Angel, I'm sorry you've had to struggle with arthritis so long and that it took them so long to diagnose it.
My daughter is 10. She's been having neck pain since she was 8, but the MRI done at age 8 showed no signs of damage at that point. She was diagnosed with uveitis 3 months after the neck pain started. We live near Boston, which is fortunate because there are so many good doctors here. She is under treatment for the uveitis at MERSI in Cambridge, they are absolutely excellent, people come there from all over the world, and her rheumatologist is at Children's Hospital Boston.
She's been on a low dose of remicaid/methotrexate (after going through several meds to find what works) to control the uveitis, but her neck kept hurting anyway, unpredictably off and on, and bone damage showed up on the MRI done this fall, so clearly there's been some kind of inflammation creeping away despite the medication. They bumped her doses up after seeing the scan, and they're sending us to orthopedics to consult about "the stability of the bone structures". My daughter's case is very unusual, the arthritis is in her neck only. The only way to track the inflammation there, I was told, is with regular MRIs. It's too early to tell the prognosis yet for her, they say.
We joined the arthritis foundation last week, Children's Hospital gave us the phone number of one of their people (she was so lovely on the phone), because I was asking if there were good books I could read. The woman signed us up for the foundation and is going to mail a book to us, and she recommended another one, too.
Thanks very much.
| Pounds lost: 16.0