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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
9/7/08 2:49 P

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Ruth...Thanks for posting! Do you happen to know what research your sister ran across that stated this? I don't at all doubt her veracity, but I like to gather original sources where I can, so that I can pass on the info to others. I'm not surprised by this. The foggy head, numb emotions, and weak muscles are the horror story of being poisoned by gluten!

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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CROTTY's Photo CROTTY Posts: 122,361
9/7/08 1:29 A

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Ruth, excellent post. I for one am glad your posted the article.

There Are No Accidents!
Tucson, Arizona
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Take time to laugh - it is the music of the soul.
-- From an old English prayer.


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9/7/08 12:54 A

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I was talking to my sister, who reads a lot about research on nutrition (her way to use her chemistry degree as a stay-at-home mom), etc., and she said that, when our guts are not completely healed, our bodies convert gluten into a morphine-like substance (which is also the reason why some of us get loopy headed on gluten), and because of the damage, it easily gets into our blood stream, so there is something to your feeling addicted to gluten. She also mentioned that, once we are healed, our bodies can expunge this substance and it will no longer affect us as strongly. I don't know if this is helpful, but I thought of you guys when it came up in conversation. emoticon

Ruth

Ruth



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DOTSLADY's Photo DOTSLADY Posts: 10,018
9/3/08 4:06 P

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emoticon

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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GOLDENANGELFISH's Photo GOLDENANGELFISH SparkPoints: (14,747)
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9/2/08 8:43 P

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Bravo!

You are doing so well!

Mary

Mary

PS To my old SP friends - It's been a very rough journey... My beloved, healthy, athletic, tall, dark and handsome husband died in August 2012 from a very aggressive cancer... In the many months caring for him I was stressed and didn't "care" anymore, and put back on 30 pounds I had just finished losing... And then I gained even more...

A short, but very sweet, video tribute to this beautiful man:
youtu.be/i2-_1IJdPww


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CROTTY's Photo CROTTY Posts: 122,361
9/2/08 6:25 P

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It sure was a victory for you. Thanks for sharing it with us.

There Are No Accidents!
Tucson, Arizona
co-leader of:
Living With Bipolar & Losing Weight and Disabled

Take time to laugh - it is the music of the soul.
-- From an old English prayer.


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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
9/2/08 5:47 P

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Wahoo for you! It's a victory to be proud of...you can do this!!! emoticon

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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GARDEN_TAMER's Photo GARDEN_TAMER Posts: 40
9/1/08 6:55 P

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Just wanted to post a quick update. We went to a picnic at my mother in laws today. This is a gluten mine field for me. She has all kinds of yummy temptations. I am so proud of myself that I remained GF! I ate a bit too much ice cream, but no cookies, bun, or anything else I shouldn't have. For me this was a victory! emoticon



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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
8/30/08 8:54 P

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You are so right to think in terms of a life change and doing things in baby steps rather than trying to do everything all at once. Each success, no matter how tiny, builds confidence and skills that enable us to tackle the next challenge and then the next until lo and behold, one day, we discover we've topped that last mountain and are on the downhill slope for home. I've been trying to drink my 8 glasses of water each day for about 4 months now, and it has made a big difference in my attitude and the ability to think differently about how, what, and when I eat. I was amazed at that. (I've always hated water!!) I'm trying to tackle eliminating refined sugars from my diet, and I am headed toward dealing with my dairy addiction too, (and thereby, my chocolate cravings!)but that one is going to be a much more gradual phase out sort of thing. Right now the things I'm focused on are the water, the sugar, and a consistent minimal amount of cardio-exercise 3 days a week. That doesn't sound like much, but for me, being able to be steadfast at those 3 is a huge victory. Don't be afraid to be "small". Remember the tortoise and the hare?? emoticon

Edited by: OUTOFIDEAS at: 8/30/2008 (20:52)
"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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GARDEN_TAMER's Photo GARDEN_TAMER Posts: 40
8/30/08 8:14 P

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wow, that is huge giving up chocolate! I just check to make sure it does not have hidden gluten. At this point for me it would be too much to tackle another issue. Does it make a big difference in how you feel getting rid of it? I'm trying to give up soda and that is rough. Baby steps, one day at a time changing my life for the better. I think it is more important for me to really change my life long term rather than using all will power because I changed too many things at once which just sets myself up for failure.



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CROTTY's Photo CROTTY Posts: 122,361
8/29/08 7:13 P

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I do find our fellow members a huge help! I would not have gotten as far as I have if they did not supply the encouragement.
I have given up chocolate, for almost a month. Why train myself to adjust to carob, just as easy to train myself to not eat chocolate.
I just have so many sensitivities to deal with, I do appreciate any change for the better. emoticon

There Are No Accidents!
Tucson, Arizona
co-leader of:
Living With Bipolar & Losing Weight and Disabled

Take time to laugh - it is the music of the soul.
-- From an old English prayer.


