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ROSYROW SparkPoints: (2,566)
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1/2/13 6:56 P

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Hi everyone. I have not been formally diagnosed with celiac, but several years ago when my neice tested positive for celiac I also had a blood test. The test showed positive, and I was sent to get a biopsy. It was negative, but I was told I was probably gluten sensitive due to all my stomach problems. Off and on I have been watching my diet, and my symptoms have consistantly been getting worse. Last year, I could eat gluten in moderation, as well as some dairy. In the past month, I have been having severe symptoms. Just a bite of gluten containing product will swell my lips, tongue, and throat, and force me to throw up the offending food. I wheeze and break out in blisters on my lips, as well as different parts of my skin. I can no longer tolerate dairy of any type without belly rumblings and a rush to the bathroom. Soy also swells me, and I am allergic to Estrogen, which is a by product of soy. So, here I am. I am over 100 pounds overweight, and having a hard time dieting. I keep craving carbs, but the gluten free carbs are usually the ones that pile on the pounds. I hope I can get some inspiration on this site, and maybe learn a few tips to help me. In return, maybe I can help someone else. I am turning 55 and have been retired from teaching since May 2010. It is time to focus on me. I hope we can all lose weight together, but I warn you, I also have Hashimotos Thyroidits, and instead of losing, I am always gaining. I still keep trying, because really, what is the other option?

It's the things that happen on the journey that make the end results worthwhile.


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SUNSHINEONE55 SparkPoints: (149)
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12/31/12 1:42 A

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Hi this is sunshineone and found out about 25 years ago I had celiac sprue but did not know the importance of the diet. At the time my villa in my upper intestine was completely flat like a bowling ball was rolled down it. Now I am 57 years old and have had a lot of stress, falls which I thought might be the TBI I was diagnoised with in an accident. I have been reading that neurology plays into celiac sometimes. I wonder if I might have any other autoimmune disease causes off balance, falls, severe heads to head often, bloating, fatigue,aching muscles or joints, depression (I'm a vet and for the last 2 years have been on VA disability for severe depressive disorder.

I am now looking into how to work celiac recipes into my diet, imagine I don't eat right and still way 40 pounds over my goal of 130.

I look forward to getting to know all of you. I want to be well again any ideas or recipes would be great!

I am helping raise two of my grandchildren, 11 and 13, and their ill mother (my daughter). I want and need to be well.

hugs, sunshineone


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12/26/12 3:41 P

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Hi, I'm Gail. I'm dx with gluten intolerance. My endo did not show Celiac. My brother was dx with Celiac about 4 years ago. I'm trying to lose about 10 lbs. I lost 10 the hard way with various tests, but know that's not how I want to lose it. Would love to share healthy recipes with others who are GF.

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12/18/12 2:37 P

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Hi, I'm Adriane. I'm trying to loose 30 lb. while at the same time trying to learn how to eat without gluten in my diet. Six weeks ago I left on a trip and during that time I a) found out that the digestive problems I have been having for the last 9 months have been caused by gluten and b) I managed to gain 15 lb in 6 weeks. I am not sure if my weight gain was due to eating on the road or changing my diet but I need to both get my weight back down and make sure I am eating healthy with my food changes.

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BALLETLOTUS's Photo BALLETLOTUS SparkPoints: (11,974)
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12/9/12 2:43 P

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Hi there! My name is Andrea and I have Celiacs. Found out about 4-5 years ago. At first I gained about 30 lbs and I lost it and I'm not doing too shabby but am trying to not feel added pressure with the holidays approaching to eat the "special dessert" that an aunt has made...I really hate when they do that!
Anyways, it's nice to meet you all.

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DRAGONFLY02's Photo DRAGONFLY02 Posts: 1,239
11/29/12 10:51 A

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Dee, welcome and glad to hear you found on your own about gluten intolerance. It's too bad that whomever tested you for CD did not mention (or maybe didn't know??) that people can test negative for CD but still be intolerant to gluten.

Feel free to ask questions, people here are quite helpful.

And good luck on losing the 10 pounds. I'm on my last 10 pounds to lose too and I've seemed to have hit the infamous plateau and losing steam at the same time.

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DGLRY05's Photo DGLRY05 Posts: 216
11/28/12 5:21 P

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Hi, I do not have CD (was tested twice), but believe I have gluten intolerance. I didn't even realise you could be "gluten intolerant" without having CD until I went to Jennifer Espisito's website (http://jennifersway.org) and read her comments on it. It was after that that I eliminated gluten from my diet to see if it made a difference w/ my GI problems...and indeed it did. I thought I could dabble in gluten containing foods but when I try to go back to them I feel even worse afterwords than I did before I ever eliminated them.
Anyway, I need all the help I can get in living gluten free - and trying to lose about 10 pounds on top of that!
Thanks,
Dee


Isa. 43:10-11


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VDAYBRIDE Posts: 5
11/27/12 7:51 P

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I am 33 and got diagnosed about 6 years ago. I first joined SP before my wedding 3 years ago but am now trying to lose weight after having my first child (2 years old) and before we try to have more. Prior to my diagnosis I actually ate "healthier" - lots of whole wheat/low fat. Now, I find myself indulging a lot on food that I can eat rather than what I should eat. Hello, pity party!

