Hazel! That is a fantastic attitude to have! I am so very sorry to hear the gold standard treatments aren't working for you :( It is wonderful you have found things to do to keep you sane. Congratulations on your book! I have had RA since age 6.5 and would like to thank you for your service as a nurse, I have met a great many caring and compassionate ones on my journey (I have had some 33 surgeries although not all because of the RA) I have been on disability for 26 years now, but I found a volunteer position that keeps me busy and active and allows me to work at my own hours and pace. Managing the Saskatoon Bridge Club has made me feel worthwhile and playing the game keeps me mentally sharp. I exercise vigorously and regularly to keep up my mobility and make sure I eat healthy to keep illness at bay (I never get colds for example) I hope you are under the care of a good physiotherapist. They are worth their weight in gold for helping keep the pain at bay with treatments and mobilizations, sometimes they helped me more then the medicines. Please join our daily chatter, we use it to vent ask questions and just keep everyone up on what is going on with our lives. Only people who have the condition can actually really understand what you are going through and we have a great bunch of wonderful people on here! Good luck with your weight loss goal! Careful , accurate tracking of my food and fitness helped me lose my weight and keep it off -been maintaining for 1.5 years now. Linda
When one door closes, I simply kick down another one!! Never Give up! Stand Tall, Walk Proud -Dani W, Fitness Instructor Do or do not. There is no try- Yoda Rock bottom became the solid foundation of my life -J.K. Rowling
Hi Hazel, Yes, we don't want to have our RA have us! I'm in the process of applying for disability because I'm the same as you, the pain and the lack of mobility is what causes me not to work out. We live on our dairy farm and I've dwindled down to watching the water hose. I've had to give up alot of chores, but I'm happy with what I can do still. I love to shop and I'm so happy I can still drive! I can still play my beloved piano and I can still sing! It's so beneficial to try to stay as positive as we can! I looked up your blog and it is so interesting! Your mini-series sound so cool! I'll have to check them out more! Good luck with you here on SP. I'm struggling right now but I'm hanging in there!
And cheers to you! Having RA and lupus, I have learned that keeping a positive attitude is a huge plus! Spending time with positive, hopeful people helps me pull myself out of that bed every morning. :)
What's your new book on?
Pounds lost: 23.0
Fitness Minutes: (1,154) Posts: 16 10/12/12 9:44 P
Hello, everyone. My name is Hazel Peterson and I have been living with RA since the early 1980s. I am a retired nurse, leaving the profession in 2008 as a result of the limitations I began to experience with pain, inability to do my job without fear of hurting myself or others....I could do on and on. However, I am fortunate to have a wonderful husband who loves me and takes care of me and encourages me daily.
I am on disability now and even though I'd rather be out there working, I've been able to fill my life with meaningful things. I write (have a book coming out soon), have a blog with lots of followers, spend time with my friends, lead a ladies Bible study at my church, walk through the beautiful Colorado mountains, where I live....my life is good.
I've tried every treatment out there including Ritauxin. Because of a DNA problem, nothing works long for me so, unless I am healed miraculously, this is my life. But I choose to be positive and help others who suffer.
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