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LKIRSCHNER's Photo LKIRSCHNER Posts: 17
10/19/12 2:13 P

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Thanks! You're too kind. :)

Actually--and I'm only mentioning this because I know that everyone here will understand--it's amazing that my clients have been so supportive, especially this year and during the past several years. When all of my symptoms started in 2007, I had no idea what hit me and it had a disastrous impact on my business. I've managed to keep the biz running, but there have been many days where I did not feel well enough to work (but forced myself to do so anyway, with a few exceptions and a company-wide shift to a virtual environment--i.e. we all work from home for the most part).

If it weren't for the fact that I have a whole team of people at my company who can work with clients and handle ongoing tasks, I would probably be out of business due to my medical issues. :( But I'm feeling better now that we're starting to pinpoint some potential causes and I'm hoping that a GF diet will help get me back to normal (or my new normal, anyway).

Thanks again! Take care.

Lisa

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
10/18/12 6:55 P

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That is wonderful that you have such good companies that you are doing work for. You must be really good.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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LKIRSCHNER's Photo LKIRSCHNER Posts: 17
10/18/12 4:40 P

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Thank you, thank you, thank you! This looks much more similar to how I usually eat and won't require as much work or cooking new things! I love that magazine and have bought it from the store a few times. I think I'm going to subscribe.

My business is a web agency focusing on content management (www.flairinteractive.net). We help companies like Walgreens, Deloitte & Touche and other small to mid-sized businesses plan and manage their web content.

Thank you again. I really appreciate it!!!

Lisa

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
10/18/12 4:13 P

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Lisa
Eating well has what looks like a decent Gluten Free Meal Plan
www.eatingwell.com/nutrition_health/
we
ight_loss_diet_plans/diet_meal_plansR>/7_day_gluten_free_meal_plan

There magazine is always very worth it and I just got a pop up from their site say that you can get the magazine for $9.99 for a year (6 issues). That is pretty good. The meal plan is also adjustable buy how much calories you need to intake, They also have a mini cook book you can download for free.

The Whole Living 28 day challenge looked interesting except for the detox they have you drink every day. Those thing are not worth the money.

It is cool that you have your own business and have been able to get all these tests and find a good doctor, May I ask what your business is?

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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LKIRSCHNER's Photo LKIRSCHNER Posts: 17
10/17/12 7:39 P

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Great news!!! I actually heard back from the nurse again. I had a bunch of questions and she had to check with the dr.

He said that I should try a GF diet for a month and also continue to take the Nexium (for GERD) for a month, then call him back if I'm still having issues. I was SOOOOOOOO happy to hear this, because I finally feel like someone is interested in really helping to solve my medical issues instead of just throwing more meds at it and moving on to the next patient. Plus, it's so nice to hear a medical professional validate that gluten may be causing these issues, because it brings a lot more credibility when discussing it with my family and friends, most of whom really don't get it.

I'm debating about how to go about starting the GF diet in the most efficient and convenient way. I've thought about trying the Whole Living 28-Day Challenge (http://www.wholeliving.com/153124/how-201
2-challenge-works/@center/152870/2012-
whole-living-action-plan), which I've tried sort of half-heartedly in the past. Basically, it not only cuts out gluten, but also sugar, dairy, caffeine and alcohol. Anyone ever have any luck with this? Last time I tried it, I was not aware that I might have gluten issues and was not as motivated to stick with it for every single meal. It is a pretty intense plan, but I'd be comfortable committing to it 100% right now...looks like the lesser of two evils to me! :)

Otherwise, would be interested in hearing from anyone who has found other GF "plans" that are easy to follow for someone with a very busy lifestyle. I have two kids and own a really busy business, so I am going to need to set aside a certain number of hours per week (or actually, probably per day) to focus on this...but I just want to have a plan to follow so I don't necessarily need to think about the recipes at first. Then later, I can wing it and come up with my own recipes, explore GF cookbooks or just sort of work it into my regular cooking/shopping routine when I'm more familiar with the GF lifestyle. Would welcome any suggestions from those of you who have gone that route!

Otherwise, thank you again!

Lisa

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LKIRSCHNER's Photo LKIRSCHNER Posts: 17
10/17/12 11:37 A

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Yes, I was surprised that the results came back so quickly.

I asked the nurse some questions about food allergies, gluten sensitivity, etc. and she was going to check with the doctor.

I'm going to start a gluten-free diet (or possibly do Whole Living's 28-Day-Challenge which has you cut out gluten and other food allergens) right away.

I'm thinking about also doing Enterolab's gluten and food sensitivity panel or I may go to a natural doctor such as Dr. Mercola at the Natural Health Center (http://naturalhealthcenter.mercola.com/), which is only 10 minutes from my house. I think that they do a lot of tests for food allergies/sensitivities and gluten intolerance, among other things. I am not going to live like this the rest of my life!

Bummed, but determined to find an answer. Thanks again for everyone's support!

Lisa

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
10/17/12 11:12 A

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Wow! You got the results back fast. Good that they came out negative. Now, You said you have horrible allergies. Are any of these food allergies. There are a lot of people that are Allergic to wheat.

Keep talking to the GI Doctor and maybe he can work out what you are reacting to. They well often suggest you try a gluten/dairy free diet for a while. Soy is often taken out of the diet also.

When I was first being diagnosed with Celiac my doctor said that as long as I felt better on the gluten free diet, then by all means, stick to it. She also said that since I felt better on the diet, that was good enough for her to say I was Gluten Intolerant. Later I had the endoscopy that confirmed the Celiac (I had to eat gluten for two weeks before the test which made me miserable).

