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LUVSFREEBIES72's Photo LUVSFREEBIES72 Posts: 23
5/12/09 4:19 P

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I WISH that's how it worked for me! emoticon I'm laughing, but serious at the same time. I must be a glutton for punishment or something, 'cause I will GLADLY have a gluten-filled baked good any day emoticon



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BAILEYS7OF9's Photo BAILEYS7OF9 SparkPoints: (125,060)
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5/12/09 1:27 P

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emoticon

to the team Ficbot.

I have learned to embrace my GF diet. Yes it is MUCH easier to walk away from pastries that I normally would have come back to time and time again. When something hurts you when you eat it, and you realize this, the desire for it is not as great as the pain it will give. At least that is how it works for me.

I highly recommend Karina's site the Dotslady posted.





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FICBOT's Photo FICBOT Posts: 249
5/11/09 7:45 P

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Don't know about sulfites. I am having more testing in September, so we'll see.

Update: got home tonight to an ominous message from the doctor: "This is Dr. N's office. Please give us a call." I am worried now. If nothing twigged in the blood test, they either wouldn't have called at all or would have called and said in the voicemail that everything is fine. If they won't say it in the voicemail, that means they did find something and they won't tell me in a message. I suppose it's possible it's just something like anemia, but he did not specifically test for that and the only test he specifically ordered was the celiac panel...

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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
5/11/09 3:02 P

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Ficbot, Are you allergic to sulfites too? It is one of my sensitivities. Sulfites are an accumulated reaction. One apple is mild but one apple plus a handful of grapes (extremely low sulfite containing food natural or added) will give me problems like inflammation and headaches. emoticon

Edited by: MARGIE100%PURE at: 5/11/2009 (15:03)
The greatest love story is your own.
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You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
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DOTSLADY's Photo DOTSLADY Posts: 10,021
5/11/09 2:32 P

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The allergist pricks your skin to check for a reaction with THE real FOOD? That's a new one on me. You've certainly got a lot going on and it seems complicated. I don't envy your position. Have any members of your family tried gf diet to help with their issues?

I have a celiac acquaintance whose DH has Crohn's - I've heard gf diet helps some people with Crohn's and colitis. Everytime I see her I ask if he's trying the gf diet (her uncle's a doctor who has celiac and he doesn't recommend such an outrageous idea - pphht) ... she looks at me like "how crazy to suggest such a thing, do you know how expensive it is to be gf?" Whatever. I'd try if I heard it helped is all. Crohn's is awful. And I've finally learned to not ask her anymore. :P

A popular book for living gf is Danna Korn's GF Living for Dummies. Have you read the Dummies series for allergies? Here's an amazon peek: tinyurl.com/plqvaf

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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ILLINITEACHER52 Posts: 7,257
5/10/09 7:09 A

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I think that sometimes they make apples shiney with corn oil. I usually get a sore throat and tingly lips if I eat corn. (One time I had a reaction to a lipstick and found out it had corn oil in it. Be sure to read all labels and ask at the stores if they use anything to make the fruit shiney.)

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FICBOT's Photo FICBOT Posts: 249
5/10/09 12:02 A

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Thank you everyone for the warm welcome :) Dotslady, to answer your question, is a bit of a long story because I went through two years of complete misery with what my doctor swore was 'just' eczema and I knew it was not (I have had eczema before and know what it looks like on me) and finally I began keeping a food diary and narrowed down the reaction to weekends I would babysit, where I would take popcorn to snack on so I would not eat junk the kids had :) Then I went on a misguided effort to eat more vegetables, so I bought a bag of frozen vegetables with corn and had a reaction. I went to my allergist with my suspicion and he tested me at that point and confirmed it. The green beans happened to be in the bag of mixed vegetables (this allergist likes to test with real food when the test is a result of a person having symptoms with something) and was also positive on the test. While I was there he did the generic prick test and I scored positive for tree nuts. I did not care because it was a mild reaction, but then I had a few reactions to raw fruits and was very mad he had not warned me this would happen :) Usually just a little mouth itch (I am very careful now and won't eat any raw fruit with a pit) but a very VERY severe reaction to a raw apple that was quite scary.

By the time the flax allergy came around, I knew what the symptoms were for 'I ate something I shouldn't have' and figured out what it was pretty quickly. Again, I got some real flax, took it with me and had him test with it. It is a rare allergy so far but my allergist thinks that as our exposure increases (and it will since flax is now the new superfood they are adding to everything under the sun) we will see more incidences of allergy. But I was his first :)

I guess what bothers me is this time around, I was having symptoms but kept chalking it up to accidental corn ingestion since corn is such a tricky one to avoid. The only reason I figured it out was because it started getting worse during Passover when I was eating a ton of wheat because oatmeal is banned during this time, and it could not have been accidental corn since corn is banned too and no Passover products contain it. So I started thinking about what I was eating differently than usual and it was all the matzo stuff.

