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Celiac Disease and Gluten-Free

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  FORUM:   Introduce Yourself to Team Forum
TOPIC:   Hello team! Newbie here! 


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TIME2BLOOM4ME
TIME2BLOOM4ME's Photo SparkPoints: (132,138)
Fitness Minutes: (72,408)
Posts: 4,938
6/20/13 4:21 P

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emoticon

If it is going to be it is up to me!!!


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TUBBYNOMORE74
TUBBYNOMORE74's Photo Posts: 92
6/20/13 9:43 A

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Thanks for the welcome everyone! Too bad SP has not adressed this issue. I will be contacting them about it so that they are at least aware that there is a need.
Margie100%Pure, thank you for your response. Thanks for sharing your personal journey as well. I have considered that stress is likely a factor. Stress causes so many consequences to our bodies. Unfortunately, for me I do not see an alternative. I can finish school in the next year and hope I can hang in there until then. I cannot give up either of my jobs, but I did cut back to part time at one . The other is a travel agency that I started myself. One of my dreams is to have a successful business to pass down to my daughter one day. I want my daughter to believe that anything is possible if you are willing to work for it. The part time job is my steady paycheck while I get the travel business established. It is less than a year old. That being said, I did give up most of the volunteering I used to do. I was spreading myself to thin. I am praying that this is the answer to my issues or will at least help me be healthier. I did give up aspartame and artificial sweeteners about 6 mos. ago (forgot to mention that earlier) after reading an article about the side effects. My beloved diet coke is a thing of the past. I am excited about the fact that I will be eating cleaner and giving up most processed foods. I have been needing that change for a long time. emoticon


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DJ4HEALTH
DJ4HEALTH's Photo Posts: 36,910
6/19/13 10:46 P

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Welcome to the team and for the question about gf on the food tracker, no they don't have one for us. We have to put our food in and make our own food choices

Dorothy





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DAISYGIRLM2
DAISYGIRLM2's Photo SparkPoints: (7,948)
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6/19/13 7:51 P

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WOW! You truly are a wealth of info! So glad to meet you! emoticon

"The secret of change is to focus all of your energy, not on fighting the old, but building the new". ~Socrates

"Life is not about waiting for the storms to pass. It's about learning to dance in the rain."

Smile...Crochet...Have a GREAT DAY...IT IS MANDATORY :0)


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MARGIE100%PURE
MARGIE100%PURE's Photo Posts: 1,500
6/19/13 5:05 P

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Hello and welcome Tubbynomore74. I am not a doctor but I wish to share some interesting maybe some downer facts. I have been successful in remaining g-f for about 6 years working thru my sense of denial in social settings and physical acceptance of sensitivity limits I never had before my IBS. I, in hind sight, believe getting the gluten-free Celiac testing done staying with gluten filled menus is recommended by many G-F doctors. Staying in the gluten realm helps track insurance honored clauses and doctor paperwork in your favor. The evidence of all that testing can show gluten causes, even of they come back negative as a true Celiac. I feel for you because just washing with gluten health and beauty products now that I am gluten sensitive does hurt.

Living and eating gluten-free is not a fad but has to be a way of life. Once the goal is met and g-f is real in the kitchen and in the gut the immune system alters. It may scream, the IgE and other blood measurable antibodies mark the differences in ways you can really see and feel when before it was just thought of as just an annoyance amongst all the other pain swelling and gut chaos. The social ostracizing and the ability to share home cooked foods you made that contain gluten then become undoable to avoid awful pain in yourself that the recipients of the donated dish may not understand. My blog of Hinders Hostess sort of expresses this serious change. Why deny yourself what everyone else deems as normal unless you have health reasons for doing so.

As for getting our great host Spark People to bend has not occurred yet. We have been asking. We love the fact that you ask it here. But we as a group agree with you that this G-F food tracker support software is possible just not probable yet. The memory of the food tracker system is sound and after several entries are in your log the help is in the repeat buttons.

If you want more comfort until the gluten issue is formally addressed see what other foods may cause discomfort like artificial ingredients of additives and preservatives or corn soy oats and buckwheat. That open gut alters a person to become extremely more sensitive to many things. Those foods and products may not have gluten but with a gut issue like yours the tender places will show discomfort. It sounds as if you now can listen more carefully to your body as it talks to you. I found No Artificial Things became a mantra. Daily intake of extra friendly bacteria, vitamins, especially the stress spenders of B,C, D and E has helped me with a faster recovery from my once open gut weakness and recovery from many other discomforts are now gone. I still take a lesser amount of supplements; I do not ever want to go back there again.

And this next part may seem scary. By being an overstressed overachieving person myself by working beyond the bodys ability to stay healthy had to change the conditions did worsen for me it became permanent. School/double work load/and busy home life may need to get more creative support from family and friends. Cutting the corners is not enough. When someone rides overdrive too long the chaos becomes familiar almost comfortable and falling short of personal expectations is guaranteed to happen with the body being the biggest permanently scarred loser.