I've had some fatigue issues lately, and have been gaining more weight, so I am finally getting serious about losing the weight. I am worried that if I don't, I will get diabetes, but I know I have good will power when I put my mind to things (I never cheat on my gluten free diet, just accidents sometimes).

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GFPATISSIER's Photo GFPATISSIER SparkPoints: (144)
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11/27/12 12:05 P

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Hi! I'm brand new to Sparkpeople, but not to the GF lifestyle. My daughter and I were both dx with Celiac back in 2004 so we've been at this a while. This is really the first time I've tried to lose weight though. I was a healthy weight until 2004 when I became pregnant with our third child, and I haven't lost anything since his birth in 2005. It's time to get movin' -- and I hope to find some help and camaraderie here on the GF board. =)

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LOOKINGUP2012's Photo LOOKINGUP2012 Posts: 1,958
11/23/12 7:13 P

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Hi I'm Shirley and am having slow digestion. I cook for my sister who has diabetes. She is reading a book by S Cohen that recommends she give up gluten and dairy. So here we go! Looks like a lot of help here. I'll be reading a lot, and probably commenting little for a while. Thanks for your help here.

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ONEMARINE77's Photo ONEMARINE77 SparkPoints: (4,207)
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11/23/12 12:34 A

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Hi, I am 35 year old from Tennessee. After my wife's last Doctor visit we have come to believe that our neglect of her gluten sensitivity has finally become too much to ignore. We will be goinggluten free in approximately one week. I have to research all ingredients to make this switch because of major changes in how her body has began to function. All support, help and reccomendations are welcome. Thanks!

Robert J. Lewis


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STELLARWOMAN SparkPoints: (596)
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11/22/12 11:25 A

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Hi Debi- I'm excited for you about this find. I was not initially diagnosed with Celiac Disease , but by chance I stopped eating gluten 4 years ago and have not eaten it since. My genetic testing came back with a strong possibility but I never went for the Endo. As a nurse, I see more and more Dr. testing for CD. So glad that you found out. Post about how you are doing.

KNYAGENYA's Photo KNYAGENYA Posts: 7,166
10/28/12 2:15 P

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Greetings! My name is Anysia and I am the new team leader for the group. I have gluten intolerance and I have been gluten free for 3 months now. I look forward to getting to know everyone. I hope we can all be supportive of each other as we tackle gluten intolerance and Celiac disease. I am open for suggestions for anything and challenges. Just drop me a note!

" The road to success is always under construction."- Lily Tomlin


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TEXTMONKEY's Photo TEXTMONKEY SparkPoints: (5,430)
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10/27/12 10:48 A

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Hi, I'm Shelley and I'm 48. I was diagnosed with gluten intolerance last week and I've been on a research quest since then. I'm joining this group to learn from others and to share what I learn. I'm hoping to find recipes that my family can enjoy so I'm not so often making one meal for them and one for me. I could also use some support from those who understand when I don't feel well, because although my family loves me, they just don't get the discomfort and total energy drain. Of course, I want to be able to help others as I start to achieve wellness and am stronger, too.

I had a longer and more interesting intro written, but when I submitted it, Spark said it had profanities (no way!!) and told me to click the back button to fix the message...which had been cleared. Now really, do I seem like the kind of lady who would introduce herself with profanities? emoticon LOL! Oh well, it gave me my chuckle for the morning!

Shelley

about.me/shelleyE
twitter.com/textmonkey

...but this one thing I do, forgetting those things which are behind, and reaching forth unto those things which are before, I press toward the mark for the prize of the high calling of God in Christ Jesus." Philippians 3:13


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GIRLONTHERUN's Photo GIRLONTHERUN Posts: 153
10/26/12 5:11 P

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My name is Michelle. I am 35. This is my blog post which explains the past year and a half of my life. I am not diagnosed Celiac, but I'm pretty sure I suffer symptoms from eating gluten.

wp.me/p240Vx-Xa

This is my 2nd time trying to go GF. I don't know if I will go dairy free to, but for now, gluten is going out the door. Today is the first day I started eating no gluten. The one problem I had when we were GFCF last time, is I ate a lot of GF breads and bakery goods. I am going to focus this time on healthier meals with more veggies, meat, and a lot less bakery items. That stuff isn't good for you either.

