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LOSTT1 Posts: 2
6/7/12 11:57 A

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Hello. My name is Melissa and although I'm not exactly new to SparkPeople, I am new to actually using it. :) I am 32 yo, a little over 100 pounds overweight and I live all by myself in northern Colorado after moving here from Illinois 6 1/2 years ago. I had lost about 55 pounds a year and a half ago following WW, but then I started having health issues and ended up gaining 40 of those pounds back. It's frustrating, but it happens. The key for me is not letting it get me down and to just get back up and do it again.

About 2 years ago, I started having a lot of issues with vertigo and migraines. They were manageable, but made me pretty miserable. Then, at the beginning of last winter, things just got so much worse. I was having a lot more issues with vertigo and it really started to affect my life. I went to my doctor and honestly, he wasn't really any help. He kept prescribing meds that made things worse, not better. I got lucky, though. A friend of a friend was going through the same thing and when we got together to compare stories, it's amazing how similar they were. But she was getting better where I was still getting worse. Turns out she had gone to a new ENT and he decided to test her for allergies, both airborne and food. And the number of allergies she had was numerous. But once she started getting shots and modified her diet, things changed drastically for her.

At my friend's recommendation, I went to the same doctor and he ended up doing the same thing for me. Turns out I'm pretty much allergic to life (or at least it seems that way). There were quite a few airborne allergies that affect me year-round, so I started getting shots about a month ago. I only recently got my food allergy results back. The results show I am gluten intolerant, but only slightly. I am, however, allergic to wheat (and highly intolerant to yeast). So I'm going GF to see if that helps me get things under control. As I've been reading up on symptoms of wheat allergies, I've been paying more attention to what I eat and how I feel afterwards. Man, I've been feeling so bad for so long, that I wasn't really aware of just how bad it has been. Feeling awful has become almost normal for me. Well, not anymore. I've only been watching my diet for a couple of days, so I haven't seen too much of a difference yet, but I'm remaining hopeful. I have noticed my stomach hasn't been bothering me as much and the bloating has gone down a bit. If going GF only does half for me that it did for my friend when she did the same, then I'll be thrilled. It's going to be tough to switch things over, but I can do it. And honestly, I live in a great place for it. We have several health food groceries here and many of my favorite restaurants offer GF options/menus. First I'm going to focus on GF and then, if I'm still issues, I'll look into dealing with some of the other things that popped up on the food allergy results. All while trying to lose the extra weight. But that's why I'm here. I know I can't do it alone.

Anyway, hi. That's my story in a super tiny nutshell.

HICIM705's Photo HICIM705 Posts: 3,734
5/30/12 6:00 A

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Good Morning, All. My name is Heidi. I have been with SP for several years now. I'm trying to get as much info as I can about GF and GF eating as I have had mild stomach issues over the years - but I have had skin issues for a long time. Some of the research I have done on my own, indicates that wheat allergies could be a contributing factor. I want to take the month of June and begin to eat differently - more specifically, cutting out the gluten ... I want to see for myself if this can/does make a difference.

I actually contacted DOTSLADY (the starter of this thread) a long time ago. I could have/should have tried back then ... not quite sure why I didn't ... but I'm ready to begin. I thought that I would choose this time of year - with all of the fresh produce available to try out my theory.

Since I'm new to this whole thing, I'll need LOTS of help and guidance - any suggestions that anyone may have to get started would be welcome! I'm looking forward to getting to know members of this group.

¸.•´¸.•*´¨)
♥ .•*´¨ ) ..•*¨) -:¦:-
(. ;.•.♥ Heidi ♥.•*¨)
♥.•*¨-:¦:-. ;.•.♥ -:¦:-
¸.•´¸.•*´¨) ¸.•*¨)

NJ (EDT)

Co-Leader: 2014 Summer 5% Challenge / Firecracker Team

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CINDYTW Posts: 5,783
4/29/12 10:19 P

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emoticon Just think whole foods. Fish, meat, chicken, potatoes, rice, veggies, fruits, nuts, and oils. If you stay away from the "goodies" you should be fine weight wise. It is best to cook yourself if at all possible. I make use of the crockpot for busy days!


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ELEANORRIGBY13 Posts: 711
4/29/12 12:18 P

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Hi everyone! Glad to have found this group. I have been on SP for many years and am either at or pretty close to my goal weight (I've been maintaining for a while, so I don't weigh regularly, just when I suspect there might be gain-back). I am back in order to get advice and counsel for my gluten allergy and of course to rededicate myself to healthy living generally.

Starting in my senior year of college I started to feel nauseous and bloated after almost every meal. I had issues with bowel regularity, too. I tried all sorts of weird things to settle my stomach, including eating exclusively whole wheat pasta for weeks at a time (which didn't help and also gave me migraines, which I never have otherwise) and trying laxatives. It was terrible! I wondered how my digestion could consistently be so horrible, since I am young and eat pretty healthy.

