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JUBBAFLUFF's Photo JUBBAFLUFF Posts: 8
11/27/07 1:34 A

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Hi, all.

My name is Jim, and I've been on SP just over a week. I'm not celiac, but my sweetie is, so I converted for love. ;) I'm joining this team to help learn more about other experiences with GF and how to more effectively help her in her quest for better health.

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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
11/24/07 3:19 P

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I was diagnosed w/Celiac 3 years ago after years of struggle with CFIDS and Asthma. (only found out after my younger sister was diagnosed.) I have since been diagnosed w/Hypothyroidism and Fibromyalgia as well...likely due to years of not knowing about the Celiac. I am soooooo much better on a gluten free diet, though at nearly 60 years of age, much damage has already been done. I'm so grateful there is something I can do to feel even the slightest degree better! The gluten free limitations are worth it...trust me!!!

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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JOYFULCANARY's Photo JOYFULCANARY Posts: 52
11/17/07 4:40 P

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Hello everyone!

I am almost 21 (next week!) and live in Central, SC. I was diagnosed with dermatitis herpetiformis this past week, although my mom thinks I may have Celiac Disease as well. I go to see my doctor the week after Thanksgiving, and we're doing more tests then. I'm also a college student, trying to live gluten-free while living in a dorm.

 
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BIGBONES4 Posts: 93
11/2/07 7:58 P

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Here's the thing--if you're having all these problems, why wouldn't you try it? We've all been there and there's no way to explain how fabulous it is to be free of the horrible effects of this disease. Personally, there is no food worth all that--and I LOVE food!

If there's one thing I'd like to get across to you it's that it's not really hard. You don't have to eat special food. I don't eat any of the special processed gluten free foods, myself. Not that I think there's anything wrong with them--I just find it much easier to eat "normal" food---avoiding the stuff with gluten.

For instance, when I am out and only have time for fast food, I swing into Wendy's and get a small chili and a baked potato. Smoothies in the morning (fruit, plain yogurt, soy milk or skim. Dinner is a small serving of meat and veggies--salad is always good--potatoes and rice. Rice noodles are great by themselves or in soups.

It's all about attitude--not what you're missing, but how great you're gonna feel. And anyone will tell you, once you make that connection, you won't want to eat the poison stuff--you wont even be tempted, because it's not worth it!

If you are planning on getting a definite dx--you need to hold off on going GF. It will affect the outcome of your test.

Good luck!

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CELIACCHRIS's Photo CELIACCHRIS Posts: 786
11/2/07 5:11 P

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Hello everyone!

I am new to sparkpeople and fairly new to celiac. I was dx in August 2006 via blood test and endoscopy (the blood test was inconclusive, the endoscopy led to an affirmative dx).

I'm still doing the lifestyle shift, from buying a separate toaster now that my non-celiac partner has moved in, to separate cookware, to figuring out the logistics of eating when teaching marching band and indoor drumline (hot dogs and pizza are staples at these things, especially when travelling via bus to regional and national events).

For reference, I am a 27 yo female who works in sales support (marketing), teached music, volunteers on the board of a few organization, and is still trying to find time to add exercise and live a healthier lifestyle.

All the best,

Chris



Chris

"Success is the ability to go from one failure to another with no loss of enthusiasm." --Sir Winston Churchill


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LISAB64 Posts: 1
10/28/07 1:51 P

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Hi... I haven't been diagnosed with CD however reading an article in "First" magazine has got me thinking that I might be gluten intolerant. I answered yes to 6 of the 7 questions: low blood iron/anemia, weight gain (even though I don't eat much), brain fog/memory problems, blue moods/irritability, decreased ability to handle stress, very dry skin, and weak, achy bones/joint pain. So..................now I gotta decide if I'm willing to give gluten free a try. The fact that I live in the "middle of nowhere" Michigan doesn't help.

Any advice would be appreciated.

Lisa

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KELLYGRN's Photo KELLYGRN Posts: 445
10/19/07 7:57 A

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Hi everyone! I have not been dx but I do know that I feel better when I am on this diet. I do have Secondary Progressive Multiple Sclerosis since 1960, age 12. I am now either in the wheelchair or bed all the time. I have an aide to care for me. I don't cook so this will be a learning experience for me & the aide.

Hope to get some friendly support here. It is hard going thru this alone but I am ready.

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JKZAIT's Photo JKZAIT Posts: 236
10/11/07 9:27 A

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Hi all! I am the wife of a celiac and always looking for support and groups to learn from so I am very happy to have found all of you!!! My husband was diagnosed 6 years ago with Crohns yet was not able to take any of the meds due to getting hives and what a blessing that was because that made me search long and hard for help and low and behold I found his answer on "The View" in Feb '07(host EH has CD and was discussing one day). He watched it and agreed to try to diet. After 1 day of not eating gluten the blood he had been passing for 6 years stopped and never returned. His depression slowly went away and energy levels returned. Also- the area of his gut that we could not touch without causing him pain is now pain free and he can wrestle freely with our kids. That being said our family doctor would not recognize the difference and said he was just in remission from his Crohns. Only problem I had with that was in 6 years he maybe had 5 days where he did not hurt and when we saw her he had be GF and feeling great for 5 months. As a family we eat meals GF and talk about it a lot. I figure that if the kids should get it someday I want them to understand that it is manageable and not an awful thing. The way I look at it is the diet is difficult only because so much of the food we eat is junk anyway. Eating GF forces you to look at what you eat and think about it which is a great habit for anyone.

Sorry for rambling. I just get so excited when I meet people who understand what we have been through. I truly look forward to learning from all of you!

Julie

Though no one can go back and make a brand new start, anyone can start from now and make a brand new ending.


