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DOTSLADY's Photo DOTSLADY Posts: 10,024
11/27/08 11:24 A

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My DH sounds a lot like you (less the psoriasis part). Poor guys. I finally got him to check his vitamin D, and his level was below mine right after my diagnosis (he is blood test celiac negative, but his mom was a celiac)! He was also deficient in magnesium (hard to do on the "usual" blood test, so if it's low, it's LOW!) ... this coupled with high bp, overweight, erratic blood sugars ... he was ripe for a heart attack.

Consider having your doc do a vitamin D panel, with a breakdown of D2 and D3.

You can google around, but here're some mentionables about arthritis and vitamin d deficiency:
www.nzma.org.nz/journal/118-1225/172
7/


www.psoriasis.org/forum/showt
hread.php
?t=32504


As celiacs we have nutritional deficiencies which are not seriously addressed by the medical community UNLESS *we* pursue them. At least that has been my experience.

Keep taking care of yourself. Best wishes.

Edited by: DOTSLADY at: 11/27/2008 (11:42)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GOLDENANGELFISH's Photo GOLDENANGELFISH SparkPoints: (14,846)
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11/24/08 12:00 P

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Welcome Harry!
I am sorry to hear about your joint pain..
I was quite ill with celiac when I was first diagnosed...and going GF made some big improvements...but there were lingering issues that took me many months to heal. I believe the gut needed a long time to re balance itself

These things proved helpful over time:

home made kefir (This REALLY helped me heal - best thing I ever did...)
Primal Defense from Garden of Life was helpful (but the kefir was even better, once I found it)

There were other things - but right now I don't recall - because these were the best.

Also, since you are trying to lose weight, and to heal arthritis, you misght investigate this link:

www.johnsonupdaydowndaydiet.com/page
/1
eep9/Why_the_diet_works.html


It has helped people "heal" even rheumatoid arthritis in 31 days...and it helped me heal asthma in that time - but the asthma came back gradually when I went off the diet - so I am now trying to heal it again...I am on day 16 - so far so good...

It is also possible that the arthritis is being caused by a mineral or vitamin deficiency...

Cod liver oil (Garden of life brand - lemon flavored) and coconut oil have also helped people immensely with a host of ills...

I hope this helps...

Mary

Edited by: GOLDENANGELFISH at: 11/24/2008 (12:01)
Mary

PS To my old SP friends - It's been a very rough journey... My beloved, healthy, athletic, tall, dark and handsome husband died in August 2012 from a very aggressive cancer... In the many months caring for him I was stressed and didn't "care" anymore, and put back on 30 pounds I had just finished losing... And then I gained even more...

A short, but very sweet, video tribute to this beautiful man:
youtu.be/i2-_1IJdPww


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HARRYC2022 Posts: 44
11/24/08 10:04 A

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I didn't get vitamin levels tested but I am taking a GF multivitamin. I'm going for a follow up in Dec/Jan and I'll have that tested then. Most of my pain is joint pain in the hands, elbows and knees. I was diagnosed in error (I hope) with mild psoriatic arthritis before I found out Celiac was my problem. I also have an inflamed nerve in my foot and the pain there rises and falls with my other joint pain and inflammation.

Most of the pain is gone after I get going in the morning. It was taking 2 hours to 'get going' but now it's taking 20 minutes with the exception of the foot and one elbow which are still hurting today.

All of the pain was gone after 6 weeks on the diet. I'm fairly confident I got glutened this weekend based on my GI symptoms. We're going on a week long trip for Thanksgiving visiting relatives which should be riskier than normal.

I think the trigger was the birth of our youngest son. My wife was on bed rest for week and we have 2 older children. I was doing everything around the house and working for a while. I first noticed the joint pain when holding the baby.

I don't have brothers and sisters and my parents won't get tested but they don't have any symptoms.

Harry

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DOTSLADY's Photo DOTSLADY Posts: 10,024
11/22/08 11:44 P

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Welcome "New guy" :)

Can I ask what other tests your doc did after your diagnosis? Did he test your vitamin levels? My favorite subject this year has been vitamin D, and if he/she hasn't checked, maybe that could explain the pain, and the SAD, too btw BAM (try to not take drugs if you can avoid it - I think most people do. While it may help in the short run, it doesn't address the underlying reason. (You should have known me pre-CD dx while I lived in Alaska during the winter!!!!)

Bam is so right, exercise DOES help, and not exercising seizes me up (like when I'm at the computer too long ;0)).

emoticon emoticon Your wife gets a trophy AND a gold star.

I LOVE LOVE hearing about doctors who poo-poo the celiac idea (though my DH's did and DH was negative!) and then are positive.

And that's interesting how quickly you gained weight, too. Can you think of a trigger? and does anyone else in your family have symptoms, ie, mom, dad, bro, sis?

