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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
8/8/12 6:37 P

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It is very common for the delay in symptoms. I have Celiac Disease and even with me, if I eat something with wheat I well not know until the next morning when I wake up bloated. It then usually develops into something much worse for me and can last up to 5 days.

I do not understand why your doctor said you would go through endless tests. There are only three major tests:

"Blood Tests
People with celiac disease have higher than normal levels of certain autoantibodies—proteins that react against the body's own cells or tissues—in their blood. To diagnose celiac disease, doctors will test blood for high levels of anti-tissue transglutaminase antibodies (tTGA) or anti-endomysium antibodies (EMA). If test results are negative but celiac disease is still suspected, additional blood tests may be needed.
Before being tested, one should continue to eat a diet that includes foods with gluten, such as breads and pastas. If a person stops eating foods with gluten before being tested, the results may be negative for celiac disease even if the disease is present."
Intestinal Biopsy
If blood tests and symptoms suggest celiac disease, a biopsy of the small intestine is performed to confirm the diagnosis. During the biopsy, the doctor removes tiny pieces of tissue from the small intestine to check for damage to the villi. To obtain the tissue sample, the doctor eases a long, thin tube called an endoscope through the patient's mouth and stomach into the small intestine. The doctor then takes the samples using instruments passed through the endoscope."

Mark
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KJEANNE's Photo KJEANNE SparkPoints: (39,576)
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8/7/12 9:38 P

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Hey Bluemorning:
I hear you on the rice pasta. Not impressed!
When I first was diagnosed, 40 years ago, there were almost no gf foods and they were TERRIBLE! So I focused on eating foods that were naturally gf.

BTW: I am also vegan! Talk about having a hard time eating out but I Always find something to eat! Where there is will I find a way!

Do not look where you fell, but where you slipped.
African proverb


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BLUEMORNING's Photo BLUEMORNING SparkPoints: (5,300)
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8/7/12 4:33 P

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Ah, Kjeanne, I understand! When I started the gluten free I was astounded at the sheer number of products with wheat! And then companies are starting to provide gluten free products but the cost right now is so high! I feel lucky because I can cut out the pasta, breads, pastries from my diet (unfortunately pasta is my favorite food and I hate the rice pasta!) but probably won't have trouble with the little things. Time will tell!

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SUNNYBEACHGIRL's Photo SUNNYBEACHGIRL Posts: 2,493
8/6/12 2:18 P

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I have found that after eliminating gluten, you can find that there are other foods give you GF symptoms. You gut heals and now processes everything and something trigger the symptoms. Sulfates found in balsamic vinegar really give problems. So I stick with apple cider vinegar. It does make it difficult when eating out. On the other hand, I have found most Ranch dressings GF free. It is definitely not fun watching everything you eat and really having a difficult time when eating out or even at a friend's house.

Sunny in Southern California PST

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KJEANNE's Photo KJEANNE SparkPoints: (39,576)
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8/6/12 10:34 A

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I was diagnosed with DH many years ago. It is very hard, almost impossible to live a 100% GF lifestyle. Unless you live alone or everyone in your home is GF. There is cross-contamination in the kitchen. When you eat out there is cross-contamination in that kitchen. When you buy packaged foods there are ingredients that have gluten but may not be labled as such.

I know when I have a reaction: I have blotting and terrible gas. There is no compromise for me. But I still have reactions because of that hidden gluten I encounter.

I would not wish this diet on my worst enemy! It is very difficult to maintain. I am on it only because I have to be!

Do not look where you fell, but where you slipped.
African proverb


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OMSYMBOL's Photo OMSYMBOL Posts: 433
8/4/12 3:21 P

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If it was from the gluten...you'll probably start feeling better in a few days but..from everything I've read it says it can take 6-8 weeks for the gluten to completely leave your system.

I have to really thank you for starting this thread. I went ahead and ate gluten foods last night and had zero issues (it's been 20 hours now). I'm so happy! I don't think I'll jump back in with both feet...but it's nice to know that I have the option of eating gluten again.

It's never too late to become what you might have been. - George Eliot

Pain is inevitable. Suffering is optional.


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8/4/12 3:10 P

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Thank you guys for your input! I still feel like I swallowed a medicine ball so I don't think it was overeating anymore, either. Now I just have to try to wait this pain/discomfort out---my next question is how long until I feel better??!!

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ALLISON145's Photo ALLISON145 Posts: 639
8/3/12 10:54 P

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I've been experimenting with this lately too. I seem to have a certain level of tolerance as long as I take a probiotic capsule before I eat something. Mind you, the portions must be small and I still get symptoms like gas and bloating, but they are less intense and I don't get the pain and cramping. Life is a series of compromises I suppose.