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LYNNTHEBEACH's Photo LYNNTHEBEACH Posts: 2
10/10/07 9:35 A

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Hi Everybody! Thanks for the invite, Dot! I'm Lynn I live 'down the shore' in Jersey. I am 45 and was diagnosed 18 years ago with Celiac. I had developed a high fever on July 5, 1999, the day after the big 4th of July weekend. I was admitted to the hospital one week later. After a 6 week stay (what a summer vacation!) I had every test you could imagine, from Aids to Zollenger Ellison, including a bone marrow aspiration. I sincerely thought I was dying because they could not bring the fever down nor figure out what was causing it. I had been complaining about a severe pain in my abdomen whenever I ate. 5 weeks into the stay they performed an endoscopy and biopsy which diagnosed Celiac Disease. It was a relief but all they did was send a nutritionist in with a food list of what not to eat. That was it. Back then, there was very little knowledge, if any. They said that the trauma of the fever on my body brought out the Celiac gene.
Looking forward to meeting all of you!
Sincerely,
Lynn



Edited by: LYNNTHEBEACH at: 6/16/2008 (13:53)
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MLONGANO's Photo MLONGANO SparkPoints: (0)
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10/9/07 1:45 P

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I am not new to SparkPeople, but, I am new to Celiac Disease. I have spent most of my life in pain. It didn't seem to matter what I ate, when I ate, or how much, I was destined to become sick. I don't even remember how I came across Celiac Disease, but the more I read about it, the more I was certain that was my problem. So, I went to my doctor and asked her to run a test. And, here I am.

Then I started to talk to my family about it, telling them what I can and can't eat. I then found out that my father's mom had Celiac Disease! I never knew that.

I think the hardest part isn't planning my food, it's coming to terms with the fact that I've had other unexplained health problems my whole life, had so many tests run and this could be what's caused them all. We don't know for sure, we won't know until I've followed a gf diet for a while and see if my other problems go away.

So much time, so many tests, and so much money gone and it could be as simple as eliminating gluten from my diet.

Oh, my name is Melanie. I guess I should introduce myself! :-)

Never have I been a blue calm sea, I have always been a storm. - Fleetwood Mac


 
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TAHIRA1's Photo TAHIRA1 SparkPoints: (2,667)
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10/9/07 1:22 P

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Hello,
Just wanted to say Hi. I'm trying to go gluten free. I've not been diagnosed with gluten intorernce but I'm very suspect. Just wanted to introduce myself. My name is Tammie and I'm just getting back to the Spark. Love the Spark. I'm a nurse and I'm always recommending the Spark when it is appropriate. t.

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NWBEARCUB Posts: 60
10/8/07 5:17 P

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Hello, I have been is Sparks for a month now. I have stomach and digestive problems for years now to the point where it has cause many surgerys. Even after that the problems never went away. Recently a new doctor told me to cut out all gluten in my diet and see if that helped at all and it has. The only problem I am finding in doing so is breads. I have tried the rice breads and I would rather deal with the pain. Can anyone recommend a bread mix or two that you like? I have no problem making my own. just would like some input on where to start.
Thanks

Edited by: NWBEARCUB at: 10/8/2007 (17:18)
 
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GYMGIRL79's Photo GYMGIRL79 Posts: 426
10/5/07 12:25 P

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HI! I'm Tracy, I just joined this team this week, and I am so thankful you are all here! :)

I met with a Nutritionist last week, who suspects I am gluten intolerant and have a candida overgrowth in my digestive tract. I was diagnosed with "IBS" about 5 years ago, but the Dr. gave me no information or advice after that, so I have been struggling with this problem for a long, long time.

Right now I am on a VERY restrictive diet, and can slowly move foods in week by week, starting in a few more weeks.
For now though, I cannot have ANY grains, potatos, milk, sugar, or alchohol. Prior to this, I had already removed most processed foods for my diet, so at least that is a habit, but no grains has been a challenge at times.

I am also drinking Ginger and Pepermint Teas, taking a green superfood supplement, Aloe Vera, and a probiotic.

I look forward to talking about this with you all more, and seeing how everyone else is dealing with this issue.

emoticon

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MISSAMUND Posts: 3
10/4/07 5:27 P

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Hey Everybody! Thanks for the info and awsome welcome. About the Soy topic, I started drinking soy milk about 6 years ago. My best friend told me it was helping her with cramps and pms. It has really helped me but I only drink about 6 - 8 oz a day. And other than a topcal hormone cream called Pro-lief from Arbonne International I don't have any other soy in my diet on a regular basis.
I think that in most things we can get excessive and moderation is always a good choice.
I'll try to find the article for you!!
Have a blessed day!!!

melissa

Edited by: MISSAMUND at: 10/4/2007 (17:27)
DOTSLADY's Photo DOTSLADY Posts: 10,024
10/4/07 8:19 A

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BigBones - I'm gonna take the discussion over to the main discussion thread ... see you over there! (I really shouldn't have replied to this thread, but felt compelled ... wanna keep this "clean" with "Intros" ... oops!)

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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BIGBONES4 Posts: 93
10/4/07 7:20 A

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Hi Melissa--you will get so much good information here.

Dot--Funny you should mention soy!

When I mentioned the night sweats that have been getting worse lately to the doc, she kept pushing soy. I have also read some conflicting info about the safety of plant estrogens (overuse). I asked her and she kind of blew it off and said no "it is safe". You mentioned fermented soy and I know that miso and tamari are made from fermented soy. Do you know of any other sources?



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DOTSLADY's Photo DOTSLADY Posts: 10,024
10/3/07 11:15 P

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Hi Melissa!

I would love it if you could send me the link to that SP article about weight gain for the over 40s. I haven't read it! (I think that's bizarre and I've never read such a thing in all my research!)

Before you go gluten free, I really really REALLY recommend reading the book Gluten-Free Living for Dummies by Danna Korn. If you don't want to invest in one, just try the library. AND talk to your doctor first. Please don't change your diet until you do. (You'll understand why when you read the Dummies book.)

I don't know what test your friend's son had, but did he get a celiac disease diagnosis? Others use the word "intolerant" like I use the word "sensitivity". (I use the word intolerance to mean the disease, but I read otherwise out there in the e-world. I may "get it" sometime in the future, but it took me YEARS to get over that the word "opaque" was not see-thru because all I kept seeing in my mind's eye is the "opaque" projector and how you could see through it! lol)

You are not alone in loving ice-cream and bread! So many people do (I was quite the cheese & bread head myself). What's interesting is that we can be addicted to the foods that are doing us the most harm - like a drug! I'm just getting over dairy myself. And finally, I'm losing weight. I think my body was starving (well, I knew that cause I was diagnosed with celiac), but now that it's getting more nutrients, it's like my cells are finally relaxing and saying, "Thank you!" "We're getting what we've needed - we were so stressed before you started eating vegetables or fruit at every meal!" lol

You may not need to go to the extreme of gf living to lose weight - cause it CAN be extreme living. Maybe you just need a shift in dietary priorities? I don't know - I'm just putting it out there. By all means, please ask questions and get others' perspective though. There are more seasoned celiacs in the group than me.

