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CALAMITYJANE44's Photo CALAMITYJANE44 Posts: 267
7/11/12 8:53 A

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Thanks for your reply, @omsymbol, I'm glad you're feeling better. I love to bake, so I know that when the time comes to give it up I can do it. It may take me a while to get used to cooking without the gluten, but I've read that the substitutes do fine.

It's all in what you get used to. When I drop the gluten I will focus on more fresh veggies, whole grains like rice, fruits and legumes - stuff I love to eat anyway!

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CALAMITYJANE44's Photo CALAMITYJANE44 Posts: 267
7/11/12 8:49 A

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Thanks, Bluerose73, Glad to hear you're feeling better. I can typically last 3 days before I go nuts for the bread. It doesn't help that I make bread fresh for the family - lol

I know what to expect then when I give up the gluten. If getting energy means giving up gluten then it's worth it to me.

Thanks again!

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OMSYMBOL's Photo OMSYMBOL Posts: 433
7/11/12 7:03 A

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Hi Anita!

I'm hypo (I've never been properly tested for Hashi's but I've read that up to 90% of hypo cases are indeed Hashi's) and was having a lot of symptoms that you were. And I also read about the connection between thyroid and gluten. I was afraid of going gluten free because I LOVE to cook and bake! And I was scared that I'd always...for the rest of my life...feel disappointed in my food options.

But, one day (4 1/2 weeks ago) I had a day FULL of gluten. Every meal. My sister's family had rented a condo and we went down for the day. So every meal was a quick just find-what-you-can meal. By the end of that day, I felt more awful than I can remember in a long time. I was bloated and, even though I really hadn't eaten all that many calories, I felt stuffed and sluggish and just .... ugh.

I went gluten free the next morning and have been ever since. I can tell you that in just 4 1/2 weeks, the differences are quite nice! I have MUCH more energy! And my brain fog is beginning to clear. I also hardly ever have the bathroom "episodes" anymore. I made the decision without the bloodwork because I just wanted to feel better...and I do. So now I know that at the very least, I'm gluten intolerant.

The good news is, I've found a lot of web sites and products that have made this switch MUCH easier! The hardest part is eating out, but at least Red Brick Pizza has gluten free pizzas and wings...so as long as I have pizza, I'll live. :o) Also, Udi's makes a really good frozen crust! So I can just load it up with my favorite toppings and it tastes great.

The cravings for gluten DO go away!

Good luck to you!

It's never too late to become what you might have been. - George Eliot

Pain is inevitable. Suffering is optional.


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BLUEROSE73's Photo BLUEROSE73 SparkPoints: (121,997)
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7/10/12 10:54 P

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I had the blood test for celiac done. It came back negative. But I still have benefited so much from going gluten free. The dr explained that it`s looking like although I`m not celiac, I am gluten intollerant. I no longer have the severe pains.

I too used to crave bread like crazy. Now I don`t miss it. But the withdrawal was hard. It only lasted a week for me when I gave up all gluten. Then things settled down for me significantly

Katrina
Saskatchewan Time Zone

You can not change yesterday - it's done.
You can only dream of tomorrow.
The only day you can change is today.
What are you going to do today to reach your goals of tomorrow?

It's supposed to be hard. If it wasn't hard, everyone would do it. The hard is what makes it GREAT

Go little Turtle Go!


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CALAMITYJANE44's Photo CALAMITYJANE44 Posts: 267
7/10/12 10:52 P

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Thanks for the tip! I'm glad to see that people are still going GF even with negative tests. Doctors don't know everything (the honest ones will admit it, too!)

Things are changing all of the time. For example, during my lifetime, a TSH level that was considered "normal" is now considered "hypothyroid" because lab values changed over time.

It's smart to never accept that your labs came back "normal". I always insist on copies and then research it myself!

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DJ4HEALTH's Photo DJ4HEALTH Posts: 43,935
7/10/12 10:39 P

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I agree with Valerie about going gluten free but after the blood test. By the way sometimes the test is negative and you still be celiac and the one test that will prove it is the one that they go in the stomach to the intestines and take a piece of it. Even if the test comes back neg try the Gluten free to see how you feel.

Dorothy

If you tell God no because He won't explain the reason He wants you to do something, you are actually hindering His blessing. But when you say yes to Him, all of heaven opens to pour out His goodness and reward your obedience. What matters more than material blessings are the things He is teaching us in our spirit.
Charles Stanley


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TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
7/10/12 10:06 P

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You're welcome! And I wish you luck in figuring out what's making you feel poorly.

I totally understand your comments about being addicted to bread. When you can eat it, it's such an easy thing to reach for... and when you suddenly can't have it any more, it can be rough. I will tell you that after a while, your cravings will diminish. And there are some GF bread options out there... but honestly, none that you'd want to make a sandwich with. But there are some good hamburger buns out there, I personally prefer Rudi's Multigrain. So there is hope for us! :)

There are also a host of websites and blogs dedicated to GF cooking and baking. I've even seen recipes to recreate some of my favorite Girl Scout Cookies that I can't eat any more. That makes me a happy camper LOL.

-Valerie


CALAMITYJANE44's Photo CALAMITYJANE44 Posts: 267
7/10/12 9:52 P

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Thanks Valerie - will do!

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TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
7/10/12 9:10 P

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Based on the description of your symptoms (tired, extremely hungry, light headed, brain fog, etc.), I'd say you're a good candidate for being Celiac, or at least Gluten Intolerant. Wait until you've gotten the test for Celiac, but even if it comes back negative, try going GF for 3-4 weeks and see how you feel. If you're Celiac or GI, you should start feeling better even within the first week.

Good luck to you!!!

-Valerie


CALAMITYJANE44's Photo CALAMITYJANE44 Posts: 267
7/10/12 8:58 P

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Hi everyone, my name is Anita. I wanted to get everyone's opinion and/or their story about being diagnosed with celiac. I told someone recently that if being celiac were a crime, I could be put away by circumstantial evidence!

To start with, I have had Hashimoto's thyroiditis since I was a teenager when a doctor discovered a goiter on my neck. As I'm sure you guys are aware a definite connection between the two diseases has been noted.

In 1997 I had my gallbladder removed due to pain, however they couldn't see any stones (they told me they were probably too small to be seen).

My two sons have autism, one more severely than the other and one of my daughters has adhd.

My younger sister has bad reactionary food allergies (sores in her mouth) and was recently diagnosed with hashimoto's too.

My mother had allergies and my dad had asthma.

I know not all of these things have been proven (with the exception of thyroid), but as I've often heard, "if there's smoke, there's fire," so I really want to investigate this

My last thyroid bloodwork (ordered by my primary care physician) came back normal even though I'm still feeling symptomatic - tired, extremely hungry, light headed, brain fog, etc.

So, when I get back from vacation next week I plan to schedule an appointment with an endocrinologist and see if he will test me for celiac along with a complete thyroid panel.

What do you guys think - am I barking up the wrong tree? I don't want to try GF until getting bloodwork, but I CRAVE bread (always have) like nothing else. I used to eat an entire loaf myself when I was a teenager.
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Thanks guys!
Anita

Edited by: CALAMITYJANE44 at: 7/10/2012 (20:59)
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