-Allison

Habit is habit and not to be flung out of the window by any man, but coaxed downstairs a step at a time. - Mark Twain

It's not whether you get knocked down; it's whether you get up. - Vince Lombardi


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DJ4HEALTH's Photo DJ4HEALTH Posts: 43,475
8/3/12 10:48 P

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Like they said that it depends on the persons body. You just have to try different things and see how it goes for you. But you should know that if you do have a problem with wheat then it will mess up your stomach and cause you not to absorb the nutrients that your body needs

Dorothy

If you tell God no because He won't explain the reason He wants you to do something, you are actually hindering His blessing. But when you say yes to Him, all of heaven opens to pour out His goodness and reward your obedience. What matters more than material blessings are the things He is teaching us in our spirit.
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IVORY1825's Photo IVORY1825 Posts: 7,707
8/3/12 6:39 P

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I'm gluten-intolerant (tested negative for all celiac markers) and I find that I can have some gluten without any symptoms, usually about the equivalency of a cookie, which means I can try a few bites of things my husband gets. On the other hand, I had a recent non-scientific test of my level of tolerance by eating about half of a bag of BBQ potato chips, and some nasty symptoms the next morning (I always have a 6-8 hour delay) that after going back and checking found wheat starch in the ingredients. So, my tolerance is small, but does exist.

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*AMBER512's Photo *AMBER512 SparkPoints: (205,537)
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8/3/12 2:45 P

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I'veen dealing with this for almost two years now and I still never know if I've been "glutened" until the next day. I've also noticed that cutting out some of the harder to digest foods has made my stomach even more of a wimp. It seems that the more I cut out, the more I can't handle anything. It's such a pain, but I hope you can figure out what works for you! All I have been able to do is trial and error.

†~Amber~†

MUSCLE DOES NOT WEIGH MORE THAN FAT 5 lbs = 5 lbs

5 lbs of muscle simply takes up less space than 5 lbs of fat!

~~~~~~~~~~~~~~

If nothing tasted as good as being thin felt, no one would ever get fat!

FOOD TASTES GOOD
Let us eat it in moderation.


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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
8/3/12 2:23 P

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Hello Bluemorning,

I applaud your wise slow exploration. I, too, started with gluten then to dairy, then on to all the many other ill gotten things. Hidden inflammation sometimes unfelt until illness or permanent damage is seen by you and the doctor can be tolerated for a time. My own case has needed permanent change and acceptance of this edict. This resting has helped my lab numbers get better in white blood cell count and liver enzyme improvements that were flagged and riddled with warnings.

By removing the negative signs from gluten in my diet; I was able to see clearly the signs of poor performance from my newest other no-no’s of allergy or intolerance issues. Gluten has not been my only bad reaction source. It was like wiping the bathroom mirror of fog after a shower. By continuing to ask questions long after the gluten has left the building I discovered hidden causes of pain and hidden inflammation.

My doctors are pleased with my progress of closed gut and less pain in my life.
My jumping off the gluten-free wagon did not speed up my long happy journey enough to bother doing it again. I have been gluten-free since I started questioning it in 2007. To overcome the emotional and social burdens of being different are maturity at a cusp. May you feel healing and growth at the same moment of change?


The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
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Clear all paths to love thru forgiveness.
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OMSYMBOL's Photo OMSYMBOL Posts: 433
8/3/12 1:16 P

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I've been interested in the answer to this for awhile. I hope someone here has information. :o) I've been gluten free for 8 weeks now. I've had a few things seemingly get better the first few weeks...but all of them have come back. But now, I'm afraid to eat gluten again. You've made me a little less afraid. lol

It's never too late to become what you might have been. - George Eliot

Pain is inevitable. Suffering is optional.


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BLUEMORNING's Photo BLUEMORNING SparkPoints: (5,300)
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8/3/12 12:09 P

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I just ended 6 weeks gluten free; last night I had a gluten full meal of spaghetti, garlic bread and tiramisu. I have heard that gluten intolerant people know sometimes even before they finish the meal, but I didn't feel anything but overfull. (I sure didn't need that extra piece of garlic bread!) I did wake up this morning feeling extremely uncomfortable, bloated and slow and sort of depressed. My question is can you be a little bit intolerant, or is it an all or nothing deal? This wasn't a strict scientific experiment by any means, I just did my best and I can certainly be intolerant to something else or have it be a different problem altogether. In talking to my doctor, she said unless I wanted to start endless expensive tests I should just try cutting certain things out of my diet and then eating them to see how I felt. I started with gluten. Next is dairy. I could just be old, too! lol

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