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Living with Rheumatoid Autoimmune Disease (RAD)

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  FORUM:   Introduce Yourself to Team Forum
TOPIC:   New here and confusing test results 


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DEDICATED2HIM
DEDICATED2HIM's Photo Posts: 3,367
11/3/12 10:54 A

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welcome, OMSYMBOL. I have RA negative RAD and a very high SED rate...who can guess??! the numbers are often contradictory....but the symptoms after awhile become very clear. It is good to have you here with us. I hope you'll jump right in and make yourself at home. Please feel free to join the Daily Chat and let us get to know you better.
Blessings...
Cynthia



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OMSYMBOL
OMSYMBOL's Photo Posts: 433
10/29/12 8:20 A

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Thank you both for the kind words. I'm sure I'll be back here often for information and to remind myself that I'm not in this alone. :o)

It's never too late to become what you might have been. - George Eliot

Pain is inevitable. Suffering is optional.


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ANGRITTER
ANGRITTER's Photo SparkPoints: (80,656)
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10/28/12 7:36 A

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emoticon OMSYMBOL! Happy to have you here, hate that you have RA! (Why didn't anyone tell me Iwrote fear instead of here?! It sounded so mean!!)

OMSYMBOL - I am NOT mean and didn't mean "Happy to hae you fear" - well, that's just entirely not true!

Edited by: ANGRITTER at: 11/3/2012 (15:30)
Angela, Sparking since 6/18/2012
Jacksonville, FL
*Keep moving forward! Ask for Peace, Believe in Love, & Give Understanding!

Living with RAD Team Co-leader www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=959


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SEATTLE58
SEATTLE58's Photo Posts: 4,051
10/24/12 9:19 A

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Hi and welcome! I also have a low thyroid plus RA, and this combination does cause fatigue big time! I find that we have to make time for the needed rest during the day and for a good night's sleep too. Once you get on good RA meds. for your pain, sleep and rest will become easier, believe me. You'll feel more alive and you'll feel that you can do more. I hope that you can take life slow and at the pace you want and need, so that you can take care of your body. As far as being scared of the disease, that stands to reason, but we don't have to be petrified. My Rheumy reminds me that the scary side effects are so rare, but they are required to list them all anyway, no matter what the small, tiny percentage may be! We're all here for you, so come to us as often as you need us! Good luck to you! Hang in there and it sounds like you're in good hands, so that's a good thing. emoticon

"Little by little whittling my middle!"

Karen




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OMSYMBOL
OMSYMBOL's Photo Posts: 433
10/24/12 8:15 A

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Thank you both for the warm welcome. I so wish we could be meeting under other circumstances. This disease is really scary and the more I learn about it, the more terrified I become. It seems only yesterday I was a fit, thin, healthy 35 year old woman with the world at her feet...and now I'm an unfit, overweight, 46 year old with major health issues...both of which, either the disease or the "cure", will probably cause me to gain even more weight. Not to mention they both cause fatigue.....one was enough, thank you. lol The pain is overwhelming, too. Not that it's BAD pain...just that it's all over. With every move I make. I don't even want to think about how my body and joints will feel in 20 more years....ugh.....yes, I'm terrified.

So, I really do appreciate you all being here. It really does help to know that I'm not alone...even though I wouldn't wish this on anyone. Thank you thank you!

It's never too late to become what you might have been. - George Eliot

Pain is inevitable. Suffering is optional.


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ANGEL1066
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10/23/12 10:32 P

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Welcome aboard. I know it can be confusing and frightening to have to undergo all these tests, especially when the results are contradictory, but that is not at all uncommon with autoimmune disorders. It can take quite a while to nail down a diagnosis. I myself was bounced from RA to Lupus and back again several times over the course of half a dozen years before the RA finally stuck (I hope). Your docs may need to gather information for a while before they can develop a workable program for you. The good news is that there are many more effective treatment options available now than there were in former years. Hang in, and do what you can to get healthier. A good healthy diet is a must. Many of us are sensitive to gluten, or to other foods. By all means avoid those that bother you. Fewer additives, much less sugar and salt, lower overall fat and better choices of fats, more whole grains, fresh fruits and vegetables - these are dietary changes that help most of us. Regular gentle exercise helps, too. Spark has many helps for us, from recipes to exercise tips for those struggling with pain/disability.Take your time, look over the site, ask questions when you need help, whether with Spark or with your medical issues. Someone here will be able and happy to help. God bless your journey!

"Mountains DO move...One stone at a time." ~Rick Beneteau
Do not let what you cannot do interfere with what you can do. - John Wooden, Hall of Fame college basketball coach
With exercise, doing some is always better than doing none. - Spark article
MAKE THE BEST FOOD CHOICES YOU CAN TODAY - and then, try it again tomorrow!- Dr. John La Puma, M.D.


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KRIS-KDK663T
KRIS-KDK663T's Photo Posts: 487
10/23/12 6:18 P

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If you're looking for information and support related to your RA, you've come to the right place. The members here seem to have gone through just about everything, and are able to draw on their experiences to answer questions, provide support, and suggest ideas for daily life. My RA isn't that severe, but when it flares, it really FLARES, and I'm grateful to read other people's posts to see what might help.

Good for you to include your diet as part of your treatment plan - no one knows your body better than you! I can always tell when I've strayed from the path of "good eating" because my body pays for it afterward.

There are lots of resources on this site and it's easy to get overwhelmed by everything that's available. Focus on a few things, ask questions here in the forum, and know that we're here for you.

We're glad you're here!
emoticon

Kris
It's a great day to be alive!
-----
"I can do all things through Jesus Christ, who gives me strength." Philippians 4:13


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OMSYMBOL
OMSYMBOL's Photo Posts: 433
10/23/12 7:31 A

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Hi There!

I've been dealing with hypothyroidism for the past 2 years and now it looks like I can add RA to that list. I've had a lot of joint pain over the last couple of years but always chalked it up to the Hypo. Then, I got a nodule on my finger that really hurt and was swollen...it's been there for a couple months now. And slowly, all my joints have started to hurt. I think there are only a few toes and one wrist that don't hurt now. And lots of painful popping in my shoulders and ankles. And, no matter how great my thyroid numbers were on medication...I'm always just so tired and in so much pain. My endo suggested I go to a rheumy especially since my mother has RA.

I went and he ordered a bunch of blood work and xrays on my hands. They called yesterday and said it's looking like a positive for RA. He wants to see me again in 2 weeks to "run more tests". Ugh. I told them I was in a lot of pain...and I'm just so freaking tired...but nothing has been prescribed and I don't know what to take.

I have high RA factor and CCP Antibodies.....but low Sedimention and C-reactive protein...and from all I've read, those seem to be disagreeing with each other, right? Or am I misunderstanding? Does anyone know anything about that?

I'm determined to fight this as much as I can. I had gone gluten free for a couple of months because I heard it was good for Hypo...but then went off it...and that's when the finger nodule happened and the joint pain got worse. So...I'm contemplating going back to gluten free.

I hope this wasn't too confusing. I didn't sleep much last night. lol

It's never too late to become what you might have been. - George Eliot

Pain is inevitable. Suffering is optional.


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