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REENYBEANS's Photo REENYBEANS Posts: 553
11/6/13 1:11 P

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Hi, I am new to the team too. My name is Maureen. I have had my family tell me over and over that I need to get my hearing checked after saying "what?" to many times. I noticed that I couldn't hear what someone was saying if their back was turned and I was relying on facial cues. This spring I went to an audiologist and found out that I have Meneires. I have moderate hearing loss in my left ear and mild in my right. I now have hearing aids and it has made a tremendous difference. I had no idea how much I was missing.

Reenybeans (Maureen)


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PROVERBS31JULIA's Photo PROVERBS31JULIA Posts: 2,038
8/18/13 7:33 P

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HI Mandie -
Hey, just wanted to reassure you!!

My dad had the otoschlerosis here about 10 years ago, and his surgery went fine... (oddly enough, he ended up with shingles near his ears, and when doctor looked at his ears, he asked my dad if he had a stapendectomy? and said that whoever did it did a great job.). I've got relatives who have had the surgeries and they all hear better than me. I suppose I could yet get it, but for now my main deafness is related to Rh blood factor incompatibilities.

Here's some links you might want to check out:

Association of Late Deafened Adults
www.alda.org/

Hearing Loss Association of America
www.hearingloss.org

National Cued Speech Association
www.cuedspeech.org

Association of Medical Professionals with Hearing Losses
www.amphl.org

National Association of the Deaf
www.nad.org

Hope these links will have information of interest to you and help reassure your fears. Hearing loss may not be convenient and may be disruptive to your life (at least for awhile) but after awhile you may realize that the situation could be far worse. I realize it might be "easy" for me to say this since I was hard of hearing since early infancy when my deafness evidently began (parents didn't know about the Rh blood factor incompatibility until about 11 years after my birth. Long story!!). But then again, I've never been in your shoes facing a possible sudden hearing loss - although - as an adult, my hearing has continued to decline significantly and now my left ear is considered severe to profoundly deaf and my right ear is catching up rapidly.

Anyway - feel free to ask questions!! There aren't any silly questions, except the ones that you don't ask!

Julia

Edited by: PROVERBS31JULIA at: 8/18/2013 (19:43)
Matthew 6:33-34
But seek first the kingdom of God and His righteousness, and all these things shall be added to you. 34 Therefore do not worry about tomorrow, for tomorrow will worry about its own things. Sufficient for the day is its own trouble.
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PRINCESSMANDIE's Photo PRINCESSMANDIE Posts: 4,820
7/3/13 5:05 P

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I'm Mandie and I'm 32. I'm a mom of 4 and a nurse in a hospital. I've never had issues with my ears, other than a couple of ear infections when I was younger and swimmers ear from LOTS of hours at the pool. In 2009 I developed Vertigo. It was sudden and lasted for about 2 weeks. I have no idea why I developed it suddenly but now looking back maybe that was the onset of my hearing loss.

I started getting ear infections last year and have been getting them in my left ear about every 6 months. Or so I thought. Basically I would feel like my ear was full so I would get out a q-tip and clean my ear. I know you shouldn't use a q-tip but that's all I have handy. The next day my ear would hurt so I would go to the doctor who would tell me my ear looked inflammed and irritated, he would prescribe ear drops and after finishing them my ear felt better. About 6 months later the same thing would happen. So now fast forward to about 3 weeks ago and I have another ear infection. This time my doctor says he's going to refer me to an ENT specialist. I never expected what happened next.

Before seeing the actual doctor they had me do a hearing test. Well long story short last Wed. I was diagnosed with Otosclerosis. My hearing loss is in my left ear currently and only about a 10% difference. Eventually both ears will be affected and I will completely lose hearing.

My mom was diagnosed with Otosclerosis when I was young, maybe 2 years old. By the time she was my age now (early 30's) she was almost completely deaf and had to have surgery to correct this called a Stapedectomy. She hears fine now. Apparently Otosclerosis is hereditary and I had a 50/50 chance of having this. Lucky me.

I'm just trying to wrap my head around it. This is something I saw my mom suffer through and I was terrified of losing my hearing. My mom didn't know it was hereditary and reassured me time and again that I wouldn't lose my hearing. Here I am 25 years later, with one of the few things I was terrified of having.

Sorry this is so long. I just had to get things off my chest. I've talked a little bit about it with my mom but I haven't told her how scared I really am. My fiance is sympathetic but doesn't really understand my fear either. I'm glad to have found a group and can vent and cry and know that its not the end of the world, I'll learn to adapt.

August 1: 145 lbs
Sept 1: 140 lbs
October 1: 135 lbs

"Go placidly amid the noise and the haste, and remember what peace there may be in silence...
You are a child of the universe, no less than the trees and stars...In the noisy confusion of life, keep peace in your soul" ~ Desiderata


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