All these past expensive body strain efforts may have met many of your goals. The habits also spent vitamins minerals and body using enzymes beyond reserve limits; as seen in the rest of us. Malnutrition is real; the reserves are shot. This actually shows in the IBS and other gradually slower to recover signs from colds and flus which makes the immune system need a recharge, too. Nutritional support in the form of a multivitamin may simply fly right though you out the other side. With holes in the gut absorbing the needed stuff fails as it have been proven in the past. The friendly gut bacteria to the tune of billions per day are in need of replenishing for starters.

I am only a permanently changed Spark member person that did once live high and expected my body to jump through every hoop. I am not a doctor. Good grades-clean house-regular paychecks are still not enough. I do not want my mistakes of deep goal achieving to be your setback so I share my story of oops here. There are extenuating circumstances of hormone measuring and possibly support. Supplemental nutritional needs to address to recharge your reserves your doctors may not see; and there are stress style adjustments to be made. Re-think this; yes, losing weight will help everything. But if the condition of the body is below admirable ceilings with PCOS and diabetes then fat or skinny sickly might become the norm. Both conditions with regular natural nutritional power tools can be overcome to a nice level of comfort. There is amazing overwhelming hope and potential for recovery along with the know how for controlled success available. You have to go get it.

We have your back here on this team for understanding your need for Gluten-free answers. Working past denial is a big one. I have truly benefited from this awesome team and all it has to offer today and in past threads. And learning to visit an MD with nutritional advice and bio-identical hormone replacement as certified specialties for my sense of recharge has honestly done wonders.

Welcome!
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The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;


TUBBYNOMORE74
TUBBYNOMORE74's Photo Posts: 92
6/19/13 2:32 P

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Oh, I have another question, does anyone have a suggestion as to how to tailor the food tracker here on SP for wheat/gluten free? I see low carb, but that is it.


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TUBBYNOMORE74
TUBBYNOMORE74's Photo Posts: 92
6/19/13 2:24 P

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Hello all! I have been a member of SP for several years off and on. But I am totally new to the GF lifestyle. I have not been diagnosed with Celiacs and have decided to try gluten free after reading "Wheat Belly" (alarming!!) and talking about my medical problems with people that had the same symptoms. I know a few ladies that tested negative but went GF and have happy lives now. So, here I am. Let me list my symptoms first since most of have a variance of symptoms.
- Diarrhea every single day lasting 12 hours for each flare up. At times the stool is mucousy and oily (fat malabsorption). (I have been diagnosed with IBS-D and prescribed Lomotil and Colestipol ( a binding agent) for the most part these meds help control it.
- abdominal pain ranging from sever fetal-position pain to moderate cramping in my gut. (Gave up dairy products 3 months ago and the severe pain has disappeared when I have flare ups..yay!!)
- vomiting accompanying the D, this began as just nausea 18 mos ago, but as this has progressed it has become full fledged vomiting resulting in 4 trips to ER to replace fluids via IV.(prescribed Phenegran suppositories which are great for when I have to travel for work.)
-fatigue. This started becoming evident about a year ago.
-Dental trouble. I cannot even begin to discuss the money I have had to spend on dental work in the last year..yikes.
-headaches- started about 6 months ago. They are random and do not always accompany a flare up.
-arthritis, diagnosed by my PCP 3 months ago via x-rays and MRI's.
PCOS- I have been diagnosed with this since I was 16 years old. Subsequently, I am type 2 diabetic so the treatment (metformin) helps with PCOS.
- Inability to complete thoughts/fuzziness when trying to think. I am a sharp person (have to b e when you have 2 jobs and are working on a master's degree as a single mother) But lately, I will be talking to a client and I forget what I wanted to say, or use the wrong word.
Tests I have had and results
*blood work= elevated CRP levels suggesting inflammation, Vitamin D deficient, Vitamin b12 very low.
* stool samples= elevated lactoferrin, suggesting inflammation.
*colonoscopy= done 1 year ago, normal results
*endoscopy= done 9 mos ago, normal results , signs of inflammation in stomach though
*pill cam= done 3 mos ago, normal
*breath test= done 6 mos ago showing lactose intolerance. I have lived with this all my life and usually take Lactaid if I consume milk. Made the choice to go dairy free 3 most ago with some positive results.
*Other allergies= sun allergy, yep you read it right lol! Got this from my father (genetic). Ironically I have a Vitamin D deficiency and cannot treat by getting more sun as PCP suggested.
So, after all of this testing I still do not know what is causing my problems. At first, my GI thought it was Chron's Disease. But Pill cam is negative. emoticon So, my last vist ( a few days ago) they tell me they are gonna diagnoze me with IBS-D. I told them I may have IBS, but there is clearly something more at work here. Too many red flags. So, I told her I was going to go gluten free to see if that helps. She thought it was a good idea. I feel like my GI has just given up on me. It is clear that this has progressively gotten worse since it started 18 mos. ago. This is my second GI. The first said after the colonscopy that this was the absence of my gallbladder. Which I had removed 10 years ago, with no afrer effects. lol! She said it is something I would have to live with. I told her I wanted a second opinion!!! I refuse to accept this as my way of life. I know where the toilet is everywhere I go. I just returned from a vacation to Disneyland with my family and spent the first 3 days at the hotel in the bathroom. At this point I will try anything. I am considering going to an allergist to see what else I may be allergic to. Has anyone tried this? I have been reading the sticky's and am so appreciative of everybody's insight and willingness to share their stories.


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