And I'm of the opinion that soy is overused and is another culprit for undiagnosed food allergies. People always cite the Japanese longevity, but they use fermented versions of soy. Something to think about. Maybe you'll read something else saying the same thing and have another "aha" moment.

Welcome and please ask more questions, esp after reading the book!


Edited by: DOTSLADY at: 10/3/2007 (23:22)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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MISSAMUND Posts: 3
10/3/07 10:26 P

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Well, what'a ya know, my name is Melissa too! I have not been diagnosed with Celiac disease but I was recently reading an article sent to me from Spark People about causes of weight retention in women 40 yrs old and older. One of the causes listed was gluten - yuck!! Then the following weekend after reading this I saw a friend of mine who has lost several pounds in the last month. Of course I asked her what she was doing and she first said "praying more than I eat." We laughed and then she told me that her 4 yr old is gluten intollerant and the whole family is on a gluten and dairy free diet. WOW! WHAT A COINCEDENCE!! So, I need some direction and information on transitioning my diet to being gluten free. Both of my stepson's have been tested and are gluten "sensitive" and both have ADD. So, I am open to all advice and suggetions. I am so tired of being fat and not feeling like I know I can.
Thanks for listening (reading)

Missa emoticon

ROCKNMOMMAOF5's Photo ROCKNMOMMAOF5 Posts: 30
9/25/07 8:12 P

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Hi! My name is Melisa and I seem to carry the lovely Celiac gene. My mom and a couple of my bothers have Celiac. My mom eats gluten-free; were-as my brothers stay away from just breads and pastas. My second born daughter is to be tested next week. She is 10.5 and has been gassy all her life, but over the past few months it has been getting much worse. She visits the bathroom 3-4 times a day and has terrible stomach cramps after eating oatmeal, pasta, and bread. I am keeping an eye out for my these signs with my other four children. After I had the twins two years ago I have noticed the same signs... and now I too am eating with out gluten. So I am happy to find this team.......

Happy Health
Melisa
Rocknmommaof5

1/4/07 145lbs
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12/01/07 GOAL...126lbs



 
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KTBABE76's Photo KTBABE76 Posts: 53
9/19/07 6:22 P

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I have recently been working with a doctor about my condition. I am not currently through with testing, with the doctor, other problems I have, but celiac disease seems to fit my bill.

After my children were born I started to notice more problems with my body. One of the major problems was stomach pain. I thought that I was just eating too much, until one day I recognised some really large gas bubbles forming in my stomach and then came the horrible diarrea. I tried to retrace what I had eaten and the only thing I could come up with was the bread and whole wheat tortillas from lunch. So I called up my doctor and told him the problems I was having and he said that I probably have gluten intolerance. Upon further investigation I was told that it was more likely celiac disease. I now am trying to become better equipped in my kitchen to cook for myself using gluten and casein free products.

I also suffer from ADD (was diagnosed as a teenager) and have come to find out that gluten intolerance and Celiac disease are prevelant in ADD people.

Now that I have changed my diet, I find that I am more happy (had long bouts of depression in the past), I do not feel as though I am living life in a cloud, and my stomach pain is gone. I feel more regular and less bloated.

I feel as though I am reclaiming myself back again. Like I was gone on a vacation for 7 years and now am returning, well rested and ready to get on with life.

I am hoping to meet some of you who can help with recipe ideas and advice on how to beat the aweful cravings i sometimes find myself having.

Hope everyone the best and cannot wait to get to know everyone.

Kate
Proud Navy wife

Goal:
Lose 10 lbs, by
7/12/08





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BIGBONES4 Posts: 93
9/17/07 11:36 A

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Hi everyone emoticon

I came to this forum by way of the fabulous Dot at the IBS forum. My health has been declining steadily over the past 6-7 years and I am just recently making the celiac connection (starting to connect the dots about 6 mos ago) My major realization came when I went on Adkins and my terrible hand rash cleared up. Then I saw something on TV about celiacs and it was as if someone hit me over the head emoticon

So, I went to the doctor and had a colonoscopy and endoscope done. I will return in two days to hear the results of the biopsy, although I KNOW it is gluten intolerance.

All my life I have battled stomach and gut problems. About four years ago, I literally could not put one foot in front of the other. My doctor at that time ran test after test and everything was inconclusive. Of course an antidepressant was prescribed and I was taken off work. This all led to the loss of my job--I live in a state that is not very friendly to workers with health issues. So I drew unemployment and went back to school. Lemons/lemonade. Having lost my job and health benefits, I was without health care for a while until someone pointed out that I could go to the VA. Duh. It has been a slow process, but the answers are coming. I have been reading all of the past posts and I am so excited about this group. emoticon

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ANGEL1958's Photo ANGEL1958 Posts: 98
9/14/07 11:11 A

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Hi, I'm new to this forum, I was diagnosed with Celiac about a week ago. I have been feeling bad for a lot of years with my stomach, bloating, gas up and my doctor always said that it was due to stress. I moved in 2003 and just recently gotten a doctor here and she sent me for test after I told her how I was feeling. The blood test confirm it and now with the help of a noutritionist I am learning to change my eating habits. It isn't easy and love bread but the stuff that I bought I would prefer not have bread at all. I also have a bad liver which I am taking milk thistle for to try and get it stronger. My mother died of liver cancer, so I have to be careful. She smoked and never really ate what she was suppose to. Being on this diet for only a week I find that I am not so depressed. You would think if you have Celiac you would lose weight instead of gaining.
Anne-Marie

Anne-Marie Linden


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FRIDAYSFWS Posts: 4
9/10/07 3:12 P

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I'm new to SP, but definitely not new to GF. Been GF for most of my life, after being very ill in late childhood. After the initial learning curve, I've developed a pretty healthy diet, both at home and away. Really the only thing I struggle with is getting enough alternative grains in my diet. For me, I found it easier to stop relying on bread and pasta as staples of my diet - I think that they've become far too prevalent in the Western diet, even for non-celiacs. This has made my life a lot easier, but still makes it hard to include other grains. Quinoa is fairly easy to make dishes with, but others really evade use in my house.

