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MIAMIRN's Photo MIAMIRN Posts: 418
6/16/13 11:27 A

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Welcome, Welcome, Welcome!
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I have had RAD for some years now, but was just diagnosed correctly a few months ago. I am a Pediatric RN and have never ha a phobia except to flying Roaches! Lol. Needles don't scare me. If you are needing some tips on what your infusion nurse may do to make your experience better just message me. I have some tricks under my sleeve, so to speak.

In terms of weight, I have been a constant 180 for several weeks now. It's frustrating, but I refuse to give up! I will be seeing a nutritionist in two to three weeks depending on the hospital scheduler. My appointment with the nutritionist last Friday was a mix up! Ugh!! Several of my docs have said it is my medicine (not the RAD meds) that are slowing my metabolism down and I need some adjustment in my diet and extra exercise. My biggest challenge is that the RAD tends to make me need extra sleep. I have a hard time getting up in the morning and should walk instead. I make no excuse, I really need to walk and am having a hard time with motivating myself. I hope I can find a partner to walk with. it would make it so much easier, but if not, I'm going to try this week to walk as soon as I get up in the morning, even if it's a few minutes.

What a beautiful day it is today.Again welcome. This forum is a godsend! I love it and love SparkPeople for all that it has provide me with.

I hope you all have a wonderful Father's Day!
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Love life!

Never, never give up!

“Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense” Winston Churchill

"Everybody is a genius. But if you judge a fish by its ability to climb a tree, it will live its whole life believing that it is stupid."
~Albert Einstein

"Your beliefs become your thoughts. Your thoughts become your words. Your word


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BETRME100's Photo BETRME100 SparkPoints: (86,423)
Fitness Minutes: (108,027)
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6/15/13 7:54 P

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emoticon Monie! emoticon

Kit

Opportunity dances with those who are already on the dance floor.
Jackson Brown

Co-leader Bloomington,IN Spark team



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MONIELYNN Posts: 9
6/14/13 10:52 P

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oh, you sound just like me! It's very rare that I get out of the infusion chair with less than 4 pokes. She usually has to bring in the guy from the lab to get me!

I have been walking about a mile each night for the last week or so, pushing my son in his stroller. It will be too hot here for our nightly walks soon (he has a genetic disorder that involves not having sweat glands over a majority of his body so he overheats very easily). I need to find my Leslie dvds and get started on them again.

Monie

~Em, Evie, Andy and Jack's mama! LOVE makes a family, ours has been built through the miracle of adoption.


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4-1HEALTHYCYNDI's Photo 4-1HEALTHYCYNDI Posts: 11,029
6/14/13 7:14 P

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Hi! I just started Orencia after the Actemra failed to do anything for me. I too have a needle phobia, with some good reasons. My blood likes to play hide & seek so I often end up with multiple punctures per visit if they need to draw blood.

Take exercise in small doses to start. I started walking around my living room for 10 minutes a day. I now do 2 - 3 "miles" with Leslie most mornings, sometimes as many as 5. Just take it one small step at a time.

Private 2nd Class Cyndi Ravenclaw,
C.A.M.O.Crew, PDT

NEVER GIVE UP, NEVER SURRENDER!

Striving for VES, Vibrant, Elegant & Sexy

www.folhavitoria.com


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MONIELYNN Posts: 9
6/14/13 10:14 A

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I'm Monie. I am 37 and have had RA for 15 years. I went from an active, healthy person before RA to someone who is now overweight and sedentary. (and I hate it!)

I am struggling with my meds right now - the Enbrel stopped working, tried Actemra which never worked, and am now waiting for insurance approval for Orencia. Did I mention that I have a BIG needle phobia? emoticon The infusion nurses at my doctor's office are wonderful.

My goal is to lose weight and be at a normal BMI for my 40th birthday, in a little over two years. If I get there sooner, great. I've tried the quick diets before and they don't last for me. (I lost a lot of weight with the hcg diet but couldn't maintain)

My three year old keeps me very busy so I don't know if I will be able to check in very much, but I'll try. I look forward to being a part of your group.



Monie

~Em, Evie, Andy and Jack's mama! LOVE makes a family, ours has been built through the miracle of adoption.


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