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KREISAD's Photo KREISAD Posts: 77
1/3/11 9:52 A

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Terribly migraines. I go from waves of naseau to extreme lower abdomen pain. My belly is extremely bloated (I look almost pregnant). I feel hungry but any time I eat I get that naseating feeling and the terrible sharp pains. Bowel movements sometimes diarrhea and then sometimes constipation. I ate plain grilled chicken and a lot of chicken broth for a while. No energy, extremely lethargic and tired. Lack of motivation (the same symptoms of depression).
I've never had issues with reflux so I'm not sure if what I'm feeling is that.

4/15/10 = 185, 8/31/10 = 170, 9/12/10 = 164, 10/3/10 = 161, 11/8/10 = 164, 12/5/10 = 162, 1/2/11 = 166


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CHAPER's Photo CHAPER SparkPoints: (37,406)
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1/2/11 9:28 P

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Have you looked to see what you are eating that could be contaminated? Maybe go back and start with simple foods again. Do you chew much gum. When we went to the celiac conference in Nov the Dr. was warning about chewing alot of sugarless gum. It contains sorbitol which is a baby laxitive. Are you having issues with reflux? That is so annoying but very common with celiac. Do you mind if I ask what your symptoms are?

Cheryl



"How do you go from where you are to where you want to be? I think you need an enthusiasm for life. You have to have a dream, a goal and you need to be willing to work for it." Jim Valvano


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KREISAD's Photo KREISAD Posts: 77
1/2/11 8:40 P

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I'm actually having the opposite issue. I've been gluten free for about a year now and I'm having terrible flare ups. There's the possibility that I'm getting gluten and not realizing it. I was told that my sensitivity to gluten will only get worse as I get older so I wonder if I'm just more sensitive OR it seems like ulcerative colitis. Everything I read sounds a lot like the issues I'm having. Anyone ever head other issues like this AFTER being gluten free for a while?

I'm seeing a new doctor this Friday (I moved away from the doctor that suggested I go gluten free and I lost my insurance right then too). So, after a year and a half of attempts at gluten free, I'm seeing a doctor and want to find out what else is wrong. I'm worried that it'll be like starting at square one with this doctor and that it'll be like taking two steps back. Any suggestions?

4/15/10 = 185, 8/31/10 = 170, 9/12/10 = 164, 10/3/10 = 161, 11/8/10 = 164, 12/5/10 = 162, 1/2/11 = 166


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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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12/31/10 5:08 P

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I am so glad that you are doing better and that you got tested for Celiac. You know your own body more than a dr does. Happy for you.
Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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STEPHIEKNITS's Photo STEPHIEKNITS SparkPoints: (33,554)
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12/31/10 1:16 P

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I was diagnosis with UC in 1996 and in 2005 after all medications failed, I investigated Celiac Disease. I had my blood test. My GP said I had Celiac but my gastro said no it was borderline. I had a colonscopy scheduled and I schedule myself for the endoscopy for biopsy. My dr thought it was stupid but did the test. Even before the biopsy came back, my gastro said that visually I had Celiac disease, and that my ulcerative colitis was a symptom of the Celiac disease. I have been on a gluten free diet for 5 years now and I am doing so much better I can't believe it. I hardly ever have a flair up of my UC.

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CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
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12/30/10 4:55 P

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Stepmonster I am so glad that you are feeling better. I have been gf for a little over a year and feel much better. I have a younger sister that has celiac and sue asked me to try it for just two months. Well it just took me just two weeks to realize that I cannot tolerate gluten.

Cheryl, so glad that you are feeling better. It is sad about your brother that has food issues and his wife thinks that Celiac is farce. If there is Celiac in the family there is a good chance that he does have it as it is definitely hereditary. I hope that he realizes that and gets taken care of right away.

Take care

Char

Edited by: CTRAVEL at: 12/30/2010 (16:56)
www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


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CHAPER's Photo CHAPER SparkPoints: (37,406)
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12/30/10 1:28 P

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I was told about 25 years ago that I had chronic ulcerative colitis and that it would never go away and I would have to learn to live with it. = ) No fun at all. Everytime I felt really bad it would take 3 days of rest to feel better. Now I have been gluten free and feel so much better!!! No 3 days of doing nothing either. My brother was told he doesn't have celiac but he does have Chrones Disease. He is doing great on the GF diet. Another brother is GF also. My sister also has Celiac Disease, another brother is in denial. He had his colon removed when he was 28. He is 52 now and still has lots of food issues. (his wife says celiac is a farce). BTW one brother is fine.

I hope the diet works for you. Just make sure you remove ALL the gluten from your diet. I am thinking you will feel much better.

Edited by: CHAPER at: 12/30/2010 (13:30)
Cheryl



"How do you go from where you are to where you want to be? I think you need an enthusiasm for life. You have to have a dream, a goal and you need to be willing to work for it." Jim Valvano


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STEPMOMSTER's Photo STEPMOMSTER Posts: 33
12/30/10 1:03 P

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Hello!
I am pretty new to the GF lifestyle. I recently went Gluten Free after a friend suggested that I try it. I have Ulcerative Colitis. I was diagnosed three years ago after suffering for two years without diagnosis. I initially found relief from medications however over the last eight months my medication has had to be increased twice. My doctor told me the next step was steroids... I continued to have issues when a friend suggested I try going gluten free. I was very wary at first as I knew some would say I was "jumping on the band wagon". I did not get tested first because I did not have time... I was in pain and having many flare ups. I knew it was only a matter of weeks before I would have to see my GI doctor again. I also knew I would try anything just to not have to go on steroids. So I cut all gluten. I was hard. I am a pasta and bread loving girl... Within two weeks however I was feeling MUCH better! I do not know if I have Celiacís or a gluten allergy or sensitivity. All I know is that going Gluten Free worked for me...
So my question is:
Is there anyone else who has UC or Chrons and has had success going Gluten Free??


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