Looking forward to interacting with folks on here. (=

WETZELSA's Photo WETZELSA Posts: 62
9/8/07 6:08 P

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Hi,

I'm new here. I was was tested 4 years ago, but gave up on a gluten free diet after a few months. My husband was not willing to make the necessary changes in OUR diet.

However, three months ago I decided that being ill all the time was silly when I knew what had to be done to fix the problem. I put my foot down and refused to eat gluten! It took a while, but he is coming around. He now checks labels when he shops and everything!

I'm also allergic to eggs, cow's milk, oats, and peanuts. Learning to cook free of these foods has been a challenge, but not nearly as bad as learning to cope with eating away from home.

Sherry

Edited by: WETZELSA at: 9/8/2007 (18:08)
Try to be kinder than necessary. Everyone you meet is fighting some kind of battle.


 
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RED_DUST_BUNNY's Photo RED_DUST_BUNNY Posts: 13
8/31/07 2:51 A

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Hi there. No diagnosis for me (yet) I'm getting married in 5 weeks, so I want to feel as good as I can for the big day. I will go for the tests when we are back from honeymoon. I have had trouble for years with depression, rashes, cramping, bloating, gas (blushes) headaches, swollen hands and feet.... ah the list goes on and on. I have just found out that CD is hereditary, which explains why my little waif of a son also has trouble with his tummy - we practially need to cordon off the blast zone when he's been to the loo! So, we are going gluten free. Fingers crossed we can find some relief from all this. I stopped eating wheat a couple of weeks ago, and there is a marked improvement in my moods, so... so far it's looking good.

 
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SUGLEN's Photo SUGLEN Posts: 11
8/28/07 3:01 P

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Hi, I am new, I have just been diagnosed with Wheat Intolerance, due to B12 deficiency. I joined spark almost 2 months ago, and it took until last week for me to get off my butt; and get on top of this.
I have been Wheat/Gluten Free for a week and have lost 6 lb. I have had ZERO cravings, and my rashes, and "bathroom problems" have cleared up almost overnight. I have gone from daily headaches that don't go away to two headaches in a week that went away when I drank a large glass of water.
I am very gratefull to have found SP, and, more specifically this group. Thanks for being here. Sue

Edited by: SUGLEN at: 8/28/2007 (15:01)
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GAVBROOKE's Photo GAVBROOKE Posts: 13
8/21/07 5:50 P

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Welcome! Did you change your food to not give you meal plans? It takes a bit longer to manually enter everything, but I like it better! Don't think all nutrional value wise that everything is the same as the glutened stuff! Or you can substitute things for non-glutened food.

That wonderful side effect of celiac, thats why I'm here too!! Good luck to ya! emoticon

Friendship doubles your joys and divides your griefs!


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JERSEY1977GIRL Posts: 12
8/21/07 5:26 P

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Hi all,
My name is Shannon, I'm 29 years old and was diagnosed with Celiac and Dermatitis Herpeteformis last October after being extremely sick for a looong time! Instead of losing weight I was gaining even though nothing stayed in my body (that lovely effect of Celiac). I'm 100 pounds overweight and just found out about the SparkPeople website so I decided to give it a try. I'm happy to find this message board, I was a little disappointed when I signed on and all my menu options included bread or cream of wheat!

Shannon



 
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DARLENEG3's Photo DARLENEG3 Posts: 48
8/13/07 1:25 P

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Hi all. I am a type 2 diabetic and I just found out Friday at 5 that I have a pretty bad case of CD. I'm actually relieved- finally something that is concrete. For years I've been told there is nothing wrong- it is all in my head.

I know I will feel better once I can get this under control. It's just very overwhelming right now. I'm reading labels but I have no real idea yet of what I'm looking for besides wheat, barley and rye. I have the Gluten free living for dummies book on order and I cannot wait for it to get here. The stores in my area did not have any in stock.

I'm really glad I found this group on SP and look forward to being a part of it.



 
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JANESMAMA's Photo JANESMAMA Posts: 140
8/12/07 4:57 P

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Hi everyone!

I'm not new to SP, but I'm new to CD. For *years* I've been trying to manage my weight despite a host of mystery digestive issues. Several years ago I'd given up dairy because of lactose intolerance, but the issues persisted. Early 2006 I gave up meat and went altogether vegan. I felt better for a short while, but within months, the same old issues were back.

Last month I very begrudgingly went to my doctor about it (only after experiencing a new type of pain in a new location) and he ordered a host of tests. Much to my complete shock and astonishment, my blood test came back positive for celiac!

I'm still learning as much as I can about it, and have only just today began in earnest to modify what I eat but I am SO EXCITED that I finally KNOW what's wrong and how to deal with it!

I'm looking forward to popping in here from time to time for resources and support. Seems like an awesome group of people!

DRACOSLADY's Photo DRACOSLADY Posts: 148
8/10/07 7:19 P

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Welcome to our little club of overweight celiacs. Finally we can be diagnosed as celiac before we are near death's door. I was told that I couldn't be celiac as I
1. weighed too much
2. had high cholesterol
AARRGGHH!!!!
I am so much healthier now that I am g/f. But one hint of wheat in my food and my stomach burns for days. Sigh!!! I gotta remember to read all the labels.

