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DJ4HEALTH's Photo DJ4HEALTH Posts: 39,801
6/2/10 11:42 P

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Hi and welcome to the team.

Dorothy





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BAILEYS7OF9's Photo BAILEYS7OF9 SparkPoints: (120,893)
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6/2/10 11:54 A

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emoticon emoticon to the Team!

I can walk away from baked goods I used to never be able to say no to. The pain I know will come from eating them is not worth it to me!





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CINDYTW Posts: 5,783
6/2/10 12:01 A

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I too had hideous pain and skin problems and elimination problems, along with horrible fatigue. I get joint aches too. The GI wanted me to go back on for SEVERAL WEEKS to get a biopsy!! I refused and am not sorry! I could not handle that for days let alone weeks!! I had a blood test that the nurse said was "No question" about being positive, and that was enough for me, plust the fact I felt so much better in days. Good luck and welcome to the team! Be aware that many of us have dairy issues as well...be on the lookout fr symptoms!

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DOTSLADY's Photo DOTSLADY Posts: 10,018
5/30/10 11:47 P

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I'm so glad you've shared your story for others to learn from. I'm sorry you had to share it, too :(. I hope you continue to get well with us!
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KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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ILLINITEACHER52 Posts: 7,256
5/30/10 9:45 P

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Welcome to the team! I'm glad to hear that you are feeling so much better! Gluten is not worth eating when it does so much damage to the body.

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KEDLYNN's Photo KEDLYNN Posts: 12
5/30/10 9:40 P

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Hi! I am Kahri (rhymes with starry) and I am just re-starting SP. I think I have been a member for years, but I never have checked it out or really gotten into it. I am really trying to feel better, so I am here to do that now!

Here is my celiac story (from my blog):
About 7 months after having my almost 15 year old, I started experiencing excruciating pain in my hips and extreme weakness in my hands and ankles. After some testing, the doctor diagnosed me with Rheumatoid Arthritis and put me on medicine to help me. After the medicine ate a hole in my stomach, doctors determined I shouldn't be on it anymore and were trying to figure out how to help me. Somewhere around this time, my mom said I should look into food allergies. I researched and decided to do an elimination diet to see if that was the issue. Soon I was able to figure out that wheat was the culprit. I had a test for celiac disease and came up with what they considered a borderline case of celiac. I stopped having gluten for a while and my symptoms all disappeared, including some bonus symptoms like eczema and acne.


At some point, my doctor thought it was okay to try gluten again so I added it back in and didn't experience symptoms. I thought I was home-free.

Fast forward a few years. Once again, I was having the same symptoms so I, again, cut out gluten. After a few months I started eating regularly again. I repeated this pattern one or two more times. I wasn't seeing the same doctor anymore because I had moved to a different state. I was not consulting with a new doctor about it because, honestly, I thought I had it all under control. I didn't do much research into it (which is unusual for me) but, as far as I could tell, my system was working....there wasn't anything to fix.

That is, besides a persistent pain in my left side. Anyway, I have been tested for thing after thing after thing and they even took my gall bladder out but the pain never went away.

Now we are up to the present. Since my fall off a ladder in June, I haven't quite been the same. I have had a whole myriad of lovely things happening: everything from horrendous headaches to muscle spasms to stomach problems. My doctor said it would take "quite a while" for my body to get back to "normal." Recently things having been going even more awry! Terrible acne, pain in my stomach so bad I haven't wanted to eat, problems with elimination (won't gross you out with THAT story), and I gained about 20 pounds in a month, all round my belly. Craziness. Couldn't figure out what was going wrong. Then, my darling husband said a magic word...."celiac?"

DUH!!! (Sorry for the "bad word" as my kids call it, but really...where WAS my brain??)

I went gluten free about 6 weeks ago. What an improvement! Now I am not 100% cured. I understand it will take awhile. However, I am doing SO much better. And researching. Researching like crazy.

I WILL NOT add gluten back in. I can't even tell you how much I WANT to stay away from it now. I DO NOT want the pain and the symptoms. My darling oldest daughter made Michael a beautiful Pioneer Woman Chocolate Sheet Cake for his birthday and I was NOT EVEN TEMPTED to taste it! instead I had the (naturally gluten free) frosting over some sliced bananas and was happy as a lark. :-)

So I am beginning an old/new journey. Old because I have been on it before. New because I am not thinking about it as a small vacation from gluten but a "So long, goodbye, don't let the door hit you in the butt" absolute break-up.

And my tummy agrees. I have gotten trace elements of gluten a few times in the and my tummy has IMMEDIATELY let me know. My oldest daughter says I am now a human radar for gluten. I think my body finally had enough. It has gone into full out rebellion and I am finally listening.

I am sorry body.
Please forgive me.
I will treat you better.



Blessings and Joy,
-::- .))
. -::-Kahri
((.

kahri.blogspot.com


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