0
 
Author: Sorting Last Post on Top ↓ Message:
AHAPPYLIFE's Photo AHAPPYLIFE SparkPoints: (100,692)
Fitness Minutes: (91,362)
Posts: 5,463
1/1/14 3:21 P

My SparkPage
Send Private Message
Reply
I have never been tested but after removing grains from my diet, I feel so much better physically & mentally. Over the holidays, I let loose & ate what ever I wanted. Now I feel horrible again so I'm back on the whole foods without grains & sugars!

** Melissa **
....................Alaska

Be careful when you pass judgement on another. Life teaches us lessons in harsh ways when we are mean to others.

www.fitbit.com/user/265JV9


 Pounds lost: 29.4 
 
0
23.5
47
70.5
94
GRANNYOF08 Posts: 8
11/17/13 12:41 A

My SparkPage
Send Private Message
Reply
If you would watch some of these... maybe it would help in your decision..http://theglutensummit.com.order
This is really great...if you haven't been watching you can watch today's presentations yet until 9 a.m. tomorrow (Sunday) then Sunday's start at 9:00 a.m. Free - then after the introduction you will need to purchase it... CHECK IT OUT... This is not just for Celiacs or those who are gluten sensitive but EVERYONE can work towards better health by following some of these doctors advice... Top researchers in the world.... ENJOY -


CHRONICWRITER's Photo CHRONICWRITER SparkPoints: (1,171)
Fitness Minutes: (431)
Posts: 2
8/1/13 1:11 A

Send Private Message
Reply
I have Chronic Fatigue Syndrome. I've been told that many of my symptoms will be reduced if I go gluten free. I'm side-eyeing this hard. I did some research on the internet, and discovered that -- like so much involving CFS -- some are helped by going gluten free and others aren't.

I'm gearing up to go gluten free for two weeks, then add gluten back into my diet and see what happens. If I notice a significant improvement I'll stay gluten free. If not, forget it!

RHAPSODY43's Photo RHAPSODY43 Posts: 47
6/16/13 12:27 A

My SparkPage
Send Private Message
Reply
I recently had the blood test for Celiac AB and the result was negative (I will have to look again to see if there was an actual number provided). I know how wheat and gluten make me feel, including corn. I also know how much better I feel when I eliminate these from my diet. Regardless of what the blood test shows I am going to stick with wheat/gluten free for overall wellness and continued ability to function throughout the day, less bloating, better sleep, etc.

It will not be easy, but it WILL be worth it!


 current weight: 211.0 
 
216
212
208
204
200
SHERYLINIOWA's Photo SHERYLINIOWA Posts: 21
1/15/13 2:14 P

My SparkPage
Send Private Message
Reply
I was diagnosed in mid December by my primary care giver after asking (demanding) for the blood test. My Primary said that an endoscopy is a waste of time and money because my blood test came back positive, and because one of the reasons she agreed to test me is because I am so incredibly anemic. Three months after iron infusions my levels were dangerously low again. She said even if they didn't find damage to the villi, the prescription would still be the same gluten free diet.

Fortunately (or unfortunately) I am "asymptomatic" and don't have any immediate issues from eating gluten, so it will be hard for me to know if I'm eating "hidden" gluten in food. I've been gluten free for two weeks now and so far, I'm not feeling any difference. I've lost three pounds, but I'm also on a low calorie diet and exercising more. My arthritis hasn't gotten any better and I don't have any more energy. I just started taking my vitamins again, today, as they say it takes two weeks for the villi to start healing and it didn't do me any good to take them before that, because I couldn't absorb.

I don't think I'm getting any hidden gluten as I've only eaten at home and we've been diligent about reading every label and mostly just eating meat, potatoes, fruits and veggies.

I'm hoping I start feeling a difference in the next couple of weeks, though I know I'm gluten free, for life, regardless of how I feel...

 current weight: 294.0 
 
330
285
240
195
150
SWEETLUCRETIA SparkPoints: (1,245)
Fitness Minutes: (120)
Posts: 6
12/28/12 5:37 P

Send Private Message
Reply
I've had IBS-D for basically my whole life, but a couple of years ago I went on the South Beach Diet and it really cleared up. After getting off the diet, I stayed well for about a year, but in the last few months I have been really sick. It's funny how you can be okay with something for years, but if you are free of it and then it comes back, suddenly it's intolerable! My grandma and aunt are celiac, but I've always tested negative. However, while investigating IBS diets, I read that gluten-free can be helpful. Then I read "Life After Bread", and the symptom list and related conditions for gluten sensitivity/celiac read like the story of my life. And my sister's, and my mom's, and my nephew's...

Anyway, I decided to give it a try, and now I'm 13 days in. Yesterday I had some bread to see what would happen, and today I feel like I've been run over. But then, I also had that piece of GF cheesecake...

It's really hard to know what's causing the symptoms, but I figure gluten is a reasonable culprit. I've not been completely better, but certainly improved with out it. Or maybe it's sucrose or lactose or not enough fiber or something else. I'm staying off the gluten for now, though.

 Pounds lost: 36.0 
 
0
39.25
78.5
117.75
157
MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
10/26/12 2:51 P

My SparkPage
Send Private Message
Reply
Good Nights’ Rest?

Do you have a form of this tired state? Adrenal fatigue is the inability to recover from tiredness through a strong enough pattern of good nights’ rest. It starts acute then goes continuous then permanent. Toxins sit instead of flushing out of the tissues and the blood due to this lack of sleep. The body becomes weakened. Discomfort and infections are more prevalent and food intolerance and signs of true allergies is manifested in deep and deeper proportions as the worsening condition progresses. This leads to malnutrition and permanent issues you really do not want. A trait of food intolerance may be recoverable when the stresses are pointed out and the steps to find; change; avoid; and then prevent can turn things around. Get help- take the steps to reduce your own stress before it gets too late.

The gluten free thing is mine for life because my doc failed to treat things in a timely manner and actually dismissed me and my file in a certified letter then shredded all 12 years of my records in her possession. I then went to a nutritional specialist and naturopathic assistance to help me get back to some semblance of where pain is not a daily thing. The style of care in the MD system is not equipped for this self re-training and minute detail handling now. Averages and general numbers to discover disease states is different from moving an individual’s laboratory test score numbers to fit better whole body care and comfort. And both types of doctors allopathic and orthomolecular are needed to pull out of a destructive habit.

The facts are real. If doctor’s laboratory testing beyond the basic blood panel could help expose these wider ranges of imbalance then ‘seeing is believing’ and future testing has a basis for showing contrasting and comparing these good and bad changes to the baseline measurements. Make the effort to understand lab tests and keep records for your own set.
Unless you are whole well then whole care does not get covered by insurance practices.

The allopathic care system does not look for hidden Candida, early food intolerance; slight hormone imbalance or adrenal fatigue until the symptoms are painful and/or extreme. Natural balance requires a natural whole body approach before permanent ouch is part of the rest of your life.

This is where getting ahead means keeping your head.



emoticon

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
NAVYGAZER SparkPoints: (5,713)
Fitness Minutes: (6,287)
Posts: 2
10/18/12 1:15 A

My SparkPage
Send Private Message
Reply
Hi everyone! I have so enjoyed reading everyone's comments, and I figured I would share my experience. I had a friend who found out she was intolerant while we were in college. I was with her every step of the way, but never figured it would happen to me. We kept in touch after college, though, because I am in the Navy, we rarely actually got to see each other. When we did see each other after two years, she was shocked at how "bad" I looked and all of the medical problems I was living with every day: severe migraines that even got so bad they affected my sight, severe constipation, nightmares and inability to sleep, and a myriad of other smaller problems (lack of energy, etc.). She suggested that I was probably allergic to something, and said I should just stop eating gluten, as it is a pretty common allergy. I agreed to stop for two weeks and keep her informed, and within 2 days I felt night and day better. I was sleeping through the night, had tons more energy, and felt like the clouds had parted. I hadn't even realized how bad I had been feeling or how bad shape my body was in. Shortly after, I went in to see my doctor, who said that he advised against doing any blood work or anything: apparently the only diagnosed case he had seen of Celiac in his time had disqualified the person from flying (though this person had lots of other problems like IBS which also factored in). He said if I felt better, stop eating it and assume I at LEAST have intolerance. Since then, my reactions have been so violent when I do eat it accidentally (or, in the beginning, on purpose because I wasnt exercising self control), that I have come to believe that it is not just intolerance, but actually Celiac. I also think that my family must have it, as my mother has CRAZY migraines, and my brother is autistic (which could potentially be larger affected by a gluten allergy). Sadly, they will not try going GF; in fact, the whole family was rather unsupportive and tried to convince me I am crazy. At least my husband has come around, as he sees how sick I truly get when I eat it. I have been GF for about a year and a half now, and I still struggle every day with feeling upset or sad by all of the things I cannot eat. After reading your very informative posts, I think I really need to increase my protein intake, because I am also only barely getting the minimum spark recommends for me, on a GOOD day. I appreciate all of the suggestions and everyone sharing their stories and experiences: it has really helped me to feel like others are going through and understand the same things I am going through. It is crazy the similarities between all of our stories and situations. Thank you all for being there, and for sharing your thoughts!

 current weight: 164.6 
 
177
167.75
158.5
149.25
140
TURTLEWINSRACE's Photo TURTLEWINSRACE SparkPoints: (12,470)
Fitness Minutes: (3,487)
Posts: 40
9/29/12 6:31 P

My SparkPage
Send Private Message
Reply
Thank you for the advice.