Victoria

"I am not only a pacifist, but a militant pacifist. I am willing to fight for peace."
Albert Einstein

There never was a good war or a bad peace.
Benjamin Franklin


You must be the change you wish to see in the world.
Gandhi
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OPRAMUM's Photo OPRAMUM Posts: 274
8/10/07 12:47 A

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Hi, I;m Laurel (opramum because I sing). I'm 53, and my grandmother was "allergic to wheat." At the age on 95 they decided she was really celiac, but she lived wheat free most of her life. When I told my mom my dr thought I was gluten sensitive, she told me that as a baby I got a rash that went away when they took me off wheat, but eventually they reintroduced it.
I can do gluten free, but my DH forgets all the time, it's a matter of training us both. I know I feel and think better when I am diligent.
I knew this group had to be here, I have been lookingfor it since I joined SP three days ago. emoticon

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KJEANNE's Photo KJEANNE SparkPoints: (39,604)
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8/7/07 11:14 A

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Welcome KALIHALL, DENI422, GAVBROOKE and SSPRUNG to the celiac / gluten free team! We have lots of great information here so take some time to read the posts. Iím sure you have some questions and they may have already been answered. Feel free to ask any questions. I have learned a lot about managing my diet and life since joining this group.

Hey DENI422! I live in Carson! You might be interested in knowing about a GF bakery I just found. Itís in Culver City. Itís called The Sensitive Baker. I plan to visit it Thursday evening to check out the bakery goods.



Do not look where you fell, but where you slipped.
African proverb


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DENI422's Photo DENI422 Posts: 2
8/6/07 9:13 P

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Hi everyone!

My name is Denise and i live in Burbank, CA where all the movie/tv studios are. I was diagnosed with celiac disease about a year and a half ago after having food poisoning that would not go away. I lost a lot of weight when I was in college on Atkins but slowly it creeped back on when i started working full time. I am now ready to be completely healthy and maintain a reasonable weight. Thanks for having this group!

 
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KALIHALL's Photo KALIHALL Posts: 131
7/24/07 4:13 P

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Hi everyone! My name is Kali, and I live in Denver, CO. All I can say is this is a great town for anyone dealing with CD. When I hear about what other people have to deal with in other cities (or worse yet, small towns), I feel remarkably lucky to be where I can go to a number of restaurants knowing I have options. I was diagnosed when I was 18, at my freshman year of college. I was tested because my grandma had been diagnosed. My mother, my sister and I were all diagnosed following blood tests. I met my boyfriend one month later and shared with his family about CD. His sister, mother, and grandmother had suffered from stomach problems all their lives. Turns out all three of them had it as well! The seven of us are all now a far more healthy, happy family with an amazingly supportive built-in network!

Start weight - 137 (12/1/6), NOW - 114.5 lbs

Goals Remaining:
112.5 (9/15) - Bottle of wine
110 (9/30) - New workout outfit
107.5 (10/15) - Nice dinner
105 (10/30) - New jeans!


 
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SSPRUNG Posts: 10
7/22/07 3:16 A

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hihihi!!!!!

i have been diagnosed for the 2nd time.. in 1994...when pregnant... (along with my brother and mother at that time) I was pregnant.. the dr was really confused that i had diarhea with pregnancy.. was taking some sort of clay medicine the entire pregnancy.. then my brother came home from the emergency room with a celiac diagnosis.. lightbulb... we had both "had" celiac as babies.. in the early 1960's... of course you always have it.. the symptoms might come and go as a youngster..but it is a lifelong illness.

anyway..glad to find you all..

some free advice..get your thyroid checked .. i have an overactive thyroid(grave's disease) which is HIGHLY correlated to celiac... make sure to get your blood checked annually for this..100% .. if you catch it early you can take some medicine for short while and cure it..otherwise can be much more serious..

fun advice..BUDWEISER makes gluten free beer..Red Bridge.. redbridge.com has site with info on where to get it!

whole foods has tons of good food..

also glutenfreemall.com

great food..

Sara

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GAVBROOKE's Photo GAVBROOKE Posts: 13
7/20/07 1:38 P

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I am new to SP and to gf diet. I was diagnosed in June w/ cd. Got my appendix out in Jan. after an appendicitis and tha abdominal pain wouldn't go away! I have had GI problems since an ulcer in 9th grade. I have gained 20 lbs. since diagnosis, but also quit smoking while I was in the hospital w/ my appendicitis. Too many changes at once. I am on nortryptiline and feel that is the problem of weight gain. Dr. said once I started gluten free diet he'd take me off it. I feel much better gf! emoticon

Friendship doubles your joys and divides your griefs!


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KJEANNE's Photo KJEANNE SparkPoints: (39,604)
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7/20/07 10:36 A

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Welcome CALOUSTE! I was also diagnosed with DH when I was 19. Welcome JENNIFERMCCL! Iím with you on enjoying my meat. We have a great team that is very supportive in helping us all stick to this challenging eating plan. You both probably already know that there is gluten hidden in many of the foods we eat and that we must be vigilant at all times especially when we eat out.



Do not look where you fell, but where you slipped.
African proverb


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JENLMCC's Photo JENLMCC Posts: 311
7/20/07 9:24 A

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emoticon Hi, I just joined Spark on Monday.

My doctor diagnosed me with wheat sensitivity (yes it runs in my mom's family!) back in June. She advised me to cut out 95% or more of the wheat/barley/rye products as much as possible before going on a diet. My BMI is almost 39 which is too high, and having high cholesterol, she wants me to drop my weight down to 140 lbs. I was 241.7 lbs just over a week ago but I put myself at my starting weight of 237.2 lbs on Monday just passed.

I read up on Gluten Free diets (Gluten Free for Dummies! - what a great book and funny). Since being gluten free, I have had better concentration (not much but its getting there), less brain fog, not as much depression, dizziness, less build up of smelly air, my head doesn't itch as bad now and a few other changes.

I realize that many of the diets on here are not something which we can eat. The raisin bread that is gluten free tastes much better toasted with peanut butter or jams/jellies! Tastes yucky if not toasted though. Have a read on the Dummy book... good recipes in it. I've tried two and they turned out ok.

I'm not a vegetarian (I love my beef & chicken & fish) but I do have some recipes that do help out. Maybe I'll post them for everyone when I try them out myself first! Don't want to give out a recipe that I don't like!

I am taking supplements (Calcium & Vitamin D and Folic Acid) as oesterporosis, lactose intolerance and hypo/hyperthyroid run in my family. Oh what fun huh?

Cheers to all of us! emoticon

God wants us to serve Him. Faith in God & Christ. Our bodies are our temples to God, and when we treat our temples with love and nuturing, God will reward us as we reward ourselves with a better and healthier lifestyle!

