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CLWALKER2 SparkPoints: (37,626)
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10/19/13 5:28 P

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Thanks.. I have a lot of support around me, It is just going to take time to adjust. I track my foods daily and exercise daily. I am just very bloated from all the water and salt increase that my cardiologist has me doing for the low bp. I also have thyroid nodules that are being monitored as well... all in all I am doing fine and life is great... have my moments though where I just get frustrated with the new routine... emoticon

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IRONBESS's Photo IRONBESS Posts: 516
10/19/13 3:48 P

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Christa

I have a leaky mitral valve and cardiomyopathy, probably caused by a virus attacking the heart. It takes the wind out of our sails to find out things like this and takes some time to adjust. I second finding a support group (online or in your community), where you can share your fears and questions with others who've been there or are in a similar place. You can share here too. There are some knowledgeable folks who've learned a few things about coping with life's hurdles.

Your new exercise plan sounds reasonable. As you said, it will take time for you to get used to a different routine. The main thing is to move as much as you can with regular rest periods and without getting over-tired and to continue a healthy diet. Think about using the SparkPeople nutrition tracker, at least for a little while. The daily report shows a breakdown of food types and nutrients so you can see where to tweak it if needed for optimal nutrition.

There are tons of Spark Teams too. You can do a search under the heading Community/Spark Teams and see if there's any that interest you.

Feel free to send a SparkMail, post your questions, or let us know if you need someone to listen and give you a hug.
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In the great shipyard of life it helps to be a little dinghy.



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BEBARB149's Photo BEBARB149 SparkPoints: (45,483)
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10/19/13 10:54 A

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You're never alone. All you have to do is reach out. Have you searched the Web for support groups for people with heart problems? www.dailystrength.org has many, many groups but I don't know if they have one specifically for heart valve problems. The National Heart Association might list some. Having developed ulcerative colitis in my late 50s with no one around me that had a clue about it, I've become a strong believer in support groups.

Achieve success in any area of life by identifying the optimum strategies and repeating them until they become habit - Charles Givens


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CLWALKER2 SparkPoints: (37,626)
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10/18/13 12:34 P

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Yes between the low blood pressure and leaky valves its best not to run or lift weights using my arms. I have been walking, using the recumbent bike and doing yoga but the exercise is just not as intense as im used to i guess. My diet is within the calorie range that I am supposed to have. It gets frustrating but not impossible to deal with. I think it will just take time maybe for my body to adjust... well im hoping. Thanks for the replies, it is nice to know you are not alone sometimes

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BEBARB149's Photo BEBARB149 SparkPoints: (45,483)
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10/18/13 10:37 A

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Welcome. Sorry this had to happen. I wish I had some advice about how to keep the weight from coming back besides cutting back on calories. Hope you can do weight training to keep your muscle tone. Did the doctor tell you to stop running?

Achieve success in any area of life by identifying the optimum strategies and repeating them until they become habit - Charles Givens


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KSGAMMA's Photo KSGAMMA Posts: 2,366
10/17/13 9:43 P

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I only have 1 leaky valve but I also have Dilated Cardiomyopathy. I get most of my exercise from aquafit exercises. I find exercising in the water much easier on my heart and lungs. Perhaps something like that would work for you too.

Lin from Peterborough, ON., Canada

10 STEPS TO SELF-CARE - If it feels wrong, don't do it; Say "exactly" what you mean; Don't be a people pleaser; Trust your instincts; Never speak bad about yourself; Never give up on your dreams; Don't be afraid to say "No"; Don't be afraid to say "Yes"; Be kind to yourself; Let go of what you can't control; Stay away from drama and negativity as much as possible. (unknown)

Lost 48 lbs. in 2012 & 13 but gained 30 back!


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CLWALKER2 SparkPoints: (37,626)
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10/17/13 7:55 P

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Hello everyone, my name is Christa and I'm new on this forum.... I have been on spark people for over a year and have lost some weight... I started running and got up to 6-7 miles every other day... I just found out that I have orthostatic hypotension and went in for a stress echo and found that i have 3 leaky valves. So not running now. I have gained 5 lbs since not being able to run and am very worried about gaining all the weight back. I'm just trying to adjust to all of this and feeling my way through what works for me etc. Any advice is much appreciated...

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