I tried going gluten free and the stomach problems that had been plaguing me for years went away. I feel great and have more energy. Sometimes I would eat in an effort to settle my stomach, now I only eat when I am hungry. I feel really good, but I have no idea how to make this sustainable. I eat omelets, cheese, yogurt, and drink meal shakes everyday, which is not a sustainable way to eat. However a lot of what I ate before was pasta, sandwiches, and cereal, so everything wheat! I have started eating meat again, too, in an effort to stay full and add diversity. I am normally a pescatarian, and I want to go back to that. I also haven't yet seen a doctor, so I don't know if I should be avoiding all glutens, or just wheat (which I am sure I have a problem with).

Hoping for advice and guidance from you guys!

blackbird singing in the dead of night
take these broken wings and learn to fly
all your life
you were only waiting for this moment to arrive


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CINDYTW Posts: 5,783
4/23/12 10:42 P

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Welcome and yes dairy can get easier to handle. I strive to be dairy free but am a full fledged cheese addict! Ican go a little while and then have to have some! Everything else I have found a good substitute for.

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2012ISNOW's Photo 2012ISNOW SparkPoints: (6,766)
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4/23/12 6:33 A

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Hello - I'm new to this team, and was diagnosed with celiac in January. After many, many years of issues, it feels like a relief to have found a root cause. I'm totally amazed how big of a difference a changed diet can make. To be honest, I am not sure I would believe it if I didn't live it.

The doctors also found that I have a dairy sensitivity, so at least until the gut has healed up, I am on a gluten & dairy free diet. If I understood it correctly, they could re-test dairy in a year or so.

So, I have learned that it will take me 48 hours to get over an accidental intake of gluten, whereas accidental intake of dairy "only" makes me a bit sluggish and bloated. I would never have noticed earlier, but now that I feel so much better ... I don't want to give up my energy, not even for a divine sliver of aged cheese.

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CINDYTW Posts: 5,783
4/19/12 9:00 P

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Welcome! Please come see us at the Paleo Diet team! We are all about eliminating grains and dairy as well as beans (due to lectins). I live in Upstate NY as well, but west of there. It is way more rural where you are. Just stick to whole foods like steak, fish or chicken and a baked potato for example when eating out. There are more places wih GF menus now. Do you live in the tourist area? There will be more GF there I think...just ask and they may surprise you!

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SPROINK SparkPoints: (38)
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4/15/12 10:52 P

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Hi!
I'm new to SparkPeople.
I just moved back to the states in Sept. from Europe and plumped out 20 pounds. My German gastorenterologist said that might happen with the GF diet and all of that crazy nutritional absorption that my body is suddenly doing. He strongly suggested not dieting for a couple of years so my body can normalize... but I can't fit into many of my clothes and am feeling generally very uncomfortable.
I was curvy before, but was comfortable and able to do all manner of exercise at that size. This extra weight is simply not okay to my joints.
As for story... well, i've felt like crap my whole life, but assumed everyone felt like crap.
:)
I Was diagnosed with Sjogren's back in 2007. Then, while in Germany, I was having stupendous trouble with fatigue. It was bone crushing fatigue. My rheumatologist sent me to a GE on a hunch since he could not get my vitamin D level up to anything resembling functional and they did a biopsy. VOILA!
That was last summer. I haven't intentionally touched gluten since and the fatigue has POOF! vanished. I am having some other problems here in the states (that I did not have overseas) so I'm giving up grains in general as well as dairy. I want to keep inflammation very low.
I also want to freaking wear my clothes again!!! It's tough because my achilles tendons hurt so much that it hurts to walk most days, but I have to walk to lose weight. What's a girl to do??
I do cook every day. I don't eat processed food and I live in very rural upstate New York (near the Adirondacks). It's clear that the food here is very different from the rest of the world and I find that infinitely disturbing.... but I just assume it is because I have a food-based disease that doesn't bother me in any but industrialized countries. In the US it's definitely the most challenging. I don't know about you all, but going out to eat is usually a crap shoot. 7 out of 10 times, I'm going to feel like you-know-what the next day.
I guess there isn't a way to leave off grain products in the nutrition/menu area? Like I said, I'm quite new.
Well good luck this week, folks.
Better hit the hay.
Happy Trails!
Tatjana

CINDYTW Posts: 5,783
3/29/12 12:14 A

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emoticon I couldn't do the endoscopy either!! But based on my blood work my docs conceded that I have Celaic disease.


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MIAKA1129's Photo MIAKA1129 SparkPoints: (5,162)
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3/28/12 8:20 P

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Hi! My name is Jess. I have been blood tested for celiac (negative) but did not have an endoscopy done. I've been gluten free for just over 8 months now, and can't bring myself to go back on gluten long enough for the endoscopy. I had IBS, migraines, and intermittent anemia previous to going gluten free. I just call myself gluten intolerant, since I don't have a diagnosis of celiac. I also cannot tolerate MSG, so everything we cook is made from scratch, and is generally gluten, lactose, and msg free.