I had the blood test done and I was scheduled for an endoscopy/intestinal biopsy, but that was canceled due to Hurricane Isaac. I did not reschedule. The blood work was negative, but I have not seen the results to see what kind of numbers I had. They were in a big hurry calling lots of people to cancel due to the storm and I got hung up on before I could ask any questions or ask them to mail me a copy of the lab results.

I am debating calling the allergist, but at this point I'm just not sure if I care. We lost power and I was eating a lot of food with wheat in it because most shelf-stable food seems to be wheat-based. An MRE I ate had a giant cracker and a pouch of pasta. I ended up needing my albuterol after that meal.

My health insurance changed a little on 9/1. I had met my annual deductible and OOP costs for the calendar year, but then they upped the maximum amount and now I'd owe another $250 deductible and up to $500 OOP costs if I have any medical tests. If I wait until 1/1 it starts over with a $500 deductible and up to $3000 OOP costs, so if I'm going to see the allergist I really should do it within the next three months.

 Pounds lost: 9.5 
 
0
2.375
4.75
7.125
9.5
JSIMMON1 Posts: 142
9/24/12 9:26 A

My SparkPage
Send Private Message
Reply
Maybe it's my dislike of most of the medical system these days with the current trend of look for a disease and prescribe something for life without trying other routes or maybe it's common sense. Why be worried about getting a diagnosis of Celiac or Gluten Sensitivity/Intolerance? To me it's pretty simple - if you think gluten may be an issue, try gluten free for a week or two and when you cheat (and most of us will) - see how you feel. If the gluten has a fairly significant negative effect, why eat it? Is a few seconds of taste worth hours of misery? There are so many wonderful foods you can eat. Challenge yourself to try them. I tried the gluten free cauliflower pizza crust before I even thought I had an issue - it's great as long as you get most of the moisture out of the cauliflower.

I never thought that I had a gluten issue, but kind of by accident, I think that I'm finding that I do. I heard about the 17 day diet and decided to give it a try. The first 17 days are basically fruit, low/med carb vegetables, yogurt, poultry and fish. By the third day I felt wonderful - so much more energy and this was one diet that didn't leave me thinking about all the food I couldn't have - I just wasn't that hungry.

However, since I manage the concession stand for our high school and they serve the usual stuff - pizza, nacho's, hot dogs.... I did end up eating a slice of pizza on day 15 and really didn't feel well after. I didn't think much of it though and on day 19 had some Chicken Alfredo Pasta with my daughter. Immediately I feel fuzzy headed, tired, and very uncomfortably full.

I'm still not 100% sure but for the time being I'm going to be gluten free.

BTW my understanding is that by the time they're able to diagnose Celiac you've done quite a bit of damage to your body. So to me the importance of a diagnosis is minimized. As for friends, just be honest. Explain that when you eat gluten containing foods you get sick and there is gluten hidden in so many foods you just have to be careful when you eat out.

 August Minutes: 904
 
0
250
500
750
1000
MARILYIGO's Photo MARILYIGO Posts: 34
8/14/12 2:01 P

My SparkPage
Send Private Message
Reply
Update and Encouragement: I MUST report that in 14 days I have lost about 7 pounds AND my painful arthritic knees are much relieved, even during sleep at night! I have been reading Wheat Belly by Dr. William Davis and it is EYE-POPPIN' stuff. I've done nothing but eliminate wheat products from my diet while I have been getting an education from his book. So, that means nothing that's made of wheat has gone past my lips. However, I have still eaten rice, potatoes, corn, popcorn, beans, ice cream, butter, bacon, and bananas. So, now I'm at the part of the book where it says to cut back or eliminate even some of these foods because of their high glycemic index values and how they spike your blood sugar. Makes sense, but I find it interesting that I have still lost weight and felt significant relief from pain and inflammation just by eliminating the wheat. The dr. recommends NOT indulging in GF product replacements because of the carbohydrate factor. I have just stopped all wheat and I'm so encouraged. Got the tip for the book from this site! YEA SP!! The journey continues...

Hope is something you give yourself.


 current weight: 181.0 
 
181
168.25
155.5
142.75
130
SAMSEE's Photo SAMSEE Posts: 61
8/13/12 2:19 P

My SparkPage
Send Private Message
Reply
It is my understanding that the gastro doctor is usually the one who will be able to diagnose celiac disease or gluten intolerance. From what I have read in books and on the internet, there are several blood tests they can try with some being more likely accurate. If there is an indication from the blood test, then they will do the endoscopy. Because they need to see the damage done by gluten, you have to be eating gluten at the time of testing...in fact, one book suggested a month for the tests to be accurate.

I personally did not receive a diagnosis. The blood test looked fine but I decided to go gluten free prior to receiving the results. I feel that if my body functions better without gluten, then it doesn't matter what the tests show.

Good Luck!

 Pounds lost: 0.0 
 
0
4.5
9
13.5
18
MARGIE100%PURE's Photo MARGIE100%PURE Posts: 1,514
8/13/12 10:29 A

My SparkPage
Send Private Message
Reply
Welcome Newbies, you are in for a treat. May I suggest you review the past threads of this for lasting information about blood testing gut biopsies books that have helped us and healing the overwhelming feelings that sting? I have been g-f since 2008. This team has helped me find facts and get out of the abyss of evil feelings. I am categorized as just intolerant but the healing both physical and emotional is real.

The greatest love story is your own.
If you miss out of life to the fullest; they win.
You are the happiness master of your own mind.
Thought is an active dynamic energy to harmonize and corrolate good.
Clear all paths to love thru forgiveness.
I may not recognize the significance until some time later.
Is my resistance to change really that strong?
Impatience does not provide the time to learn the lesson;
Awaken new ways to approach the dissolving of a problem;
TURTLEWINSRACE's Photo TURTLEWINSRACE SparkPoints: (12,470)
Fitness Minutes: (3,487)
Posts: 40
8/11/12 11:54 A

My SparkPage
Send Private Message
Reply
Hi....I have a question about getting diagnosed that I'm hoping someone might be able to help me with. I have an appointment with a gastro doctor on Thursday. I know almost for certain that I have a problem with wheat and/or gluten. What I do not know is if it's an allergy, intolerance, or celiac.

Would the gastro be able to test for wheat allergy with a blood test, or do I need to make an appointment with an allergist also? Or does this depend on the individual doctor?

I am a teacher and starting back to work this week; I really am trying to limit how many times I go to the doctor, especially at the beginning of the school year! However, I know it's very important to have an official diagnosis so I know what I'm dealing with.

My PCP told me to go gluten-free earlier this summer; my symptoms pretty much went away. Now that the gastro receptionist told me to go back on wheat about a week ago, they're all coming back.

Thank you for any help. I don't know anybody in real life who deals with this, so I'm feeling quite lost and overwhelmed with it all.

 Pounds lost: 9.5 
 
0
2.375
4.75
7.125
9.5
SUNNYBEACHGIRL's Photo SUNNYBEACHGIRL Posts: 2,174
8/6/12 2:47 A

My SparkPage
Send Private Message
Reply
Celiac disease is life threatening. The villi of your small intestines are damaged every time you eat gluten which means that you absorb fewer and fewer of the vitamins and nutrients you need to live. The only way to know if you have it is a blood test and a biopsy. Going gluten free has become easier since many of the major food producers (kraft) have removed unnecessary gluten from their products and the labeling is much better. You might even qualify for tax deductions on your food. Check out Celiac.com and other web sites referenced in one of the threads.

Sunny in Southern California PST

Challenges are what make life full of stress and anxiety and overcoming them is what can wear you out. Stay stong.

Don't stay down, every storm runs out of rain.

Team leader for 50+ members with 10-24 pounds to lose Team


 current weight: 3.0  over
 
5
2.5
0
-2.5
-5
MARILYIGO's Photo MARILYIGO Posts: 34
8/5/12 6:12 P

My SparkPage
Send Private Message
Reply
NIIX27, I am with you: trying elimination process to see if problems clear up. Symptoms you describe are ones I have in common with you, and which I've read about from different online searches I've done. I am 57 though, and I was diagnosed with hypothyroid condition about 15 years ago. Then in 2004 I was diagnosed as having GERD, and in 2005 I had my gall bladder removed after having an infection and stones. Then I was diagnosed with osteoarthritis in 2006 and my knees are in "bone on bone" condition which is very painful and limits my daily activities and exercise. This has drastically changed my life. I believe that my progression of diagnosis is a "pathology" that has gone unrecognized...and all this is connected. And on top of it all...I gained 20 pounds after I had my first child at age 27. Then I have gained another 20 pounds after I had my second child at age 39. I have also been found to be anemic at times, during menopausal years and beyond. Not every test shows that, so it's not a chronic condition. However, I have also been found to have Vit D deficiency and B12 deficiency, even though I take a Rx for Vit D each week and get regular B12 shots. All my life, I've had episodes or periods of time when my bowel movements were bothersome...fluctuating between constipation and diarrea. But in the last year or so, it's really become troublesome and embarrassing.

