to the team Roxanne,
Its great you found us, but I am so sorry to hear all the horrors you are going through. I have had RA since age 6.5 so have been through the mill. I have had five joint replacements and three foot operations, and a total of 33 surgeries not related to RA. I am very fortunate to live in Canada where my health care is taken care of or I would have spent my whole life in debt. I think its so sad you Americans have to wait for approval for insurance for every little procedure, treatment or medicine. It makes for such a long and painful wait. I find it very strange they saw nothing on that X Ray!..
I take dilaudid and oxycontin for pain, its effective a lot of the time. A life saver for me has been the biologics like Remicade, Humira, Enbrel etc. This is perfect for anyone with gastric issues as they are infusions or injectables. The huge drawback is the incredible cost of them :( I can see insurance companies balking at agreeing to them unless every other avenue is explored :( The problem with RA is it needs to be treated aggressively and fast because the damages from it can happen so quickly. Waiting around for months for approval or to see if a treatment will be effective is terrible. First line drugs they always give is methotrexate which for some people can have side effects which is why they tell you to take folate with it to try prevent some. Prednisone is also a standby, but its side effects are terrible one of which can be weight gain :( The main thing is to keep pushing your Dr.'s when things aren't right and get second opinions if you are happy with what they say or they are not moving quick enough to help you. Do research online for the latest treatments for your conditions to make sure your Dr.'s are doing all they can for you.
Do join our daily chatter as they have great support in there and you can vent, say what is going on and generally keep in touch with people who are suffering like you. Also make up a Spark Page, this is a big way of communicating and the only way you can add friends. You can also blog and send goodies with it.
Linda from Canada
Never Give Up! When one door closes, I simply kick down another one!!
Stand Tall, Walk Proud-Dani W, Fitness Instructor
You CAN do it!
|162 Maintenance Weeks