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CARRIEMONTANEZ's Photo CARRIEMONTANEZ Posts: 13
10/1/11 11:14 A

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Both the doctor and the dietician I spoke to said it is possible to have no symptoms, even while the gluten is negatively affecting your digestive system. I told them I really didn't think the tests were necessary, and we all agreed that I should just go all the way off because it seemed to be making a big difference.

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SARACOIL's Photo SARACOIL Posts: 40
9/27/11 7:06 P

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I'm diagnosed with auto-immune IC, a condition of the bladder. This can sometimes be helped through wheat or gluten free diets. I had started feeling better on the diet while my doctor was still working to diagnose me with Celiac because he's sure that I have it. Of course because I had already gone gluten free for a month for the other condition all blood tests would be negative unless I went back on gluten. I made a personal decision that I didn't need to go back on gluten and feel sick just so that I could get an official diagnosis of Celiac. I feel better now and that's the only real test results that matter to me.

As for cutting back drastically I don't see how that would make a difference to someone who is really Celiac or gluten intolerant. It's just like any other allergic reaction - if you ingest it you will have a reaction. That would be like someone with a peanut allergy saying that they only eat one peanut a day now instead of a full bag. Health benefits by creating a more balanced diet though would help just about anyone feel better.

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DJ4HEALTH's Photo DJ4HEALTH Posts: 44,130
9/22/11 10:45 P

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Dorothy

If you tell God no because He won't explain the reason He wants you to do something, you are actually hindering His blessing. But when you say yes to Him, all of heaven opens to pour out His goodness and reward your obedience. What matters more than material blessings are the things He is teaching us in our spirit.
Charles Stanley


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CINDYTW Posts: 5,783
9/22/11 10:27 P

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I would say if you want to get the blood test, you could gluten load the day before like I did. I ate cereal, toast, pasta, bread, and crackers the entire day! lol It worked, it showed up positive! Then again, if you already know it bothers you, go totally gluten free and don't look back! Consider trying dairy free as well it too is inflammatory and intolerance is common among the gluten sensitive.

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RHALES199's Photo RHALES199 SparkPoints: (27,195)
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9/22/11 9:13 P

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welcome!!
I, to am self diagnosed. I was gluten- light for about 1/12 years, then finally realized I needed to *try to* be gluten free (aka, I've had slip ups, like we all do) just over 1 year ago.
I also have hypothyroidism and a host of other issues. And I'm only 5 years older than you.
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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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9/22/11 5:39 P

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I have been gf for two (2) years and feel great. I did have the endoscopy and blood work but not realizing I was gf for a while and of course it was negative. I was not going back to eating gluten to get the right diagnosis, as I get sick even if I ingest a small amount of gluten. It is a wonderful to be feeling good

Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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CARRIEMONTANEZ's Photo CARRIEMONTANEZ Posts: 13
9/22/11 2:23 P

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Ensure and Boost are both GF, according to the labels, though maybe only certain varieties. Not sure about Glucerna, but I do know Slim-fast is not. Maybe this is new? I really didn't expect such a dramatic improvement, honestly, but its been great, even though of course I'm still getting some gluten. My instinct is to avoid it entirely but I know I need to keep getting some so the tests will be correct lol its so hard though! Fortunately, being a newbie I'm not very good at label reading so most of my gluten is sneaking in all on its own :P Probably the most effective thing is that my vitamins and medications aren't getting "flushed" out because of the gluten, and my other conditions are improving (hypothyroidism/bipolar depression). That alone is enough to have me crying tears of joy!

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SAGEOWL's Photo SAGEOWL Posts: 9
9/22/11 1:14 P

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Hi! Glad you are feeling so much better. I don't know how drastically cutting back and going totally gluten free compare, but the only way it worked for me was to be TOTALLY gluten free. I also took Ensure - but stopped after diagnosis by the doc, and reading every label, Ensure had much wheat and barley, which actually explained why I couldn't gain an ounce for so long. If you are eating some gluten a blood test might show a sensitivity I suppose, but if you do go completely gluten free, blood test or biopsy will not give you a diagnosis, as you have removed the problem and healed. I have Celiac disease, DH as well, with genetic markers from both sides - DQ2 and DQ8. I have worked very hard to be gluten free for over 3 years now. I make most foods from scratch and have decided going out to eat is just not a healthy option for me. It took over 25 years for me to find out.
Goodck, hope this truly is your answer.


With God, NOTHING is impossible.


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CARRIEMONTANEZ's Photo CARRIEMONTANEZ Posts: 13
9/22/11 9:54 A

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I kinda do this a lot lol but I've pretty much decided this is the answer to the HORROR I've felt for the last 6-8 years. I've been totally baffled, as I am only 30 and have felt extremely fatigued, with joint pain getting progressively worse year after year... it never occurred to me that those things would be related to my digestive problems. And I always assumed the digestive problems were due to my high fat intake. Ive also had the habit of binging for years, and am better able to understand the cause of THAT now as well. For the last couple of weeks I have drastically cut back on my gluten and been taking vitamins and drinking ensures and I feel FANTASTIC. Now that my body is starting to absorb the nutrients it needs, I don't feel the need to eat sugary snacks all day like I used to! I used to live on bread products and meat and fatty foods... having to go gluten free, im eating more fruits and vegetables... in a weird way this is the best thing to ever happen to my body lol! Will probably at least get the blood test, but not sure about the biopsy at this point. I know whats going on, kind of obvious at this point, and I'm already in the process of fixing it. So.... that's my gluten story :) Anything else you wanna know, I'm obviously an open book lol!

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