I've tried every kind of diet and every method to lose weight, with very minimal success. The best results I ever had was doing the Atkins diet, in which I eliminated refined carbs and processed foods and sugar. (At that time, I had some personal crisis in my life and gave up that plan, and that is a problem for me too.) I've also learned that I must count calories to lose weight and yet, it's a very slow process for me and I always give up before any significant loss. I think Atkins was probably the closest I've ever come to being "gluten free" but didn't know about "gluten intolerance" or "celiac disease" at that time. I credited the lack of carbs for that diet's success. Now, I wonder if it was more the "gluten free" aspect of how I was eating that made the difference. Sorry to be writing such a long message, but I feel there's nowhere to turn and wonder if anyone can relate. I've been reading a few posts here on SP and I think I am like a few out there: I'd prefer to simply avoid wheat products altogether rather than try to replace with GF alternatives. It's cheaper, definitely. I think an occasional spaghetti dinner with GF pasta might be an exception, and I miss toast with my coffee in the morning. But right now...I am highly motivated to get to the bottom of my symptoms and to lose the weight. Too much at stake in life....

Thanks for reading....Terry

Hope is something you give yourself.


 current weight: 181.0 
 
181
168.25
155.5
142.75
130
NIIX27's Photo NIIX27 SparkPoints: (298)
Fitness Minutes: (390)
Posts: 12
8/4/12 12:47 P

My SparkPage
Send Private Message
Reply
Hey :) I am new here and just recently started to explore the idea I may be Celiacs or GLuten Intolerant. In highschool I was a vegetarian that hated vegetables lol so I replaced meat with bread..mostly white bread. I had years of stomach issues including all of a sudden having to go to the bathroom and not being able to hold it. We thought it was a chocolate or chicken allergy because I ate both alot. But I eliminated them and still had issues. I stared dieting around 3 yeas ago which by accident cut down on my gluten intake because of the high calories in most breads, pastas etc. My cases of bathroom problems have decreased exponentially. But I still suffer from bathroom issues just not as frequently, I also have joint aches, migraines, depression, teeth issues, bloating, irregular periods and NO energy. I am constantly hungry and never feel full and when I crave food its usually bready type things. I have tried tons of different things vitamins, diet plans, cutting out meat/dairy etc. nothing has worked. then someone said gluten intolerance. The more I read the more I think it could be it. I am not a dr person at all so I dont' want to go get tested but I am going to try elimination and see if this could be my issue. Does this sound like gluten to you guys???

 Pounds lost: 59.0 
 
0
24
48
72
96
HISARTIST's Photo HISARTIST SparkPoints: (104,675)
Fitness Minutes: (145,133)
Posts: 4,032
10/31/11 9:45 A

My SparkPage
Send Private Message
Reply
Thanks for the ideas. We've found some things in Krogers in their organic food section. We also managed to find some Mozzarella flavored "cheese" that's made from Rice milk...it wasn't too bad on a sandwich. The sad thing is that when we do find something (like chips or crackers), many of them either have canola oil, soybean oil or cottonseed oil, and she can't have most of that too, especially the cottonseed oil. The amount of sugar or sugar free sweetener that she can't have is ridiculous too. I did pick up some agave syrup and made some hot cocoa for her last night with that and rice milk that didn't taste too bad. The biggest problem with that is figuring out the amounts...lots of taste testing.

Strong is what you have left when you've used up all your weak.

No Excuses, Just Results!


GO HARD OR GO HOME!!!!


 Pounds lost: 0.0 
 
0
4.3
8.59999999999999
12.9
17.2
CINDYTW Posts: 5,783
10/28/11 9:25 P

Send Private Message
Reply
CHeck your regular grocery, Bisquick has GF now that my DH would not have noticed was GF! They also have GF cake and brownie mixes in the regular section Betty Crocker I think. SHe just has to be taught and learn that the headaches and sickness come from eating these things! I STILL eat cheese sometimes even though I am Casein intolerant it can be hard to overcome. Gluten is easier there are more substitiues for kids now. Check out Ians products they are geared toward kids and are very good I eat the chicken nuggets and Alpha tots on occasion! :)

I hear that people like Daiya cheese substitutes. I don't, but that is me. I like the Road's End Organics CHreese sauce products. They make GF Mac& cheese, cheesy potatoes and cheese sauce packets. I find them in the organic section ususally. Good luck!

Edited by: CINDYTW at: 10/28/2011 (21:28)
 current weight: 184.0 
 
195
181.25
167.5
153.75
140
HISARTIST's Photo HISARTIST SparkPoints: (104,675)
Fitness Minutes: (145,133)
Posts: 4,032
10/27/11 12:02 P

My SparkPage
Send Private Message
Reply
Yes, we talked about that last night. We discussed what we would have for dinner and what she wanted for her luch off of a rotational diet we were given with foods she could eat. I'm going to try taking her to a special grocery this weekend that has a really big selection of gluten free items and other types of flour and such so that I can make some of the goodies she likes. The pancakes didn't really surprise me, because she absolutely loves pancakes. I'm just going to have to find a different recipe. Luckily she can eat corn syrup, so I'll pick up some Karo light corn syrup (my fave anyway when it comes to pancake syrup).

Strong is what you have left when you've used up all your weak.

No Excuses, Just Results!


GO HARD OR GO HOME!!!!


 Pounds lost: 0.0 
 
0
4.3
8.59999999999999
12.9
17.2
PINGUINAPLATA's Photo PINGUINAPLATA Posts: 633
10/27/11 11:53 A

My SparkPage
Send Private Message
Reply
I totally get it. As an adult, it's hard to put some of my favorite foods off limits, so I can't imagine a nine year old. Can you involve her in meal planning and grocery shopping? She can so some research on-line and read food labels. Perhaps that might give her some feeling of control over the situation?

 current weight: 170.0 
 
192
179
166
153
140
HISARTIST's Photo HISARTIST SparkPoints: (104,675)
Fitness Minutes: (145,133)
Posts: 4,032
10/27/11 11:32 A

My SparkPage
Send Private Message
Reply
She's 9, and in the third grade. One of her best friends has celiac, so she knows what this means, but I told her that her problem isn't as bad as her friend's (her friend has been in the hospital several times). It's just going to take patience, and for a kid who has suddenly been told that she isn't going to be able to eat some of her favorites for a while, patience is in short supply.

Strong is what you have left when you've used up all your weak.

No Excuses, Just Results!


GO HARD OR GO HOME!!!!


 Pounds lost: 0.0 
 
0
4.3
8.59999999999999
12.9
17.2
PINGUINAPLATA's Photo PINGUINAPLATA Posts: 633
10/27/11 11:17 A

My SparkPage
Send Private Message
Reply
How old is your daughter? It's going to be tough for all of you, getting used to it. Probably the worst for her, will be being different to her friends.

You'll get there. It will take time, but you'll find the way eventually.


 current weight: 170.0 
 
192
179
166
153
140
HISARTIST's Photo HISARTIST SparkPoints: (104,675)
Fitness Minutes: (145,133)
Posts: 4,032
10/27/11 10:36 A

My SparkPage
Send Private Message
Reply
Thanks for the reply. I will definitely check out that website. I hope these results help, because we have tried everything else. I about wanted to squash her this morning because I fed her breakfast before we left home with stuff I knew she could have, even packed her lunch, and then I get a call from the school nurse that she says her head hurts and her stomach hurts and she thinks she ate something she shouldn't have. Go figure...pancakes/syrup when she got to school. ARRGGGHHH. And she can't take Ibuprofin for her headaches either. Silly girl...talk about a learning experience!

Strong is what you have left when you've used up all your weak.

No Excuses, Just Results!


GO HARD OR GO HOME!!!!


 Pounds lost: 0.0 
 
0
4.3
8.59999999999999
12.9
17.2
PINGUINAPLATA's Photo PINGUINAPLATA Posts: 633
10/27/11 10:31 A

My SparkPage
Send Private Message
Reply
That's going to be a challenge, for sure, preparing food for a child with intolerances and teaching her why she can't eat what her friends eat. If it gets rid of her headaches and makes her feel better, it will be worth it.

I've learned that simple meals of unprocessed meat, fish, fruits and vegetables work best for me. I get my carb fix from potatoes and rice. Since gluten free bread just doesn't work for me, I use rice cakes. (They come in various flavors and can actually be used to make sandwiches).

If we go to a fast food place, I get the breakfast burger with a lettuce wrap instead of a bun. At one place, they only had shredded lettuce so I opted for the breakfast bowl which was a mistake. There was gluten in there somewhere. According to celiac.com some places add flour to scrambled eggs.

Do check out www.celiac.com for some awesome resources.

Good luck with taking care of your daughter. How wonderful to have an actual diagnosis, and know what to do, to be able to help her.


 current weight: 170.0 
 
192
179
166
153
140
HISARTIST's Photo HISARTIST SparkPoints: (104,675)
Fitness Minutes: (145,133)
Posts: 4,032
10/27/11 10:23 A

My SparkPage
Send Private Message
Reply
Hello all. I am new to this group, and as of yesterday, new to gluten free eating. My youngest daughter has suffered from headaches for the past 5 years, and we finally decided to have her checked for food intolerances to see if that was the cause. Well, last night we got the results and among other things, she has intolerances to gluten (wheat and oats), cow's milk, cane sugar, and maple sugar. The only non-caloric or artifical sweeteners that she can use are agave and honey. Needless to say, this is going to be challenging at best, especially with the holidays coming up. I need HELP! Any suggestions, recipes, and so forth would be great (along with tips on how to get her to go along with these changes). I have yet to tell the extended family, and I hope that they are willing to get on board with this, because if not I'm really going to have to fix her whole holiday meal and take it with us just so she can eat. Thanks again.

