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NANCY_DS Posts: 2
10/1/07 8:46 A

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hi,It's wonderful to get views from people sailing in the same boat so to say .I've been a patient of cardiomyopathy from october 2005.EF was 24% but have come upt 38% now.It's a slow recovery and there are some good days and some bad but I look at the brightside of things and say "it could be worse".So chin up and take it one day at a time.You are mentally stronger than you think you are.

ANGELNOTE Posts: 3
9/30/07 6:05 P

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Thanks Bunrab. It's kinda funny you should mention looking for patterns. That is something I've been wondering about - I've even discovered that if I eat a Grape Nuts type of cereal for breakfast instead of oatmeal, my BP falls drastically. (I have low BP - usually 90/60). I guess it has something to do with the digestion process. I'm still trying to figure out the Spark people website to help me keep track.

Thanks again...angelnote

BUNRAB's Photo BUNRAB SparkPoints: (0)
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9/27/07 10:10 P

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Welcome to the group!
I also have idiopathic dilated cardiomyopathy, resulting in congestive heart failure (EF is still only 20%, after 5 years of weight loss, medications, etc.) and an ICD because of ventricular fibrillation.

The thing is, one has good days, and bad days. On the bad days, give yourself permission to rest up, to say no to extra chores and excursions, to just sit there and read a good book and nap; on the good days, enjoy them. For me, the cooler autumn weather brings more good days - I feel less exhausted, and while I still can't walk very fast or very far, I don't feel totally wrung out.

Make notes on what you did/ate/how you slept each day, and see if there are patterns - do you always feel worse on the day AFTER the afternoon you spent out in the sun? Do you feel better the day AFTER the day you ate an extra piece of fruit and no red meat? If you keep track - use those Nutrition Tracker tools and other goals for that! - you will begin to see patterns like that, and will be able to better control your health.

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Kelly
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On the internet, nobody knows your socks don't match.


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ANGELNOTE Posts: 3
9/27/07 8:56 P

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I am joining this team for mutual support while recovering from heart disease. My diagnosis is dilated cardiomyopathy and Ventricular tachycardia. I have a Medtronic ICD that works well. This all happened 6 months ago, just 'graduated' from cardiac rehab and want to stay motivated to exercise and eat right. emoticon I'm pretty bummed out today because I don't feel that well today.

Edited by: ANGELNOTE at: 9/27/2007 (20:56)
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