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LILY_SPARK's Photo LILY_SPARK SparkPoints: (95,601)
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1/27/12 8:49 A

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Thanks!

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DJ4HEALTH's Photo DJ4HEALTH Posts: 41,779
1/26/12 11:50 P

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Hi and welcome to the team

Dorothy

If you tell God no because He won't explain the reason He wants you to do something, you are actually hindering His blessing. But when you say yes to Him, all of heaven opens to pour out His goodness and reward your obedience. What matters more than material blessings are the things He is teaching us in our spirit.
Charles Stanley


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TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
1/26/12 3:49 P

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No, I haven't heard of that book. Thanks for the link, I think I'll watch it. After I get the crock pot dinner started.... :)



JENCORINNE's Photo JENCORINNE Posts: 1,933
1/26/12 3:41 P

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It started before the 60's. Have you read "Wheat Belly"? I haven't, I'm actually a little scared to do so, but saw a 2 part video on a lecture the author did. Here's a link to part 1 - youtu.be/WSDkJEF9aBY
I don't think I agree with all of it but there are some eye openers in it.

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TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
1/26/12 3:28 P

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Yeah, this whole gluten sensitivity thing sucks. You find new foods that you end up LOVING, and then they turn on you later. :(

IMHO, the issues we're having with gluten stem from the time in the 60's and 70's when our wheat was genetically engineered to increase the amount of protein it has. Gluten is a protein. Hmmmm.... Coincidence? I think not.

I'm glad the regular oats aren't causing you issues. I hope it stays that way, but at least you have an option if you need to switch. (I'm having a bowl of PB&J Oatmeal right now, yum!) I need to find more recipes for quinoa, I have one from off the box I like for a quinoa pilaf, but I need more options. Just need to get on Google, I suppose LOL.



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1/26/12 2:55 P

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Cool! A coworker told me she was gifted a GF cookbook years ago and never looked at it. She's going to give it to me :)

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LILY_SPARK's Photo LILY_SPARK SparkPoints: (95,601)
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1/26/12 2:54 P

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Thanks! I use a lot of Bob's Red Mill because I simply like baking "different stuff." I "turned in" my gluten-flours to a coworker today, though!

Even during this month+ (not this week, when I went back to wheat) of gluten-free, I ate oats DAILY and never had a problem. I hear you, though, contamination can be dangerous. If I ever start reacting to my oats, I'll consider that extra step!

I've eaten quinoa since the mid90s--when I lived in France, I ate lots of very non-Midwestern things! That's where I started eating couscous-then, it didn't bother me. :(

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JENCORINNE's Photo JENCORINNE Posts: 1,933
1/26/12 2:22 P

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Private-eye,
The biopsy for Celiac is via endoscope (via throat checking small intestine) not colonscopy(Via other end and only checks the large intestine/colon). Are you saying the wrong scope or was the wrong testing done?

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TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
1/26/12 2:18 P

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I like my oatmeal too! And these oats can be used to make cookies, homemade granola (I have a recipe if you are interested), granola bars, and so on and so on. :)



PRIVATEEYE1's Photo PRIVATEEYE1 Posts: 87
1/26/12 1:56 P

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Thanks, I will look for it because I really like my oatmeal!!

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1/26/12 1:24 P

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Lily:
I'm glad you found the book helpful and i'm glad you are feeling better. Here is the address of the website I mentioned earlier: www.celiac.com You will find loads of good information there. They also have a "store" where you can order gluten-free products. Another resource I found helpful when I first committed to this diet: "The First Years: Celiac Disease & Living Gluten Free". I also subscribe to a magazine called "Living Without". It is full of great information and recipes.
Two cookbooks I especially like are: "Gluten-Free Quick and Easy" by Carol Fenster, Ph.D and "The Gluten-Free Gourmet Cooks Comfort Food" by Bette Hagman. They can be purchased through Amazon or the Celiac website store.
Blessings, Texasredfern

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TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
1/26/12 1:21 P

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Marge, I mentioned this to Lily but it might help you too.