Edited by: HISARTIST at: 10/27/2011 (10:27)
Strong is what you have left when you've used up all your weak.

No Excuses, Just Results!


GO HARD OR GO HOME!!!!


 Pounds lost: 0.0 
 
0
4.3
8.59999999999999
12.9
17.2
PINGUINAPLATA's Photo PINGUINAPLATA Posts: 633
9/27/11 11:07 P

My SparkPage
Send Private Message
Reply
I get what you're saying. My diagnosis of gluten intolerance (not celiac) was made as part of a panel of testing for something else. The doctor noted the antibodies, and told me to stop eating gluten.

It wasn't until I started to feel better, that I realized just how bad I'd felt before. It was just normal to feel that way. Now, I get a reminder now and again if I eat gluten by mistake.

If avoiding gluten makes you feel better, then who needs a test to prove it? You're the only one who really knows how you feel.


 current weight: 170.0 
 
192
179
166
153
140
CINDYTW Posts: 5,783
9/27/11 10:56 P

Send Private Message
Reply
Welocme! I agree, what matters is that you feel better!

 current weight: 184.0 
 
195
181.25
167.5
153.75
140
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
9/27/11 10:54 P

My SparkPage
Send Private Message
Reply
Hi saracoil. I can definitely relate to your post. I had a friend say the same thing is why I was not sick before. I was sick a few times but did not know it was related to gluten. If people say they have some other type of disease it is never questioned. I just do not get it.

I do not blame you for not wanting to have gluten to get checked to see if you have Celiac. As long as you feel better that is the main thing.

I have been gf for two (2) years and feel so much better. I am not going to get sick just to prove to them that I am Celiac or even gluten intolerant.

You take care

Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
SARACOIL's Photo SARACOIL Posts: 40
9/27/11 8:15 P

My SparkPage
Send Private Message
Reply
I have decided to not go back on gluten to do the Celiac testing against my doctors advise. I already have a bladder condition that is sometimes treated through wheat or gluten free diets. I started having a lot of my other symptoms decrease when I went on the gf for my bladder which made my doctor think I probably have Celiac and that everything I have been dealing with is related. I had toxic mold poisoning 2 years ago and the symptoms never went completely away. Honestly I don't care about getting another diagnosis. What I care about is that I feel better. It's been almost 2 months. I've had one or two days where all of my symptoms came back just for a day. I'm thinking that was caused by me accidently ingesting something with gluten in it.

I tell people that I'm allergic also. I've had some people ask me why I wasn't allergic before and I try to explain to them that I probably was and just like many other allergies it has gotten more severe over time. I have a life threatening allergy to shellfish so my friends and family seem to accept this answer because they have seen my reaction with shellfish. I definitely agree that people understand the word allergy better than anything else.

 Pounds lost: 66.0 
 
0
18.25
36.5
54.75
73
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
8/18/11 6:41 P

My SparkPage
Send Private Message
Reply
A lot of people including family members (who are the worst offenders) do not understand the terminology., I did get tested but was gluten free so it did show up negative.
To me whether you are Celiac or Gluten intolerant it does not make any difference as I get sick every time I ingest gluten. It used to take me at least an hour before getting sick now it is about 20 minutes and I do not get sick for just an hour but for the whole day or night and my energy level is very low for a few days.

Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
PINGUINAPLATA's Photo PINGUINAPLATA Posts: 633
8/18/11 1:56 P

My SparkPage
Send Private Message
Reply
HIKELUV, I agree that the term 'allergy' is more widely understood than a dietary intolerance, or sensitivity. I can see why one person (or more) have told their family that they actually have Celiac, when in fact they don't.

Last night, my husband reheated some leftover garlic bread. (It was leftover because I hadn't had any of it at all), He very generously offered to share the tasty treat but realized, when he saw the look on my face.

This is going to take some getting used to, for both of us.


 current weight: 170.0 
 
192
179
166
153
140
HIKELUV's Photo HIKELUV Posts: 177
8/12/11 10:38 A

My SparkPage
Send Private Message
Reply
You truly have to do what you have to do to protect your health. I usually say I have Celiac Disease. My dr believes I do, although he did not do the biopsy (he didn't think the results would be worth the agony of 90 days of illness/fever prior to the test). However, when I eat in restaurants I often tell the staff that my husband, daughter and I have an allergy to wheat. "Allergy" seems to make sense to most restaurant staff.

I honestly don't care whether I have Celiac, or a gluten intolerance. I don't care what I call it. I'm just so damn grateful to be well again, and to have the knowledge to make health-supporting choices every time I eat.

Winners do daily what others do occasionally (Pete Thomas).


 Pounds lost: 1.2 
 
0
11.25
22.5
33.75
45
CINDYTW Posts: 5,783
8/11/11 11:05 P

Send Private Message
Reply
Blood tests are not always accurate, so you may still have Celiac disease. I think the diet is more useful to determine what you need to do anyway since there is no other treatment. Were you eating gluten when you had the test?


 current weight: 184.0 
 
195
181.25
167.5
153.75
140
SUSANKAY471 SparkPoints: (1,508)
Fitness Minutes: (1,765)
Posts: 17
8/11/11 10:21 P

My SparkPage
Send Private Message
Reply
I have had a similar experience as most of us do. My husband rolled his eyes for a few months. However, when I would fail to keep my gf diet and get sick, then get better when I ate better, he noticed. He does not use the Celiac word (my bloodtest came back negative),but he is noticing what is going on and is a little more supportive.

CINDYTW Posts: 5,783
6/20/11 10:48 P

Send Private Message
Reply
Sometimes you have to say what people understand. It is not really lying as you believe that it is true. A medical diagnosis is often elusive and you are best off doing what you know is right!

Edited by: CINDYTW at: 6/20/2011 (22:49)
 current weight: 184.0 
 
195
181.25
167.5
153.75
140
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
6/20/11 8:50 P

My SparkPage
Send Private Message
Reply
I wanted to mention that I wish I would of told family and friends that I have Celiac Disease as then they would of not given me a hard time. I can definitely feel for you. I guess that you live and learn Please do not feel guilty as that had to be said and good for you.

Char


www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
6/20/11 7:32 P

My SparkPage
Send Private Message
Reply
OMG I could not believe what I was reading as this has happened to me. I had a friend say to me why did it not bother you before and now it is. I tried to explain but really did not understand. I did have the tests and it came back negative; however my younger sister was diagnosed with Celiac over 20 yrs ago. She asked me to go gf for two months and see what happens and I did and within two weeks I got sick and every time I accidentally ingest gluten, I get violently sick. She feels that they did not take enough biopsies; however I am not going to ingest gluten again and get sick all over again. I have been gf two yrs next month and feel so much better.

Please do not apologize for what you told your family. If that is the only way they would believe, then good for you. You know for sure what you have and how you feel.

Keep us posted on how you feel and glad that you did decide to go gf.

Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
BUDRFLY31's Photo BUDRFLY31 Posts: 2,051
6/20/11 5:52 P

My SparkPage
Send Private Message
Reply
My family doesn't understand how I "suddenly" became gluten intolerant. But, they know that I have had IBS for several years. It's so hard for me to make them understand that I think the IBS was a misdiagnosis, and that I feel so much better eating gluten free. (I have been GF for 6 weeks) Yesterday, at a family Father's day BBQ, I asked my Dad for a burger without the bun. He literally rolled his eyes. So, I decided to lie and say that my doctor diagnosed me with Celiac Disease. I know that was wrong, but I probably have it anyway, but I just decided to have the doc diagnose me as gluten intolerant so that I did not have to go through the testing that he claimed rarely came out positive. I have a $4000 deductible on my insurance and didn't want to spend the money when I all I have to do is eat a gluten free diet to feel better. So, they were all sympathetic and very accommodating when I used the term "celiac disease". I am feeling very ashamed, but I am glad that they are finally taking me seriously!

Learn to love yourself!
www.fitbit.com/user/23ZVLT


 current weight: 146.0 
 
186
172.75
159.5
146.25
133
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
6/10/11 10:27 P

My SparkPage
Send Private Message
Reply
Hi Suzabella and welcome to this team. I also have been gluten intolerant two years next month. My younger sister has celiac so it is definitely in the family. I agree with what you say about eating wheat it will not kill you but it will not do you any great favors. I cannot even ingest the smallest amount of gluten as it makes me extremely sick.

Keep us posted on how you are doing. Again, welcome.

Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
SUZABELLA67's Photo SUZABELLA67 Posts: 19
6/10/11 9:12 P

Send Private Message
Reply
GLUTEN INTOLERANCE
That's my diagnosis...having gluten anti-bodies suggests a wheat sensitivity, but I don't have a high enough level of these anti-bodies to be considered Celiac Disease. Still, the bottom line is that I need to maintain a gluten free lifestyle and while eating wheat will not kill me, it won't do me any great favors either!
So I guess I am going to be a lifetime member to this team!
Go Team!


http://www.authorhouse.com/Bookstore/BookD
etail.aspx?BookId=SKU-000408101


 Pounds lost: 5.0 
 
0
5
10
15
20
ANJAYS-JOURNEY's Photo ANJAYS-JOURNEY Posts: 6,370
5/29/11 11:59 P

My SparkPage
Send Private Message
Reply
Sometimes on the GF diet, you seem to eat a lot of carbs but not a lot of protein, I overcome this problem with a lot of raw nuts, especially almonds, I eat 10 almonds a day, I also eat a lot of quinoa which is a complete grain. I am vegetarian, so this is a challenge also for me, I am on an anti-inflammation diet, being celiac this can be difficult at times. Hope this helps a little
Have a nice evening

Nova Scotia
Canada
Atlantic Time Zone


 current weight: 116.0 
 
156
145.75
135.5
125.25
115
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
5/29/11 3:24 P

My SparkPage
Send Private Message
Reply
I also track my food and not getting enough protein. I am wondering if that is why I am so sleepy throughout the day. I have at least getting my fat at a decent number. I was getting too much fat and now am watching what I eat. Now I have to work on my protein but make sure the fat is not too high.
Char

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
PHOUKALADY's Photo PHOUKALADY SparkPoints: (10,046)
Fitness Minutes: (9,777)
Posts: 178
5/29/11 3:15 P

My SparkPage
Send Private Message
Reply
I learned about the tests when I'd already been gf for at least two months, and I felt so much better, the idea of eating gluten just to get an Official Diagnosis sounded like crazy talk to me. My rheumatologist was already treating me for symptoms. He agrees that I am probably gluten intolerant, but he's very resistant to the Official Diagnosis as well. For one thing, it makes it very difficult to get decent insurance.

I think my thyroid is also messed up, though all my labs always come back normal. I recently read though that an anti-thyroid antibody test is not usually in the regular panel of blood work, so the thyroid hormones can look normal, or even a little high, but not be doing anything because the antibodies are wiping them out. Next time I go in to see him, I will definitely ask if that test has been done, and if not, please do it this time.

The other thing I've recently discovered is that I haven't been getting enough protein. I hadn't even been thinking of that! But when I plugged the numbers into the nutrition tracker, day after day, I wasn't even getting half the minimum protein needed. This would explain why my hair has been falling out, why my nails have deep grooves in them, and my energy level is low. I'm now getting at least the minimum, but I don't eat much meat anymore, so I'm looking for alternatives. Wish me luck!

"No act of kindness, no matter how small, is ever wasted." - Aesop


 current weight: 283.0 
 
283
262.25
241.5
220.75
200
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
1/15/11 9:55 P

My SparkPage
Send Private Message
Reply
Shannon you are welcome. I always say that you know your body better than anyone else does and if going gf is doing the trick, then definitely go for it. I hope that you are feeling better. I know I am.

I was talking to my sister (the one that is Celiac) and told her that I was surprised how sensitive my stomach is and her comment was "I was not" as she had seen me years before and said that I looked just she did when she was so sick.

Charlene

Edited by: CTRAVEL at: 1/15/2011 (21:57)
www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
SHANNONVD's Photo SHANNONVD SparkPoints: (0)
Fitness Minutes: (2,893)
Posts: 59
1/14/11 11:37 P

My SparkPage
Send Private Message
Reply
Thanks so much for the feedback Char. I was thinking the same thing. Sometime it is good to hear what your thinking come from someone else. My mom doesn't understand why I am "suddenly" affected by gluten. I don't think it is sudden. When I was younger I couldn't gain weight to save my life. Then in my 20's things went the other way and over the course of a couple of years I went from 95 pounds to 160! What? I did not change how I ate at all. I get so bloated in the belly that for the longest time people have asked me if was pregnant. (long before I had kids) Well, I think I have found the answer.

 current weight: 136.0 
 
149
144.25
139.5
134.75
130
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
1/7/11 9:32 A

My SparkPage
Send Private Message
Reply
Shannon, I would not bother eating gluten again to get that test. You know how you feel. I was tested and it came up negative but know that I am Celiac. They did not take enough biopsies but will not go through that again to prove a point. My younger sister has Celiac and I have been having problems for a long time and did not want to admit to it. I feel so much better being g-f and will not go back to eating gluten again. It is not worth the aches and pains. I cannot even eat a smidgen of gluten as it makes me violently ill. Some can and it does not bother them.

You know your body better than anybody does. Just keep gf and you will feel so much better. I know I do. Good luck to you and keep us posted on how you are doing.
Char



www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
SHANNONVD's Photo SHANNONVD SparkPoints: (0)
Fitness Minutes: (2,893)
Posts: 59
1/7/11 12:44 A

My SparkPage
Send Private Message
Reply
Back in August my homeopathic doc diagnosed me as gluten intolerant. She said that to find out if one has Celiac you need a biopsy. After being off gluten for a month I really did not feel like eating it and having an endoscopy. When I do eat it I get stomach aches, super bloated (someone asked me if I was pregnant), have no problem going to the bathroom and it is painful and I bleed a little and get so tired. I guess my question is should I go through the whole eat gluten for several weeks and get a biopsy or just stay off gluten? Are those even gluten sensitivity symptoms? I know that if I eat out and eat what seems to be g-free I have some of the same symptoms (especially the bathroom ones). So I have been limiting eating out as well.
Thanks,Shannon

 current weight: 136.0 
 
149
144.25
139.5
134.75
130
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
12/12/10 8:53 P

My SparkPage
Send Private Message
Reply
Jen I am so sorry to hear about your insurance company. You say that you are constipated being gf and I was too and what I did was to find food that was higher in fiber. I also try to eat alot fruit and that does help too.

Once you are gf and not constipated, you will be feeling much better too. I am doing fine and know you will too. Please keep in touch as I am concern on how you are doing. Please take care of yourself.
Charlene

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
JENN03275's Photo JENN03275 SparkPoints: (33,101)
Fitness Minutes: (24,051)
Posts: 575
12/12/10 7:18 P

Send Private Message
Reply
@ Charlene: My PCP was helpful in a new diagnosis with pain. However, my insurance company has not been so accommodating. Regarding any gluten intolerance, not so much.

I had been doing great on GF. Just major constipation because there is very little soluble fiber. However, went out to eat last night with my dh and ate off regular menu (famous chicken tenders at local restaurant, fresh bread and a beer). Plus earlier in the day, I ate some pizza and toast. Well, not so fun about 30-40 minutes later with about 7 trips to the bathroom while shopping at Walmart. Today, still, major abdominal pain but no more diarrhea (thank goodness). That was pretty much a turning point for me. My husband stating for me "if its gluten free its for me"..lol.


Jenn emoticon

 current weight: 12.0  over
 
15
7.5
0
-7.5
-15
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
12/5/10 3:52 P

My SparkPage
Send Private Message
Reply
Jen, for them to take the test (b/w or endoscopy) you should not be gf at all) The endoscopy is more accurate. I hope that you are feeling better. Let us know what your PCP says.

I know since I have been gf since last July I definitely feel much better. I had some b/w done last month and went to see my dr last week and she could not believe how well I am doing. Her comment was whatever you are doing, keep it up. I know being gf has been a major factor. I had a kidney disease about a year ago and that is about cleared up.
Jen. you take care of yourself.

Charlene

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
JENN03275's Photo JENN03275 SparkPoints: (33,101)
Fitness Minutes: (24,051)
Posts: 575
12/5/10 11:55 A

Send Private Message
Reply
Hi Charlene...Well, yesterday was absolutely craving Dunkin Donuts Doughnuts, so I ate a bunch of munchkins with my dh. I also ate some regular crackers last night as well. Been off gluten for almost 3 weeks now and i have been incredibly achy today and had some stomache aches. Thank goodness no diarrhea because I was out shopping. So, I think I may have a gluten issue.

I have an appointment with my PCP tomorrow to discuss this and ? a fibromyalgia diagnosis. I have had a very frustrating past year and would love to have some of it figured out by 2011 emoticon

Jenn

 current weight: 12.0  over
 
15
7.5
0
-7.5
-15
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
11/29/10 4:53 P

My SparkPage
Send Private Message
Reply
Jenn, I am glad to hear that. You take care and let us know how you are progressing.
Charlene


www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
JENN03275's Photo JENN03275 SparkPoints: (33,101)
Fitness Minutes: (24,051)
Posts: 575
11/28/10 12:44 P

Send Private Message
Reply
@ Charlene...Thank you for the input. I was really not concerned about cross contamination because I am actually doing a self test for an intolerance. Maybe now that I am a week into not taking it in that it will cause a reaction when i do.

I am making a stuffed turkey today with regular stuffing for hubby, kids and friends. Will be sure that i keep my gf stuffing in a separate area. I will also be sure that I keep the meet not directly in contact with the stuffing separate as well.

Who knows. Trying to figure out how to heal my body on my own since the doctors can't seem to do anything.

Jenn

 current weight: 12.0  over
 
15
7.5
0
-7.5
-15
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
11/27/10 5:26 P

My SparkPage
Send Private Message
Reply
Jen I am so sorry that you sick Thanksgiving night. Please be real careful about cross contamination. I did think too much about it until it happened to me. I was fixing hubby and myself a sandwich (hubby is not gf) and I fixed his sandwich first and then fixed mine. About an hour later I got so sick and got this horrific headache and dizziness. I thought back about having gluten and knew I did not have any. Then all of sudden it hit me. I made hubby's sandwich first and did not wash my hands before I made mine. That is the only thing that I could think that could make me sick. This is how sensitive I am and that may of happened to you. Just wanted to run that by you.

