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DOTSLADY's Photo DOTSLADY Posts: 10,018
10/16/10 10:29 P

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I love when we share our stories - thanks very much.

One of the reasons I advocate the blood test is depending on the person, a "positive" test SHOWS them to stay strictly gf. Not everyone is, even with a positive test. If you want a higher chance of cancer, you might think twice about your choices, wouldn't you think? And, on the other hand, there are many people who are strictly gf without a diagnosis.

Another reason to get the test is because autoimmune conditions run in families. Some family members might take a "gold standard" diagnosis more seriously and get themselves checked. Every family is different: some take it seriously with or without a diagnosis.

Personally? I think most everyone should be gf (it'd be okay for Hitler to eat gluten for example), but that's just me.
emoticon Seitan is evil - bwa ha ha.

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DEBRALEE12 Posts: 112
10/16/10 4:24 P

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My husband was told right out from his doctor that taking the blood test and having it come back negative does not rule out celiac disease and I am positive that it is just that. To make sure, we had a pasta supper that same night and he had an attack which was free of for over two weeks. I'll have them take the sample for biopsy but only when he needs to go in for something. You know deep down if it's helping or not and for sure keeping away from all gluten has made him a changed, very happy man.

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STRONGER_ME's Photo STRONGER_ME Posts: 13
10/16/10 2:59 P

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I would get the test done, but the results could be wrong. I had the blood test done twice and it ruled negative for celiac disease. They did an endoscopy and a colonoscopy a couple weeks later and it showed that my intestines were extremely diseased all the way to my colon. They don't know why it didn't show up in the blood test, but they knew immediately it was celiac disease just by looking at the tissues.

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DOTSLADY's Photo DOTSLADY Posts: 10,018
10/15/10 1:53 P

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My stance is that I would absolutely do the blood test to rule out celiac before change of diet .. but even that is not fool-proof. You might also consider after that the stool test available via www.enterolab.com - there are other allergen antibodies you can test for as well.

Gut problems can be associated with many things including gluten ... I hope you can figure it out also.
emoticon

DOROTHY: I think it's pretty "SOP" or standard operating procedure to do the celiac blood test and to confirm the diagnosis with intestinal biopsy via endoscopy, however, my test was actually the other way around as I did not go in for a celiac dx. It was found by happenchance. (yay)! Sometimes people's blood test is negative, but their endoscopy is positive, too.

Edited by: DOTSLADY at: 10/15/2010 (13:56)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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DJ4HEALTH's Photo DJ4HEALTH Posts: 39,585
10/14/10 10:43 P

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When they do the test it is first a blood test and if that comes back positive then they may do the other one that is not fun. But they never do the one where they go down and take a piece of your stomach until they do that blood test first. At least that is how they have been doing for me.

Dorothy





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ILLINITEACHER52 Posts: 7,256
10/14/10 10:26 P

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Welcome! I have a friend who thought everyone went to bed with a stomach ache every night until she went gluten free and found out that it wasn't necessary to feel so bad. I hope you figure things out so everyone feels better. There are now dairy free cheeses and yogurts available. (I had yogurt made from coconut milk a few days ago and it was very good - expensive, but good.)

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ZOESMAMA03's Photo ZOESMAMA03 Posts: 444
10/14/10 10:04 P

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We haven't had any testing done but I suspect my dd may have some gluten intolerance. We do have a family history of crohn's and IBS(both my grandma and mother as well as one brother). My grandma struggled with tummy problems all her life she is the one that was told she had Crohn's disease. My other brother had a time where he was constipated and unable to go for weeks.

My daughter loves spaghetti and seems to bloat often afterward. On occasions she has complained of tummy aches so its something I'm trying to watch and log. I've started trying out brown rice pastas and tonight tried out the Ancient Harvest quinoa spaghetti(we also eat regular quinoa). They are a bit less mushy which is nice I seem to like them and dd doesn't notice a difference. Even my brother(we live with him) is eating it hasn't mentioned not liking it so I'm making the switch.

I am curious to see how I feel after I get all the gluten out. Since I'm cooking mostly from scratch using whole foods its becoming easier to watch that we don't get any but some things we will have to work on still.

I just feel its not worth having my daughter go through the testing. I'll just try to keep a diary for her and see when she has tummy problems. She also has not gained weight in 2 years. She isn't in a failure to thrive type situation but has always been slow to gain since she was an infant. We both have lactose intolerance we already work around somewhat by not drinking cow's milk. We aren't always perfect in keeping dairy out as we do eat cheese often and my daughter really likes her yogurt. hehe The good thing is those two don't seem to cause the symptoms to spike up unless we eat a lot of it in one day.

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