Today I just realized how horrible I feel. I haven't felt so awful my whole life. I'm tired of the medical community called me "depressed" or ignoring my symptoms. I never had a celiac test, but from what I read, it seems they are hit and miss anyway. I do know when I didn't eat gluten, I felt a lot better. So I'm returning to that way of eating and hoping I feel better soon.

Edited by: GIRLONTHERUN at: 10/26/2012 (17:15)






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JFDJP7 SparkPoints: (26)
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10/19/12 10:56 P

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Hi all,

My name is Debi, I'm 48 years old. I was diagnosed with Celiac Disease in December 2011. I started a GF diet in January. It was amazing how much better I felt when I started that diet. I have been suffering with symptoms since I was in HS. They diagnosed me then with Spastic Colon (now called IBS). Told me to eat more fiber, put wheat germ on my cereal. I did, it got worse so I stopped. I guess I just learned to live with it.

When I got the report I discovered that EVERY ONE of the biopsies had TOTAL VILLUS ATROPHY. I am slowly getting better. I am very overweight though. Need to get rid of the extra pounds. I was actually given the blood test by my Rhuemotologist. He wanted to run "one more test" just to make sure he had ruled everything out. I had sarcoidosis, bowel problems, fibromyalgia, type2 diabetes, asthma, gerd, high blood pressure, cholesterol problems. He had a hunch that I might have Celiac Disease. The blood work was positive, then was sent for a biopsy. Positive. He was so excited, I was the first person he had ever diagnosed with the disease.

DRAGONFLY02's Photo DRAGONFLY02 Posts: 1,239
10/1/12 5:44 P

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Hi Linda! I don't have any recommendations on cookbooks as I'm new to GF myself. However, if you go to amazon.com and do a search, you can find tons of books, plus people reviews on different cookbooks. Plus, there are lots of bloggers out there that share recipes and since they aren't in it for the money, directly, and need to build a good following, they will make sure to share recipes that are actually good.

Also, if you think about it, a lot of "real" foods are naturally GF. So using fresh veggies and meats, you can make lots of meals that are GF. I'm familiar with GF cooking for my mom who has been GF for years and often times, it's just finding which products are GF and using those in regular everyday recipes. So the possibilities are endless without having to make everything from scratch or paying lots of money.

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LINDAREENO's Photo LINDAREENO SparkPoints: (19,757)
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9/30/12 6:47 P

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Hello!

My name is Linda. I found out in July that I have Celiac after months of severe intestinal pain. I also have Hoshimotos (sp?) so I have a slow thyroid. I've been having a very hard time finding recipes and different gluten free options. I'm an endurance athlete and getting enough to eat to fuel my training has been insanely taxing. My family has pretty much switched along with me, but the options are so few that in the three months since I found out they feel like we're always eating the same five suppers. Does anyone know of a gluten free cookbook? I've found that just substituting doesn't yield the greatest results and I'm not the greatest cook to begin with.

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WORKNPROGRESS12 Posts: 23
9/23/12 4:24 P

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Thank you!!!! Udi's bread...thank you! I appreciate all the help I can get. I've been reading and reading.
Is there a listing anywhere of what alias' gluten has? For example, what key words should i look for on labels?
I had not heard of Celiac and RA having a connection. Is this common?
I appreciate all responses.

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DRAGONFLY02's Photo DRAGONFLY02 Posts: 1,239
9/23/12 3:59 P

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Don't be nervous. You won't learn if you don't ask questions.

Udi's Gluten Free bread is the best that I've tried. I don't even need to toast it like some of the other brands.


Edited by: DRAGONFLY02 at: 9/23/2012 (16:00)
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WORKNPROGRESS12 Posts: 23
9/23/12 2:49 P

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Hi I'm a little nervous about posting. I was diagnosed with celiac's this week and understand that I have much to learn to get healthy and allow my body to heal I got some gluten free food assembled in my kitchen and some of it is good and some of it is 'desperation food'. Today I got 'Tapioca loaf' and tried a peanut butter and jelly sandwich. Yikes....I think I've had croutons with more moisture than that bread substitute. I am very open to suggestions on which way to go, to learn, to shop, to save money and ultimately to not eat gluten.....while loving food...which is a weakness that brought me to SP some time ago.

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KK1967 Posts: 158
9/14/12 12:18 P

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There is a celiacs and gluten free aupport group in Dallas that does a lot if education. It is 10 dollars a year, I believe. If you do a search you will fond the website. If you cannot, I can find it for you

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DRAGONFLY02's Photo DRAGONFLY02 Posts: 1,239
9/14/12 10:08 A

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Hi, I'm fairly new to GF myself. My mom has been GF for 3 years, she self-diagnosed herself after she was diagnosed with Rheumatoid Arthritis and was told by a cousin who also has RA to try a GF diet. She started the diet and later learned that Celiacs and RA are related and her RA dr. thinks there is a chance she has Celiacs, but would have to go off her diet to get tested, and he and my mom both think it's not worth it, so she just sticks to the diet. She is doing very, very well with her RA by being on this diet.

