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AMANDARDH's Photo AMANDARDH Posts: 295
10/7/12 8:34 A

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Hi all!
I've been battling some form of new allergy since the end of August. After changing so many things (detergents, soaps, pillows, etc) we are not investigating a food allergy. My Dr is thinking dairy, wheat, or gluten. I have an appointment for allergy testing tomorrow and I am on my second round of oral steroids in the past 1.5 weeks due to severe inflammation and rashes on my face. I've missed so much work in the last month and a half from this that it's overwhelming.
So far (since Thursday) I've been trying to do gluten/ wheat free....wow is it tough. Gluten and wheat are in everything....and the glueten/wheat free sections are EXPENSIVE! Does anyone have a great site of gluten/ wheat free cooking or tips. Does anyone know how long before I get results from allergy testing?
I'm curious because as soon as I come off of steroids it's at most 5 days before symptoms return with rage! So frustrating...I just want answers!

“If you’re going to be able to look back on something and laugh about it, you might as well laugh about it now.”


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KJEANNE's Photo KJEANNE SparkPoints: (39,604)
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9/30/12 4:39 P

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Going gluten free did help improve some of my health issues. Most especially constipation and skin lesions (I have DH). But it wasn't until I went vegan that I had major improvements in my health:
no more brain fog
improved sleep
improved blood sugar
cholesterol improvement
skin cleared of pimples and age spots
less wrinkles on my face


Do not look where you fell, but where you slipped.
African proverb


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MZZCHIEF's Photo MZZCHIEF Posts: 9,411
9/26/12 12:50 P

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Linda

Sounds like you've got a great doctor.
Common sense bets expensive testing to my mind.

: )
Mzzchief

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Hello, 60!

Never underestimate the value of getting out of your own way.

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YOSOYLINDA's Photo YOSOYLINDA Posts: 5,948
9/26/12 8:58 A

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I was diagnosed as "allergic" to wheat (as well as corn, tomatoes, rice, soy and green beans) over 20 years ago, and knew nothing about celiac. Plus, I haven't done a good job of avoiding, although I have limited over the years.

When I asked my doctor recently if I should be tested for celiac, she looked at me pointedly and said, "We both know you should be gluten-free, right? So, do you really want to spend the money for the test?" emoticon

Linda C
Oklahoma (CST)

"Food is essential to life; Therefore, make it good."
--S. Truett Cathy (Chick-Fil-A)

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GFNOMAD's Photo GFNOMAD Posts: 1,524
9/23/12 11:05 P

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Only brain fog now is age related and a concussion. Yes, going gf definitely cleared the brain fog. As I said it was one of my main symptoms along with the emotional ones (which I didn't mention before).
BTW, You can reply to everyone in one post. Just put their name in front of the response. I find it makes it easier to read and faster to load for us with old computers!
emoticon
Barb

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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HEAVENLYMORNING's Photo HEAVENLYMORNING Posts: 354
9/23/12 10:38 P

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Hi GFNOMAD,
Thank you for responding, I would love to do the test but it is very expensive and I do not health coverage, so I am going to just go for it and go gluten free. I think I have sensitivity more than CD. Thank you for the advice on the food journal, good idea. Has it helped with your brain fog eating gluten free?? Thank you :)

Yesterday is history.

Tomorrow a mystery.

Today is a gift.

That's why it's called

the Present!
HEAVENLYMORNING's Photo HEAVENLYMORNING Posts: 354
9/23/12 10:35 P

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Hi Dizzycocoa,
That is exactly how I feel 24/7 I never feel clear headed and it is not getting better, it is getting worse. Thank you for sharing :)

Yesterday is history.

Tomorrow a mystery.

Today is a gift.

That's why it's called

the Present!
HEAVENLYMORNING's Photo HEAVENLYMORNING Posts: 354
9/23/12 10:33 P

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Hi Illiniteacher52,
I am going to go for it and hope it helps with the brain fog the doctors look at me like I am alien when I tell them I suffer from it. Thank you :)

Yesterday is history.

Tomorrow a mystery.

Today is a gift.