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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
8/29/08 5:55 P

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I hear you on the chocolate, CROTTY! I've learned that there are actually differences in the way people physically experience different tastes and smells. It's like a "talent" for music, art, math, or sports. Some people can tell no difference in carob and chocolate, for example...in mayonnaise and "Miracle Whip", tofu and dairy, Coke and Pepsi, and so on. I am one of the "unfortunate" individuals who can go into a restaurant, eat a new dish, and come home and reproduce it because I can taste the individual spices in it. It makes retraining the palate a bit more difficult...not impossible, mind...just harder. It can be done. I have kept reminding myself...and still do...of how much better I feel, and will feel, on a diet that is gluten free, devoid of refined sugars, and lower in fats. The example and encouragement of other Sparkers is a great help!!

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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CROTTY's Photo CROTTY Posts: 122,361
8/29/08 4:48 P

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I also do not feel a loss in eating, I can be satisfied without getting sick. I just wish I could have chocolate,carob doesn't cut it with me.

There Are No Accidents!
Tucson, Arizona
co-leader of:
Living With Bipolar & Losing Weight and Disabled

Take time to laugh - it is the music of the soul.
-- From an old English prayer.


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GARDEN_TAMER's Photo GARDEN_TAMER Posts: 40
8/29/08 10:05 A

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yes, having the mixes on hand does make a huge difference. I also love the brownies from Whole Foods. It is not good for my weight loss to eat a lot of that kind of thing, but it got me past the craving stage to substitute the GF kind.

I am feeling so much better- no more bloating, headaches, wheezing, etc. and I am past craving the gluten items. Now I am cutting back on the GF sweets and it is so much easier, it does not feel like deprivation. I am trying to be very careful not to have any accidents to have to go through that again!
emoticon



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GOLDENANGELFISH's Photo GOLDENANGELFISH SparkPoints: (14,747)
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8/29/08 9:42 A

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BRAVO!

And - about that chocolate cake - there are some fantastic chocolate cake mixes (GF) - Keep them on hand

make cake at home sometimes - then it is easier to pass it up when you need to. Really - I've become such a good GF cook that non-celiacs love my stuff...

And - I've noticed that if my son has had some really great treats - he doesn't feel forlorn when he has to pass up something at school. It 's like being GF Offensive instead of only Defensive.

I also used to use the chocolate cake mix and make an impromptu chocolate waffle - and sprinkle it with powdered sugar when any of us had an urge for chocolate cake - but there wasn't time, etc. to make one. I guess I used about 1/4 mix per waffle - maybe?

Mary



Mary

PS To my old SP friends - It's been a very rough journey... My beloved, healthy, athletic, tall, dark and handsome husband died in August 2012 from a very aggressive cancer... In the many months caring for him I was stressed and didn't "care" anymore, and put back on 30 pounds I had just finished losing... And then I gained even more...

A short, but very sweet, video tribute to this beautiful man:
youtu.be/i2-_1IJdPww


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DOTSLADY's Photo DOTSLADY Posts: 10,018
8/27/08 3:20 P

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emoticon news! Ditto what OUTOFIDEAS said, too.

I'm glad you came back with an update - please keep in touch and keep SPARKED!

KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
8/27/08 1:42 P

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Bravo to you! Your last sentence says it all: it is indeed a matter of learning to think in terms of what we "can" have! There's a whole world of good stuff out there that is far more healthy and nourishing and even tasty than the stuff that makes us sick! Here's to a revolution of healthy eating and living! emoticon

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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GARDEN_TAMER's Photo GARDEN_TAMER Posts: 40
8/27/08 1:12 P

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Thank you to everyone for the encouragement. I know that with Celiac I have to have a zero tolerance policy. I talked to the woman who runs the cafeteria here at work and she is going to help me by letting me know if things have gluten where I may not suspect (we have a very small cafeteria so she makes everything, and yes I will continue to ask).

I have been 100% GF since my post and I am feeling much better. I went to whole foods and stocked up on substitutes to get me though the craving phase. Yesterday I even went to a baby shower and passed up chocolate cake because I knew I had GF cookies at my desk. Just knowing I had something if I wanted it gave me the will power to walk away. I guess it was a matter of learning to look at what I can have/do rather than what I can not. emoticon



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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
8/26/08 5:09 P

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I agree, GOLDENANGEL...I have that cook book, and I use it a lot! Her recipe for the GF flour mixture is my standby!