Charlene

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
JENN03275's Photo JENN03275 SparkPoints: (33,101)
Fitness Minutes: (24,051)
Posts: 575
11/27/10 1:17 P

Send Private Message
Reply
I think that gf is strating to help. My skin is clearing up and my energy is better (also on Vitamin D 2,000iu daily and 50,000iu once weekly). My muscle pain has only mildly improved but that is ok. I know that it takes a while for the gluten to get out of the system. Thanks giving night I woke up sooo sick, not sure why and I was the only one. My dh thinks I may have eaten something by accident.

You all are great people, ty for all the advice!!

Jenn emoticon

Edited by: JENN03275 at: 11/28/2010 (12:45)
 current weight: 12.0  over
 
15
7.5
0
-7.5
-15
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
11/23/10 9:18 P

My SparkPage
Send Private Message
Reply
Jen each day that you are gf, you will feel so much better. Like I said you have to be your own advocate and please let us know how you are doing. This is an awesome group and we will be glad to help you in anyway that we can.

I had written this some place else not sure what post it was on. Anyways my sisters asked me if I would go gf for just two months. I asked her if I went gf and then ate gluten and did not get sick what then. She said that you do not have celiac. Well I promised to do that and started to go gf and was on it for one week and then went to a business luncheon and had a piece of cake for dessert.

I felt fine for a while and then all of a sudden when I was driving home I almost fell asleep at the wheel and when I got home had to go to the bathroom right away (sorry did not mean to be so graphic) and then got this horrific headache.

I immediately went to sleep and felt so weak for a while. I have had these symptoms a few more times; however they were worse. I try to be very careful and so far I am doing fine.

Charlene

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
JENN03275's Photo JENN03275 SparkPoints: (33,101)
Fitness Minutes: (24,051)
Posts: 575
11/23/10 9:04 P

Send Private Message
Reply
Thank you! Everyone has made me feel like I made the best decision for me. Now I have to wait and see if it works! Only been 4 days but feeling confident about it!

 current weight: 12.0  over
 
15
7.5
0
-7.5
-15
CINDYTW Posts: 5,783
11/23/10 6:56 P

Send Private Message
Reply
I did not even have a biopsy and would not go back on gluten to get it. I got a blood test and it was positive, but I would have already known what I had just researching the symptoms online. And you don't need a doc to tell you what makes you feel better. Do it and if you feel good, there you go! I have a Celiac diagnosis and never had the classic DH rash. I did have skin issues but not that. A lot of docs are not up to date on the symptoms and pervasive nature of this...fortunately many are and you can learn from other people!

 current weight: 184.0 
 
195
181.25
167.5
153.75
140
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
11/23/10 5:52 P

My SparkPage
Send Private Message
Reply
I was checked last year for celiac and it came up negative. I do not feel they took enough biopsies and so does my younger sister feel that way. She has Celiac and we believe that she was born with it.

With me they took only four (4) biopsies and should take at least 8 - 12. I went to Mayo and thought they would do that. I am not going to back eating gluten to see what they come up with. I have been gf for over a year and feel so much better. A lot of times you have to be your own advocate.

You can still have Celiac and not have a rash as my younger sister, BIL and SIL all have celiac and no rash.

Charlene

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
JENN03275's Photo JENN03275 SparkPoints: (33,101)
Fitness Minutes: (24,051)
Posts: 575
11/22/10 7:29 P

Send Private Message
Reply
I agree that doctors dont listen. I have many symptoms of a gluten intolerance. I have been treated for Lyme twice and thats the answer I get. I have joint/muscle pain, chronic fatigue, IBS-C (with bloating and gas), depression and acne. Since I had a biopsy over 3 years ago that was negative and I don't have a rash, then it couldnt be. Well, decided that I am going to give it a shot and go gf. It has only been3-4 days so not a huge noticable difference yet, but dont plan on an immediate fix either. emoticon

 current weight: 12.0  over
 
15
7.5
0
-7.5
-15
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
11/4/10 11:38 P

My SparkPage
Send Private Message
Reply
I have been gf for 16 months and feel really good. I can't say how long I was gf before I was feeling good. I know that I stop the bloating, had deep dark circles and that has nearly gone away. I was very depressed and that has gotten better. I feel it all depends on the person's body and how fast one heals.

If you try the Prilosec, do you have to have gluten? If so, please be careful as if you really get sick is it worth it. The only one that can answer that is yourself.

Have you been sick for a long time? I sure hope that things work out for you.

Do you have Acid Reflux? My sister-in-law had that and she was diagnosed with Celiac. Alot of times this disease can really be hard to diagnose.

Take care and let me know how you are doing.
Charlene

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
MICHTOTMAN's Photo MICHTOTMAN Posts: 815
11/4/10 9:07 P

My SparkPage
Send Private Message
Reply
That's what I ultimately decided... although it would be nice to know for sure if that's the true problem, or if it's exacerbating some other problem.

I have been gluten-free for about 9 days (as far as I know, anyway, and I have been REALLY careful about label reading, etc.) . The first 3 days were very little improvment, but here on day 9 I have no pain & hardly any nausea. I still have a very small appetite (when I I was NOT g-f I was getting so sick that NOTHING sounded or tasted good) and some pressure in my stomach (bloating, I guess), but even that is much better. I'm still not eating much yet because I get full so fast, but today, I finally felt hungry. That hasn't happened in about 2 months.

My doctor wants me to give the Prilosec a month to see how I do. I am sure that it's NOT the Prilosec that's helping (as I did go off gluten once before and had similar results), but I'm going to comply. If, indeed, I am good in a month I am going to (and I know the doc wouldn't agree) stop taking the Prilosec and see what happens.

How long does it take to feel completely better? I am ready for the bloating to go away!

The greatest glory in living lies not in never falling, but in rising every time we fall.

NELSON MANDELA


 Pounds lost: 3.2 
 
0
10.5
21
31.5
42
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
11/4/10 6:17 P

My SparkPage
Send Private Message
Reply
Your dr said that you your test came up as not having Celiac. I have often said that it is how the person read it. They need to take at least 6 to 12 biopsies to have a good test. So they said you are not Celiac but you could have gluten intolerance. I agree with Kelly they do not listen or do not want to listen.
If you feel better being gluten free then do it. It is your body and no one knows your body any better than yourself.
You take care of yourself.
Charlene

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
11/4/10 6:13 P

My SparkPage
Send Private Message
Reply
Kelly that is so true. I am a Celiac and just found out last year. I feel so much better. Doctors can be so one way and "how dare you tell them anything different" GRRRRRRRRRRRR
Charlene

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
KELLYFIT4U's Photo KELLYFIT4U Posts: 8,081
11/4/10 5:36 P

Send Private Message
Reply
I swear doctors don't want to listen at all. It's frustrating isn't it?!?! If you know you feel better without gluten then live gluten free. I know I do. I just posted a blog, I'll add you as a friend but check out the article link about gluten intolerance being a disease. It was very good!

Life is too short to be anything but Happy!
MICHTOTMAN's Photo MICHTOTMAN Posts: 815
10/29/10 10:02 A

My SparkPage
Send Private Message
Reply
I decided to add gluten back in for the 48 hours before my tests. I felt HORRIBLE and the doctor was quick to dimiss Celiac or anything to do with gluten even though i told her that I had started feeling better when I quit eating it. She GERD and diagnosed me with prescribed Prilosec, although I'm very wary of that diagnosis (for one thing, I feel BETTER if I'm laying down or sitting and with GERD you're supposed to feel worse).
To play it safe I decided to go back off gluten, take the Prilosec and also avoid foods that are acid producing (tomatoes, coffee, chocolate, alcohol & fried foods) most of which I don't eat very often anyway. My Celiac test was negative (very negative - about as low as it can get) and I've spent the last 4 days feeling lousy. But slowly it's starting to lift again - I feel better this morning than I have in the last week.
I'm supposed to give the Prilosec a month and if I'm still not better to go in again. I'm hoping between the various adaptations I'm making I will indeed feel better.

The greatest glory in living lies not in never falling, but in rising every time we fall.

NELSON MANDELA


 Pounds lost: 3.2 
 
0
10.5
21
31.5
42
KELLYFIT4U's Photo KELLYFIT4U Posts: 8,081
10/29/10 9:12 A

Send Private Message
Reply
So what did you decide to do? I was told to keep eating gluten and I was feeling so miserable. I had my endoscopy last Wednesday so now I'm going gluten free so I can start feeling better. I'll find out results by next Wednesday but celiac or not gluten makes me feel terrible which made me realize when I had to eat it daily. It's not worth it to feel that way.

Life is too short to be anything but Happy!
MICHTOTMAN's Photo MICHTOTMAN Posts: 815
10/23/10 11:13 A

My SparkPage
Send Private Message
Reply
Hi! I just joined the group and have not been diagnosed with either gluten-intolerance or Celiac Disease but I have a sneaky suspicion that I have one or the other. And I'd like your advice.

For about the past year I have not been feeling well, but not bad enough to go to the doctor. I just felt "icky" a lot. Then, about 3 weeks ago it started getting worse. At one point I was proctoring an PSAT test and had to have a test administrator come relieve my class because I was so nauseous. At this point I started thinking that it wasn't a 3-week stomach virus and since the pain/nausea was significantly worse after I ate, it must be a food allergy of some sort. I decided to cut both dairy and wheat out of my diet for a while and seen what happened. In the mean time, my doctor said I should come in for a visit.

