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JUNEBUGABEE's Photo JUNEBUGABEE Posts: 58
4/3/11 2:55 P

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Thanks- I think I will get tested ASAP, actually. I've been googling the heck out of this, and I have lots of questions for a doctor, now!

I've been taking B12 and D for a year-- since I went gluten free, but I haven't been to a doctor to see if they are or are not working. I do feel loads better in terms of energy and mood disturbances, which were awful before going gluten-free. But I recently started having lots of gastrointestinal symptoms again. Within the last couple of months.

And I'm not lactose intolerant, thankfully. I can handle milk, cheese, yogurt, etc. without negative reactions.

What kind of reactions do you have to the injections?

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ONEARTSYCHICK's Photo ONEARTSYCHICK Posts: 48
3/30/11 11:06 A

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JUNEBUGABEE - it sure couldn't hurt to have the test. Have you been tested for lactose intolerance? Many people with celiac have lactose intolerance too.

And I have low B12, and D, which is also common. I tried taking B12 sublingually, but it still didn't absorb properly, so I have to have injections. It can give some harsh symptoms too.

Good luck,
I hope you find the source of your troubles.
wendy

Drop by my blogs to say hi! www.picnicwithants.wordpress.com (living with chronic illnesses)
www.wendycooks.wordpress.com (healthy cooking for people with gluten and fructose intolerance)
wendy


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ONEARTSYCHICK's Photo ONEARTSYCHICK Posts: 48
3/30/11 11:03 A

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Hi MARGIE100%PURE,
I have not been tested for adrenal fatigue, but I have been tested for diabetes. I don't have diabetes but I do have hypoglycemia, I have for about 20 years now. So I've been avoiding most sweets for years.

The first think my doctor said when I was diagnosed with fructose intolerance was "Do you eat a lot of fruit." Umm, No. Fruit has too much sugar. And citrus makes my mouth break out in little blisters (I've always thought it was the acid, as raw tomatoes do the same thing.) When I was a just a baby, I was fed strained peaches and had such a bad reaction I was rushed to the hospital. So no, I haven't ever eaten much fruit. A little, but not much. She didn't say anything, just to go on the fructose free diet and see her again in a month.
I was appalled that their office gave me a diet that was supposed to be fructose free, and it had at least 2 things on it that are very high in fructose. Ahhh!

I will ask my doctor about adrenal fatigue.

Thank you.

Drop by my blogs to say hi! www.picnicwithants.wordpress.com (living with chronic illnesses)
www.wendycooks.wordpress.com (healthy cooking for people with gluten and fructose intolerance)
wendy


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JUNEBUGABEE's Photo JUNEBUGABEE Posts: 58
3/29/11 6:33 P

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This is all really fascinating to me.. I'm considering getting tested for this, definitely. I have been off the gluten for a full year, and still have some troubling symptoms (originally they went away, but now are back) and I definitely do not eat gluten in any way, shape, or form.

I also eat a pretty clean diet, cook most of my food (about 99%), and don't get a lot of added sugar in my diet. I find that I definitely react to corn- so sad- and brown rice. Trying to figure out the missing link, here.

Thanks to all who posted your stories and research! I've been chasing my tail in circles about why I still am having gluten-like reactions to my diet.

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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
3/29/11 4:01 P

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OH YES- ACQUIRED INTOLERANCE. Fructose is a body needing calorie in extreme moderation and digesting it affects other organs. Have you been tested for diabetes or adrenal fatigue? The stress before finding then diagnosing a gluten issue abounds with complications. Some are not politically correct and the average doctor will avoid the topic of fructose intolerance. I have discovered many factual details of this misnomer of healing advice gone missing of sweet care. Insulin resistance is a way of life in modern processed foods. The topic of ‘unexplained weight gain’ is their miss leading way to avoid the flaws of modern health care and the food industry in this rampant age of high sweet issues. The practicing of sweet over savory choices in everything, even prescriptions that sit on the tongue of mere seconds is an almost set in stone commercial mantra. A sweet additive is found in table salt! Our health insurance industry in colluded hand in hand training of MD doctors deliberately avoids adrenal care until it is too late for a decent recovery. The average patient is 97% scared in the tiny adrenal system before visual signs are seen by the untrained eye. The scars run deep and the health care system is insufficient in delivering early warning signs in daily habits. The tests are there but the doctors do not suggest the search. Usually the whole food sources of this fructose intolerance need to be understood, limited and sometimes totally curtailed for a while, and avoided permanently in some. Sometimes when the body goes back into balance these sweets and the whole foods they are made from can return to a diet.

I am intolerance of all sweets due to adrenal fatigue (three years for diagnosed). I am seriously intolerant to the point of allergy to sulfites. I can not find a gov or corp source in the whole of the web to define the sulfite values in whole foods. My best source is my pain threshold. I deliberately cause myself pain to journal about it and find all the foods that cause my pain and inflammation and a slowing of the hormone functioning. Between my endocrinologist and my natural doctors these journals assist them to discover where how and why something cause the pain. Fructose intolerance is real. The remedy is good information resources. It requires the temerity to go beyond the MD advice. And hope for a balancing act from your body as the doctors cannot fix this, only you can. Our 24 hour lives and the quick fix methods fail to curb this sweet practice. Diet food industry is full of no-calorie sweets and the calorie rich sweets are all sent down the same digestive tract for body use or misuse. A moment on the lips and forever on the hips!