Most oats are not gluten free as they are grown with wheat and/or processed with wheat. If you were to try certified GF oats, you might be able to tolerate them. Bob's Red Mill makes three varieties of GF oats: Rolled, Steel Cut, and Quick Cooking. Most health food stores carry it, plus you can order it directly from BRM:

http://www.bobsredmill.com/Gluten-Free

Good luck! :)

Edited to add: I don't work for Bob's Red Mill, I'm just a very happy customer. :)


Edited by: TAEKWONDOCHICK at: 1/26/2012 (13:25)
TAEKWONDOCHICK's Photo TAEKWONDOCHICK Posts: 406
1/26/12 1:16 P

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Lily, if you truly are gluten sensitive, then I recommend you switch to certified gluten free oats. Oats themselves don't have gluten, but they are often grown with wheat and/or processed with wheat, and so are cross contaminated.

Bob's Red Mill makes certified GF oats, in rolled, steel cut, and quick cook varieties. You could even make your own instant oatmeal with the quick cook kind, I believe. In fact, BRM has a huge line of GF options, I recommend you look at them.

http://www.bobsredmill.com/Gluten-Free

Quinoa is gluten free, but definitely take it carefully if you think you might have some sort of sensitivity towards it. I do a lot of brown rice and basmati rice, and there are ways to spruce it up without using gluten. Watch out for things like soy sauce, it has wheat in it, but there is GF soy sauce, even in low sodium varieties, so that's good news.


PRIVATEEYE1's Photo PRIVATEEYE1 Posts: 87
1/26/12 11:06 A

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The elimination diet did straighten me out, however, introducing foods one at a time back in should be done very very very slowly. I did it, as instructed by my Naturopath, introducing, say dairy, for one day then introducing something else. I didn't know what was making me have a rebout with Colitis and cramping. I found a bakery called "no more bellyaching" that has good GF bread, wraps, tarts, coffee cake, pies, raisin bread. Look around in your area, I even found a Pizza Place that will do GF crusts.

It's upsetting at first but, hopefully, you'll find somewhere that has good GF products. I bought Glutino bread at the grocerie store and gagged on it. $5.99 for a small loaf of bread and it was hideous, like sawdust. I took it back. LOL

BTW my blood test cost me $125 for Celiac Disease and it came back negative. My colonoscopy didn't show Celiac but the biopsies showed really bad inflammation of the bowel. I've just decided, on my own to try GF for a couple of months and see if that straightens me out. Seems to be working.

TRIGIRL7570's Photo TRIGIRL7570 Posts: 467
1/26/12 9:57 A

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I'm cancelling my appointment. I'm not interested in wasting my time with unnecessary tests and spending beaucoup $$ in the process. If it's not going to tell me something worthwhile, then why do it?

It's hard to say what is going on with me. I've not successfully been able to eliminate wheat yet to see if it plays any role. It's tough. It's in absolutely EVERYTHING I'm used to eating and I've just got to psyche myeslf up for it.

My severe allergic reactions are rare, and almost always are proceded by exercise immediately following ingestion of some complex food...so it's not easy to identify exactly which component is the problem. Otherwise, I just feel unusually gassy most of the time, or foggy. I'm athletic, so I've always done what you read to do, which is to consume high levels of "complex carbs", i.e., whole grains, etc. I've just assumed this was normal to have these reactions.

arrrgggg.

"Focus on the journey, not the destination. Joy is found not in finishing something, but in doing it"
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GFNOMAD's Photo GFNOMAD Posts: 1,512
1/26/12 9:42 A

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I concur with Cindy's comments. The blood test can only confirm Celiac Disease, not eliminate it. It is only 60 -70 % accurate. If you are Gluten Intolerant, it will not come back positive but you still have many of the symptoms of CD. Because of the effects to the digestive system, most if not all, have various food sensitivities. We are all different. Like Cindy says, an elimination diet will identify your particular sensitivies. If you eliminate them, your overall ability to deal with everything will improve. Barb

Edited by: GFNOMAD at: 1/26/2012 (09:43)
Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
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CINDYTW Posts: 5,783
1/25/12 11:07 P

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ABENNETT you can still certainly be sensitive, and intolerant even if the tests are negative. The best test is GF diet if you are unsure. If you truly need a diagnsis for some reson then go through with it.