I'm now suspecting Celiacs or at least a gluten intolerance as I notice a big difference in how I feel when I eat pasta, bread, crackers, etc. This has been something I'm closely monitoring the past couple months.

Sorry to hear your doctor won't talk to you about it. I'm guessing you must live in the Dallas area, so it sounds like you are near a large city with access to various doctors. Any chance you can go see a GI doctor that specializes in Celiacs? I am lucky to have a good dr. that listens and she was more than willing to give me a referral, as I need the referral for my insurance. I chose a Dr. that my insurance covers that is the head of the Celiacs division of one of the local hospitals. I wanted to make sure that I would see an expert. I also found that my insurance will cover up to 6 visits a year with a nutritionist and I found one that also specializes in Celiacs/gluten intolerance/wheat allergies. While I haven't been to see the GI Dr. yet as he has a long waiting list (2 months) and the nutritionist wants me to go to the GI Dr. first before coming to see her. I haven't gone totally GF yet as I would like to wait until I see the specialist, but I definitely have cut way back and find a big difference when I go a few days without gluten and then suddenly eat some and I feel horrible for the next day or 2.

I went to www.celiac.com/ for info on finding a specialist in my area. Also, celiac.org/index.php is another good site.

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DECKAD's Photo DECKAD SparkPoints: (8,057)
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9/14/12 9:53 A

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Hey everyone, I am fairly new to being Gluten free. I do not have a diagnosis from a doctor, no doctor would ever talk to me about it. However, a friend with the exact same symptoms was diagnosed; she had me try it. I immediately saw a difference within a week! I desperately wanted to go to the Gluten Free Expo in Dallas but already had plans. Any and all advice would be appreciated!


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KK1967 Posts: 158
9/13/12 9:28 A

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Hi. I have suspected gluten to be the cause of my pain for a long time(also have Hashimotos). I would not commit to changing my lifestlyle. Give up pasta? The occasioanal beer? No way! Anyway, I attended the Gluten Free Expo in Dallas this past weekend and after the gluten 101 class I am fully committed. I have discovered that there are many alternatives to wheat pasta and tortillas that meet my past cravings. I also sampled the Sorgum GF beer. A differnt flavor, but at least I have that option and will not be tempted to stray. Not a speck of gluten has (intentionally) touched these lips since Saturday and with planning for temptations(frozen gf pizza for when the family orders out, etc) it is actually one of the easiest diet plans I have done. And I have done a lot! Looking forward to reading posts and learning more from those who have traveled this path longer.

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ADAPTABLE_ELLEN's Photo ADAPTABLE_ELLEN Posts: 6,710
9/11/12 6:12 P

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Chantesha, have you tried the gluten free breads? My doctor recommended eating them toasted and I love them. This weekend I had my first hamburger on a GF bun, which I toasted as well. Even my husband ate one and then asked for another the next day.

The Clean Eating Team also posts GF recipes and Laura has a blog with great recipes too.

Here's her latest post and links:

Pizza

Here's the crust recipe:


Here's the toppings:
recipes.sparkpeople.com/recipe-detai
l.
asp?recipe=2232221


1 slice nitrate free bacon, diced
150 grams diced, chicken breast
1 cup fresh spinach
1/2 cup chopped tomatoes
1//4 cup tomato sauce
1/3 cup mozzarella cheese, grated (30 grams)
1 tbsp yogurt based ranch dressing


I preheated the broiler. Then cooked the bacon in a skillet. Added the chicken. When the meat was cooked through I added the spinach until it had wilted.
Then I assembled the pizza. First the sauce, then the meat mixture. Topped with the tomatoes and cheese.
I put this under the broiler until it was nicely browned. 10 minutes maybe?
Then I drizzled with the ranch dressing.

Serves 1-2

fitchickshealthylifestyleblog.blogsp
ot
.ca/2012/09/primal-chicken-bacon-ranch
-pizza.html




Edited by: ADAPTABLE_ELLEN at: 9/11/2012 (18:13)
Remember, nobody can go back to the very beginning and make a brand new start, but anyone can start here and make a brand new end.

There's a difference between interest and commitment. When you're interested in doing something, you do it only when it's convenient. When you're committed to something, you accept no excuses; only results."

Ellen


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CHANTESHA SparkPoints: (21)
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9/11/12 9:33 A

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Hi. I'm new to being gluten free. I was diagnosed with Celiac's in January. I am continuing to struggle with finding healthy, good food to eat. I am a very picky eater, and struggle with trying new things, and being frustrated about not being able to eat bread!! :)

I look forward to reading and participating in this group, being supportive where and when I can.