"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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GOLDENANGELFISH's Photo GOLDENANGELFISH SparkPoints: (14,747)
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8/26/08 8:53 A

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Margie

Wow...love your post...

And if you need GF - I bet you'll love this book:

Gluten-Free-Baking
Delectable Delights by Rebecca Reilly

www.amazon.com/Gluten-Free-Baking-De
le
ctable-Including-Delights/dp/1416535R>993/ref=pd_bbs_1?ie=UTF8&s=books&qid
=1
219754877&sr=8-1


Mary

Edited by: GOLDENANGELFISH at: 8/26/2008 (08:52)
Mary

PS To my old SP friends - It's been a very rough journey... My beloved, healthy, athletic, tall, dark and handsome husband died in August 2012 from a very aggressive cancer... In the many months caring for him I was stressed and didn't "care" anymore, and put back on 30 pounds I had just finished losing... And then I gained even more...

A short, but very sweet, video tribute to this beautiful man:
youtu.be/i2-_1IJdPww


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MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,513
8/25/08 4:06 P

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OH YES GARDEN_TAMER, I do totally understand this craving. I learned to bake bread in a night class when I was just 18. We made and tasted 24 different loaves twice a week. I graduated from that class with 200 recipes. But I lost them along the way. My mother always made homemade bread from September to March and so did my grandmothers both maternal and paternal. I started to draft a sourdough bakery business BAYOU SOURDOUGH BAKING COMPANY by isolating the local bayou air borne yeast. All-the-world knows of San Francisco sourdough. In 2000 I was to start but postponed the project, lifestyle, and new business do to a low energy issue. It could not be explained away with just my hypothyroid issue. In my personal kitchen I was putting out 10 loaves per week!I also made cakes-cookies-pies-fudge! Oh the family and friends love it! My start of sourdough plus whole wheat or rye or oats or whatever came out marvelous. How was I to know I was a closet Celiac! It took 8 years of suffering and a doctor that did not realize my needs to get to this moment. My first Anti-Gliadin test results come back Aug 27th. My 50th birthday is coming up and I shall get Gluten Free Flours and other foods so my kitchen skills shall remain intact and so will I! emoticon
PS in America the latest is 1 in 133 people are celiac!

Edited by: MARGIE100%PURE at: 8/25/2008 (16:05)
The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
GOLDENANGELFISH's Photo GOLDENANGELFISH SparkPoints: (14,747)
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8/25/08 12:15 P

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Hi,

Yes - from what you describe - you need to be MUCH more vigilant...

At a cafeteria - I will only eat what I KNOW would be gluten free - but not what I might simply hope is gluten free...

The only time i ever felt an addict type reaction was when I did a one day gluten challenge after 2 weeks of gluten free. It brought back all of my symptoms - but I actually also got very "high" off the gluten. It was like being on a very fun drug. (not that I've done any chemicals to get high in the past 30 years - but that is what it was like!) It was like being very giddy, exuberant and drunk... -but it didn't make me want to eat more...

I used to have that addictive feeling with peanuts, however...once I started - I really couldn't stop. That has changed now - I can eat peanuts. Home made kefir has changed my other food sensitivities for the better- but NOT the celiac. Don't mess with it.

If you are celiac - be vigilant...

I would say that those of us who are celiac know we can allow no grey area. Gluten must be the dietary equivalent of rat poison. So if we are in a cafeteria and there is a possibility some of the food MIGHT have "rat poison" - then we don't eat it. Or - if we are not absolutely certain it does NOT contain rat poison - we don't eat it.

emoticon
Mary
GF for 7 years - no "try" about it - just do it if you need to do it...

Edited by: GOLDENANGELFISH at: 8/25/2008 (12:25)
Mary

PS To my old SP friends - It's been a very rough journey... My beloved, healthy, athletic, tall, dark and handsome husband died in August 2012 from a very aggressive cancer... In the many months caring for him I was stressed and didn't "care" anymore, and put back on 30 pounds I had just finished losing... And then I gained even more...

A short, but very sweet, video tribute to this beautiful man:
youtu.be/i2-_1IJdPww


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DOTSLADY's Photo DOTSLADY Posts: 10,018
8/24/08 11:31 P

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Is is really a feeling of deprivation behind it maybe?

I can relate to WANTING to dive into a loaf of whole grain European toasted buttered bread with wild abandon ... in my dreams. That's about as far as I take it. If you haven't already, consider reading books by Kathleen DesMaisons - it could be you might need to balance hormones and/or blood glucose? There's also a book on this link from a Kathleen O'Bannon that looks interesting and along similar lines: tinyurl.com/4ccb34

-or-

The Carbohydrate Addict's Diet: tinyurl.com/45fcjn

Gluten is wrapped in carbs and a lot of carbs turn to sugar... food for thought? I wish you well my friend. It ain't easy.