150 by December 2014
30 minutes walking minimum twice per week

My profile picture is my goal!


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CALOUSTE's Photo CALOUSTE Posts: 188
7/12/07 7:35 P

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Hi, I just started on SP a day or two ago! I am so glad to find this team. I've been on two other diet websites, and I couldn't get a lot of support for my needs.

So, my name is Karin, and I'm 34. I was diagnosed over 5 years ago. I had been sneezing and feeling weird whenever I had a beer or dessert, but I joked about it... until on 9/11, I broke out in hives that didn't go away for months. (My best friend was working in the World Financial Center, and boy was I stressed! But he was fine.) Those hives turned out to be dermatitis herpetiformis.

Going gluten free cleared up the skin problems, brain fog, depression, and gut problems. I quit my stressful job and resolved to take better care of myself. In general, I have been... but I've gained about 40 lbs since my dx.

Part of it is the gluten free diet and part of it is less activity. I used to live in Boston and now I am in the burbs outside of Hartford. I don't walk all over the place any more. I sit in a cube a lot of the day. Etc.!

I've been vegetarian for over 20 years. Only now am I starting to really eat enough protein and cut back on the carbs.

I look forward to learning from you emoticon

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KJEANNE's Photo KJEANNE SparkPoints: (39,604)
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7/3/07 10:21 A

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Wow! We have a lot of new people that had joined the team. Welcome to JG0919, SKINNY_ARTIST, HERBALGIRL, BRADYSMAMA, ANALOGKIB, KIKIIM, FUN2DAY and, RHONEE. This has been a great, supportive group for me in re-starting and sticking to a GF lifestyle. I was diagnosed with Dermatitis Herpetiformis at 19 and stayed on a GF diet until the birth of my second child at 32. DH has a terrible skin rash and results in diarrhea when I eat gluten. Then the problems when away so I started eating gluten. I have been struggling with weight gain over the last 10 years and overall lethargy, hot flashes, mental fog and decided that I should try the GF diet again. All the problems lifted but, as you know, this is not an easy lifestyle to maintain. I feel that I must be on alert all the time, because gluten lurks everywhere!



Do not look where you fell, but where you slipped.
African proverb


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RHONEE's Photo RHONEE Posts: 7
7/2/07 7:02 A

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emoticon
Hi, I am new today and looking for support and information on wheat/gluten/dairy free dieting. I have been wheat/gluten/dairy free on and off for a couple of years to try and aid weight loss and general wellbeing, but have recently moved to Spain and it's really difficult here to get the necessary foods. Would love to know more about tasty alternatives for bread as I have tried many pre-packaged items over the years and they have all been disgusting. Would also like to have a "support buddy" in a similar situation to possibly email daily and exchange progress reports with.

I look forward to hearing from you

Hi again. Just wanted to say thank you to everyone that has already shown support. I now have a list of people that I can "buddy" with to encourage me on my journey.
emoticon

Edited by: RHONEE at: 7/6/2007 (10:25)
 
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DIANEEBLIN's Photo DIANEEBLIN Posts: 18
6/24/07 12:37 P

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emoticon Opps, I did it wrong already.

emoticon Hello. I'm excited to find a gluten free community that seems up beat. In February 2007 I finally had a nutricionist tell me she thought I was Gluten Intolerant. For 2 years I've been feeling worse and worse. She suggested I go on an elimination diet for 30 days and then eat a piece of wheat bread to see how I reacted. Well by the time 30 days was up you couldn't pay me enough money to eat that piece of bread. I'm learning fast but still have a long way to go. Mostly with realizing even though I have more energy that I did, when I do a lot of activity it takes me a few days to recover. I'm learning but I did have the most amazing trip to Disney World. Ate like crazy and didn't get sick once. LOVE DISNEY.

So I'm married with 2 sons and one is heading off to college. I run a business with my husband and I teach Jazzercise. I am hopefull that eventually my metabolism will kick back in and I can get rid of this extra weight that jumped on me in just a few short months.

I love to cook and use to work in restaurants. I'm happy to share anything I can with you. Just ask.

No day is complete without a little fun!
KIKIIM's Photo KIKIIM Posts: 22
6/21/07 11:25 A

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Hello! I am 28 years old and was diagnosed with Celiac Disease 3 1/2 years ago. I has really bad anemia and no doctors could figure out what was wrong with me. They put me on iron pills and shots and nothing seemed to help. Finally they sent me to a nutritionist becuase they thought that I wasn't eating enough food with iron in it. The problem ,however, was that I was eating a lot of foods with iron in it: pasta, cereals, etc. The nutritionist was the one that told me I should be tested for CD. I was tested both by blood work and biopsy and low and be hold I had CD. Since being diagnosed I feel so much better. That is unless I eat something by accident that has gluten in it. I can't wait to get more info on recipes and any other suggestions I may get from this board. Thanks!

There is within each of us a potential for goodness beyond our imagining; for giving which seeks no reward; for listening without judgment; for loving unconditionally.
~Elizabeth Kubler-Ross


 
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ANALOGKIB SparkPoints: (0)
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6/21/07 9:36 A

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I'm Kibbie and do not have Celiac disease though my house is gluten free. My daughter was diagnosed with Celiac disease in September 06 so that is why I am "gluten free." (she was 18 months old when diagnosed)

I don't consider myself an expert of any kind because I am learning new stuff all the time but I have learned a lot over the last few months... :) I do know quite a bit about random gluten free snack foods and have done my fair share of gluten free baking so feel free to ask me anything :)

Some crazy stuff you should know about me:
1. I'm extremely opinionated but love to hear what other people have to think!
2. I am very frunchy/granola! I use only natural non chemical cleaners (usually involving vinegar and tea tree oil)
3. I am addicted to Yoga



 
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BRADYSMAMA's Photo BRADYSMAMA SparkPoints: (0)
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6/20/07 6:05 P

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Hi! I am Nae. I am 32 years old. I do not have Celiac, however I have fibromylgia and aches and pains. Autoimmune disease runs in my family and my son who is 3 is currently GFCF for Apraxia and Sensory Problems. We also do not eat artificial flavors, colors, or preservatives.

