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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
6/10/10 5:10 P

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Hello, Welcome Jhellokitty,
I have a rash in the same places. I do not trust prescription solutions. It was suggested (not by an MD of allopathic disciplines but an orthomolecular nutritionist), the cause of my back and leg red bump rash may be from a fungal parasite which burrowed in after months of imbalance overlooked. It was recommended to have a Candida test since that condition could be a cause.

In the mean time, to sooth the fire it produces, I put a large white washcloth into the back strap of my long handled bath brush (brush under $5 at any drug store) and apply a 'personal mix' of pure cocoa butter lotion infused with some drops of peppermint essential oil. I install this mix into a soap pump to apply to the rag-on-a-stick in those hard to reach places. The cocoa butter is moisturizing and the peppermint is anti-bacterial, anti-viral, and anti-microbial to heal any deep tearing from abrasions of scratching and cool the fire of the red rash. Never apply an essential oil solo directly to the body internally or externally. The peppermint intensity is like salt -to taste.

The Candida is a natural part of the body ecology in the digestive tract- not beyond in large colonies but body friend, normally. It lives for removing dead cells much like a catfish on the bottom of a pristine lake or a crab on the ocean floor. When things go haywire as in does in gut imbalance issues, cause it, like wheat intolerance, IBS, and Celiac Disease, also man induced, broad-spectrum antibiotics, and multiple other causes both mild to sever.

This once friendly 'micro gut life'... changes and spreads to other areas of the body. The lab testing for it is often inconclusive, because it is in the body all the time, just not in the aggressive altered state. The control is near impossible by MD standards as the antibiotic (the leading choice for bacterial and fungal parasite eviction is 'the antibiotic' protocol), Candida is in the yeast-fungus class of micro life). Strict diet changing from yeast foods and sugars and simple carbohydrates has had some winning results but may return when the guard is dropped.

An addition, natural supplements can assist with the stricter diet. Anyway, see my blog for further ideas and Candida and outside the gut of Systemic Candida issues. See blog...
www.sparkpeople.com/mypage_public_jo
ur
nal_individual.asp?blog_id=3175564

Celiac patients do have more than one condition, because the system is weakened.


If your rash is due to gut imbalance Candida is there. If it is not then know this much to help others since everyone has this gut friendly life, and thousands die every year from complications of it. Restore order to the gut life; kill off the altered life in other areas of the body, discover the potential causes and try to control and prevent further out breaks with friendly gut flora (billions per day to start), better nutrition to fight off wrong life-wrong place and good healing; Good Luck. If it is found to be one of the gut imbalance issues caught early, it can mean easy cure. Never corrected is an 'all too common' sign of progressive weakness. Never or insufficiently corrected or only attempted to correct, leads to pneumonia from the body fighting 24/7. Hospital death by thousands happens to people every year, although, they claim it is the secondary viral pneumonia not fungal version to take life. The trusty MDs in hospitals never corrected this imbalance in the past generations. Modern research and winning techniques are better.

I lovingly hope they learn the vital tree steps to safe lives; 1) learn to find the definitive, conclusive testing to find the altered life version of a friend turn fiend (research is being conducted in Stanford University Hospital in California, they discovered the altering factors). 2) Learn to kill it not us along with it (success has been achieved by natural supplements of months and months accompanied by corrective diet. This has worked for immune compromised patients, like a heart surgery patient on heavy antibiotic programs). And 3) teach us preventative steps to curb a 'gut fiend' of systemic wandering corrected back to gut friend. Good luck and good hunting! I diet strictly all the time. I must because one 12 month antibiotic program and gut imbalance undiagnosed forces me to take the known steps, the MDs never did, and I use lotion as needed with soothing bug-killing skin healing naturopathic results. Test first, then use intelligent choices to correct what is correctable.