160 lbs - New pair of sunglasses
155 lbs - New pair of running shoes


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CINDYTW Posts: 5,783
3/26/12 11:34 P

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emoticon

Edited by: CINDYTW at: 3/26/2012 (23:35)
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LEUNGKRISTIN's Photo LEUNGKRISTIN Posts: 12
3/23/12 11:58 P

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Hi everyone!

My name is Kristin, I am a 31-yo mother of a 10-yo girl. I have been living (mostly) gluten free for about a year, after YEARS of visiting all kinds of specialists, who could never figure out why I always felt so crappy!

I was positively diagnosed with Celiac, as my doctor only decided to do the test AFTER I went gluten free (it was then I realized my doctor doesn't know what he is doing!), and I am too scared to go back to gluten in order to be tested correctly. I already know, after several slip-ups, that I will suffer from migraines, fatigue, canker sores, acne, GI distress, depression...it is not worth it!

As I mentioned, I am mostly gluten free. I am still working on cleaning up my diet, preparing my own meals and being ready when I go out. Hoping this group might be able to provide some insight and support!

-Kristin

Kristin Leung, B.S., M.Ed.
CINDYTW Posts: 5,783
3/23/12 9:42 P

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emoticon New Members!

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MELANIEZOE's Photo MELANIEZOE SparkPoints: (152)
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3/22/12 4:49 P

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Hi everyone. My name is Melanie. I'm 38 & happily married. The household currently consists of me, my hubby, our dog & cat, plus my mom & her cat. (Yes, my husband let my mother move in with us. It's gone well so far, but I still think the man is working on sainthood, LOL!)

I've never been tested for Celiac Disease, but we all had food sensitivity testing done a couple of years ago and gluten, among several other things, came up positive for me, my husband & my mother. Our house, including the animals, has been gluten free for just over 2 years.

I've found that, since cutting out gluten and the other allergens, I feel a lot better- mood swings are near non-existent, my memory is better and absent-mindedness is reduced, much less aches and pains, no more migraines, better energy, GI system is happy and 'regular'... yes, it's definitely a happy thing! The funny thing is that I had no idea of how badly I felt until I started feeling better!

The biggest challenge for me has been having to re-learn how to cook. Before having the allergy testing, baking was my go-to for stress relief. I included 'feeding people' among my hobbies, and was frequently head chef for dinners held by a volunteer group to which I belonged, where I was responsible for feeding anywhere from 50 to 200. I still love to cook and feed people, and am slowly building up my repertoire of allergy-friendly recipes.

I was so glad to see that there was a GF team here on Spark!

"Changes in attitudes, changes in latitudes, nothing remains quite the same... If we couldn't laugh, we would all go insane... If we weren't all crazy we would go insane!" J. Buffett


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BREWEDBLISSCHIC's Photo BREWEDBLISSCHIC SparkPoints: (601)
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3/21/12 9:24 P

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Hello all, my name is Alishia and, I have never officially been diagnosed with Celiac Disease,, but certainly suffer from tremendous dis-ease whenever I eat even the tiniest amount. I have thus been gluten/wheat free for almost a year now, I still suffer from major intestinal issues/pain/problems. In my research and personal assessments, I have discovered that Dairy and soy are also foods that I do not tolerate well. I do not think that that many people realize how much food can effect our lives until they are exposed to illness due to the food they eat. Even though I have had a major weight problem for over a decade, I never realized how terribly certain foods and excess of foods in general were truly effecting my health and quality of life. It is amazing how asleep I was to it all. Well here's to waking up and being healthy and wise! :-)

~The Brewed Bliss Chic~ www.brewedbliss.com


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LEASH55's Photo LEASH55 SparkPoints: (4,981)
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3/5/12 11:09 A

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i don't eat eggs by themselves, but i don't mind if they are cooked -in- things where i don't taste them..hahaha i am not a complete vegan, though. the technical term is "lacto-ovo vegetarian", since i eat dairy and eggs. i have to be picky about dairy as well, though..i can eat yogurt and cheese, but things like milk and ice cream make me super sick.

i will check out the burgers you mentioned! i had no idea there were non-soy ones..thanks for the tip!

i write/photograph my life here: myselfinpieces.blogspot.com


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CINDYTW Posts: 5,783
3/4/12 8:06 P

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There are soy free options. I don't eat soy at all. Do you eat eggs? They are a great alternative! So are cooked/soaked beans, you can make your own veggie burgers or meatballs etc. Sunshine burgers I believe are soy free (double check though), and if you can have dairy that helps too. If you look at old threads or ask specific queastions, I know there are other vegetarian members here.


