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CINDYTW Posts: 5,783
12/15/10 11:17 P

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I do use the Glutenease for restaurants as insurance. It says it helps with casein too and it did for me for a while but then my body got wise and started reacting anyway. I have given up dairy again...but that is a good suggestion too it can help!

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12/15/10 9:02 P

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You are not alone. I think after a while you'll relax about eating some things you don't cook yourself. This is a good time to invest in pint or quart jars, freezer bags and good freezer containers. Don't freeze brown rice pasta; it does not thaw and taste good! I have been freezing portions of my soups and stews so I have something when my guys want a gluten fest.
Also, check out Enzymetica for their Glutenease. I think it helps to take away the worst symptoms if you get those little bits. There are other brands. Read labels and compare. Good luck. :)

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MICHTOTMAN's Photo MICHTOTMAN Posts: 819
12/15/10 6:16 A

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Thanks to all who responded! I am so relieved to see that reacting to even a trace of gluten is not unusual... I was starting to think maybe I was some basket case!

I'm continuing to work on being 100% GF, and I'm starting to realize that NOTHING is safe unless I personally cook it myself - and sometimes not even then. Frustrating, but good to know. I'll get it figured out here :-)

Thanks again!
Michelle

The greatest glory in living lies not in never falling, but in rising every time we fall.

NELSON MANDELA


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12/14/10 11:36 P

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I am not celiac, and can get away with small amounts (less than a tsp.) once in a while. If I am tired or super stressed, I can't even do that.
Seldom do I cheat even a bit. The swollen legs is something I don't miss. The embarrassing emissions and stomach pain are not worth it.
My daughter has a weird reaction. If she eats something with wheat, her mouth starts to go numb. Neither of us have problems with most oats, but would never eat Quaker or anything. I buy the Bob's GF ones, as I love oats. If I don't eat them often, I can have Coach's oats.
The problem with the symptoms is that most of them are things we feel, but are not noticeable to others who don't know us well. This is definitely an adventure!
Kate

"It is only with the heart that one sees rightly; what is essential is invisible to the eye."
Antoine de Saint Exupery: The Little Prince


"To the world you may be one person, but to one person you may be the world."
Heather Cortez
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12/13/10 11:34 P

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I had a homemade granola bar today. I used GF oats, nuts, seeds, etc. Everything seems OK. *whew*
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~Laura

"If it tastes good; Spit it out!" ~ Jack Lalanne

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12/13/10 10:47 P

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I agree those are the only GF oats I have tried and no reaction.I am not sure about any other brands.

KRAVBABE's Photo KRAVBABE Posts: 1,181
12/13/10 12:10 A

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I've tried the Bob's Red Mill gf oats and haven't had a problem. That was when I wasn't being so careful with gf either.

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12/12/10 11:02 P

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I agree nothing is worth the risk if you get a reaction from it. I am lucky as once I switched to the GF oats I have not had a single problem.

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12/12/10 11:00 P

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I'm lucky that way. All I really risk is bloating, cramps and gas. lol I have boughten the GF oats so as not to be cross contaminated, but I'm still scared to try them. I've been GF for almost a month now and no tummy problems at all. I love oats though... so I will try one of these days.

~Laura

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CINDYTW Posts: 5,783
12/12/10 10:42 P

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I am afraid to even try because I am afraid I will be one of that 7%. Is it worth the risk for some oatmeal? Not so much...

Edited by: CINDYTW at: 12/13/2010 (08:48)
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1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
12/11/10 10:42 A

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I was tested for allergy to oats because of my reaction and it was negative. Standford University did a study and discovered that .7% of Celiacs still react to oats and I am one of those lucky few.

Mark
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BLONDLEE's Photo BLONDLEE SparkPoints: (0)
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12/10/10 3:36 P

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1GRNTHMB-
Could you also be allergic to oats? I know some people are super sensitive to other grains. I used to get sick everytime I ate the awesome nobake cookies until I disovered GF oats. Now no problems but we are all different. I feel better seeing most of you get the fogginess also. I thought it was some weird thing my body did. I hate to go to work the next day because I tend to tune out my students when I get so dazed. I do everything in my power to avoid CC but sometimes it happens.

1GRNTHMB's Photo 1GRNTHMB Posts: 4,791
12/9/10 1:05 P

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My gluten sensitive is very low. I avoid products with the manufactured in a facility that uses wheat because of this. I am also very sensitive to oats (even the "gluten free" ones) and in fact have an almost immediate reaction when I eat them. While with wheat I have a delayed reaction and often will not know that I have had it till the following morning when I wake up bloated and feeling very sick and this last from 5-7 days.

On of the things that my doctor told me when I first went on the diet was to avoid dairy for the first 6 months. Dairy, even when you are not lactose or casein intolerant, is hard to digest, and with the intestines all ready being weakened for the gluten you can easily have symptoms from the dairy.

Mark
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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 12,055
12/9/10 12:36 P

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I seem to be able to eat a lot before I really notice an issue. With this said I stay away from gluten most of the time but the holidays can get to me.



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BAILEYS7OF9's Photo BAILEYS7OF9 SparkPoints: (126,762)
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12/9/10 12:28 P

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summer of 09 1/2 a cup cake would do me in. Now, just a small bite of an oatmeal cookie does. The longer you are away from gluten the more you will react to it I have found.

I don't have issues w/ cross contamination at this time but whose to say it won't happen? So for now, I am guilty and will eat my cheese cake and pumpkin pie and avoid the crust and share the toaster w/ my boyfriend.