That's why it's called

the Present!
HEAVENLYMORNING's Photo HEAVENLYMORNING Posts: 354
9/23/12 10:32 P

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Hi Mzz, nice to see you here in this team, you always have such great information. You pretty much know my background ever since I had my thyroid out I have been feeling horrible even though my tsh is .01; I have3 no clue what my T's are I go in Oct. to have blood work done and am going to tell him to take the T's and maybe check my adrenals. I am going to give this gluten free way a try, I know it cannot hurt us, if anything it will be healthier. Thanks for your response :)

Yesterday is history.

Tomorrow a mystery.

Today is a gift.

That's why it's called

the Present!
ILLINITEACHER52 Posts: 7,257
9/23/12 1:47 P

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Being gluten free has cleared up my skin, joint pain, IBS and most of my brain fog :-)
Go for it! I think you will find that you feel much better.

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MZZCHIEF's Photo MZZCHIEF Posts: 9,411
9/23/12 12:29 P

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HI Celeste!

I've been gluten free since 2007.
I've answered many of your posts on my thyroid team.

Yes, there's an association with gluten and the autoimmune form of thyroid disease.

Celiac is where your body creates antibodies to gluten/gliadin, mistaking these wheat proteins as bacteria or a virus. When you eat these proteins, your antibodies attack it. Since nutrients are absorbed by the villi that line the intestines, that's where a lot of collateral damage occurs. Inflammation is the result. Thats the bad news. The good news is that cells in our intestinal lining have a very short life, about 4 days, before they are replaced by new enterocytes. So as soon as you stop exposing yourself to gluten/gliadin, your body can repair itself.

A theory behind auto-immune thyroid disease is that gluten/gliadin proteins resemble thyroglobulin in their chemical structure. Thyroglobulin is produced in the thyroid, which is where these antibodies attack... causing inflammation and scarring in the tissues that make thyroglobulin. The problem here, is that the thyroid doesn't replace its cells quickly the way they are replaced in the intestines. So the damage just accumulates... sometimes causing goiter, decreasing the function of the thyroid gland.

I think going gluten free is an excellent idea for you.
Give it a test drive.

: )
Mzzchief

New decade. Big world.
Hello, 60!

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


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GFNOMAD's Photo GFNOMAD Posts: 1,524
9/23/12 10:23 A

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Brain fog is one of the main symptonms I experienced although it is more common with gluten sensitivity rather than CD. I still think you should discuss it with your doctor because they might want to to test you first. Given the refusal of health insurance in the states based on preconditions, I am torn about that advise. In Canada it is not an issue, even for travel insurance.
Keep a food journal and make sure you are 100% gluten free, that is no hidden glutens. What you'll probably discover is other food sensitivies.
good luck!
Barb (gf 31 yrs)

Edited by: GFNOMAD at: 9/23/2012 (14:04)
Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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DIZZYCOCOA's Photo DIZZYCOCOA SparkPoints: (6,509)
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9/23/12 2:10 A

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Absolutely! Whenever I get gluten I get brain fog...I call it the "stupids" because I just can't seem to think or process information normally. It lasts for well over a week...so frustrating!
I hope gluten free helps you!

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HEAVENLYMORNING's Photo HEAVENLYMORNING Posts: 354
9/22/12 10:27 P

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Hi my name is Celeste, I am 46 and I am new to this team. I have been with SP for a few years. My health history is as follows: I had a thyroidectomy in 2011 and on a natural thyroid hormone, I have bouts with IBS, high blood pressure, headaches, BRAIN FOG real bad, sleep issues, bloated stomach, and joint pain. I had a doctor, an Orthopedic doctor ask me about my symptoms and told me to try going gluten free. I am asking those of you who suffer with this if you had any of the ailments I have. I have done research on this and believe it is very healthy for everyone to eat this way. I just want to feel good again I have no energy, I never want to do anything because I am tired all the time, and it is not due to my lack of thyroid because my med levels are good. I am looking for some good advice on this. Did anyone suffer from brain fog?? I have it real bad and it is frustrating as I am in college and am having to work too hard to concentrate. I would really appreciate all the help, advice, and suggestions you have to offer.


Yesterday is history.

Tomorrow a mystery.

Today is a gift.

That's why it's called

the Present!
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