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LEASH55's Photo LEASH55 SparkPoints: (4,981)
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3/4/12 12:12 P

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hullo! my name is licia..i am new to both sparkpeople -and- living gluten-free. i was diagnosed with hypothyroidism almost three years ago, immediately before undergoing knee surgery..recovery from surgery was a very long affair, including 18 weeks of physical therapy and a permanent 3% disability. i struggled through that time while also dealing with the balancing act my doctor performed while trying to regulate my medication. three years later, i have learned to deal with my knee, and exercise in spite of it, but my thyroid continues to be problematic. my biggest problem (or so i thought) was that my doctor suggested i steer clear of soy, as it can hinder proper thyroid function--and i am a vegetarian! needless to say, eating healthy has blossomed into a battle...and then, in the past few weeks, i was diagnosed with a gluten sensitivity that -could- possibly explain some of my issues...so i am trying to adapt my diet, and am hoping to establish a routine that makes healthy eating a habit, rather than a chore.

today is day one.


i write/photograph my life here: myselfinpieces.blogspot.com


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CINDYTW Posts: 5,783
3/1/12 9:27 P

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emoticon OMAHAMAMA and SPARK! As noted there is no GF option. DO check the items added by members thoroughly because some cut corners and will throw off your nutrients for the day if hey neglected to add a value. This may not be the majic bullet. I am still yo-yoing myself. But it HAS to help as is it heling your health for certain!

Edited by: CINDYTW at: 3/1/2012 (21:29)
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OMAHAMAMA's Photo OMAHAMAMA SparkPoints: (13,163)
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3/1/12 9:41 A

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Hi Spark, I'm new to GF eating as well but am very familiar with this site. There isn't a way to program meals for GF yet (although that would be a great idea!) so skip the meal planner option and enter your own food. You can change it under the My Trackers - My Nutrition - Tracker Options - Don't Show Meal Plans.

Then you use the search to look up foods that you've eaten. Trust me, there is a ton of name brands and store brands, and just the basics (like: "potatoes") already set up with the nutrition info. If you don't see what you want, there is an "enter a food not listed" option where you can input right off the nutrition label on the package. Give it a try. Be aware though that many people do enter their own food into the database so before you add something to your daily tracking, be sure to click on the "see nutritional info" tab to make sure it matches what you're eating. You can tell the difference between a SP site entered food and a user entered item because the latter will have their user name in parentheses after the description of the food. Also, there is a check box to save a food as a favorite - this is great if you eat something a lot so you don't have to search it out every time, you can just click the Favorites tab to see the food you've saved. I also LOVE the Recipes tab, not only can you look up recipes there if you need meal ideas, but you can enter your own recipes. I use it all the time when I make a batch of something because it will calculate out the nutrients and calories based on the serving size. Like when I make a whole pot of soup, I might use 3 potatoes chopped and 2 chicken breasts diced but I want to know how many calories 1 cup of soup has, I add in all of the bulk ingredients there instead of trying to figure how much of each ingredient was in my bowl.

I highly recommend doing it this way as it gives you the most control over your food. Good luck!

“Today was a difficult day. Tomorrow will be better”
― Kevin Henkes, Lilly's Purple Plastic Purse www.goodreads.com/work/quotes/122334
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SPARKINTHEDARK's Photo SPARKINTHEDARK Posts: 10
2/29/12 8:18 P

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Hi Everyone...

I don't know if I am posting this correctly...I'm a bit disoriented and trying to figure out how to use this site properly!

I would like to introduce myself...

I'm super new to being gluten free. I started eating a gluten free diet about a month ago and I feel SOOOOOO much better. I was diagnosed with Hashimoto's Thyroiditis a few years ago (misdiagnosed for 10 years) and I'm now pushing 30 and finally have my thyroid levels regulated via drugs. However, even though my levels seem okay, I've felt exhausted, out of it and generally unwell for as long as I can remember. I've recently found out that the autoimmune disease that killed my thyroid is also associated with Celiac Disease so I decided that I would try the gluten free spiel to see what would happen. I can't believe how much better I feel!

I have gained 40 pounds in the last 4 years and could not figure out why. I am hoping that kicking the gluten habit will finally help me. I feel at the end of my rope. I am so glad there is a group of gluten free people to connect with!

Do any of you know if there is a way to set the meal plan and grocery lists on the nutrition tracker to be gluten free? I saw vegetarian options etc, but not a gluten free one :(

Take care!

GFNOMAD's Photo GFNOMAD Posts: 1,508
2/29/12 10:33 A

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Welcome to the new people!
@Omahamama, you definitely approached it the right way! As to the birthday cake, probably a commercial mix like Betty Crocker GF or Namaste both of which get good reviews but will be high in calories and fat. Once for a birthday cake is OK! Check online for reviews and modifications.

