot change, courge to change the things I can and the wisdom to know the difference.

Trust in the Lord with all thine heart and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Proverbs 3 5-6

I Am Sombody in Jesus!


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R8RMOM's Photo R8RMOM Posts: 267
1/8/09 11:42 P

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just jumping in here since I havent been around in so long. my last labs were 2.3

I have been exercising regularly and have notice a significant improvement in the pain in my leg that still has remants of the clot

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NONSMOKER2's Photo NONSMOKER2 Posts: 726
12/28/08 7:39 A

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INR 1.8. Still trying to get me theraputic. Argh!

Julie

Courage does not always roar. Sometimes it is the quiet voice at the end of the day saying, "I will try again tomorrow".


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12/24/08 2:19 P

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3.3...perfect!!

"Complaining isn't considered cardio!!" - CASSANDRA_WYNN

Christ has no body now but mine. He prays in me, works in me, looks through my eyes, speaks through my words, works through my hands, walks with my feet and loves with my heart.
- St. Theresa

The only alternative to getting old is dying...be happy you're still here!


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LASHERTHECAT's Photo LASHERTHECAT SparkPoints: (73,830)
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11/28/08 8:32 A

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2.7...hmmm.... trying some re-adjustments.

"Complaining isn't considered cardio!!" - CASSANDRA_WYNN

Christ has no body now but mine. He prays in me, works in me, looks through my eyes, speaks through my words, works through my hands, walks with my feet and loves with my heart.
- St. Theresa

The only alternative to getting old is dying...be happy you're still here!


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PSTENSEN Posts: 34
11/24/08 5:46 P

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Rescuer,
I know this is a stupid question, but they did test you for Protein S, Protein C Deficiencies, or Prothrombin 3, or other clotting disorders? Perhaps there is another one out there that they haven't discovered yet, which will make you medical history! emoticon (Not joking really)

Just for support, here is a website you can go to and read about others with the same problems.
http://www.protein.org.uk/
I go there occassionally to see if there is any new information out there about Protein S Deficiency (that's what I have). But there's posts about many other clotting disorders as well.

I'm sorry to hear you're plaqued with this. I also had a vena cava plication done, back in 1972. I spent 3 days in ICR following a PE and they gave me a 40% chance of making it. Well, God had other plans and I'm still here. In 1982, I had an umbrella filter put in, again following another PE.
God bless and I hope they do find the name for you, that must be the most frustrating part. Until I was diagnosed in 1989 with PSD, I just kept getting put on coumadin, have a bleed, taken off again, get another dvt, go back on ... it was a vicious cycle.

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PSTENSEN Posts: 34
11/24/08 5:34 P

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Pond,
Honey you need to find yourself another doctor. Do you have access to a Hemotolgist? Where do you live? Do you have any friends who can recommend a GOOD doctor? Listen to me, I had a doctor in 1990 who had to move out of the area. She referred me to a local doctor who I think though he was God's gift to patients. He was young, cocky and in my opion too full of himself. He THOUGHT he could control my levels. I met with him once, the day he took me on as a patient. Over the next 2 months or so, whenever I would get the bloodwork done at a local hospital, it took DAYS before they'd call me with results. When I would ask to speak to him, the receptionist wouldn't let me, she'd say he was with a patient and ask what I wanted. After several attempts to just get him to call me back, she informed me that he doesn't do that either. She insisted on me telling her what I wanted to talk to him about. That's when I said, and I quote myself, "Whatever happened to patient-doctor confidentiality? Within about 1/2 hour he called me back. He acted put out that I wanted to talk to him. I explained I was concerned that perhaps he wasn't aware of MY condition. (He treated pulmonary patients who took coumadin and believed he was on top of things).
Well, what happened within two weeks of this conversation in my book is inexcuseable. I had my bloodwork done. The level was obviously way too high, because BEFORE they ever called me to tell me what it was, I was in the hospital with a hemmhorage. It was so bad that my surgeon had me put on the neurological ward to be sure I didn't have bleeding on the brain too.
Needless to say that doctor NEVER saw the whites of my eyes ever again. I asked my surgeon to refer me to someone HE WOULD trust. I have been with this practice ever since, that's 18 years. My original doctor here has retired, but his replacement has been my doctor for 16 years now and he keeps me level. He listens when I speak. He has been very supportive for me to have the INRatio Machine and wants me to check my blood weekly. He has recently told me that I don't have to call him if my levels are in range, but he wants to hear from me if they go either above or below.

You could call that number, which I think (but not absolutely sure) it is 800-doctors? Do a search online and I'm sure you'll find it.

Part of you taking control of your health is to also have a good relationship with your doctor and be able to trust him/her. You also HAVE to be your own advocate!

Good luck. I hope you can make this move. It's not worth your life to let them treat you like it doesn't matter.

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