Sulfites are in fructose and sucrose foods of a sugary sweet nature, cane, beet, grape, corn, molasses, syrups, and whole fruits as in black, blue and red fruits. Extracts like stevia white powders, and yeast additives promote this issue of unexplained weight gain and the resulting insulin resistance and fructose intolerance. The liver must do something with the crap going down. Toxins are stored in fat cells when they fail to wash out in liver cycling.


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ONEARTSYCHICK's Photo ONEARTSYCHICK Posts: 48
3/29/11 12:08 P

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JUNEBUGABEE - Yes there is a test for this condition. It's a hydrogen breath test. I had 3 different ones. One to test to see if I was simply not digesting my food properly. One to test for lactose intolerance, and one to test for fructose intolerance.

Here's a link that should help explain it better.
http://en.wikipedia.org/wiki/Hydrogen_br
eath_test

I tested negative to everything but Fructose Intolerance.

I should expand a little.
There are two types of Fructose Intolerance.
One is Hereditary Fructose Intolerance - this you are born with and each parent must be a carrier. This is a very rare and serious condition. People rarely get to adult hood without being diagnosed, this can be a deadly disease as it makes your liver shut down. I have seen where some people have been diagnosed later in life, but they stayed away from many foods all of their life.

The other is Dietary Fructose Intolerance (or Fructose Malabsorption) It is often called DFI in the US, and Fructose Mal. in different countries. This was discovered in Australia, and often the information from there is thought of to be the authority. However, My nutritionist has looked at information from both sources, and has found contradictory information. The main thing everyone says is that different people can tolerate different amounts of fructose and fructans.

This comes on later in life. Dietary Fructose Intolerance is a digestive disorder in which absorption of fructose is impaired by deficient enzyme.

I hope this helps.


Edited by: ONEARTSYCHICK at: 3/29/2011 (12:24)
Drop by my blogs to say hi! www.picnicwithants.wordpress.com (living with chronic illnesses)
www.wendycooks.wordpress.com (healthy cooking for people with gluten and fructose intolerance)
wendy


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JUNEBUGABEE's Photo JUNEBUGABEE Posts: 58
3/29/11 10:29 A

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Is there a test to determine whether someone has fructose intolerance, as well? I am suspicious that I might also have this issue! I never heard of this before... thanks for posting the topic.

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RHALES199's Photo RHALES199 SparkPoints: (27,189)
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3/29/11 12:49 A

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that's cool (IMO) that you're self diagnosed, IVORY1825-- i am,as well... all though my reason is because I'm tired of having to convince new drs of what I know is wrong with me (I'm low income, no health insurance, so can only afford to go to a low- income clinic which is made up of gradute medical students duing their 3 years of residency before they officially become drs.)

I used to (be able to) eat apples by the handful, I swear...

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IVORY1825's Photo IVORY1825 Posts: 7,702
3/28/11 10:40 P

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I self diagnosed with a low level fructose intolerance because my digestive system was unhappy with inulin supplement and with eating more than one apple a day last fall. I'm fine as long as I don't overdo high fructose fruits like apples but citrus and berries don't bother me and I avoid things with added fiber. I've never bothered mentioning it to my doc since I solved it.

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RHALES199's Photo RHALES199 SparkPoints: (27,189)
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3/28/11 10:23 P

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Fructose is found in a LOT of different foods, especially fruits and anything made from those fruits, and also some vegetables (onion is the worst), garlic, and brown rice (but not white rice), artificial sweeteners, molasses, brown sugar. Some beans & nuts can also be bothersome for some people w/ fructose intolerance/ malabsorbption.
Different people will have different reactons and levels of reactions to different things.

(anyone who knows/ can remember things better than me, feel free to correct me if I said something incorrect here!)

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DJ4HEALTH's Photo DJ4HEALTH Posts: 42,388
3/28/11 10:10 P

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I can't have any corn products and that is made from corn, It may be more allergy than intolerance. Tongue swelled up.

Dorothy

If you tell God no because He won't explain the reason He wants you to do something, you are actually hindering His blessing. But when you say yes to Him, all of heaven opens to pour out His goodness and reward your obedience. What matters more than material blessings are the things He is teaching us in our spirit.
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NEVERGIVEUP68's Photo NEVERGIVEUP68 SparkPoints: (20,120)
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3/28/11 9:12 P

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I, too, am hoping to hear from anyone else who is also dealing with fructose intolerance along with gluten intolerance :) When i start gluten free diet i start with no dairy, no soy, no sugar, no meat, no eggs and no artificial sugar any kind.


RHALES199's Photo RHALES199 SparkPoints: (27,189)
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3/28/11 6:57 P

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hey girl! I"m right here with ya :) (but I'm sure you already knew that :)).

I, too, am hoping to hear from anyone else who is also dealing with fructose intolerance along with gluten intolerance :)

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ONEARTSYCHICK's Photo ONEARTSYCHICK Posts: 48
3/28/11 6:04 P

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Any one else have dietary fructose intolerance?

I was just diagnosed March 15th. I read that many people who have Fructose Intolerance also have Celiac disease.

I have a wheat allergy, possibly celiac, but not willing to start eating gluten again to get tested.

I've seen lots of people with celiac also have lactose intolerance, but not so much fructose intolerance.

thanks for the input.

Drop by my blogs to say hi! www.picnicwithants.wordpress.com (living with chronic illnesses)
www.wendycooks.wordpress.com (healthy cooking for people with gluten and fructose intolerance)
wendy


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