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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OMAHAMAMA's Photo OMAHAMAMA SparkPoints: (13,163)
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2/29/12 9:50 A

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Hola! New to the group and new to living gluten free. I've not been tested for Celiac but I was diagnosed with Lupus in '03 and believe that many times auto-immune diseases overlap. I've been on and off SP since '07 but this time (renewed goals in January 2012) I really put the focus on my eating instead of jumping into uber-exercise mode like I did in the past. In doing so I started to become aware, REALLY aware that anytime I was eating bread, pasta, crackers, etc., I was getting bloated, sluggish, and having IBS symptoms. So since I am sans health insurance at the moment, I did my own research online and found a correlation between Lupus and Celiac. I decided to to a 1 week elimination diet and felt better almost overnight. Skin probs cleared up, IBS gone, more energy, etc. I've continued on for around 3 weeks now and it has not been as dire as I would have thought. I'll admit it was hard smelling pizza when my husband brought one home, and I'm bummed at giving up my English muffin habit, but as I was trying to cook more whole foods anyway, the burden has been lightened by taking the focus off what I can't have and putting it on all of the foods I CAN enjoy. I think I actually prefer my spaghetti squash with Bolognese sauce to the real deal!

The one thing that might be a setback is holidays and so I am looking to make a great GF birthday cake that will wow my family for my daughter's 3rd birthday. If you have any tried and true recipes, I'm ready to get started!
emoticon

“Today was a difficult day. Tomorrow will be better”
― Kevin Henkes, Lilly's Purple Plastic Purse www.goodreads.com/work/quotes/122334
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CINDYTW Posts: 5,783
2/20/12 10:09 P

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emoticon I would recommend ticking to whole foods and trying that out. Potatoes and sweet potatoes, mybe brown rice for your starches. Other things can cause reactions or be contaminated. Give it a try, and see how you feel! Many of us have multiple sensitivites...

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DIFROMWYOMING's Photo DIFROMWYOMING Posts: 14,871
2/20/12 10:21 A

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I'm Di and I was diagnosed with Celiac about a year ago. I sort of self-diagnosed because of symptoms but had the blood tests and the Endo to confirm it. I, to the best of my knowledge, live gluten free and do not slip at all...but I have put on weight in the last year (I had lost 100 and now gained about 50 back) and I am still having terrible reactions to foods that are 'gluten free'. I don't know if there is something in the gluten free breads that are bothering me, but I have the same reactions I did when I was eating gluten. It's very frustrating. I am also diabetic and I have certainly struggled with figuring out how to eat again. I'm hoping being on this group will give me some guidance.


"Women are Angels. And when someone breaks our wings, we simply continue to fly...usually on a broomstick. We are flexible like that."

Co-leader: Biggest Loser Leaders

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CINDYTW Posts: 5,783
2/7/12 8:47 P

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emoticon Mary! GF can be hard because so many of the substitute products are so high glycemic. I am sure it can be done, just will take a little more work reading and comparing the nutrients. You could also just go to a whole foods approach, and then it may be easier to manage.

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GFNOMAD's Photo GFNOMAD Posts: 1,508
2/7/12 5:31 P

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Welcome Mary! I hope you have better success this time. Check out our older topics as well as the sticky topics. There are other diabetics on this team. In the early 70's I read a pocket book that had been published in England titled "these food could be could be making you ill". It was all there in that book but I thought, Oh, no that can't be me. I could have saved my self 10 more years of illness. But my doctor of that time wouldn't even consider foods as the cause of my illness.
There are over 300 conditions associated with CD (see the links in my signature). I'm not so sure people are asymptomatic. Hopefully your story will help others to stay on the diet even if they are asynptomatic.
Btw, the GI endoscopy is considered the gold standard of diagnosis since it confirms damage to the small intestines. The blood test is done first (and it is only 60% accurate) and if the numbers are high they used to do an endoscopy to confirm it. Now Dr's like Dr. Fasiano is saying the bood test is enough.
Good Luck, Barb (gf 31 yrs)

Edited by: GFNOMAD at: 2/7/2012 (21:06)
Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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AUNTIEM60021's Photo AUNTIEM60021 Posts: 39
2/6/12 8:50 P

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Hi,
I'm Mary, and new to this group. I joined SparkPeople in August but did nothing with it. I got frustrated with the food choices. But now I realize I can enter my own and it seems to be working for me.

In 1972 I broke out in blisters when I was told my mother was terminal. They said it was nerves. After I was diagnosed with Dematitis Herpetiformis in 1973 by biopsy I tried the gluten free diet for a brief while but back then there were no gluten free foods. No books, no support no nothing. I abandoned the diet and took the pills to control the skin eruptions.

Back then I was told that DH was a "sister" disorder to Celiac Spru. They told me they were 2 separate diseases.

Over the years I went into remission and it seemed I only had a flare up when I was under extreme emotional stress, like my husband (first husband) getting his girlfriend pregnant.