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ALISAGFREE Posts: 4
6/5/10 6:31 P

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I have to say, I'm in complete agreement with those that say get tested before going gfree. I'm newly diagnosed and at the time I had very minimal symptoms, primarily more gas and burping than normal. My diagnosis came backwards; endoscopy/biopsy first, then blood test. If you know you are cd, you make better choices about your health. If you are undiagnosed celiac, you are less likely to strictly follow the diet. Get the celiac panel run! It's just a blood test! Then go from there. emoticon

JENCORINNE's Photo JENCORINNE Posts: 1,932
6/4/10 10:39 P

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With my DH, it starts on my hands. When I was eating gluten it went from my hands to the traditional spots overnight. Once it was discovered what the rash was and went GF it cleared up in a couple of months.
Now when I get glutened it's rarely enough to cause the DH to flare, but I get head symptoms for about a week right away and after a couple of hours the intestines join in. But if I touch gluten it will flare which in this gluten filled world means my hands have the rash more than not. A friend thinks that it's my body reacting to another food like dairy, but my dairy issues went away after going GF so it must be something else.

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PASCAROL Posts: 25
6/4/10 9:04 P

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It depends on the amount, if it is only a piece of communion bread, I may have one or two hive bumps that evening (if I have sufficent antihistamines in my system, maybe not at all). If I get glutened with something I didn't expect, I will likely have rash and gastro intestinal symtoms the next day.

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DOTSLADY's Photo DOTSLADY Posts: 10,018
6/4/10 6:38 P

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emoticon emoticon JHELLOKITTY - do you think other family members might have different symptoms of CD? Do you think they would go gf without their own official diagnosis cause you do or do not have one? One reason to get an official diagnosis is because family members have a higher incidence of being diagnosed (1 in 22). Sometimes it comes in clusters in families. Sometimes other members don't even think they have symptoms. Some don't and are positive when tested. How serious your family takes your going gf for your "rash" or how serious they'd take an accurate diagnosis might vary with or without the diagnosis. I would take that into consideration. (I do not have DH, but I do have a celiac dx and my family did not understand the ramifications for years. One finally got the test, but it wasn't a celiac PANEL, only the tTG and it was negative. The other two were negative. All have symptoms and will not go gf. Too hard, esp w/a negative dx. They're not "into" the spectrum or understand "sensitivity.")
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Another question for DHers, is how long does it take for you to have a reaction after you've been gf and get glutened. What are your symptoms? Rash only?

Edited by: DOTSLADY at: 6/4/2010 (18:39)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,880
6/4/10 4:34 P

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It depends how bad it is before it clears up, but for me a little out break takes about a week if I can control the itching.



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JHELLOKITTY's Photo JHELLOKITTY Posts: 162
6/4/10 8:47 A

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True. I think I'm just going to try it and see what happens....if I can stick with it. I can't see a harm in trying it if I don't plan on being tested, as there are people who choose gluten-free without having celiac. How long do people normally see results with the rash clearing?

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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,880
6/4/10 8:41 A

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The GF diet will make the rash go away if it is DH, but for me I would want to know for sure. Also if you haven't been officially diagnosed for CD, if you get the simple biopsy and have DH you know you have Celiac. Good luck with what ever you do.



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JHELLOKITTY's Photo JHELLOKITTY Posts: 162
6/4/10 8:36 A

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But what would be the harm in trying a gluten-free diet if it goes away? The rash will still be there if it doesn't work. The only difference is that I won't be "officially" diagnosed?

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JENCORINNE's Photo JENCORINNE Posts: 1,932
6/4/10 12:15 A

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I can understand your hesitance to see your Dr again but keep in mind it takes an average of 10 years to get a CD diagnosis - mine was over 20.
I have been mis-diagnosed and undiagnosed so much I don't trust MD's myself. I have a Naturopathic Dr who specializes in CD. Found him after Dx on a complete fluke. When I get injured(no blood or broken bones) I'll go to my acupuncturist/physical therapist. But despite all this I'll still suggest getting the rash biopsied to check.
As a bonus with a proper Dx you can claim the difference in cost on your taxes.