I'm struggling through the grieving process over the loss of certain foods, but attempting to find a better life after bread...if there is one :)

ADAPTABLE_ELLEN's Photo ADAPTABLE_ELLEN Posts: 6,710
9/2/12 6:38 P

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Hi, I'm new and looking forward to learning about gluten free living. My doctor put me on a gluten-free and dairy-free diet for weight loss. I'm losing weight, but along with it my blood pressure dropped, my reflux improved and my allergy symptoms are gone. So I'm off of all prescriptions and I'm going to stay gluten and dairy free.

The challenge is that I have a lot to learn.

Remember, nobody can go back to the very beginning and make a brand new start, but anyone can start here and make a brand new end.

There's a difference between interest and commitment. When you're interested in doing something, you do it only when it's convenient. When you're committed to something, you accept no excuses; only results."

Ellen


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DRAGONFLY02's Photo DRAGONFLY02 Posts: 1,239
8/24/12 7:11 A

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Thanks for the welcome and info. I'm now second guessing myself as I experimented last night with some mac and cheese and a soft pretzel and I felt fine. Oy!!! Some days I feel horrible eating any bread or pasta and other days I'm fine. Regardless of what the blood work shows, I'm going to see if I can get my PCP to refer me to a specialist. While I dislike living near a large city, there are advantages in terms of resources. I found last night that a local hospital has a Celiac Unit and the head of the unit has an office near my work and is taking new patients and takes my insurance. I'd like to go and see him and get his opinion as to what is going on.

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CINDYTW Posts: 5,783
8/24/12 12:37 A

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emoticon Yes you do have to have it in your system for testing. HOWEVER, be aware that the blood test and biopsy only "SEE" those that have ful blown Celiac disease. There are a lot of gluten intolerant/sensitive people that do not qualify, but that would never go back once they try GF. So, if testing is negative, you still may try a GF diet to see if it helps you. You have nothing to lose doing that.

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DRAGONFLY02's Photo DRAGONFLY02 Posts: 1,239
8/23/12 10:52 A

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Hi all! I've been a member of SP for 4 years and just joined this team. A few years ago, my mom was diagnosed with Rheumatoid Arthritis. Soon after the diagnosis, she was talking to another family member with RA, and this family member told her about going on a gluten-free diet and how after she learned about GF and tried the diet, she went off almost all her RA meds and has felt better than she had in years. So my mom decided to give it a try and noticed a drastic change in her symptoms within a few months. She mentioned all this to her RA doctor and he told her if it's helping, then stay GF. Over the past 3 years following this diet, she has been doing really well. Her RA doc says she is one of his healthiest RA patients and believes it is her diet and that she most likely has Celiacs. However, she does not want to stop her GF diet to be tested for Celiacs and he also told her it wasn't worth it. Of course I hear a lot of Celiacs and GF diets from her plus I've been reading about it myself. Over the past few months I've really paid attention to what I eat and how my body feels and I notice that if I eat a "high wheat" meal like pasta or pizza or lots of bread that I tend to feel horrible. Usually within 15 minutes of starting to eat the meal. And I don't think it's dairy either as I eat lots of dairy foods and if I have those without wheat products, I am fine. My mom also told me that she had lots of GI issues for most of her adult life and she actually increased her fiber intake and tried to eat lots and lots of whole wheat foods for years to try and help, which it never did. And she now says was probably the worst thing she could have done, but that's what the doctor's told her then, eat high fiber and whole wheat to help your gut. I'm starting to see problems with wheat myself. For example, I can eat a hot dog on it's own (casein and nitrate/nitrite free) and I'm fine. But if I eat one on a whole wheat bun, I suddenly feeling horrible. And I do get lots of fiber from other foods like fruit, so I know it's not caused by sudden fiber intake either.

Anyway, I went to my doctor yesterday, explained my symptoms and told her about my mom. She said it does sound like a possibility of Celiacs and took some blood samples to get me started on figuring all this out. As much as I can't imagine giving up my favorite breads and pastas, my health and how I feel is much more important to me. I haven't mentioned it to my mom yet because she will worry incessantly until I find out what's going on, but I know that if I do have Celiac's or a gluten intolerance, while she will feel bad for me, she will also be "excited" (for lack of a better word) to share GF living with someone. Now I just have to wait and see what is going on with me. In the meantime, I am going to be studying up on GF living more and more in case I have to make the switch in the near future. Since I want to know for sure about Celiacs/intolerance/allergy, I'm going to continue my normal diet for now as I've read you need to have gluten in your system for testing.

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CINDYTW Posts: 5,783
8/21/12 11:35 P

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TEALADY Welcome, and I would be willing to bet gluten and dairy play a part here. All those symptoms are classic for both. You don't have to be Celiac to have an intolerance, and the blood test only "finds" active Celiacs usually. After removing gluten and dairy, if you still have some inflammatory issues then look at other cuplrits, such as nightshades, beans, sugars or artificial sweeteners, and any type of hemical additives, colors, preservatives and any MSG (anything ending in glutamate).