I tried the gluten free diet again back in the late 90's but since I was A-symptomatic there really seemed to be no point.

I had the upper gi test and it came back inconclusive. No real sign of Celiac

Then in Nov of 2009 I had a virus. Overnight (literally) I became an insulin dependent diabetic 5 to 7 shots a day. The diabetes was a bit of a shock but not entirely. Both of my sisters were brittle juvenile diabetics. Really brittle where a FBS of 900+ would drop to 24 in 1 hour after only 1 unit of insulin. They are calling me late onset type one. In our family it's almost always triggered by a virus.

The shocker came last July (2011) I had a routine upper and lower gi and it came back positive for Celiac. I made them do the blood test too and my numbers were off the chart.

I was not expecting that!

I'm fairly certain that the virus that made me diabetic also tripped me over the edge on the Celiac. I am still A-symptomatic for Celiac.

I became highly frustrated at trying to fit a gluten free diet into a carb and calorie restrictive diabetic diet. My dietitian suggested this web site. And, like I said, it took me a while to come back and look at this site and really give it a try.

So this is me...giving it a try.
emoticon

Edited by: AUNTIEM60021 at: 2/6/2012 (20:54)
Thanks for being there, Mary


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CINDYTW Posts: 5,783
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Welcome! I did not have the biopsy, I couldn't face going back on gluten! The only treatment is a GF diet anyway so it wasn't important to me.

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GFNOMAD's Photo GFNOMAD Posts: 1,508
2/6/12 10:52 A

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Welcome Amber! and Congratulations on your weight loss!
We can't give medical advise but we can give you information. It is a question you need to discuss with your doctor. However, the test will only identify that you have celiac disease and it is only 60% reliable. As well, only 15% of those who are gluten intolerant do have Celiac Disease. But it is just as important to avoid gluten for those who are sensitive to gluten as those who are diagnosed with CD. Some doctors are widening the definition such as the author of The Wheat Belly. Whichever it is, it's important to avoid all gluten including the hidden glutens. Check our sticky topics for more information. And congratuulations on figuring out the Chinese food. It took me a long time to avoid that one although that was many years ago.
Remember also, that the gluten freee flours and products have more calories that the wheat versions. Most of us are fighting putting on the pounds.

Barb (dx 1981)

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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AMBER32585's Photo AMBER32585 Posts: 669
2/6/12 9:56 A

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I tested positve for Gluten intolerance this past week I have IBS bloating migraines excema joint pain blurry vision....Glad I finally realized it all goes hand in hand and was tested! I have been GF for 12 days and feel great ....Chinese food is evil and I bloated up horribly this weekend even as a steamed dish I guess something snuck in :( ....I am still deflating 2 days later.....I am 27 and a mom of 2....I never realized I had the bloating til recently I lost 85 lbs I guess now I can see my stomach when it goes up/ down .


MY main question is I feel good now I avoid gluten....do I need the celiac disease test? I don't want to eat the gluten and be put to sleep/ cut up....do I need it done??

“Keep away from people who try to belittle your ambitions. Small people always do that, but the really great ones make you feel that you, too can become great.”

¸.•´¸.•*´¨) ¸.•*¨)
(¸.•´ (¸.•´ *Amber

Shoot for the moon. Even if you miss, you’ll land among the stars!"



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CINDYTW Posts: 5,783
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My Mom was a Celiac and the sickest she ever was was in the hospital! They had no idea what GF was. SHe lived on peanuts ou of the vending machine and a few candy bars. Looked terrible! They kept giving her oatmeal and toast for meals!

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JOANIEBUG46's Photo JOANIEBUG46 Posts: 4,212
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Too funny! That's a lot of fruit! My sister had her mother-in-law at the doctor's office for her high cholesterol. She put her on medication for it but when my sister asked what she SHOULD and SHOULDN'T be eating, the doctor had to look at a reference. Oh my goodness!! Does that tell you anything about what our practitioners are learning???

Success isn't a result of spontaneous combustion. You must set yourself on fire."
-Arnold H. Glasow


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SUE_2U's Photo SUE_2U Posts: 1,711
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Yeah, when I was a kid when I complained about feeling sick when I ate wheat, my mother laughed. She was an RN and I will say that one does run into many doctors and nurses who still believe that someone with gluten intolerance or celiac is always, always SKINNY. Not so! Add the leaky gut leading to all those autoimmune disorders, like hypothyroidism, and yeah there's still a whole lot of misdiagnostics going on.
It was funny. When I was in the hospital, often the dieticians, even some with degrees, did not know what I could eat and couldn't eat. The last admission I had, they must have thought I was a fruitarian. I got fruit salad for breakfast, lunch and supper. Huge plates of fruit! But when I asked why I couldn't at least have some cottage cheese to go with it, I was told that it was because I couldn't have gluten. Hahaha! Oh well. I think I lost a pound or two with all the watermelon, also. It sure didn't hurt me any.