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CINDYTW Posts: 5,783
6/3/10 10:25 P

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I don't have the rash you are talking about but I do have skin problems that are worsened by gluten and dairy. Once you go off gluten you may never want to go back on to get tested to that is something to consider.

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PASCAROL Posts: 25
6/3/10 9:14 P

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Don't give up on the medical professionals, find the right ones. I too asked my regular doctor about my rash for several years, before he gave up and sent me to the dermatologist. She recognized it immediately.

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JHELLOKITTY's Photo JHELLOKITTY Posts: 162
6/3/10 6:00 P

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Thanks. I refuse to get biopsied, though. I have little trust or faith in doctors, and as I have said, I have seen them three times already for this. I figure this rash will be here with or without me trying a new diet. It seems like the way to go, for me, anyway. As for the salt thing. I have used both regular salt and then switched to seasalt, and have for the most part actually cut salt out of my diet, and it has been the same through the duration.

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JENCORINNE's Photo JENCORINNE Posts: 1,932
6/3/10 5:32 P

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I also have DH. Like TeddyBearDonna said get the rash biopsied for CD, that can be your diagnosis if that's the problem.

Don't worry about losing favorite foods. There are GF versions of just about everything, some better then others. Not always the healthiest but it's there.

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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,880
6/3/10 3:31 P

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See if you can get your Dr. to do a biopsy. That is how they found out I had HD. Mine mostly on my knees and elbows, but when it was at it worst it was all over. You may be showing signs of an iodine allergy. This is not uncommon in people who have CD. Try just using regular salt and see if that makes a difference.



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BAILEYS7OF9's Photo BAILEYS7OF9 SparkPoints: (120,893)
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6/3/10 2:29 P

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emoticon emoticon to the Team!

Get the blood test done BEFORE removing gluten from your diet.







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PASCAROL Posts: 25
6/3/10 1:44 P

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HI, I was diagnosed about 5 years ago by a dermatologist, because of the rash. She was able to give me a prescription cream that helped with the itching, and a medication, but the dapsone, just made me feel worse. Go gluten free, actually helped me with several other areas, as well. I am no longer lactose intolerant, and no more joint pain, and no hot flashes so far (but you may not be there yet). Gluten free is a challenge at first, but once you get used to it, and find substitutes for the things you really like, it is doable, and you will feel a lot better.


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JHELLOKITTY's Photo JHELLOKITTY Posts: 162
6/3/10 1:42 P

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Thanks for your reply. It is hard to describe my rash but it is on my back upper legs/buttocks area and I have had it since august of last year and it still itches just as bad as day one. It is so bad I will itch it then it will bleed. I have gone to my doctors twice and dermatologist once. No answers.

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TEDDYBEARDONNA's Photo TEDDYBEARDONNA Posts: 11,880
6/3/10 1:25 P

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Hi, I have the rash that you are talking about. It is like a little blister and it is hard to get it itched enough. Very little helps. Products with cold tar seems to work the best. Hope you find out for sure if it is related to CD. I was told when they identified the rash to avoid wheat but didn't find out about have CD until 30 years later.



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JHELLOKITTY's Photo JHELLOKITTY Posts: 162
6/3/10 12:54 P

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Hi, everyone. I just joined this group.... after reading an article in Women's Health magazine. It described a rash that I currently have, and that it is a possibility that it could be celiac disease. I am interested in talking to some of you and finding out more about it, as I think it is more informative to talk to someone rather than reading a definition on a website. I have looked into it some and it definitely could be a possibility, but I do not want to get tested, so I think I am going to try to start a gluten-free diet and see if it yields results. I also want to do a detox cleanse first before I start. I am just freaking out, thinking of all the things I am going to be missing out on eating! Comments would be appreciated :)

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