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GABIRUSZCZAK's Photo GABIRUSZCZAK SparkPoints: (145,483)
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7/21/10 4:07 P

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It can be REALLY frustrating when the diagnosis keeps switching between Lupus, Fibromyalgia, and both!

Leader: Lupus and Fibromyalgia Butterflies
Co-Leader: SP Class of November 16-22, 2008
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GABIRUSZCZAK's Photo GABIRUSZCZAK SparkPoints: (145,483)
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7/19/10 11:15 A

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I read once that people with Fibro actually have a lower tolerance for medicine, meaning in theory they should be able to use less. However, in my case, and I think in yours, the opposite is true. Whether its from just being on the same meds for too long or something to do with Fibro, I know that for me, when my dosages start to get really high without giving me relief, its time for my doctor to switch my meds again...things always improve dramatically after I switch...and if those meds don't work after a while, we switch back. I have come to understand that dosages are very personal things and it is important to have an open and true partnership with your doctor. Never be afraid to tell them when something is not working and work with them until you both find something that does...GABI

Leader: Lupus and Fibromyalgia Butterflies
Co-Leader: SP Class of November 16-22, 2008
FACEBOOK: https://facebook.com/gabriela.ruszczak
BLOG: serendipitysditchdigger.blogs
pot.com/


 current weight: 159.5 
 
230
206.25
182.5
158.75
135
GABIRUSZCZAK's Photo GABIRUSZCZAK SparkPoints: (145,483)
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Posts: 1,802
7/15/10 6:32 P

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I understand...I have had so many Drs. vacilate between Lupus, Fibro, MS...etc...for years - then my brother got sick and almost died. At first they thought it was TB, but one sharp Dr. recognized it as Wegener;s a really nasty autoimmune...now they write journals about his case too, most of their patients have died, but not him - he's a fighter.

Leader: Lupus and Fibromyalgia Butterflies
Co-Leader: SP Class of November 16-22, 2008
FACEBOOK: https://facebook.com/gabriela.ruszczak
BLOG: serendipitysditchdigger.blogs
pot.com/


 current weight: 159.5 
 
230
206.25
182.5
158.75
135
AIMIN4STRZ Posts: 5
7/15/10 3:53 P

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I went through the ringer trying to get diagnosed... I woke up one morning in the 7th grade with a hole in my face... I spent the next 4 yrs trying to find a doctor that could tell me what it was and how to stop it from growing... I saw over 300 dr's and finally they came to the conclusion the it was a localized form of Morphea... MY FIRST AUTO-IMMUNE Disease... YAY... Then I ended up was RA and then it was Sjogrens... and then I was diagnosed with Lupus... oh and I forgot I ended up with Fibro... I don't think it's fair that when you get one condition that's auto-immune that you are more inclined to get more also.... Dr's write medical journals about my case... yet I always hear... I don't know... I'm sorry... yeh... so am I! :)

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GABIRUSZCZAK's Photo GABIRUSZCZAK SparkPoints: (145,483)
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6/30/10 12:49 A

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I started having symptoms in High School but wasn't diagnosed until 1992...30 years later...

Leader: Lupus and Fibromyalgia Butterflies
Co-Leader: SP Class of November 16-22, 2008
FACEBOOK: https://facebook.com/gabriela.ruszczak
BLOG: serendipitysditchdigger.blogs
pot.com/


 current weight: 159.5 
 
230
206.25
182.5
158.75
135
GABIRUSZCZAK's Photo GABIRUSZCZAK SparkPoints: (145,483)
Fitness Minutes: (139,901)
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6/26/10 2:55 A

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This forum is a place to share our (mis)adventures in modern medicine as we sought for and endured various diagnostics and diagnoses from doctors, nurses, etc. Feel free to rant, rave and share...and always ask questions...

Edited by: GABIRUSZCZAK at: 6/26/2010 (03:05)
Leader: Lupus and Fibromyalgia Butterflies
Co-Leader: SP Class of November 16-22, 2008
FACEBOOK: https://facebook.com/gabriela.ruszczak
BLOG: serendipitysditchdigger.blogs
pot.com/


 current weight: 159.5 
 
230
206.25
182.5
158.75
135
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