If you are sensitive to more than one grain, try an elimination diet. Google it, and basically start with none, add back foods one by one and see how you do. Many GF folks have multiple sensitivities. Corn is a common allergen as well.

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TRIGIRL7570's Photo TRIGIRL7570 Posts: 467
1/25/12 6:31 P

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I thought that if you were tested for gluten or wheat intolerance...if it came out negative, then you were definitely not sensitive. However, I thought that if it came out positive, it could also be negative as well. In other words, you may only be ruling out the things that you asbolutely are NOT sensitive to.
I have an allergy test scheduled for this Friday that I'll be paying a $50 copay for. If these are BS tests, I'd just as quickly cancel it. What do you think?

"Focus on the journey, not the destination. Joy is found not in finishing something, but in doing it"
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LILY_SPARK's Photo LILY_SPARK SparkPoints: (95,601)
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1/25/12 3:07 P

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I'm so sorry for your issues!

I find it interesting that I come upon these things sideways: trying to lessen lupus episodes led me to less gut issues. So weird!

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PRIVATEEYE1's Photo PRIVATEEYE1 Posts: 87
1/25/12 3:04 P

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Hi I'm Marge and, oh boy, can I relate. I think I'm just Gluten sensitive. My gastroenterologist did a colonoscopy, after 9 months of diarhhea 4 - 7 times/day, and found, only through biopsies, colitis. I have stopped ezetrol (cholesterol uptake inhibitor) and pantaprazole (GERD medicine). I have found a GF bakery and their bread is edible, I'm not a baker!!! Oatmeal bothers me (I get crampy), Corn is really bad news too.

You are so right when you say it can take days to get back to normal AND it can take a couple of days after I eat something to get watery stool. Especially drugs. I also, had spastic bowel but a short term prescription took care of it. One day at a time, learning as I go. Thanks for the good feedback ladies.

LILY_SPARK's Photo LILY_SPARK SparkPoints: (95,601)
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1/25/12 2:27 P

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Thank you so much!

I am heavy on soy (since I was a baby, since I was diagnosed lactose sensitive 40 YEARS ago!) and use soy milk a lot. I am starting to add almond and coconut milk but use a lot of phytoestogens for my age :)

I'm sorry soy affects you poorly--guess I'm lucky there!

It was amazing how quickly I had an easier time (maybe about a week before I realized how much better I was doing?) by not eating wheat products. I've always been able to get away with some dairy, so maybe that's why I "get away" with oats. I'm just happy it's not "everything."

Thanks for your recommendation!

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TEXASREDFERN SparkPoints: (1,390)
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1/25/12 2:15 P

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Hi Lily,
The symptoms you describe could certain be gluten sensitivity. I suffered for many many years with similar issues. In fact I really forgot what is was like not to have frequent intestinal pain, bloating, and constipation. Long ago I found I was lactose intolerant and have been off GLUTEN for 5 years. I have never felt better. The biopsy and blood tests for gluten sensitivity are not always accurate and (I think) not worth doing for a diagnosis. I did have the blood test and it was negative and I asked my doctor for the biopsy. He suggested I go on the diet and see how I felt, which I did. I will never go back to eating gluten!! One thing I would like to mention is that I discovered that I am also not able to tolerate ANY SOY!! That gives me severe gas which lingers in the intestines with much pain. I also cannot tolerate much yeast so I try to eat mostly quick breads that I make with gluten-free flours and baking powder. If I am careful with my diet I feel great!
That said, I will need to warn you that you will need to go off gluten COMPLETELY and that is not easy in today's world of food. But believe me, it is worth it to feel good again. There is a web site for celiac disease and a good book called "Celiac Disease, A Hidden Epidemic". Learning to bake and cook without gluten is a challenge but fun. You will need some good cookbooks written for gluten-sensitivity and you will learn about all the different flours. There are many gluten-free baking products on the market but they are pretty expensive. I prefer to bake my own muffins, breads, etc. I will be happy to share some recipes with you if you want. Blessings, Texasredfern

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LILY_SPARK's Photo LILY_SPARK SparkPoints: (95,601)
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1/25/12 2:09 P

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Oh, thanks for the feedback on corn!

