Posts: 407
5/6/08 6:02 P

I first had a "suspicious" biopsy which my doctor ran due to esophageal erosion and spasming, and then, negative bloodwork, because I'd already begun to go gluten free and had to make myself sick all over again to get positive bloodwork. Meanwhile, I'd had nearly all the symptoms mentioned on this forum for years and had been diagnosed with IBS, multiple environmental allergies, Asthma, Arthritis, Hypothyroidism, CFIDS, (Chronic Fatigue and Immune Deficiency Syndrome)Fibromyalgia, Osteoporoesis, neurological impairment, major depression, (BIG SURPRISE!!) and 2 detached retinas with autoimmune complications before any doctor ever thought to look for Celiac. And then, it was only because my younger sister was diagnosed, and her doctor told her that her siblings should undergo testing as well!! (Forgot the skin rashes and mouthfulls of ulcers for years on end.) I could go on, but I think you get the picture. Don't know if this is any help...hope so. Check out some of the other forums on the team postings...and DOTSLADY's blog...

current weight: 166.0

193 176.75 160.5 144.25

128

SparkPoints: (4,190)
Fitness Minutes: (3,637)
Posts: 729
5/6/08 5:36 P

yeah I know, but I already know this stuff, Im more curious on what others have been told that have been in more of my situation I suppose. Sorry I didnt make that clear! Didnt mean to confuse!

current weight: 172.8

172.8 165.85 158.9 151.95

145

Posts: 407
5/6/08 5:27 P

Adriana, in case you haven't already checked out the forum GFNOMAD steered you to, you have to scroll down a little over half way on the page to actually get to the relevant info on biopsies. The rest of the discussion above that is good to know though if you are seeking a diagnosis.

current weight: 166.0

193 176.75 160.5 144.25

128

SparkPoints: (4,190)
Fitness Minutes: (3,637)
Posts: 729
5/6/08 4:18 P

thankyou very much

current weight: 172.8

172.8 165.85 158.9 151.95

145

Posts: 1,442
5/6/08 4:14 P

Adrianna, it is very confusing. We have a discussion on this in the team topics. Rather than repeat it here, I refer you to that topic as it has links and an extensive explanation between the variations exhibiting by celiacs and gluten intolerance. All have to avoid gluten.
Barb www.sparkpeople.com/myspark/team_messagebo
ard_thread.asp?board=-1x948x11900810

Also read the gluten primer at:
www.glutensensitivity.net

current weight: 144.5

151 144.5 138 131.5

125

SparkPoints: (4,190)
Fitness Minutes: (3,637)
Posts: 729
5/6/08 3:52 P

I was wondering if someoone could shed some light for me. I have had all positive blood tests slight to highly abnormal but biopsies negative. Ive read alot that blood tests are enough but biopsies seem to be much more accurate (this is my thinking) at detecting the celiac issue. So My question is has anyone had a negative biopsy but positive blood test and thier doctor said they still have celiac? Im concerned mainly because I eat gluten/wheat alot I shouldnt if I had celiac. Anything greatly appreciated!

current weight: 172.8

172.8 165.85 158.9 151.95

145