Because I was not well informed and because getting time off to go to the doctor is nearly impossible (I teach high school), I decided to make my appointment a week and a half later. Now - 10 days later - I am feeling better. Not great, just better than I had been. 2 weeks ago I would have said the pain/nausea fluxuated between 3-5. Now I'd say 1-3 (with 0 being none and 5 meaning that I was incapacitated). My appointment is in 2 days.

QUESTION: Should I keep up with what I'm doing (I've also been keeping a log for the past few days) and go in feeling 'eh'? or should I just eat gluten for 2 days so that I've got some in my system when I go in?

Other Interesting Notes - I'm a type 1 diabetic (I know the connection between type 1 diabetes and Celiac is high) and I've got hypothyroidism too (although well controlled through Synthroid). My brother and mother both have stomach issues although neither has been tested for Celiac or wheat allergies. My mom has never sought medical advice, but my brother has been treated for IBS as well as an anxiety disorder.

The greatest glory in living lies not in never falling, but in rising every time we fall.

NELSON MANDELA


 Pounds lost: 3.2 
 
0
10.5
21
31.5
42
MY_NEW_ATTITUDE's Photo MY_NEW_ATTITUDE Posts: 2,396
10/19/10 2:43 P

My SparkPage
Send Private Message
Reply
This sounds exactly like what I'm going through. I can't stop eating junk since I found out I had to go gluten free.

My blood work came back negative for CD but because I have so many of the symptoms and my son and grandson both have gluten intolerance, they told me to go totally gluten free for two months and then put some back in to see if I react to it. I was supposed to start last week but I'm having an oral allergy test tomorrow for shrimp and they told me not to change anything else about my diet until after the test.

Since I didn't start eating g-free last week, I have been totally out of control with my cravings and eating junk. It's like I'm in panic mode trying to get everything I might never be able to have again after Thursday. The worse part is, I feel terrible. My whole body aches and my stomach is killing me. I went home after work last night and all I could do was sit in the recliner alternating the heating pad between my neck and my stomach. At least I couldn't eat!

I feel like a spoiled child rather than a 55-year-old woman. I know better but I keep on doing it. I'm ready for Thursday to come so I can't eat all this stuff.

Edited by: MY_NEW_ATTITUDE at: 10/19/2010 (14:48)
"No one can go back and start a new beginning...but anyone can start today and create a new ending."

Author Unknown

"Continuous effort - not strength or intelligence - is the key to unlocking our potential."

Sir Winston Churchill


 Pounds lost: 11.4 
 
0
20.75
41.5
62.25
83
KELLYFIT4U's Photo KELLYFIT4U Posts: 8,081
10/17/10 3:51 P

Send Private Message
Reply
Thanks for the information PIEGRRL. That really will give me a piece of mind if I don't test positive for celiac because each day as I have gluten stuff I feel terrible. I definitely think I have some sort of gluten sensativity. I can't wait until after my endoscopy on the 27th to say good bye to it. I just feel awful.

Did you guys have a huge appetite before you cut it out of your diet? I do and of course in return I reach for the stuff that makes me feel soo miserable inside. I guess I've felt this way for a long time, I think I just thought it was a normal feeling everyone felt after eating unhealthy foods but everyday I have the bloat/discomfort inside. My appetite always get's huge too so it's so frustrating but I want to make sure I don't cut it out so I test normal but I can't even get back on track to healthy eating right now so it's frustrating.

Life is too short to be anything but Happy!
PIEGRRL's Photo PIEGRRL Posts: 81
10/17/10 10:21 A

My SparkPage
Send Private Message
Reply
Hi Kelly,
I just did a gluten challenge after being gf for 2 years! I just had to know if it's CD or gluten intolerance. I had my tests on Friday, and so far it looks unlikely to be CD. But I had to eat gluten in order for the test to be legit. When you are gf, your intestines begin to heal and the inflammation goes away. When the doc does the biopsies, they are looking for areas where the intestine has been damaged or compromised by the effects of celiac disease. In gluten intolerance, your body reacts negatively to gluten intake but you don't get the same damage to your intestines. At least, that is how it was explained to me... For me, I have gluten intolerance so I still have to be gluten free, but I don't have the same risks as someone with CD if I do eat gluten occasionally (I just feel awful!).

I know it's a rough road with the gluten challenge, but a necessary one for accuracy. I made mine a little less awful by making a "Gluten Bucket List", with all of may favorite glutenous foods on it. I set out to eat as many of them during my challenge as possible! I didn't eat 100% of them, but I did pretty well...that almost made it worth the consequences! emoticon

Best of luck to you!

Fall seven times, stand up eight.

Japanese Proverb


 Pounds lost: 0.5 
 
0
2.75
5.5
8.25
11
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
10/15/10 12:24 P

My SparkPage
Send Private Message
Reply
Hi Kelly and welcome. In order for them test to see if you have Celiac or gluten intolerance, you have to have gluten in your system otherwise the test will show negative. Is there any way they can up the date of your endoscopy? I know this is not what you wanted to hear. I know other members will post info too.
Charlene

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
KELLYFIT4U's Photo KELLYFIT4U Posts: 8,081
10/15/10 11:07 A

Send Private Message
Reply
So I saw the gastro and they ordered up some bloodwork and stool test and I go for an Endoscopy at the end of the month. The bad thing is they told me to keep my diet the same and don't eliminate things. Well I just feel so run down and have no energy and I start teaching Zumba Nov. 1 but when I eat gluten I just don't even have the energy to even want to practice. It probably doesn't help my gluten is the junkfood gluten too. I start with oats in the morning and I just feel so much better eating quinoa these days and my cravings/appetite are so much better.

Do you think if I eliminate it for this next week and then reintroduce some things starting next weekend and then my appointment is on Oct. 27 that my test would still be accurate. I figured I'd eat some kashi pizza the night before that seems to be the worst thing I can have. I definitely have some sort of sensativity to gluten or yeast or something. So I can't wait to hear some answers. Hopefully I'll hear something from my blood work next week.

Edited by: KELLYFIT4U at: 10/15/2010 (11:08)
Life is too short to be anything but Happy!
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
10/4/10 4:23 P

My SparkPage
Send Private Message
Reply
Hi Kelly and I am so glad that you posted your story. I too am celiac. I have a younger sister that is Celiac and almost died from it. She was a support group leader for over 15 yrs for Celiac so has alot of good info.

I am telling you this for a reason. She has been watching me for a few years (we do not live close to each other) so when we do get together you can see a big change for for the better or worse. Well mine was the worse. I have been constipated for years and never thought anything of it as I always thought you had to have diarrhea to be tested.

I also have been very depressed and very bloated all of the time. For a while I was eating Chinese Food and when I got home I had the worse stomach cramps and they would last for hours. Still not knowing what was going on.

Last year I went to see my sisters in Colorado and the one that has Celiac was worried to death for me. I had such deep circles (they were actually black) and my depression was something else. She and my other sister asked me to just go gluten free for two months and see what happens. I promised that I would. So when DH and I got home I did start the gf diet and was on it for just one week. (Oh yes, I said to my sister what if I go gf and then have gluten and do not get sick. Well she then you do not have it). Well I was just gf for one week and had a piece of cake and within an hour I got extremely sick. I got horrible headaches, dizziness and have no problem going to the bathroom (I am sorry for being so graphic.)
Well I could go on and on but to make long story short I have been gf for over a year and feel so much better. No more depression, bloating and definitely no dark circles.

If you feel that you have it, I would go on it just to see. However, if you want to be tested you have to have gluten in you before they can do anything. They can do b/w and a endoscopy. I did have both and it showed negative but it all depends on who is reading the tests.

I am sorry that your friends do not support you but you should not have to explain that to them. A good friend will not do that to you. You have to do what is important for you and just do what is right for you.
I am so sorry that I wrote a book but know what you are going through as for the feelings. My DH is very supportive and I am very happy for that.

Hang in there it will get better and do things that will make you feel better. Remember you are the one that gets sick not them.

Charlene

Edited by: CTRAVEL at: 10/4/2010 (16:26)
www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
KELLYFIT4U's Photo KELLYFIT4U Posts: 8,081
10/4/10 9:13 A

Send Private Message
Reply
I have been struggling with huge appetites, bloating, etc for the past two years. I've been talking with my coworker who has celiac and I just feel this is my culprit as she shares her story with me when she was diagnosed. There is just too many similarities I constantly feel like I'm pregnant on the inside from bloat(like there is no room for my belly to grow, and it is so uncomfortable and in return it has just made me feel so terrible. I get down depressed, tired, exhausted, emotional. I've had this scalp issue too forever and I believe it's related. My bowel movements are very inconsistent but when I eat gluten that seems to make me go all the time and my stomach moans and groans and then I constantly feel this pressure on the inside like I said that I'm bearing a child but I'm not. I never noticed that I actually feel it all the time lately as I've been paying attention. It seems like once I start eating gluten things then appears.

Any advice, support, I'll take. I feel so lost when I can't talk to someone everyday about this and DH doesn't understand and I think he thinks I'm crazy as he says his gut hurts all the time. It's so frustrating.