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TEALADY0531's Photo TEALADY0531 Posts: 1,117
8/21/12 6:43 A

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Hi, I'm Midgie. emoticon I'm a 49 yo wife of almost 29 years, mother of 2 grown sons, and grandma of 3. I started checking up on celiac disease and gluten sensitivity when I read on another site that so many people with fibromyalgia were on a gluten free diet. I was thinking to myself at the beginning how drastically I didn't want this to be true for me - I'm a bread and baking addict! Plus, gluten seems to be in everything - aack! The more I researched, though, the more I realized that all these stories I was reading sounded so much like me! The fibro pain, the migraines, the rashes, the gut problems like the IBS, lactose intolerance, bloating that nothing helps, PAIN after eating - maybe even the depression. PAIN is the operative theme here. I have Botox every three months for chronic migraines and they still break through. I'm in all-over pain always. So, if gluten intolerance might be the problem, or part of the problem - and if changing my diet could be the answer - it's worth it! As my husband puts it, I've been sick as long as he's known me....

I asked my doctor for the blood tests, and they came back negative - so he says I don't have celiac. Based on all that I've read, though, I'm still going to give going GF a good trial and hope that it helps. I've read that I may need to give it up to 3 months to see if it helps - I'm hoping to see something sooner. At least we have good local resources for gluten free stuff. Just ate some Udi's raisin bread toasted, and I'm not complaining.... I'm in a household of 5, though, and no one else is going GF, that's for sure!

~Midgie~

"Faith is the gaze of a soul upon a saving God."
A.W. Tozer


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MARILYIGO's Photo MARILYIGO Posts: 35
8/8/12 10:36 P

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Thanks for the website ThisSpring. I have been going GF for about 10 days now, and more info is definitely better. I was feeling pretty good for a couple days but today I am just dragging. I've been avoiding all refined carbs but had rice pasta tonight. Wonder how long it takes to really notice a difference? I wasn't diagnosed but I have so many of the indicators and feeling so desperate that I thought I would try this. I also ordered the book Wheat Belly, which should arrive any day now. If nothing else, I think it's been a healthy move to stop eating so many of the wrong carbs and I am finding out I like it just fine. I need to count calories too, in order to lose weight. But I am hoping the GF aspect will help. I'm getting worried a bit about the holidays and not having my mom's cornbread dressing, but I should know more of GF consequences by then too. I'm encouraged!

Hope is something you give yourself.


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THISSPRING2012's Photo THISSPRING2012 Posts: 36
8/8/12 10:46 A

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In regards to needing recipes/holiday time---I like www.glutenfreegirl.com and glutenfreegoddess.blogspot.com. These are my favorite ones so far. Been GF for 2 weeks due to sensitivities of gluten and have felt GREAT except for when there has been a hidden gluten. Has only happened 2x and I'm working at trying to figure out which food it was.

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MARILYIGO's Photo MARILYIGO Posts: 35
8/5/12 10:57 P

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Thank you Rebecca,...oh, yes...I remember now the caution about testing. I really feel like I must be pro-active and try the GF on my own. I'll report back in awhile. In the meantime, I will continue to read here and really do appreciate SP. Everyone be well!

Hope is something you give yourself.


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FRUITBAT3's Photo FRUITBAT3 Posts: 114
8/5/12 7:58 P

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Hi Marilyigo
I admire you for looking to take control but have a word of caution. The tests can be inconclusive ESPECIALLY if you have already gone gf!
Good luck with it all and let us know how you go.
Rebecca

Rebecca


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CAL8166's Photo CAL8166 Posts: 7
8/5/12 7:49 P

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Hello everyone, I have been absent for some time to this page and spark people itself. I have lupus, psoriasis, psoriatic arthritis, and gluten intolerance. There are days like last week that I decided not to watch what I ate and went way overboard with pasta. Can I tell you how it effects my joints!!! My biggest problem is that we eat out so much however; I told my husband that I am committed to eating at home and cooking clean so he has to help. That is going to be difficult for him so I am hoping he can come through.

MARILYIGO's Photo MARILYIGO Posts: 35
8/5/12 6:40 P

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Hi Brittany - I am new to this group as well as GF eating. I've only been doing it for a week. I'd like to know how soon I can expect to see some relief! I was already trying to eat "clean" with organic foods and avoiding all "processed" foods...anything with more than 5 ingredients and if the ingredients were not something I could pronounce. I really think there is something to this GF thing....the more I read here and online. I just posted on another link here about all my symptoms, etc...but here is a short list of things I have experienced in my life: hypothyroidism, gall bladder disease, diarrea, constipation, diverticulitis, anemia, Vit D deficiency, B12 deficiency, osteoarthritis, GERD, and I have trouble sleeping. I can also think of other things in my life that are highly suspect to me as having a sensitivity or intolerance of gluten. I think the only way is to eliminate it and see. I intend to ask my dr. for a blood test soon, although I hear those tests can be inconclusive. It's worth a try!