Breezy - I hadn't heard of that doctor - thanks for sharing info. tinyurl.com/3n9q6b


Edited by: DOTSLADY at: 8/24/2008 (23:31)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
__________
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
Nutrition/Cancer: bit.ly/Quillinnutrition


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CHICOYAYA's Photo CHICOYAYA Posts: 165
8/24/08 12:48 P

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I don't know that I am qualified to speak to this because I have been fairly successful in avoiding gluten everywhere I go by being hyper-careful and borderline annoying in asking "can you tell me what is in this?" no matter where I am eating.
The other thing that has made a huge difference is totally eliminating every bit of gluten from my home (with the exception of a loaf of store-bought bread kept in the freezer for DH who likes toasted cheese sandwiches on occasion.) And when we go for a cup of coffee, I take a little baggie with a couple of GF cookies so I don't fall into that self-pity "just this once" trap when I see all those pastries that spell "P-O-I-S-O-N" to me.
I have to think that OUTOFIDEAS may have something there with understanding the difference between Wheat Allergy Gluten Intolerance Celiac Disease. They each have their unique differences and how our bodies react. Even within GI and CD, the symptoms can differ greatly from person to person.
(Edited to note that the symbols above are supposed to be "does not equal" signs, but somehow they don't translate on the post.)

Edited by: CHICOYAYA at: 8/24/2008 (12:47)
~Deborah
Living out Hebrews 10:24-25

Diagnosed Gluten and Casein Intolerant 4/18/08.


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BREEZYLEO's Photo BREEZYLEO SparkPoints: (0)
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8/24/08 11:59 A

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I can understand what you are saying, I have the same issues with gluten and sugar. Theron Randolph wrote about the phenomenon of an addiction really being our attempt to desensitise ourselves to an allergen.

As to how to avoid the problem, be more vigilant about your food, and once you know you have been exposed just deal rather then eat more? Would that work, and yes, I know easier said then done.

"Courage is resistance to fear, mastery of fear - not absence of fear" Mark Twain

"As we are liberated from our own fear, our presence automatically liberates others" Marianne Williamson


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OUTOFIDEAS's Photo OUTOFIDEAS Posts: 407
8/24/08 11:49 A

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I can't say that I've experienced this, GARDEN...but I do have a problem with sugar and dairy that impacts me the way you are describing. It is a little touted fact of medicine that we frequently crave things that we are "allergic" to, like milk, chocolate, etc. Do you know for sure whether you have a wheat allergy or whether you have Celiac? They are different creatures, though both require eliminating gluten from the diet. I can't think that you would be able to ingest gluten in the way you describe if you are truly Celiac, but an allergy "might" make it possible. Anyone else out there have any thoughts on this?

And thanks, ILLINI...just read your post.

Edited by: OUTOFIDEAS at: 8/24/2008 (12:16)
"Truth, and therefore, success, is generally found at the balance point between two opposing tensions." (D. L Veach, writer and artist)


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ILLINITEACHER52 Posts: 7,256
8/24/08 11:46 A

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Yes, I think that having gluten can set off cravings that are difficult to deal with, making it hard to get back on track. If these are happening without your knowledge (hidden in foods) please be patient with yourself. You already know how destructive it can be, so you aren't doing it on purpose. Learn from it and write down what you think set it off, how you will avoid it in the future and what helped you get back on track - in other words, have a "game plan" in case it happens in the future. That way you won't feel so out of control. (I am not a nice person to be around when I have gluten in my system so that is motivation in itself to be careful.) Have some rice or artichoke pasta on hand for those times when you are craving pasta. If you have appropriate substitutes ready, it is a little easier. I wish you the best. This is definitely a journey, not a destination.

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GARDEN_TAMER's Photo GARDEN_TAMER Posts: 40
8/24/08 11:38 A

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Does anyone else feel like they are addicted to gluten? I have been struggling to avoid gluten for a year and a half. It does terrible things to me - digestive pain, migraines, asthma attacks, rashes, emotional issues, weight gain etc. When I am successful at avoiding it I feel so much more energetic and better, even more optimistic about life. Then it is normally a small slip where I don't realize that something has gluten in it (cafeteria or friend's house) and it starts a downward spiral where the next thing I know I am eating bread and pasta like a maniac until I am so sick I stop. After binging I wake up feeling like I have a hang over and hate myself because I have done it again. Does this happen to anyone else? How can I stop this self destructive cycle? I have a vitamin deficiency so I know I am hurting myself I just can't stop.



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