It would not surprise me at all to get a positive on the blood test, but he did tell me that even if the blood test shows nothing, I do have symptoms that suggest an intolerance at the very least, and especially given my personal history with food allergies (wheat is a very common allergen apparently) and my family history of weird stomach things, I should take this seriously and cut out the wheat. We're doing a skin test with the allergist, but he is not free until September :)

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DOTSLADY's Photo DOTSLADY Posts: 10,021
5/9/09 7:52 P

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Welcome :). emoticon

Here's a question for you. I'm wondering what kind of test you had to disclose your allergens. I had a blood test (I can't remember the name), and found I was allergic to sesame and green beans and kidney beans. This was after I was diagnosed celiac. I'd been eating a teaspoon of sesame seeds every day or two, and I'd also upped my green beans. I wasn't having kidney beans for fear of too much tooting .... soo. I was told to rotate those foods. I never did, but I usually don't eat them now anyway. Actually, I'll have kidney beans once in a while (there were other foods, but I don't remember them).

Do you feel a reaction to those foods or are you going by the blood results (if that's how you found your restrictions)?

You know what I wonder, too? Since I was eating lots of sesame and green beans then, would I test so positive now that I haven't been eating them? Guess I'd have to retest to know, but wondered if anyone had done such a thing.

Also, if you haven't seen her site, www.glutenfreegoddess.blogspot.com - she has multiple food allergies; you might enjoy her style and recipes.


Edited by: DOTSLADY at: 5/9/2009 (19:56)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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YOSOYLINDA's Photo YOSOYLINDA Posts: 5,948
5/8/09 6:46 P

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Wow, you're more restricted than I am--at least as far as I know now. When I was tested years ago for food allergies, they told me I was allergic to corn, soy, wheat, rice, tomatoes and green beans. Everything but green beans was supposed to OK once a week.

Unfortunately, I've never followed those guidelines, and so I'm still having allergy problems. Now, I'm wondering (and planning to find out) whether or not I need to look at GF (instead of just cutting down like I do now.)

Linda C

Linda C
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"Food is essential to life; Therefore, make it good."
--S. Truett Cathy (Chick-Fil-A)

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ILLINITEACHER52 Posts: 7,257
5/8/09 5:59 P

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Hi! I have multiple issues too (No wheat/gluten, corn, peanuts, dairy.) It is difficult as I have to watch gluten free foods for corn but there is still plenty to eat. Rice pasta is OK once you get used to it. If you just eat protein foods and vegetables you will lose weight but there are other foods that you can have as a treat that aren't on your forbidden list. Keep checking labels and eat mostly unprocessed foods. We are here for support. Let us know of your discoveries.

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LUVSFREEBIES72's Photo LUVSFREEBIES72 Posts: 23
5/8/09 3:21 P

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hello there!

I have multiple food issues, too, in addition to CD and casein-intolerance. sometimes I cry if I look at a bowl of guacamole (avocados is one of my issues). It IS hard, but I've recently come to the realization that I HAVE to be healthy, I don't have a choice. In the last few weeks as a matter of fact. so we can be buddies together.



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BLUEROSE73's Photo BLUEROSE73 SparkPoints: (120,487)
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5/8/09 12:48 P

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It can seem overwhelming at first. Take it one day at a time. Search for recipes of things you can eat. Have a favorite that requires some wheat products? Try searching for alternatives. You may have to learn to make things at home, but they will taste better and be healthier for you in the long run.

Katrina
Saskatchewan Time Zone

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MONTANAHIPPY's Photo MONTANAHIPPY Posts: 100
5/8/09 12:21 P

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Hi! Check out Barnes and Noble or Amazon. There is a cook book that I beleive is called the Food Allergey cookbook. I bought two and gave one to my girlfriend who is lactose intolerant. We both love to entertain and spend more time on the phone double checking reciepes with eachother to make sure what we're cooking is edible to both of us and tastes good for our hubbies. That book has been a lifesaver! Its easy recipes that lists the top 8 allergens that each reciepe contains. Its also tells you how to substitue ingreidents depending on teh allergey. Good luck!

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FICBOT's Photo FICBOT Posts: 249
5/8/09 12:14 P

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Still waiting on some test results, but it looks like I need to add wheat to my banned foods. I developed food allergies as an adult and already have issues with corn, flax, green beans and tree nuts.

Lately I have had some issues (in hindsight, for perhaps longer than lately) with some reactions that could not be explained given other criteria (e.g. it was Passover, corn is forbidden and I was eating Passover products, so I know the reactions were not caused by corn) plus some GI stuff, which is new for me (most of my reactions are rash/itch type stuff). I started suspecting wheat might be an issue.

I also have a really bad family history for this. On Mom's side, tons of people with Crohns, Colitis, IBS and general stomach things. On Dad's side, auto-immune disorders (I just found out about this!) So given these factors, my doctor ordered the test but he said that given my symptoms and my history, it sounds like wheat/gluten is definitely an issue. So either it's celiac, in which case I can't have any wheat at all, or it's intolerance, in which case I can have it if I want to and suffer the consequences. But either way, it's time to tweak my diet again :(

I suspect I will lose a ton of weight now because I have a sweet tooth and a lot of my favourite treats will be off limits now :( Frankly, I am a little overwhelmed and discouraged because all of the websites I have seen have been very medical and technical. Also, I am a very bad cook. So what I want is a more fun website written in a casual tone with easy recipes on it for meals you can pack up and take with you, or to eat at home.

It was already hard enough avoiding corn, especially. And the nut allergy is a problem because I sometimes cross-react to raw fruits. I am worried now about how I'll manage cutting out wheat!

Thanks for listening.

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