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TIREDHOUSEWIFE Posts: 2
8/13/07 8:35 P

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Thanks for the note, Cathy. I think it is wise for you to keep from getting diabetes with your history. I wish I had known more about it, but I don't think I was ready to make the changes I needed to. Now those changes are being made for me. I found out last week that the Mersa (Super bug) infection I had at Christmas and the 28 days of taking a super strong anti-biotic which saved my life, may have affected my kidneys, which for diabetics is bad. It probably means not only diabetes, celiac, but now low salt diet, no more beef or pork and who know what else. So by all means do what you can to stay away from it all!

It is a good thing I have a weird sense of humor and am actually laughing at the complications. After all, it is great to be alive and every day is a bonus to me!

Keep in Touch! I am about unavailable for a few days, but when I get back will work on a Spark page. Actually I have tried to post once 3 times and can't find it so must be doing something wrong!

Elinor





GMAKATHY's Photo GMAKATHY Posts: 217
8/13/07 2:14 P

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Oh Elinor you have posted at the right time for me. I also have to deal with diabetes and gluten difficulties. I have had the GF for about 16 yrs and just in the last year have been diagnosed as Prediabetic. I have such a strong family history of diabetes so keeping it in line is #1 on my list. I went to a dietician and she helped me combine the two conditions and eat properly.. She told me if I can do the GF diet then I have it made. Well it is all easer said then done, but am doing the best I can. I eat GF quite easily as long as I keep the right products on hand. But they get expensive also. But in the meantime, I am in the same boat as you..I am 63 right now and want to be around to see my grandkids graduate, marry and give me greatgrand babies :} We are worth the effort.. oh yes we are so worth the effort. Hang in there sweet friend.. we will take care of ourselves .. Kathy emoticon

If you see someone without a smile give them yours



"God determines who walks into your life....it's up to you to decide who you let walk away, who you let stay, and who you refuse to let go."



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CELIAC-LACKY Posts: 2
7/31/07 1:23 A

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Thanks for the notes. I really enjoy hearing about the weight lose as it seems so important with celiac and diabetes, as I found out the bad way recently. I do want to say one of my friend's said I should have gotten down on the floor and thanked God, as I must have been in heaven, to have 9 good looking young men waking me up (the firemen and the ambulance staff and a couple of trainees!) after my bout with low blood sugar. But I have only to look at the gray hair on my husband of 50 years since he has had to put up with my past year of near misses with death, to realize it is worth it to stay more focused on my eating properly. I want to try for 10 more at least!

Elinor
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MARTHAJOY's Photo MARTHAJOY Posts: 913
7/30/07 4:28 P

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Dear Elinor,
SO GLAD you're feeling better. As one with diabetes and celiac, I know there's a correlation. Happily, I now take no meds for the diabetes since I lost 100 pounds. But if I allow the Celiac to kick in, I'm in trouble when my glucose levels drop, SO I try to be very careful with what I eat.
We'll be traveling for two weeks and will be eating in restaurants, but I have cards printed that tell them all the things I'm allergic to, and IF the restaurant doesn't have a gluten-free menu (which so many have now) I hand the wait staff the card and tell them to ask the cook what would be safe for me to eat. Everybody gets into the act. Usually the manager is involved and they're all very careful for me. We pack apropriate snacks, too.
It's worth it. I'm worth it. So are we ALL.

 
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KJEANNE's Photo KJEANNE SparkPoints: (39,442)
Fitness Minutes: (31,713)
Posts: 2,093
7/30/07 11:33 A

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Elinor
Glad you’re feeling better. The GF diet is very hard at first. But I have found that the longer you are on it the better you feel. Many health problems I have have cleared up as a result of being GF! Here’s my list of problems that do not plague me as long as I am GF:
Carpel tunnel
Constipation
Hot flashes
Night Sweats
Headaches
Plantar Fasitatis
Depression
Bloated stomach
Gas
Frequent colds
Outbreaks of genital herpes

One of the best side effects of a GF diet is better sex!! Yes! The sensations during sex are more intense!

Take it one meal at a time.

Do not look where you fell, but where you slipped.
African proverb


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CELIAC-LACKY Posts: 2
7/29/07 1:03 A

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Thanks for the Encouragement and the warnings. For you who have been on the Spark diet longer, did they give you a special diet to start with? I haven't been able to figure out a diet that works. Yes, the cake I ate was not gluten free. Sometimes it is laziness or just not wanting to explain why I can't eat something with wheat in it. Perhaps if I had not eaten wheat for 62 years, I might find it easier to put up with the diagnosis. I think, Ladies, it is called DENIAL...... But not anymore. I have taken my blood work 4 times today to be sure I am not slipping into Hypoglycemia again. I am not on insulin, good thing, and have only had these problems since I was ill with MERSA, MRSA is an acronym for Methicillin Resistant Staphylococcus aureus (and is sometimes referred to as MERSA), and it is an antibiotic resistant Superbug bacteria that grows in clusters, multiplies very rapidly and can cause many different kinds of infection, ranging from simple skin infections (boils, furuncles) to septicemia (infection of the bloodstream) and toxic shock syndrome, and is spreading rapidly in the United States and worldwide.