Thanksgiving was never meant to be shut up in a single day.
~ Robert C. Lintner
But a thankful heart hath a continual feast.
~ W. J. Cameron

""Things can be gotten used to. I lost 176lbs moving mindsets of what I think tastes nice."
-REDSHOES2011

I will not wait to have a good day. I will make one.


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1/26/12 9:43 P

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emoticon Back!

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Welcome back Sue! I hope you're back on track to helath. Many of us have struggled with the lack of a clear diagnosis. For myself, it was a lack of knowledge 30 years ago. The changes for the better with a gf diet will in the future be in itself be a diagnosis for gluten intolerance. Already I've see reports on it. So keep it up! Watch for the hidden glutens. They make a subtle but importance difference.
Barb (dx 1981)

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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SUE_2U's Photo SUE_2U Posts: 1,711
1/26/12 2:34 A

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I'm back. I was gone for a couple of years. Went for surgery. Had complications and more surgeries. Gained back what I lost and then some, and I've missed SP. Wasn't online much.
I've been GF for about five years, now. No actual diagnosis, medically, but I feel so much better and I get so sick when I do eat even a small amount of wheat that I know I just need to not get any more of it, ever. I don't miss it anymore, either. Well... except maybe LaBrea sourdough and some thick, chewy and crunchy pizza crusts. Can't quite replicate those with GF flours, yet. At least I haven't been able to. Not good for me. Not going to miss it. Much. ;)

Thanksgiving was never meant to be shut up in a single day.
~ Robert C. Lintner
But a thankful heart hath a continual feast.
~ W. J. Cameron

""Things can be gotten used to. I lost 176lbs moving mindsets of what I think tastes nice."
-REDSHOES2011

I will not wait to have a good day. I will make one.


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CINDYTW Posts: 5,783
1/21/12 9:27 P

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emoticon Crystal! Glad to hear that you have done so well! I agree that simple is best, and probably healthiest when going GF. I have some substitutes on occasion but usually don't find them worth it and feel best without.

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DISCOQUEEN365's Photo DISCOQUEEN365 SparkPoints: (3,041)
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1/21/12 12:27 P

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Thanks for the welcome, Barb! I absolutely agree with you on all counts.
The "gluten detox" was terrible for me, and I felt so deprived of everything. I still miss "normal food" sometimes, but I no longer want to grab the first gluteny thing I see and cram it in my mouth. I know what it does to me and how it makes me feel.

I'm Gluten Free for life. :)

You never know how strong you truly are until you have no other choice.

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Welcome Crystal and congratulations on your approach to your gf lifestyle. I think the difficulties some have in the transition is that 1. wheat is addictive therefore they are fighting the addiction, 2. the feeling of deprivation and 3. that stubborn streak most of us have in being told what to do. You've done great and it is a priviledge to hear. Barb (gf 31 years)

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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Hi! I'm Crystal and I've been gluten free for about 3.5 years now after having a positive blood test for Celiac disease.
I was sick for a very long time (almost 10 years) before I figured out what was going on. I found a new GI doc, and basically told him I wasn't leaving his office until he ordered the blood tests.

In the years leading up to the diagnosis, I was told it was all in my head, was told I was depressed and given medication, and was told it was just IBS and there was nothing that could be done about it.

My symptoms were intense stomach cramping, excessive (and hurried) trips to the bathroom, significant weight loss in a short period of time, "brain fog", anemia, and more.

At first the GF diet was very difficult, since everything seems to have gluten in it, and I remember several occasions where I broke down in tears in the grocery store.
I've seen a huge increase in awareness and tons of new products on the market since I was diagnosed.

I'm no longer afraid to say the word "Celiac" for fear of getting the deer in the headlights look from people - it seems everyone "knows someone" with gluten issues now, whether it's gluten intolerance or full blown Celiac Disease.

Because there were so few palatable GF choices when I began this journey, I went "back to basics" for food. We use our grill alot, and there's no gluten in meat unless it's pre-seasoned.
There's also no gluten in vegetables. So meat and veggies has kept me going. Oh, and rice makes an appearance on my plate several times a week.

So the good news is that this lifestyle (I don't use the word diet - that implies it's temporary!) CAN be manageable!! I still read ingredients on everything, even things I've been buying for a long time since manufacturers can and do change their ingredients.
I'm still tickled pink when I find a new, main stream product with the newly added words "Gluten Free."

I think in just a couple more years, eating GF will be even easier, since more and more products are hitting the market every day.

Sorry this was so long! If I can help anyone new to this with anything, please message me!

-crystal

You never know how strong you truly are until you have no other choice.

