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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
2/3/09 12:24 P

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Hey Ivory, It sounds like you need to get a 24 hour urine test for cortisol. You can not either fight or flight without an adrenal gland to act as your armory. You may have low energy complicating any efforts to do anything!
My best wishes to anyone fighting Candida yeast in the blood and/or low energy in the bean shaped organ, you know, just above the kidneys and other adrenal gland nodes throughout the body: known as hypoadrenia too; neither of these conditions are coded In the International Classification of diseases and MDs ignore true bad health conditions that the system ‘will not pay for’ for anyone!
emoticon www.adrenalfatigue.org

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
KAZZLE3's Photo KAZZLE3 Posts: 2,737
1/11/09 8:40 P

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Hi Melissa! It is so wonderful that you are letting your body be your guide to a healthier you. And that you are doing the hard work to figure it all out.

When I eat out I ask for the manager (unless it is a high end place with knowledgeable wait staff) and use the word allergy. Since I have started doing that I have not had too many reactions. I call ahead to new restaurants or when I travel to see if they can accommodate my allergies.

It is a life changing experience that can be frustrating. Best of luck!!


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VELMOOSE's Photo VELMOOSE Posts: 688
1/10/09 12:13 P

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Been there, done that. You'll soon get to a place where you'll think "is this bite of ??? really worth the way I'll feel later" and if you actually do have celiac, "the damage it will do to my body?"

Tammy (Vermont)

Oh, yes I CAN!


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IVORY1825's Photo IVORY1825 Posts: 7,669
1/10/09 12:08 P

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Disney was a blast, I met lots of chefs! The problems all came from our meals that weren't controlled by chef's and my mistakes!

No day but today ...
-Jonathan Larson - Rent

"You have to laught at yourself, because you'd cry your eyes out if you didn't"
Emily Saliers - Indigo Girls

~Melissa/Ivory

Co-Leader of Project Mayhem
www.sparkpeople.com/myspark/g
roups_individual.asp?gid=19990


Co-Leader of Living Healthy with Insulin Resistance/Low GI Diet
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roups_individual.asp?gid=2074


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FIRSTFERRET's Photo FIRSTFERRET Posts: 425
1/10/09 1:48 A

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Hi Melissa and welcome!

I hear Disney World is pretty dietary friendly from several folks so that's a great place to be, if you gotta travel somewhere. It's nice that you could get away and work on remaining as healthy as possible, it is quite a challenge I am learning.

Keep at it; the more challenges we face, the better we get at conquering them!

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"When you get to the end of your rope, tie a knot and hang on." - Franklin D. Roosevelt (1882-1945)


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VELMOOSE's Photo VELMOOSE Posts: 688
1/9/09 6:56 P

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Welcome Melissa!
I'm gluten intolerant and also have fibromyalgia. My fibro isn't yet under control, unless you call ignoring it control.
Disney World does a great job of providing gluten free options for guests. I had some of the best food on our last two trips. All you have to do is tell them you are gluten free and they take it from there. GF isn't available at every eating place but there are lots of choices.

Tammy (Vermont)

Oh, yes I CAN!


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ILLINITEACHER52 Posts: 7,256
1/9/09 5:16 P

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Welcome! Glad to hear that you have figured out how to feel better. That sure helps life to be more pleasant. I avoid wheat/gluten and dairy also. My whole outlook on life is brighter that way. emoticon

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PEACEGRANNY's Photo PEACEGRANNY Posts: 2,066
1/9/09 4:53 P

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Welcome to the team, Ivory! Glad to have you. I can relate to your story.

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IVORY1825's Photo IVORY1825 Posts: 7,669
1/9/09 4:38 P

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Hello all! My name is Melissa, and I am new to the gluten-free lifestyle. I am 26, and I live in Mass. I also have PCOS and am insulin-resistant, and have fibromyalgia. Now for the fun, storytime!

I started having digestive issues where I would feel really nauseous, but managed to not get sick and could feel food either sitting in my stomach or my system would be going crazy with gurgling and such. It happened the first time on a trip in Aug/Sept, and I figured that I hadn't made the best food choices and so wrote it off.

But then, it started to get more frequent, and I noticed that it was mainly happening on weekends. Now, due to the insulin resistance, I tended to eat mostly low-carb especially during the week, but on weekends would often get off my diet somewhat and have things like pizza. So, I started wondering if I was reacting to not having grains and then suddenly picking them up in large amounts.

Then the problem got worse to the point where I felt awful and lay on the floor one night not moving and my husband said I had to see a doctor. I went to the clinic at school (I work at UMass) and the doctor there suggested that digestive issues could be caused by stress and maybe I was lactose intolerant. He made a point of noting that I had fibromyalgia, even though I told him that it had been fully controlled for almost a year. I think he wrote me off. I took some of his advice, I decided to finish the week without wheat or dairy.

So after a week without wheat or dairy, I felt better, and I started eating butter and cheese, and I still felt fine, and I went out for dinner and got a meal that I thought would not have wheat, but it did have some cheese, and that night I was sick again. I called the restaurant and they informed me that the sauce was made with flour. I figured that was pretty good evidence for a wheat problem.

I had already known 3 people in my life with Celiac's and was familiar enough with it to quickly adopt a gluten free lifestyle. Then I went through a long process of trying to find a doctor that wouldn't write me off (actually, she's an NP). Unfortunately, she would prefer that I am seen by a GI specialist, which took a referral, and I now have an appointment ... for March! Apparently, if you aren't dying, you have to wait.

So, for Thanksgiving my family does Disney World, and we tried it gluten-free, more or less, however, I hadn't quite caught on to how little can make me sick, and I missed the blue cheese bit, and so I got sick three times that week, but was able to trace each one to a contamination-incident (apparently it is not cool to pick a biscuit off of eggs, hand it to your husband, then eat the eggs, yes, I know, newbie). I got more serious after that, and stuck out gluten-free pretty successfully through Christmas, including a short cruise!

As of Jan, I am being strictly gluten-free, and I'm also limiting my dairy because although it doesn't make me really sick, it makes me feel funky and off, and I think it may be irritating my damaged system, and I'm also going sugar-free because as someone with insulin-resistance, sugar is like poison to my body, and it doesn't need any more trouble right now.

So, I'm assuming that I am either intolerant or have Celiac's, although I'm not sure I will find out soon since I won't see a GI until after 3 months of gluten free, and I've read that tests can be inconclusive at that stage. But not being sick makes me very, very happy right now!

Wow, that was long, sorry! Shout-out to Kazzle, I saw this group on her page!

No day but today ...
-Jonathan Larson - Rent

"You have to laught at yourself, because you'd cry your eyes out if you didn't"
Emily Saliers - Indigo Girls

~Melissa/Ivory

Co-Leader of Project Mayhem
www.sparkpeople.com/myspark/g
roups_individual.asp?gid=19990


Co-Leader of Living Healthy with Insulin Resistance/Low GI Diet
www.sparkpeople.com/myspark/g
roups_individual.asp?gid=2074


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