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Did you have brain surgery for the epilepsy? Why did you go gluten-free, not just wheat free or something? Were you ever tested (can't remember your original post) for celiac before going gf/dairy free?
Your gut might have healed, but if you're truly a celiac, then this might simply be a honeymoon period. Symptoms will/might creep in as time goes on. The only way to tell now might be to stay eating gluten for a long while and get tested. Even then it could be negative ... you're kinda between a rock and a hard spot on this one.
There are studies gf helps with epilepsy as well. Maybe you already knew that, and that's why you went gf?
Here's a google search for "gluten epilepsy":
and another for "celiac epilepsy":
Maybe there's more info there to resonate with your circumstances.
Edited by: DOTSLADY at: 3/10/2008 (21:46)
KNOWLEDGE = POWER. BODY = TEMPLE. FOOD = MEDICINE. PREVENTION IS THE CURE. YOU ARE WHAT YOU ABSORB!
One person's food is another person's poison.
Celiac Disease: An autoimmune reaction from eating gluten grains: wheat, rye, barley and contaminated oats=nutrient deficiency=cancer. Have 1 of 300 symptoms? bit.ly/cdsymptoms
CD stories: bit.ly/cdstories
It is important to understand that celiac disease manifests itself in different forms for different people. So your symptoms will not be the same as my child's. As the awareness of Celiac grows so is testing. People are being diagnosed with out ever suffering symptoms.
IBS is a symptom. If you have Celiac and continue to take in even small or tiny quantities you are causing damage to your body and health. Please be tested.
I copied the following from celiac.org
Celiac Disease Symptoms
Celiac Disease may appear at any time in a person's life. The disease can be triggered for the first time after surgery, viral infection, severe emotional stress, pregnancy or childbirth. CD is a multi-system, multi-symptom disorder. Celiac Disease symptoms are extremely varied, can often mimic other bowel disorders and are not always gastrointestinal.
Symptoms of Celiac Disease May Include One or More of the Following:
Recurring bloating, gas, or abdominal pain
Chronic diarrhea or constipation or both
Unexplained weight loss or weight gain
Pale, foul-smelling stool
Bone or joint pain
Vitamin K Deficiency
Fatigue, weakness or lack of energy
Delayed growth or onset of puberty
Failure to thrive (in infants)
Missed menstrual periods
Infertility male & female
Canker sores inside the mouth
Tooth discoloration or loss of enamel
Have You or a Family Member Been Diagnosed With the Following?
Type 1 Diabetes
Chronic Fatigue Syndrome
In the Service of the King.
I don't have a clue, since I'm also wondering about myself--but I plan to follow this thread closely as others "weigh in." :) Linda C
"Food is essential to life; Therefore, make it good."
--S. Truett Cathy (Chick-Fil-A)
Come on 5%!!!!!
Member Since Nov 06!
Since I had brain surgery about 5 years ago I developed a very sensitive stomach and for awhile had to avoid all gluten and milk products. Then I found Digestive Advantage for IBS and now I can eat the gluten again! I still have problems with bloating and have wondered if I really did have celiac disease but did not have any other side effects except the stomach problems. Anyone care to shed some light for me? Thanks!
Dance as though no one is watching you, love as though you have never been hurt, sing as though no one can hear you and live as though heaven is on earth.