I make my own house cleaning products and we are all natural on just about everything.

It has been harder for me than my son. My DH currently eats normally, but if I make a GFCF dinner he will eat it. I have been cooking GFCF for Brayden for about a month now, but he has been doing Feingold since November. I am doing my best to be GFCF because I just don't want to feel poorly anymore.

We are both seeing a chriopracter/kinesiologist who practices holistic healing and supplemental therapies. It has made a great difference and I know that staying GFCF will be a great start to overall health!

I can do all things through Christ which strengthen me.
--Philippians 4:13



 
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HERBALGIRL's Photo HERBALGIRL Posts: 12
6/20/07 4:54 P

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Hi there!
I'm soooo glad to have found you!
My name is Tracy, I'm 45, married (2nd time), and mom to two four-footed kids. I'm also about 70 pounds overweight.sigh.
I have decided to try going gluten-free due to my recent diagnosis of MS this Spring. I also have Fibromyalgia. I'm an herbalist by trade, and everything I read about nutrition and MS says to go gluten and dairy-free. I've been doing this for about 5 weeks now, and I have to say that I feel better already. My "spaciness" is better, and I don't feel bloated anymore. And, I don't know if this is due to the changes in my diet, but my nails are looking great! Not chipping and breaking like they use to. So I have to surmise that I do have gluten allergies, even though I started this due to my MS. There are many who feel that MS is due to food allergies.

I need to lose alot of weight though and feel like I need support. None of the standard diet plans will work for me, as you already know.I'm hoping to learn from you and cheer others on, as well!

www.summersea.etsy.com
www.summerseaherbs.blogspot.com


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SKINNY_ARTIST's Photo SKINNY_ARTIST Posts: 15
6/20/07 2:44 P

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Hello all! My name is Wendy. I'll turn 44 on July 2nd.

About 6 years ago I was diagnosed with Fibromyalgia (FM), I hurt all the time, couldn't sleep, suffered with IBS, migraines....
About 3 years ago I was given a food allergy test and found I'm allergic to wheat.
For 2.5 years I cut wheat out of my diet and I felt better, but not great. Then I read about Celiac and trouble with gluten. I decided to cut gluten out of my diet and see if it helped.
I was actually suprised by how much better I feel!!

My pain is mostly gone, so are my many other symptoms. I feel like a new person!!
I still have some medical problems, I have hypothyroidism, and I have problems with a bulging disc.

I dont' have the severe, immediate reaction if I have a little bit of gluten. My symptoms start a little bit later and include intestinal distress, migraines, and pain (I'll feel like I'm getting the flu)

I've been trying to loose weight for over a year, but it's not coming off.
I have been very disappointed and just gave up for a while. Still I didn't gain any, but I didn't loose.
Now I'm determined to loose this gut!!

But mostly, I'm so happy I feel better, and will continue to work at having a healthy lifestyle!!!

"I stand in awe of my body."
* Henry David Thoreau


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JG0919's Photo JG0919 Posts: 175
6/19/07 12:23 P

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Hi all! My name is Jennifer. I'm 33 and live in GA. I was diagnosed about five years ago although my first signs of the disease started when I was 6.

At age 6 I was diagnosed with rheumatoid arthritis. My doctor thought it was unusual for a child to have the disease but put me on a low acid diet which was the trend at the time. The symptoms disappeared - although now I believe it wasn't because I didn't eat tomato sauce but because I wasn't eating the spaghetti noodles my mother cooked several times a week with the sauce.

My arthritis flared throughout my adulthood. I had issues with severe depression and mental fog. In addition I had a large weight gain and a problem with DH eruptions on my face. Then my aunt was diagnosed with CD. Even though I was atypical (no digestive symptoms at that time), my doctor running out of ideas why I was sick all the time decided to test me.

I now feel amazing. Since my gut has healed, I now experience the digestive reactions, along with the joint and neurological symptoms, with accidental gluten exposure.

It's nice to know that there are a group of us who are all in the same boat so to speak.

"It is by going down into the abyss that we recover the treasures of life. Where you stumble, there lies your treasure." - Joseph Campbell


06/02/07 - Met 1st Goal - 250!


 
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DOTSLADY's Photo DOTSLADY Posts: 10,024
6/19/07 10:03 A

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emoticon Welcome to the CD and GF forum. If you're new to gf living, what a change, huh?! If you're not new to the diet, great! We welcome your experience.

Please introduce yourself here if you want to only share your story. You are more than welcome to start a new thread if you want some conversation too. Either way, I believe our stories to gluten freedom can pack a powerful punch of information, not only for each other, but others trying to understand what this (non-fad) diet is all about.

Thank you for taking the time to share your story.

Here's mine (sorry this is TOO detailed - lol - I think at the time I wrote it, it was therapy!):
emoticon
When I was young I had trichotillomania (I learned this from a therapist for depression later in life). I pulled my hair between my fingers. I specifically liked feeling the knots in my hair which helped ease the anxiety knots in my gut (nutritional deficiency IMHO). I also sucked my thumb at home until I was 12. My anxiety was compounded by living with an alcoholic father (gluten intolerant and not absorbing HIS nutrients?) who nagged and hit me to stop my "habit." We also moved a lot. I bit my nails because of anxiety also. I stopped when I was 17 or 18. I was the daughter with the quick temper. Sometimes I seemed to tire sooner than others. I was depressed/irritable, yet I also had a happy side who liked to laugh (probably to get out of depression!). At school I was happy, a bit insecure, but at home I was depressed. I was the "funny fat" friend in a group of "Miss Counties". I decided to go on the liquid protein diet popular in the late 70s, 1979 for me. I drank heated bouillon broth and liquid protein for 10 days and lost 20 lbs (if I remember correctly). I felt FANTABULOSO! I was gluten-free and didn't realize it - and it's why I felt so good and had so much energy. When Oprah did the same diet in the mid-80s, I just watched and shook my head. (Hmmm, and look who has a thyroid disorder now? I really wish she'd do the Enterolab.com testing!)

