I'm sorry I was late in seeing your post. Welcome to the team. I'm glad you are managing your disease better than at first. Like JOanna said, please join us in the daily chat. Look forward to getting to know you. Cynthia
Sorry I'm late to the welcome party -- happy that you're here and that you've found a way to manage your RA. Sometimes it just takes time to figure out what works for you. I was diagnosed in 2003 three days after quitting smoking (for almost 25 years), was severe for about 2 years. I manage my RA now with just Lodine, diet and exercise.
This group is a wonderful resource about any questions you have about your RA or treatments, or on those days when you just need a hug. Add some SparkFriends, read the blogs and keep in touch here on the discussion boards :)
Kris It's a great day to be alive! ----- "I can do all things through Jesus Christ, who gives me strength." Philippians 4:13
current weight: 237.2
Fitness Minutes: (9,475) Posts: 82 3/5/13 6:57 P
Sorry you have RA, but happy to have you on the team. I've also been diagnosed since about 2001; however, my kids are grown and I have grandchildren - so I'm OLD! I don't know what I would've done if I had had this disease when I had small children. Bless you.
Welcome! Welcome! Welcome!
Tiny One pound at a time ...
Pounds lost: 26.2
Fitness Minutes: (26,514) Posts: 630 3/5/13 9:24 A
Welcome! I have RA. I was diagnosed 6 months ago. I'm on MTX and embrel. My Rheumy is the best. He's methodical and caring. After 3 months of embrel, he's changing it to Remicaid. Embrel is not doing a thing for me. I take Hydrocodone10/325 for pain. I see an awesome Pain specialist. He's monitoring me every 3 months. I also take Lyrica for pain. It works very well with the Hydrocodone. I don't know what kind of pain I would be in without the pain meds. I'm not a martyr. After 10 years of misdiagnosed pain I now am happy to have some relief. I swim 3 days a week in the masters program and love it. I hope to one day join a competitiion. I'm almost ready to join a meet up group that swims open water swimming in a nearby lake. I can't wait! I do Tai Chi and take classes twice weekly. It was recommended by my physical therapist after I finished PT. My PT was so right! It's been a godsent and I love it. As you can see, we have a couple of things in common. My 28 years old son has Bipolar ADHD and Asperger's. He's doing quite well and will marry a wonderful woman next year. He's known her for close to 5 years and they are very compatible. He's says yes to swimming! I'm going to teach him strokes. I think the last year has started to wear on him. He now wants to be more active. Yay! I'm glad I can inspire him. My grandson has PDD NOS. It's a combination of Asperger's with a language component. He's 10 and also doing quite well. He just qualified for the Junior Olympics! Next week is the meet and I'm so very proud and excited for him. Myself. I'm on the spectrum. I haven't been formally diagnosed, but my psychiatrist, who I have been seeing the past 10 years diagnosed me with ASD last year. It's answered a lot of questions that I've had my whole life. Well, I hope you do very well in your journey here.
Never, never give up! “Never give in, never give in, never; never; never; never - in nothing, great or small, large or petty - never give in except to convictions of honor and good sense” -Winston Churchill
“Your beliefs become your thoughts, Your thoughts become your words, Your words become your actions, Your actions become your habits, Your habits become your values, Your values become your destiny.” ― Mahatma Gandhi
current weight: 178.0
Fitness Minutes: (15,749) Posts: 195 3/4/13 10:09 P
Hi, I'm Colleen. I've been living with RA since about 2001. Originally diagnosed as fibromyalgia but after landing in the hospital in 2003 the specialist that was brought in determined that what I really had was RA. By 2003 I had lost almost all mobility and was in such excruciating pain I couldn't see straight. At the time, my twin sons were 7 and it was so hard to watch them go off biking, hiking, etc with their dad and I'd wave at them from the front window as they took off. The picture I always had in my mind was I'd be doing activities with my kids, not watching them... Life has been interesting, because while I'm learning how to live with RA, My husband and I were parenting children with Asperger's. That took amazing amounts of energy!!! Fast forward to present... My RA is being controlled by MTX alone (was on plaquinal and predinose for 5+ years). I've made major changes in my diet, use nutritional supplements, see a chiropractor at least twice a month. I've had a lot of problems with my knees (have osteoarthitis, too... yippeeee, not). It's been difficult to walk or use treadmill or bikes so he recommended warm water pool therapy... I LOVE it!!! I'm now swimming up to 4 days per week and am slowly adding "land" exercise. My sons are now 19 and pretty independent, so now it's my time to focus on me and getting as healthy as I can be.... I'm looking forward to participating with this group and being a resource as needed and learning from others in the group....
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