Edited by: DOTSLADY at: 11/22/2008 (23:48)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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KAZZLE3's Photo KAZZLE3 Posts: 2,737
11/22/08 10:12 P

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Modified Food Starch - it is an ingredient that many think is gluten free if from a US source. But I finally isolated that it was causing my problems and that I have a reaction to it, even when it is from a US source. But I am very sensitive.

Shampoo and health care products - another area to check the ingredients, but you probably have.

Contamination - My husband eats gluten and I do not have any problems, but I am a freak about preventing it from happening and use a separate counter for his bread/foods. I even change out the dish towels after cleaning up his dishes or counter.

Best of luck!!

Lieutenant Space Monkey
Project Mayhem


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GFNOMAD's Photo GFNOMAD Posts: 1,524
11/22/08 1:06 P

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Yuo are probably receiving cross contamination from the gluten in your home and from your children if they are eating gluten. There was a post on the Celiac listserve of how a grandmother was sick everytime her grandchildren visited even though she took care. I'm leaving on vacation so I don't have time to look it up. But I am sure this is a case of cross contamination. It is common that after we have gone gluten free we become more sensitive to gluten.
Barb (gf 27 yrs)

Been to Tombouctou and back! Truely! (Timbuktu in English) photos and more Travel Adventures at www.flickr.com/photos/cdnnomad/sets
Recognizing Celiac Disease www.recognizingceliacdisease.
com/21.html

10 Tests that could save your life www.50plus.com/health/10-tests-that-
could-save-your-life/1676/

Dr. Alejandro Junger - 'Healing the gut' (from Dr. Oz) www.doctoroz.com/videos/3-day-jumpst
art-cleanse


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BAMJ111's Photo BAMJ111 SparkPoints: (4,226)
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11/21/08 6:07 P

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i work for a Hospital, and we have warm water(90-92degrees) classes and tai chi, both those type of classes can help with aches. most YMCA's are cheaper to join and do offer some regular pool temp. classes(82degrees), and you could do that while your 7yr particiapates in something at the Y at the same time. the local libraries around us let you check out exercise videos for a week if you have a library card, you could see if there were any tai chi, slower pace yoga or slower pace pilates that also might help. once you find something that you like you could go out and buy a couple different tapes and switch off. you could try to work up to 6 days a week, and then take one day off. you can start with as little as 10mins a day, it's the consistancy that will help relieve the aches, of course if you haven't been exercising regularly check with your dr. and start off slow. the also have some videos on this site that you can check out too! Good Luck!

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HARRYC2022 Posts: 44
11/21/08 11:03 A

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My kids are 7 4 and 21 months so time is a premium. I have been walking outdoors 3 or 4 times a week but it's almost too cold for that. I don't want to spend the $ on the gym but maybe I should.

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BAMJ111's Photo BAMJ111 SparkPoints: (4,226)
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11/21/08 10:58 A

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that could be the problem if your very sensitive, i see that your only looking to lose a little weight,you didn't mention whether you were exercising or not. i'm an AEA & ACE Certified Exercise Instructor, there are some types of exercise that can help you not to feel so sore. i love exercising outdoors, and only go to the gym on the 2 days i teach, so when the weather gets colder my exercise cuts down.i know i should get to the gym more in the winter, but i have twins that are almost 4, a 2 1/2yr old, and a 1yr old, so getting to the gym is hard for me.

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HARRYC2022 Posts: 44
11/21/08 10:43 A

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I checked with the nutritionist at the Dr.'s office and my wife and I have been over everything we are doing. I don't think I'm getting contaminated. Unfortunately, my 20 month old probably has celiac also and he's scheduled for an endoscopy on Dec 4th. As he is eating gluten until then there is some around the house which adds a layer of complexity for avoiding it.

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BAMJ111's Photo BAMJ111 SparkPoints: (4,226)
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11/21/08 10:38 A

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first of all you may be eating some hidden gluten. i'm not sure where you live, but for me i, i live up North, and have Seasonal Affect Disorder, which can cause you to be more tired, and i know since i'm less active it can make you ache. have you been exercising at all? (if your not in one of the sunshine states you can research SAD and ask your dr. about it, light therapy can be done, and even low doses of some antidepressant can be take for the winter months to help with the seratonin level. i've used both in the past, right now i have one of my special lights by my computer and i also have one that i read by so that i can get my time under it in. just a thought, hang in there!...

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HARRYC2022 Posts: 44
11/21/08 9:34 A

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Hello,

After 18 months of 'mystery illness' that caused all of my joints to ache and my energy level to diminish visiting 8 doctors with no results, my wife read a book about celiac and told me to get a blood test. My doc said there was no way I could have that because I'd gained almost 30lbs in 18 months but he did it to 'make my wife happy'. I got a positive blood test and boipsy over the summer. I started the diet on August 6th. After about 6 weeks I felt back to my old self again and I was very happy. For the past month things have been going down hill. I'm sore again and tired all the time. My sleep is very light and I wake many times at night. My GI symptoms have never been very bad but they aren't normal now. I'm just trying to hang in here and hope the healing turns everything back in a positive direction.

Harry

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