I went to college and worked at Blimpies: I ate a sandwich daily. Like a kid on the autism spectrum, I craved and cooked cheese tortillas almost daily. I gained the freshman 40 easily (yeah, 40, not 15). I was stressed out. My eczema was exaccerbated and went from my hands up my arms. I ended up quitting college because of stress/anxiety. I would get a headache associated with my TOM.

I got married at 20. DH said I was constipated. Never thought about it! I took "the pill" my first year and gained 80 pounds. (I'd been on a 500 cal/day diet to fit in my wedding dress and lost 40 lbs - and then quit that and also quit Jazzercize).

I had cold hands and feet (thyroid). I slept with a heating pad on my feet and awakened with a burn. It wouldn't heal for 9 months and was getting gangrenous. Not diabetes (poor wound healing - thyroid/celiac).

Moved. Suffered worse depression (I always attributed it to thyroid after my thyroid was diagnosed later, but now know it was celiac because it got better with my gf diet). Got food poisoning. Moved again. Got PG my 7th yr of marriage. Had to sleep 2 hrs a day. Felty woozy. Felt spacy and slow moving like a sloth on the inside. People thought I was so calm, but on the inside I was riddled with anxiety.

Moved again. Injured my hip by sitting too long on concrete, and I couldn't get up. I couldn't walk, when I did it was painful and like an 80 yr old. That pain would come and go for 13 more years. I asked doctors to check me for osteoporosis (no, you're too young), take an xray to ck for osteoarthritis (nothing showed). Sometimes my feet would hurt after walking/cleaning the house all day (wooden floors), but it got a bit better by wearing tennis shoes. Bent over to give DD a bath and when I got up felt like I was having a heart attack (gasping for air, felt like the wind was knocked out of me, couldn't breathe, chest hurt like a Mack truck was sitting on me)- doc said it was GERD. I couldn't understand a "heart" feeling for a supposed "gut" problem. Feeling very tired; haven't slept since baby was born (5 years). Craved salt.

Diagnosed hypothyroid. Went on wheat and sugar free diet and felt awesome (the irony does not escape me). That left little to eat but veggies and fruits and some rice crackers I found; I wasn't a big meat eater. DH not on board with this and as I'm always stressed/we were moving again so I go off this type diet. I think I had a few bouts of diarrhea.

I go into a deeper depression. My marriage is a challenge. I'm tired of moving! I'm just so tired! Doc just ups my dose of Synthroid and gives me Prozac. I cannot shake off my brain fog. I'm a whiner and can't take stress. I seem to be so dependant and I hate it. I have a few more bouts of diarrhea I associated with flu or something I ate.

We move and I go off Prozac because while it helped, I just didn't feel "myself" and wanted to laugh again. My insomnia is worse, my body aches and pains. DD's ADD psychiatrist prescribes me Provigil, an anti-narcoleptic because I would fall asleep in the hairdresser's chair. Headaches are getting worse and more often. Diet and exercise does not help me. Doc gives me copies of "SAD" - standard American diet, which doesn't work. There would be days all I'd want to do is chew ice and eat sunflower seeds (medical term is PICA, from not getting enough minerals/vitamins). If I ate only sunflower seeds and/or ice-cream I would get diarrhea (fat malabsorption from flattened villi because of undiagnosed celiac).

We move and I get a trainer, cause this time I'm REALLY going to lose weight darn it! I start walking the dogs and also working again (hadn't even unpacked!). I'm so tired and complaining about not being able to keep up. My hair seems to be falling out. I'm "going" after every meal, so 3x/day. I'm so sore after working out it seems like I'm never NOT sore.

When DH brings up my constipation I'm frustrated, telling him once again, that all my whole grains and Kashi cereal have helped over the years: I'm not constipated anymore. Sheesh!

I can't relax. There's so much to do and no energy to enjoy anything. DH is never home. Can't keep eyes open. Cannot drive long distances for fear of falling asleep. DD is a handful with her own issues (ADD, ODD, Aspie?) which only add to my woes. Depression hurts, but is this fibromyalgia I'm feeling? I slept on the floor before moving, and cried the night away from pain.

Move again and tell new doc how tired I am. Headaches have grown to about 4x/week. Taking up to 800mg ibuprofen. He does a full iron panel and suggests I get a colonscopy to check for internal bleeding or cancer (low serum ferritin: 5). I, repeat, *I* am the one who googled anemia and asked the gastro doc for an endoscopy while on the table for the colonscopy, not knowing he would find celiac. What's celiac?! THEN it was confirmed with a comprehensive celiac blood panel.

Ironically, my MIL was diagnosed with celiac 7 months before me. She only told me she couldn't eat bread, that it gave her gut pains and gas. I had gas, but certainly I couldn't have her disease - I love bread!! What a lost opportunity to have been diagnosed a little sooner. We also shared depression as a symptom, but that's about it (except maybe cardiomyopathy, which everyone attributes to her smoking). What's my excuse? I say gluten.

After my diagnosis I couldn't get enough info about celiac - I devoured all I could. When asking my MIL about her diagnosis, come to find out she'd been diagnosed in the mid 1980s and was told she could eat gluten again when she felt better. And she did! For years she just lived with her gas and IBS-D. She broke her hip in a small fall from a milk crate - and after two surgeries (the first one didn't heal), she was rediagnosed with osteoporosis and celiac disease. She was a smoker, who, despite best efforts and some stubborness in understanding the diet, really wasn't gf. Her immune system didn't help her battle her COPD. Ultimately, her organs stopped working and she died in 2007.

Also, I have osteopenia. I was right to have asked my doctor for a dexa scan. So even if you're insurance doesn't pay, do it so you have a baseline for later, esp after diagnosis.

My FIL has a story as well. He died the year before my MIL, after losing a lot of weight the doctors didn't know why (dx non-Hodgkin's lymphoma). He had eczema, was hyper, radiated and then had hypothyroidism treated with Levoxyl. He'd had his spleen and gallbladder removed. He had pernicious anemia. He was a recovering alcoholic. About 4 years before the end of his life he carried around a little used Merck manual to try to diagnose himself because he thought he was dying. I don't think he read about celiac disease.

I was diagnosed at 44.10 yrs old and am so grateful as I really didn't realize how sick I really was.

Edited by: DOTSLADY at: 7/14/2008 (00:40)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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