Hope is something you give yourself.


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BRITTSHANKS SparkPoints: (851)
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7/26/12 10:58 P

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Hello all,
My name is Brittany and I just got diagnosed with celiac disease. After tons of doctors appointments and even surgeries, the doctors are finally realizing I have this disease. I have severe abdominal pain and it happens whenever I eat anything. I am now starting the gluten free diet. I am nervous because gluten is in everything. I will go through my pantry tomorrow and get rid of all foods that contain gluten. I am also trying to lose body fat and gain muscle but I am very discouraged after what I just found out. Any advice? Tips? I need all the help I can get. How can I continue my weight loss journey with celiac disease?

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NO_SUBSTITUTE's Photo NO_SUBSTITUTE SparkPoints: (2,200)
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7/26/12 7:37 P

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Hi Samsee - how about a non-dairy "milk" like soy, coconut, or almond milk? I find them to be smoother than the dairy version anyway.




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*-::-. (. ;..♥*JULI* ♥.*)*-::-.
(.(*.♥.*) * (.(*.♥.*)



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SAMSEE's Photo SAMSEE Posts: 61
7/26/12 5:30 P

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I am still waiting for my bloodwork but I think this may be the answer. I already have other autoimmune disorders -- Hashimoto's thyroditis and Fibromyalgia. I attributed my stomach issues to life long irritable bowel syndrome but since the suggestion by my doctor, I have done some research and see that this makes more sense based on my symptoms. I always had issues after eating pasta but blamed it on the cheese or the tomato sauce -- maybe it was the pasta!!! I would like to try eliminating gluten to see if there is an improvement (might even cure fibro!). I don't know where to start and I am a huge fan of bread. My diet plan can not include milk in the morning (4 hours after taking my thyroid replacement pill) so no smoothies then. I don't want to see a dietitian yet. I want to make some changes myself first and then see someone to iron out the wrinkles.



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NO_SUBSTITUTE's Photo NO_SUBSTITUTE SparkPoints: (2,200)
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7/22/12 11:04 A

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My name is Juli and I'm 46 yrs old, I have a 25 yr old daughter. Over a year ago, I started getting strange clusters of seemingly random symptoms - severe IBS, migraines, joint pain, rashes - because I have had them on and off over the years, I paid them little attention, until a new symptom developed - swollen, red, itchy hands. After waking up 2 mornings with hands so swollen I could not even make half a fist, I looked it up online and came across a thread that attributed it to a wheat allergy. After thinking about some of my recent "random" symptoms, I realized that most of them were triggered by sandwiches or pasta meals. The prior year, my daughter had self-diagnosed herself as gluten-sensitive after nearly being hospitalized with sever stomach cramps, but I had never made the connection to my experiences because they seemed so much milder than my daughters. After steering clear of certain products I did notice that nearly joint aches and congestion disappeared and I felt less sluggish overall.
Sometimes I slip deliberately and have a cookie or a sandwich, and sometimes accidentally by having something with caramel coloring - either way I pay dearly and resolve to be more attentive.
Having a co-sufferer in my daughter helps as I have someone to bounce meal ideas off of or discuss physical ailments with. My husband is coming around to GF pastas (but still insists on buying regular pastas and breads since he doesn't have to eat GF).

Looking forward to learning and sharing with this group.


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*-::-. (. ;..♥*JULI* ♥.*)*-::-.
(.(*.♥.*) * (.(*.♥.*)



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BEACHMOM77's Photo BEACHMOM77 SparkPoints: (31,647)
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7/21/12 10:39 A

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emoticon hi I am Cathy and was diagnosised with gluten intolerance and now trying to follow the diet! I just did bloodwork for anemia because by Dr heard a heart murmur that he had never heard before. I have always had a spot on my arms (not always in the same spot) that nobody could figure out why. It was so bad I would scratch till my arm was bleeding. I have been really bad lately and noticed my stomach swelling. I never really had stomach problems so it was hard to stay on died but now reality is hitting as I am getting older. So I am going to start and be gluten free. I am very active exercise, ride my bike I just need to get my diet under control! I put on about 10 pounds in the last 10 years and want to lose it.
Look forward to getting to know all of you and your journey gluten free.


Happy Fall!
Cathy 🌞🌞🌞
Ventura, Ca PDT 🌞


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CINDYTW Posts: 5,783
7/6/12 10:15 P

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emoticon New Members! KMART it is not always lactose for us but Casein. Watch labels for anything with that word in it, such as sodium caseinate.