The best I've felt was when I really wasn't eating breads, cookies, pizza, pasta the majority of the time. I have a consult scheduled at a gastro last week but I need to start living a GF lifestyle. My problem is that no one respects the way I eat and think I eat what I do to be skinny and not get fat and I'm a big time emotional eater so when I get frustrated I turn to all the stuff I shouldn't have. I'm so tired of feeling bloated and miserable all the time.

All of you that did self diagnose how do you explain to others why you eat the way you do. Seriously at a bar last Friday night someone made a comment in front of everyone because I ordered a salad. They said come on Kelly it's a party. I just didn't feel like feeling miserable from pizza, french fries, burgers etc. Then when my food came out, she said OMG Kelly your gonna get fat. I get so frustrated when people think that. When I first got into healthy eating it was about being skinny but since I'm not overweight and I never really have been I've learned something else is going on after I hit my goal weight and started eating more gluten items things just keep getting worse and worse.

Life is too short to be anything but Happy!
RANEYDAY's Photo RANEYDAY Posts: 2,995
6/26/10 8:21 P

Send Private Message
Reply
Day 1 down of eating gluten free. I am feeling some better today. Pain is there but not as bad.

~Debbie~
Crack the Fat Loss Code Team Leader

Goals to accomplish:
160 Done!
159 Don't let the door hit ya!
158 Bye,Bye!
157 later!
156 Cha-Ching!
155 Out of here!
154 Toodles!
153 See ya!
152 Out the door!
151 Cheerio!
150 Adios
149 bye
148 So Long Partner!
147 The bus stops here!
146 So long!
145 Out the door!
144 Good Bye!
143 Hit The Road!
142 Toodles!
141 Finally!
140 GOAL! WOO HOO!!!



 current weight: 139.0 
 
164
157.75
151.5
145.25
139
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
6/26/10 10:18 A

My SparkPage
Send Private Message
Reply
Hi Debbie and welcome to this group.

You can go to www.celiac.com as they have alot of info of what you can eat and also what you cannot. It is very informative and know you will find the answers that you are looking for. Good luck. I have been gf for almost a year and feel so much better.

ctravel www.celiac.com

Edited by: CTRAVEL at: 6/26/2010 (12:00)
www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
RANEYDAY's Photo RANEYDAY Posts: 2,995
6/26/10 8:02 A

Send Private Message
Reply
I am starting gf today. I feel TERRIBLE! I have been having attacks that are similar to gallbladder and found out that I have an over active gallbladder. It hurts! I have not been able to talk to my doc yet but while doing research on over active gallbladder I have found that many have seen their problem go away with eating gluten free...so here I am.

Is there anywhere I can get a list of foods that are gluten free NO NOS, because that would help.

~Debbie~
Crack the Fat Loss Code Team Leader

Goals to accomplish:
160 Done!
159 Don't let the door hit ya!
158 Bye,Bye!
157 later!
156 Cha-Ching!
155 Out of here!
154 Toodles!
153 See ya!
152 Out the door!
151 Cheerio!
150 Adios
149 bye
148 So Long Partner!
147 The bus stops here!
146 So long!
145 Out the door!
144 Good Bye!
143 Hit The Road!
142 Toodles!
141 Finally!
140 GOAL! WOO HOO!!!



 current weight: 139.0 
 
164
157.75
151.5
145.25
139
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
6/13/10 2:15 P

My SparkPage
Send Private Message
Reply
Welcome Charity. I understand what you are saying. I did have the b/w and endoscopy and it still showed negative. I still went gf and I also feel so much better.

I say you have to go with your gut feeling and if it makes you feel better than that is what is important.

Who makes the gf cupcakes?



Edited by: CTRAVEL at: 6/13/2010 (14:16)
www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
MEADOWMOONBEAM's Photo MEADOWMOONBEAM Posts: 13
6/13/10 1:35 P

My SparkPage
Send Private Message
Reply
Hello,

I went through 10 years of the doctor telling me I have GERD. I went GF last month and have not felt this good since I was 21(which is when I started getting sick). Since I am now one of the many Americans with out health insurance, I find it pointless to get an actual diagnosis. Someone who is truly gluten intolerant embraces the lifestyle. I miss wheat, but I do not miss being sick all the time. There are great substitutes. If you have a chance try the GF cupcakes, they are amazing.

Charity

http://winddans.blogspot.com


 current weight: 166.0 
 
177
167
157
147
137
CTRAVEL's Photo CTRAVEL SparkPoints: (7,601)
Fitness Minutes: (5,153)
Posts: 1,917
6/10/10 8:11 P

My SparkPage
Send Private Message
Reply
I have been gf since last July. How it happened is I was visiting my two sisters, of which one does have Celiac. They both asked me to go gf for two months to see what happens. I asked my sister if I eat gluten within that two month period and it does not bother me then what. She said then you are not Celiac.

Well I will try to make this as short as possible. I came back home and decided to get b/w and it came up negative and then had a endoscopy and it came up negative. Well my sister asked me to still try it. So I did and was gf for one week and went to a luncheon and had a piece of cake, and on the way driving home, which was about a half an hour to 45 min. later, I got extremely tired and almost fell asleep at the wheel (that never happened to me) and then when I got home had to go to the bathroom immediately. I then got a violent headache and was dizzy. I laid down and was asleep within seconds.

Since then I have had at three episodes of getting sick like this recently and also with cross contamination which just happened last week.

Before I was gf, I had a kidney disease and just recently I got some b/w back and my dr said that my kidneys are doing real good. I asked if being gf could of helped it and she said definitely.

I guess you can say that I self diagnosed myself too and I feel so much better. I was also depressed, not sleeping real good and had mood swings.

Thanks for listening to me and I am so glad that I have found this site and know that I am not alone.

ctravel

www.celiac.com
I awoke this morning with devout thanksgiving for my friends, the old and the new.
- Ralph Waldo Emerson


 current weight: 117.0 
 
128
124.5
121
117.5
114
SFISHOME Posts: 197
6/5/10 11:12 A

My SparkPage
Send Private Message
Reply
I self diagnosed. I actually got less depressed when I realized gluten was the source of my problems. The doctor thought I had diverticulosis, which generally doesn't heal and means a lifetime of potentially feeling miserable. It was starting to make me feel really old. That made me depressed. Now I know that my condition isn't degenerative and not really age related, so I feel much more optimistic.

Knowing that the pastries at the coffee shop are completely off limits takes the temptation completely away, so it's liberating in a strange way. Of course, I've been a vegetarian for almost 10 years, so I'm used to having a restrictive diet.

As you start feeling better, your mood will definitely improve. Mine is, and it's been just over 2 weeks.

Good luck!

 current weight: 156.0 
 
185
170
155
140
125
CINDYTW Posts: 5,783
6/4/10 7:26 P

Send Private Message
Reply
Absolutely!! I was horribly depressed because I had given up the gluten foods I now miss in the name of weight loss! Noone told me that sub I had in November would be the last one when I was diagnosed in February! It is a radical lifestyle change for a lot of people, but once you go GF you will not really want to go back if you are really sick now. I never seriously think about eating it again...just wish I could! Good luck to you! Let us know if there is any way we can help!

 current weight: 184.0 
 
195
181.25
167.5
153.75
140
JAQUILLIN's Photo JAQUILLIN SparkPoints: (9,707)
Fitness Minutes: (9,259)
Posts: 446
6/4/10 11:39 A

My SparkPage
Send Private Message
Reply
I have to say I am completely overwhelmed...going through testing due to intestinal issues, fatigue, and actually a goiter in my thyroid and some vitamin deficiencies. Looking at these threads, realizing if this diagnosis is made it will be a completely different lifestyle for me. Anyone depressed when you were diagnosed?

 current weight: 209.0 
 
222
205.25
188.5
171.75
155
AKHEILA's Photo AKHEILA Posts: 27
5/21/10 4:00 P

My SparkPage
Send Private Message
Reply
I don't think being a vegetarian will limit you as much as you think. Yes there will be changes, but that is true with many things. You will find many new grains that aren't as popular, but quite good.
Good luck!

 Pounds lost: 2.0 
 
0
7.5
15
22.5
30
SFISHOME Posts: 197
5/15/10 12:46 P

My SparkPage
Send Private Message
Reply
Hi,

New to this group and new to the whole gluten thing. A few weeks ago, I had terrible lower left abdominal pain. I went to the doctor. She felt around and theorized it might be diverticulitis. She put me on antibiotics which made me feel awful and didn't help a whole lot. I went to an acupuncturist who did help, but only a bit.

Yesterday morning I was feeling a bit better, then I ate breakfast, which included an english muffin. All of a sudden, I felt a lot worse. So, I've decided to test gluten free for a couple of weeks.

Here's the kicker, though, I'm a vegetarian, so I'll be pretty restricted. I'm taking a trip to the health food store today to pick up some supplies.

Any suggestions or comments would definitely be appreciated.

 current weight: 156.0 
 
185
170
155
140
125
Page: 1 of (2)   1 2 Next Page › Last Page »

Report Innappropriate Post

Other Celiac Disease and Gluten-Free Introduce Yourself to Team Forum Posts

Topics: Last Post:
New here 1/21/2014 11:52:04 AM
Glad to find this group here 7/11/2013 12:52:48 PM
Hey there! 10/29/2013 8:31:06 PM
Fiber Intake 8/10/2013 1:03:11 PM
hello I have celiac and am new to sparks 8/13/2013 3:50:57 PM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x948x11900810

Review our Community Guidelines