Going to the Dr. Monday to have my Oral medication changed.

emoticon Elinor

47LUCAN's Photo 47LUCAN Posts: 131
7/28/07 1:41 P

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Thank GFNOMAD! (for the birthday wish and for the reminder to carry something with me!) When I was first diagnosed, I always had a couple things in my purse like a kind bar or a small apple...I've been getting kind of lax on that...guess I needed a wake-up call! emoticon

 
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GFNOMAD's Photo GFNOMAD Posts: 1,498
7/28/07 1:11 P

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Happy Birthday 47Lucan!
The situation you described is frequently when we get gluten. We need something to eat but what is there.
I always carry something in the car that will keep, whether a fruit leather, a snack bar (glutino's are good and guaranteed gf), some crackers, whatever.
Del Taco is pretty iffy - next time try Taco Del Mar if it is in your area - they ahve a gluten free menu
http://www.tacodelmar.com/food/gluten.ht
ml
or Wendys - a freshly made delux burger on a tray - no bun. I use their mayo & ketchup without problems. Without the bun, the calories are not too bad.
BTW, your description of symptoms is what I experience too, along with anger/rage.

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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47LUCAN's Photo 47LUCAN Posts: 131
7/28/07 12:58 P

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HI, another granma here (having my 60th b-day today).

Last Sunday I cheated for the first time since January when I was diagnosed celiac and went gf.

I was really hungry and busy and drove throiugh Del Taco and bought a Macho Nachos. I thought, well, I don't know if there is anything in the meat or cheese sauce, but I'm going to take a chance).

About an hour or 2 after I ate, I felt so heavy and tired I literally could not move except in a sluggish way. I was unable to function for the rest of the day. I don't know if there was gluten in the meal or if my blood sugar level was taking a dive, but I have been very careful all week!

 
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GFNOMAD's Photo GFNOMAD Posts: 1,498
7/28/07 9:23 A

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Elinor, I'll be 61 in a few months and have been gf for 26 years. There are several of us like that on this list.
We say it over and over again, don't cheat on the diet. But people have to learn it for themselves. Fortunately, you did not die but was it worth taking the chance? You want to be around for your gd and the rest of your family.
Yes, you do need to get serious - gluten foods at any level are poison to us. There is a wealth of information in past posts. I know it's tedious to read but then you come across a nugget that makes it worthwhile.
As one of the oldies on this listserve, I get tired of writing the same thing over and over again. After all it takes time out of my life. So, read, read, read. All the links are there. Good Luck and we're glad you are here. There are other's like you that are diabetic and celiac.
Barb

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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DOTSLADY's Photo DOTSLADY Posts: 10,018
7/28/07 2:03 A

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Oh Elinor, this is scary stuff you're dealing with! I very much understand however, as my MIL was hypoglycemic and celiac (had congestive heart failure and osteoporosis, too).

I've never heard of MERSA before - that doesn't sound pleasant. Do you take probiotics or drink kefir to restore your bowel flora after having the antibiotics? That episode sure doesn't sound fun at all. Merry Christmas?

Are you usually strict with your diet when it comes to gluten (are you saying the cake you had wasn't gf?)? We have other grandma's here. I don't know how often they read rather than post, but you're not alone!

Thanks for sharing your story. Maybe it'll help someone else stay the gf course.

emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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TIREDHOUSEWIFE Posts: 2
7/28/07 1:00 A

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Diabetes goes along with celiac disease. I got diagnosed with both at age 62, 8 years ago. Today I woke up with 7 nice young men staring at me and asking me questions. My blood sugar had sunk to 41 (should be 70 or higher) and my husband could not wake me up. So 911 brought the ambulance and the nearest fire dept. medics to give me enough sugar to wake up. Part of this was my fault, as I had eaten a small piece of cake at a birthday party and the diarrhea I had washed all the food through my gut fast enough to deprive me of calories, a great way to lose weight, but it can also kill you!

So...it is wheat free for me again. Not to mention that I have shortened my husband (50 years June 9th!) life by nearly dying twice in 7 months. The first time was the 28 days I was hospitalized for a MERSA (called super bug) infection and a slight stroke, having heavy duty anti-biotics (and diarrhea) for 28 days. I lost 21 pounds in 28 days. Don't recommend that either. Missed Christmas and New Years, my granddaughter's first birthday, etc.

Anyway...I need to get serious with my diet and eat enough food to be healthy, but not enough to gain. I feel like the grandma of this group, all you beautiful young people!

emoticon Elinor

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