I thought most GF people did well with it. Hrm. I take probiotics daily in my Shakeology (have used it for years--it's costs a bazillion dollars, so I don't recommend it to people but I love it).

I love my oats, too, so I hope never to have a problem with it :)

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K__IERRA123's Photo K__IERRA123 Posts: 1,398
1/25/12 1:47 P

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I can't eat popcorn as it gives me diarrhea.

It is hard to get back to normal after a reaction! ..and to make matters worse reactions can take a while to happen! (sometimes it hits me a week later.)

Oats are hit and miss with me. I am not sure why so I do tend to avoid them when possible.

Corn is a common problem as it is hard to digest.

I find probiotics to be very helpful in making things a bit more regular.

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LILY_SPARK's Photo LILY_SPARK SparkPoints: (95,601)
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1/25/12 1:38 P

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Oats don't seem to do anything bad.

Quinoa hasn't affected me badly but I also haven't tried a week (or several day long) stint on them. I'll do that soon but at this point, I think I'll have to calm down my guts after 3 days of whole wheat couscous :(

In the past, I'd eaten rice and brown rice with no problem BUT I haven't done that in a while. I'll try that, too.

Corn affects me badly, too. I seem to sort of not digest it although it's not painful, THAT actually seems to cause some diarrhea. I mentioned I used to eat a lot of airpopped corn and that was mostly cos I knew I'd have a good BM! -- Not diarrhea, really, but things moved along better and I'd go a few times that following day rather than once.

(Sorry if that's gross but therein is the nature of gut issues!).

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K__IERRA123's Photo K__IERRA123 Posts: 1,398
1/25/12 1:22 P

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What happens if you eat gluten free grains?

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1/25/12 1:05 P

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Hiya everyone!

I have congenital lupus (my mother has it, was rendered type I diabetic almost 15 years ago -- yes RENDERED, not born with! and she became diagnosed with Crohn's and Ulcerative Colitis in early 2011 as well).

These things are genetic, so... She's lactose intolerant to sensitive (when her gut's happier, she can do milk).

I had found a few years ago that I'm lactose sensitive...About 6 weeks ago, I started removing some Lupus-triggers:
*lowering sodium, which was never a big thing with me EXCEPT when I snacked on airpopped popcorn, which I did a LOT!)
*NO alfalfa sprouts (boo!)
*avoiding processed foods even more
*strongly limiting wheat

I had this feeling that with my dairy issues, I may want to try wheat (I still had pizza during this time but not out-right breads, crackers, etc -- I *do* eat OATS every morning and they've never seemed to bother me).

Here's the kicker: my gut went flat. I have a terrible spastic colon problem but almost never diarrhea. My issue is nothing (including gas) comes OUT.

Anyway: I became incredibly regular and had 90% less pain. This week, I cooked up some whole wheat couscous and planned on eating 1/4 C each day, topped with cooked veg etc.

My gut is distended and quite uncomfortable, although I'm not constipated, the gas is staying in there and painful.

I don't want to go in for a biopsy as my gastro-enterologist says to AVOID anything they can do to me! That's how bad my spasms are. Anyway, I've come here for knowledge and support on my journey for learning and trying to avoid glutens.

My mother was NOT found to have Celiac! She's got about everything else but not that. I don't suppose that guarantees my freedom from it but given my SENSITIVIES, I'm believing from this obvious difference that I'm gluten sensitive, too.

Thanks for listening! I have a lot of learning to do!
Lily

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