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GABIRUSZCZAK's Photo GABIRUSZCZAK SparkPoints: (178,238)
Fitness Minutes: (172,331)
Posts: 1,817
1/27/11 8:53 P

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My doctors have gone back and forth as which one of the two conditions led to the other can be so frustrating...

I am glad you joined our team! WELCOME

Leader: Lupus and Fibromyalgia Butterflies
Co-Leader: SP Class of November 16-22, 2008
BLOG: serendipitysditchdigger.blogs

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SLAIGAARD's Photo SLAIGAARD SparkPoints: (0)
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1/19/11 12:35 A

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Hello. I am just starting here on Spark and was finding a support system for people with Fibro and Lupus. Was very happy to see one with both so don't feel quite so odd.Have had Fibro for 20yrs. Haven't had the "formal" diagnosis of lupus yet but since my mother has it the Dr. Basically told me that was what I have. Am frustrated because he won't give me the formal "you have Lupus" yet but am working on it.
Anyway, just wanted to connect with other people who are suffering with the same issues I am. Just can't connect as easily anymore with people since they just don't understand why I am the way I am. In pain all the time! Am trying to lose wt. now since have been unable to effectively exercise in a long time.
I just don't have the spoons anymore for most things esp. since I am working. I am trying everyday to smile at the lady in the mirror and be happy eventhough I am suffering.


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