CINDYTW Posts: 5,783
1/15/12 11:29 A

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emoticon I try and hold the memories of sickness and pain in my head and call upon that when I want to dive into a pile of gluten! It has worked so far... emoticon

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Welcome! only 15 % of those who are celiac intolerant have CD but it is just as important for your health to be completley gf for life. Therre is no test for GI except for the changes you notice in going gf. It's all very confusing and makes it harder to stay on the diet but it is definitely worth it. It was the difference I noticed in my mental attitude, emotional stability psychological health that made me stick to the diet. Good Luck! Barb

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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Hey everyone! I just joined the group and really look forward to getting some support and Atta-girl's for my new Gluten-Free lifestyle. I have gone Gluten-Free before, felt AMAZING... and fell off the wagon a couple months before Christmas. I have now avoided it for a little over a week again and really am looking for some other consistent buddies that I can encourage too.

I have not been "diagnosed" as having CD or gluten intolerance. I just know how I feel. I have always been tiny in stature. As a child, I had a mouth full of ulcers, was constantly sick, anemic, the teeniest person in my classes, and hurt all over as a teenager. As an adult, the bloating started. Pain in my joints, itchy skin allergies out the wazoo, IBS, and a ton of other "issues." I've never been horribly overweight, but I've picked some up in the last few years since having my son. I joined SparkPeople before Christmas to help me get those last 10 pounds off for good and to tone up. I've made a lot of progress toward that goal, but knew I needed to eat better.

I think it's been 9 days since going GF again... My face has cleared up quite a bit, I'm not itching, my tummy feels WONDERFUL, I feel sore from my workouts - not achy and hurting, and I have the energy of my 9 year old!!! :-) SO, that's my story... Hope to get more familiar with all of you and can offer some noise to your cheering section!

I beat my body and make it my slave, so that when I have preached to others I myself will not be disqualified.
-1 Corinthians 9:27


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CINDYTW Posts: 5,783
1/14/12 4:43 P

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emoticon It is bad also that the subsitutes are often higher calorie and worse for you than the originals. I find it it best to stick to natural foods. It helps the wallet and the waistline. I save my GF breads in the chest freezer for treats.

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PRUSSIANETTE Posts: 97
1/14/12 11:43 A

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Hi, just joined the team recently. My celiac disease was discovered about 12 years ago. Anyone who remembers those days remembers the only baked thing gluten free was available at health food stores and it was some disgusting gritty gummy rice bread. Yuck!

Well, thing have gotten much better, and so much more is available now. Just a bit worried that gluten-free is considered a "fad" by some, and that if consumption of the GF products declines, the industry will stop making the products.

I can't say that going on a GF diet has helped with weight loss. In fact, I have gained a significant amount of weight since being GF. Let's face it--when one is used to eating a large amount of food because it is going quickly through your system, and then when you heal, and the food is now being fully absorbed, well it doesn't take a rocket scientist to figure out what will happen.

But, maybe this will be the year. emoticon

GFNOMAD's Photo GFNOMAD Posts: 1,508
1/13/12 8:11 P

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Welcome Back Katie! Defintely try the gf diet. Gluten can have an impact on personality and depression. Make sure you are not having hidden glutens in your diet. A 4 day food rotation diet is good to find other food sensitivites that might be adding to your problems. Sometimes we must do our own invetigative work and then present the results to the doctor.

This article from the Original Internist is more comprehensive and gives example of meals and includes many more food families. It also includes a bibliogrphy which is always a good recommendation. Particularly note Page 2 and the relationship to obesity findarticles.com/p/articles/mi_m0FDL
/i
s_2_9/ai_n18613842/?tag=content;col1


good luck, Barb

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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KATIEINTORONTO's Photo KATIEINTORONTO SparkPoints: (1,917)
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1/10/12 2:06 P

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Hi. I've recently come back to SparkPeople after closing my account due to frustration. I had been gaining weight at an increasingly rapid pace, beginning about a year ago, and continuing to today. I've gone from a size 12 to a size 18.

My doctor has told me it isn't my fault and there is nothing I can do, but that isn't helping my quality of life. I'm obese, exhausted almost all of the time, and frustrated that my doctor won't run the tests for gluten intolerance. She is convinced it is hormonal, despite the tests for her theory all coming back negative. There is also the complicating factor that I am on medication for borderline personality disorder, which could be contributing to some of my symptoms.

While I am planning on seeing a more gluten-familiar doctor, I am going ahead with a gluten-free diet to see if my symptoms improve.

I am looking forward to motivation and information from this team.

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CWPRAISINJC1's Photo CWPRAISINJC1 Posts: 383
1/9/12 10:37 A

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Thanks Cindy from another Cindy! :)


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CINDYTW Posts: 5,783
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Welcome Cindy from another Cindy! There is a test for Celiac disease, but it is not 100% accurate and you can still have a sensitivity. Try it for a few weeks and see if any of your symptoms improve. Try celiac.com for food lists, andread through our old posts here.

Edited by: CINDYTW at: 1/9/2012 (01:32)
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