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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LKIRSCHNER's Photo LKIRSCHNER Posts: 17
10/17/12 10:05 A

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Hello everyone.

The endo came back negative for celiac and eosiniphilic esophagitis, and all biopsies were benign.

I'm actually not as devastated as I thought I'd be, even though I still do not have any answers at all...still going to go GF and see if that helps. :(

Thank you all for your feedback and support.

Lisa

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DJ4HEALTH's Photo DJ4HEALTH Posts: 41,500
10/16/12 11:48 P

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Welcome to the team and glad that you are taking your health back into your hands and not the doctors. They just want to push pills all the time.

Dorothy

If you tell God no because He won't explain the reason He wants you to do something, you are actually hindering His blessing. But when you say yes to Him, all of heaven opens to pour out His goodness and reward your obedience. What matters more than material blessings are the things He is teaching us in our spirit.
Charles Stanley


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LKIRSCHNER's Photo LKIRSCHNER Posts: 17
10/16/12 5:52 P

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Thanks again. I do not know if any of you would know this, but I have a related question.

Here's what they visually saw on the biopsy:

-Irregular z-line (lower third of esophagus--biopsied)
-Polyp in stomach (removed and biopsied)
-No visual issues on small intestine--but still biopsied for celiac

I'm glad that they took so many samples for biopsy (about six total), and I'm assuming that they're biopsying for celiac, Barrett's Esophagus (because I have GERD and the irregular z-line), eosinophilic esophagitis (allergic inflammation of esophagus--because I have horrible allergies and swallowing issues) and cancer. But does anyone know if an irregular z-line, stomach polyps and swallowing issues are also symptoms of celiac??? Or if celiac can cause any of them or Barrett's?

Lisa

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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
10/16/12 5:45 P

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That is great that it went ok.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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LKIRSCHNER's Photo LKIRSCHNER Posts: 17
10/15/12 9:28 P

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Thanks, everyone! The endo went okay and they said that I should have the results back within five days. I was glad that he still wanted to biopsy the intestine (in addition to the other stuff he was biopsying), even though the celiac blood tests were negative. If the biopsy comes back negative for celiac, I'm definitely going to ask him about gluten intolerance and try cutting it out. Thank you all for your support--it really helps a lot!!!

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KRYSTALLA's Photo KRYSTALLA Posts: 1,070
10/15/12 9:10 P

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Good luck.I also agree with Mark, if it isn't celiac it could be a gluten intolerance. Last week Dr. Oz had a show on it and your symptoms seem to be alot like what was listed, on his website he has a quiz to help determine if you may be gluten intolerant. Like what Mark suggested take gluten out of your life and see if you notice anything getting better and if it gets worse if you include it back in then that would signal that you probably are gluten intolerant.

Lisa

Eastern standard time zone.


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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
10/15/12 2:15 P

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I wish you the best luck. But even if it shows negative for damage there is a such thing as gluten intolerance. It well not show up on any tests or even show damage to the Villi, But you would be just as sensitive to gluten. If the tests shows negative talk to your doctor about intolerance and even if he does not agree, try the gluten free diet to see if you feel better. I also suggest going dairy free at the same time. My doctor had suggested it to me because if your system is reacting to gluten it well also react to dairy because you are all ready weakened. You can add dairy back in slowly after about a month and see if it causes you a problem. It took me 6 months before I stopped reacting to dairy and then I could only eat a small amount. It took about a year before I did not react to dairy.

Mark
Leader: Gluten Free and Healthy
teams.sparkpeople.com/gfh

Co Leader: Ankylosing spondylitis is anky-losing bad habits!
teams.sparkpeople.com/as


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JUSTJAB213's Photo JUSTJAB213 SparkPoints: (1,252)
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10/15/12 9:12 A

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Best of luck to you!

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KNYAGENYA's Photo KNYAGENYA Posts: 7,157
10/15/12 9:00 A

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emoticon Good luck.

" The road to success is always under construction."- Lily Tomlin


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LKIRSCHNER's Photo LKIRSCHNER Posts: 17
10/15/12 12:43 A

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Hi. I'm 41 years old and have had various health issues my entire life, including allergies, asthma, headaches and chronic infections. I've had sporadic GI issues, fatigue and rashes as well.

This year, I also experienced a slew of other symptoms and was diagnosed with GERD, Raynaud's Syndrome and TMJ, and I thought that I had fibromyalgia. However, the dr wasn't too sure about the fibro and sent me to a gastro, who ordered a celiac blood test and an endoscopy. I did the blood tests last month, but they were negative. My endo is scheduled for tomorrow, and I can honestly say that I am scared to death...however, I'm not scared about the procedure or about the idea of being diagnosed with celiac. I'm actually terrified that it WON'T be celiac!

I know this probably sounds crazy, but I've been feeling so horrible for so long and I just want my life back (or something that somewhat resembles it anyway). I don't relish the thought of eating and cooking gluten-free, since I already have to modify our food and shopping for our son, who has multiple life-threatening food allergies....but I just want an answer and I want to feel better. Does anyone else feel this way?????

Regardless of what happens with my endo tomorrow, I'm going to go GF to see if that helps. The only potential drawback--and it's a big one--is that if I have celiac, both of our kids may have it. They've both exhibited symptoms, but helping them manage it would be much harder than worrying about just me. So it's sort of a double-edged sword.

I'm glad to find this group and hope that, regardless of what happens with my test, I can move on and create a better, more healthy life with support from the SP community.

Lisa

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