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NORMAMURIEL Posts: 106
9/9/09 10:21 A

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Just wanted to throw my two cents in. You have to make sure the drugs you are taking are gluten free as well. The only one's that can tell you are the Drug Companies, you will need to have your doctor or the pharmacist make that call for you.
I have had a few friends end up having bowel obstructions, and it sounds like you are having some major issues, has that been checked out? My daughter would tell you to go to the ER since they have the equipment you need to get checked out right there and then instead of having your doctor take weeks to do the same. In your kind of case I would agree with her. Keep us posted.

YOSOYLINDA's Photo YOSOYLINDA Posts: 5,948
9/9/09 9:17 A

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Nobody in San Antonio, no big surprise, but I think my doctor here will be willing to work with me. She indicated that we'll get into all the issues, once I have my basic physical stuff done--so now I just need to do that. I'm basically healthy so I tend not to go to the doctor when I'm supposed to--like for my annual physical even.

Hope things get better for you, and you can find a doctor to work with you. I've been told I'm "allergic" to wheat, so I'm working toward a GF diet either way. There's not a lot of difference between once a week (which my allergist suggested) and not at all.

Linda C

Linda C
Oklahoma (CST)

"Food is essential to life; Therefore, make it good."
--S. Truett Cathy (Chick-Fil-A)

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JENCORINNE's Photo JENCORINNE Posts: 1,933
9/8/09 11:50 P

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I'm sorry you're having so much trouble with your Dr. Maybe it's time to find another. Try looking at a naturopath - they try to find the root of the problem and not cover the issue with drugs. By chance I found mine and he specializes in Celiac/gluten intolerence. Yes I've been given meds but all homeopathic and are to help heal my body.
This might help - although I don't think the list is complete here is a list of Dr's that specialize in CD - www.celiac.com/articles/277/1/United
-S
tates---Doctors/Page1.html
(If you're not in the US they have lists for other countries also)

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ALISHAB3's Photo ALISHAB3 SparkPoints: (17,534)
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9/8/09 10:21 P

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The pain has subsided and I seem to be doing ok. I have no idea what was wrong with me. I'm a little bit freaked out. i am avoiding the gluten because I don't give a rats ass what the doctors say. I will challenege it in a couple of months. The whole thing is exhausting because my regular doc is clueless and keeps wanting to try different drugs. I want to know what the problem is not try a bunch of damn drugs (sorry for the profanity.) The whole thing stinks majorly. I don't know if the avoiding gluten is the solution or not but I'm willing to try it for a while and then challenge it to see if that was the problem. Or maybe it just wasn't? Go figure. I am really beyond my depth here.

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YOSOYLINDA's Photo YOSOYLINDA Posts: 5,948
9/7/09 11:20 A

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I can't help you on any of it, but I too am interested in the responses. I was diagnosed as having a wheat allergy decades ago (and haven't done a good job of leaving wheat out of my diet.) I keep saying I'm going to get tested, and I will, but so far I haven't gone back in for my annual physical--about three year late, I'm afraid. 8-)

Linda C

Linda C
Oklahoma (CST)

"Food is essential to life; Therefore, make it good."
--S. Truett Cathy (Chick-Fil-A)

Come on 5%!!!!!

Member Since Nov 06!


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GFNOMAD's Photo GFNOMAD Posts: 1,520
9/6/09 2:32 P

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Alisha, we are not medical doctors. We can only provide suggestions and give directions for you to follow up on.
Equivocal - means it wasn't definitive. Your numbers aren't high enough to be very suspicious. www.audioenglish.net/dictionary/equi
vo
cal.htm

However your descriptions sound like there is something serious going on that needs investigation. Comments such as ' Its like I'm bleeding inside' and 'dizzy, ketosis, blood pressure so low I was blacking out upon standing' worry me. If you are nto eating, those will happen.
Have you considered going to the ER? I don't even now if this is feasible but you can't let this go on.
Once (many years ago), when I told my doctor I was down to eating baby food, his reply was 'What's wrong with that?'
read the Gluten Primer and other articles on
www.glutensensitvity.net
They might help you figure it out.
Best wishes, Barb

Edited by: GFNOMAD at: 9/6/2009 (14:33)
Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
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JENCORINNE's Photo JENCORINNE Posts: 1,933
9/6/09 1:15 P

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I wish I could help you on the test results but I can't, I'm sure someone will see this and help.

Check that the chicken broth is GF, most have wheat in them.

I'm confused on the skin part of your post - I'm not sure if you're saying you have one or just comparing. There is a CD skin condition called Dermatitis Herpaformitis(DH). I had it when I was eating gluten but has cleared up with one flare with cross contamination. Anyway it is the worst itching I have ever felt plus the ugly little bumps. My point being if you have a rash that might be DH you can be tested from having a biopsy done of the rash.

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ALISHAB3's Photo ALISHAB3 SparkPoints: (17,534)
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9/6/09 9:58 A

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I am very much looking forward to any and all responses,

Thanks,

Alisha

www.cathe.com
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ALISHAB3's Photo ALISHAB3 SparkPoints: (17,534)
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9/6/09 12:25 A

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My doctor did not know how to interpret my gliadin test results which were called "equivocal." I haven't had hardly anything to eat for weeks because I was so sick. I had these horrendous pains (like I was being cut) in the small intestine as soon as the food from my stomach entered the bowel. It hurt an aweful lot. It started with what I thought was a bought of flu with nausea, fever, chills, diahrea. I was unable to eat. I tried to eat toast or crackers and the pain began again. Even when I hadn't eaten I felt this tremendous awful pressure in my bowel. My doctor told me he didn't think there was anything wrong with me and that my insomnia (down to 1 hour of sleep/night unable to work for 3 weeks) was a 'mind/body" issue. I've been practicing yoga for two years, it doesn't seem like a mind issue at all. If anything, the depression symptoms/flashbacks are just not occuring right now.

So, I insisted on a gluten blood test because I have a friend who has it and I thought, well thats easy to test for right? Ok, I may not be bright about this stuff, I just really have no idea.

My test results came back with the iGA as 7 and the iGG as 18. I don't know what the result limits are (where normal is and negative or where positive is) because the darn website is broken. I don't know what that means and my doctor doesn't even know. He said he would get back to me next week. Well, in the mean time, I've tried a few of the G F products because the pain was so bad and I was so very hungry (lost 6 pounds in one week) and my blood sugar was hitting skids. (dizzy, ketosis, blood pressure so low I was blacking out upon standing.) I seem to tolerate some of the pretzels/shortbread. I can tolerate kefir (checked the label) and chicken broth.

Based on reading what people say about needing to eat this gluten in order for a test to be relevant, I'm not sure what to do. I was so damn sick.

My doctor told me I had IBS and to take psyllium and pepcid. I don't have an acid problem. What gives? Its like I'm bleeding inside not like I have an acid problem. I don't know if you have ever had a skin infection, but it felt like when you have a skin infection and the skin breaks/hurts. And then add any food on that and voila pain that keeps you awake for weeks/doesn't allow you to go to work. The psyllium did not help. Peppermint seems to be ok. Probiotics seem to be ok.

I just don't know what to think. I'm really open to any and all suggestions/ideas. Does anybody know what equivocal means?

tia,

Alisha

www.cathe.com
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