SKYWARD it can be hard at first but if you are trying to lose, stay away from the GF products. They can really sabotage your weight loss efforts.

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SKYWARDIMAGES Posts: 8
7/6/12 7:56 P

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Hello my name is Ashley I am GFree since last August after a scary illness that swept me into the hospital for 6 days. I had been violently ill for 14 days before I was rushed to the ER . That was the beginning of my diagnosis.
I slipped up recently and ate some Oreos and wound up it the ER having a severe reaction ( chest pains) I thought I was having a heart attack! My auto immune response is so strong to gluten now that my fingers cripple and my joints swell, sometimes I get a rash, and many other bizarre things. Most people thing GF is BS (if you know what I mean), but I have had symptoms all my life and didn't even know what it was.
Like many of you; I am anemic, B12 deficient ( taking self injections has helped a LOT),my story goes on and on. I am back here at SP after loosing 80 lb.s a few years ago then gaining back 30 after being ill, and going to work full time again. Stress eating, and not holding myself accountable for my lifestyle have led me down the wrong path. Today I am working to re-teach myself those good habits that helped me loose 80 pounds before, and to learn NEW habits of how to not eat gluten ( both on Purpose and Accidentally).
So I say hi nice to meet you ! :)

SUNNYBEACHGIRL's Photo SUNNYBEACHGIRL Posts: 2,268
6/30/12 1:41 P

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My husband was diagnosed with Celiac 4 years ago. That was after spending the 5 previous years in pain and agony. He also has type 2 diabetes. People with celiac often have other autoimmune diseases. My daughter has also been diagnosed as well as his brother and sister. This makes the gluten free holiday meals a lot easier to prepare. I have committed to a gluten-free life and kitchen, and manage his food intake and nutrition. He is symptom free. I read blogs and posts of people who have the disease, so that I can better understand how to help him be healthy.

Sunny in Southern California PST

Challenges are what make life full of stress and anxiety and overcoming them is what can wear you out. Stay stong.

Don't stay down, every storm runs out of rain.

Team leader for 50+ members with 10-24 pounds to lose Team


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KMART46320's Photo KMART46320 SparkPoints: (12,166)
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6/30/12 9:59 A

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Reading the other introductions, I feel like they have already told my story. I'm 43. I've had no energy and felt like crap for about 6-7 years. I steadily gained 20 lbs. during that same time. A regular health screening blood test at work showed abnormal thyroid levels. I went to my doctor. He ordered additional tests. He put me on synthroid. The extra tests pointed to an autoimmune disease. He referred me to a rheumatologist. The new doctor did more tests. And everything was inconclusive. He doesn't know what I have. He gave me a bunch more medicine. Don't you love it when they prescribe something that has a side effect of blindness but they hope it will work for the disease they think you MIGHT have? I felt better with the synthroid, but still fell asleep if I sat down in the evening. I started reading everything I could about autoimmune disease and thyroid issues. Based on what I read, even though the blood test was negative for Celiac's, I cut out gluten & lactose. Lactose intolerance runs in the family. I feel stupid for not realizing I had it too. My tummy is sooooo much happier now that I have cut out cheese, milk and even butter. I now realize that when I eat wheat I feel foggy the next day and depending on how much I ate it can be the next couple of days. I feel sluggish and draggy. I went to an endocrinologist, he upped the amount of synthroid and after MORE blood work, discovered I was low in vitamin D. Taking vitamin D has made a big difference!!! I am now running outside 3 times a week (soaking up more vitamin D) and feel really good!!! I have lost the 20 lbs. I gained and even more!!! I plan to run a 5K in August. I plan to eat this way the rest of my life. It's not a fad diet. I want to stay healthy and feeling good.

The journey of a thousand miles starts with a single step. - Lao-Tsu.

Who cares about what happened yesterday, what happens today matters more. - Me


BONNYNBLITHE04's Photo BONNYNBLITHE04 Posts: 312
6/27/12 10:51 P

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Hi everyone,

My name is Deseree. I am 39. Four years ago I was in the best shape of my life. About 3.5 years ago it began to fall apart -- I worked very hard to keep my weight down, keep my staples handy, keep myself moving -- to little avail. The fallout has resulted in major shifts in my personal and professional life.

I decided to invest in myself earlier this year and book some sessions with a nutritionist, and yesterday was the second meeting. After looking through several of my diary pages, she suggested that I switch out some of my staples for gluten-free options. I read the labels on some of them today and the first or main ingredient in several of them is whole wheat! No wonder I can't stop eating them!

Anyway, my copy of Wheat Belly is on the way, I have gone to Trader Joe's to pick up substitutes and the cupboard purge is underway! I would like to lose about 40 lbs before my 40th birthday in March 2013. Wishing everyone well on your respective journeys!



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CINDYTW Posts: 5,783
6/10/12 8:09 P

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