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DOTSLADY's Photo DOTSLADY Posts: 10,024
4/13/09 1:50 P

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It took me a good four months to feel better (and I've been pretty much going uphill on that ever since - so never give up!). I'd try to keep my gallbladder as long as I could - it's there for a reason. Hopefully, as you continue to get well, the gallbladder will as well. If you're having nosebleeds, it'd be good to have your vitamin K level tested if you could. Eat lots of veggies and fruits to feed your body on a cellular level. Your bod is starving!

Get well soon.
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Edited by: DOTSLADY at: 4/13/2009 (13:58)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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FORAFITME's Photo FORAFITME Posts: 660
4/10/09 12:58 P

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I don't suffer myself but my children do so I am speaking for what I do for them - I would never want them even the slightest illness because I wasn't vigilant enough. The people we associate with are starting to understand this.

We are always the first through any buffet line - before anyone can cross contaminate dishes or share crumbs. AndI try to put gluten containing food at the end of the table even if it means like items are not together.

The whole family eats gluten free except breakfast (cheerios poured only on the stove top and then wiped clean and my husband eats a bagel at work. We found that if we poured our cereal at the table with our oldest daughter and her food, she would show signs of contamination.)

If we eat food another has prepared I am "rude" - I ask about every ingredient and ask to read the ingredient off the pkg of everything. Once I was at someone's house and they served ice cream; because she couldn't remember if the one serving removed had been to a cone or if they had used the same scoop on an ice cream containing gluten I asked to open a new ice cream for my children or they could have none. I try to do most of this away from my kids so they don't feel that it is a battle of any kind. I want them the feel special.

If you cut a piece of wonder bread into 48 pieces. One piece is enough to cause marked damage to the intestinal track.

One person describe to me what make her sick in this way - If you scratch some residue from a pan that cooked gluten and then cut that which is under the nail into 24 pieces, one piece is enough to make her sick.

I hope your doctor will give you some help. And I pray until you are completely healed your family will stop eating gluten for your health.

May God bless you and your family through this adjustment period.

In the Service of the King.


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DUBYA95's Photo DUBYA95 Posts: 15
4/9/09 7:02 P

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Thanks to all of you who responded. I admit that the cross contamination thing is probably an issue. I have read most of the GF for Dummies book and really liked it. I still have my gallbladder because they assumed it was the CD making me sick. I plan to go to my doctor tomorrow because I have had a migraine for 2 days with nose bleeds,nausea,and chest pain. I really need your prayers. The cross contamination thing is something I do not get. I don't use a toaster, but do I need to have a completely different set of everything for myself? How extreme do I need to be because I already feel like a freak. Help me because I feel like I might loose my mind. I thank God for you all.
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NORMAMURIEL Posts: 106
4/9/09 7:24 A

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Hang in there sweetie, you can do this, or should I say you have to do this.

First I suggest get the book Gluten Free for Dummies. It is an easy read and explains everything really well. What I also like about the book is you can pick chapters to read, it don't have to read it like a novel.

Second, look for cross contamination, speaking for someone who is religiously gluten free, I still sometimes have symptoms. I basically quit going out to eat, because even salad’s can be dangerous. Been saving a lot of money so there are pluses to this.

Third, have your husband do the gluten free life style with you, and you will find you won’t be worrying so much about what might have been contaminated. At best get a toaster oven, have cutting boards just for your food, stuff like that. You should even set up gluten free shelving on top, if he won’t go gluten free. My husband is a meat and potatoes kind of guy and he eats gluten free, so if he can do it anyone can. The only thing is he takes sandwiches to work with regular bread, so my daughter makes sure she makes his lunches on one of the other counter so my food never comes in contact with it.

Educate yourself, put yourself first, and I bet you find you will be feeling better soon. Remember “Life isn't about how to survive the storm, but how to dance in the rain.”
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4/9/09 1:26 A

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I will be praying for you.
GOD BLESS!
Louise

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MONTANAHIPPY's Photo MONTANAHIPPY Posts: 100
4/8/09 10:01 P

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Do you still have your gallbladder? Thats how I found out I had Celiac. I had multiple GB attacks that went undiagnosed for 3 months before they discoved that it was dead. They have since established that when I was stressed from that, my Celiacs kicked in. Perhaps removing a non functioning GB would help? It might be worth checking out. Best of luck!

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TRRISHK's Photo TRRISHK Posts: 4,786
4/8/09 9:26 P

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I still have problems after not quite a year, also. It can take a long time, but it's worth the patience.

co-leader; stressed out women gettin healthy
co-leader AMAZING ABS!
"Some days are more tumbly than others".

Winnie the Pooh
FORAFITME's Photo FORAFITME Posts: 660
4/8/09 7:19 P

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It took 4 months for a noticeable change in my daughter's personality. We have been gluten free for 5 years and just this last few months I feel her skin looks healthier. It was over a year until the change in her personality was not noticeable. Meaning she didn't throw the fits at everything.

I know that as I learned about gluten and cross contamination I may have contaminated her but even up to last year she sometimes complained of a stomach ache. She doesn't anymore. It may take a while especially if you have been damaging your system for your lifetime. If you don't have some noticeable improvement see your doctor.

In the Service of the King.


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PRAIRIEGIRL44's Photo PRAIRIEGIRL44 Posts: 106
4/8/09 6:06 P

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Have you been to the doctor recently about the current abdominal pain?

I hope you feel better soon! emoticon

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DUBYA95's Photo DUBYA95 Posts: 15
4/8/09 6:00 P

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I was diagnosed with Silly-Act ( that's how my dad pronounces it) November 2008. I have had a dysfunctional relationship with food all my life. Through my teens I was anorexic,bulimic, and rail thin. Then I hit about 18 I feLl in love and began eating again. I not only was in love with my spouse, but now I loved to eat. I quickly gained weight and now at 32 I weigh over 210 lbs. I started having chronic abd pain and headaches in high school. My husband was always asking why I was always sick and I had no answer. I had neuropathy in my legs, migraines, and chronic pain with nausea and fatigue. My dad was diagnosed with CD over 2 years after his 3rd blood transfusion for chronic low blood count. I kept asking if that could be my problem, but no one every did the blood work. Then I ended up in the hospital in late October with vomiting and abd pain. There I met the doctor who gave me hope. He saw me while I was in the hospital for what was thought to be my gallbladder. He talked to my husband while I was asleep. He told my husband that even before he did the tests he was certain I had Celiac. My husband went on the web and behold all the symptoms were there clear as day. After a week the labs came back positive. My AgI was at over 121. My doctor said it was the highest he had ever seen. I have researched and tried to be aggressive about being gluten free. I am still sick alot and have not lost weight, but I cling to the hope that recovery will come with time and effort. Would like to know from those of you with CD how long it took you to feel better? I am feeling discouraged since my headaches are getting worse and I am having abd pain again and am so tired. It is tough on my husband who loves to stay active and is rarely ever sick. I guess I need some encouragement from some one who had been through this stage. Please comment. emoticon

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