Edited by: BAILEYS7OF9 at: 12/9/2010 (12:28)




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CINDYTW Posts: 5,783
12/9/10 11:01 A

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I react to very small amounts too...like the amount in a vitamin that I didn't read the label for, or the contaminated peanut butter that DH put the knife back in after touching his bread. I get sick for days, with no energy, terrible pain, bloating, a rumbling or gurgling in my belly with diarrhea or constipation and a very foggy, slow thinking. It is frustrating, you just have to get better and better at lable reading and protecting yourself. I think it does get worse as time goes on...

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CAPRINEQUEEN's Photo CAPRINEQUEEN SparkPoints: (3,732)
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12/9/10 9:56 A

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Even a crumb can set me off. I stay away from anything "processed in the same facility as wheat" and that is most of the Walmart house brand stuff.

I get that horrible brain fog and immediately want to fall asleep within an hour. Then intestinal bloating, pain, diarrhea. Next, I start to ache, mostly in my hands and knees. Usually lasting from 24-72 hours. It ends with skin issues, particularly on my elbows that will last a couple of weeks.

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KRAVBABE's Photo KRAVBABE Posts: 1,181
12/9/10 12:38 A

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My stomach gets queasy. I don't get sick or feel like I'm cramping or want to puke. It's just an uneasy blah feeling. With soft stool. Not quite diarreah but close. I still have to see if it could be something else I ate. Did I eat corn or beans? Did I have too much milk or milk products? The way I can really tell is my ankles. I bloat really bad when I get glutened bad. I'd tried no salt and tons of water before going gf and I still had fat ankles. My socks will dig into my ankles so bad I'll have deep indents.

Edited by: KRAVBABE at: 12/9/2010 (11:07)
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DJ4HEALTH's Photo DJ4HEALTH Posts: 44,243
12/9/10 12:26 A

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Sometimes I get real sick and sometimes I get a little sick, but most times I try to stay away from wheat all together.

Dorothy

If you tell God no because He won't explain the reason He wants you to do something, you are actually hindering His blessing. But when you say yes to Him, all of heaven opens to pour out His goodness and reward your obedience. What matters more than material blessings are the things He is teaching us in our spirit.
Charles Stanley


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BLONDLEE's Photo BLONDLEE SparkPoints: (0)
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12/8/10 10:38 P

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I just had this same conversation with my brother a few months ago. He cannot be tested because the military will discharge him because they cannot make their meals for his special diet. So anyways he was gluten free for a few weeks and then decided to eat Taco Bell. He was sick for days and asked me if after going GF do you get more sensitive. I think this is case by case but for the two of us the answer is yes. I had been GF for nearly 5-6 months when I was making something for a bakesale. It had frosting and even though I did not eat the cupcakes I did lick my finger after frosting them. Within 15 minutes I was sick and felt horrible. Looked at the label and the frosting contained wheat. Not even a tsp off of my finger and I was sick. Now after about a year I had a biopsy and it came back negative. So I thought I would give it a try. I did not get sick every time because my intestines were healed. But when I did get sick I usually had the usual bowel problems and sometimes vomiting but I also had this horrible brain fog for at least the next day or two. I know sounds weird but that is how I can always tell if I have ingested gluten(not always the true for my stomach). I did find out later that my test was most likely negative because I had been GF for so long. They wanted me to eat gluten for 6 months straight and then retest. I refuse to go through that hell just to confirm what I already know(my blood test was positive though). So to answer your question I do think you become sensitive while your body is trying to heal. I would never recommend eating gluten after it is healed though either. I have on eaten one or two of my husband's fries before and that was a horrible mistake. Once again within 15 minutes I feel it. Not everyone has such a quick reaction but I do. I only eat at restaurants that I am confident in now but I don't go all crazy when I order. I either get grilled chicken or steak and on occasion when I do get croutons on my salad I just politely explain that if I eat one bite of the salad after it has touched a crouton I will be sick for the next few days because I am allergic to the wheat. I have in the past(not proud to say this) been so frustrated that they put something small on my food and have eaten it anyways but I always pay the price and it is definitely not worth it. I would rather wait the extra 15 minute for them to recook my steak. I hope I helped a little in my total rant. Sorry!

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12/8/10 10:15 P

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I am not celiac, just sensitive to gluten. I had already eliminated grains from my diet (most grains anyhow) except for the OCCASIONAL buckwheat pancakes or something for a GF treat, so I really felt WONDERFUL after going completely GF.
Gluten gives me extreme gas and embarrasing, constant flatulence. It also seems to make me retain water.

~Laura

"If it tastes good; Spit it out!" ~ Jack Lalanne

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MICHTOTMAN's Photo MICHTOTMAN Posts: 819
12/8/10 9:31 P

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I have only been gf for a little over a month, and I'm finding that I feel great -- for a while. Then I'll start feeling bad (not as bad as when I was eating wheat, mind you, but noticeable none the less) and when I start to evaluate what I ate, I ALWAYS have had something in my diet that has a probability of being cross-contaminated... the Blue Diamond Nut Thins ("gluten free" on the front of the box, "processed in facility that also makes wheat products" on the back), a grilled gluten-free cheese sandwich that dh accidentally flips with the glutenated spatula, a ham that contains no ingredients with wheat, but does contain "dextrose" which (according the the safe-list) "may or may not contain gluten".

My question for you all is this... how much gluten does it take to make you sick? When you do accidentally eat a food that has been cross-contaminated, how long does it take you to feel better? I'm starting to feel like I made such progress only to thrown on a never-ending roller coaster...

The greatest glory in living lies not in never falling, but in rising every time we fall.

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