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GABIRUSZCZAK's Photo GABIRUSZCZAK SparkPoints: (131,220)
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8/4/10 3:31 A

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WOW...that's a lot to deal with all at once - my heart aches for you. There ARE effective treatments, but I won't lie to you, sometimes its a crap shoot to see which ones will work... read everything you can - especially from other lupus sufferers...and remember that many of these autoimmune disorders are great pretenders, taking on the symptoms of other things...listen to your body and join the Lupus Foundation of America...we are here, we might be slow to respond sometimes, but you are NOT alone! Gabi

Leader: Lupus and Fibromyalgia Butterflies
Co-Leader: SP Class of November 16-22, 2008
FACEBOOK: https://facebook.com/gabriela.ruszczak
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TWEETSIE16404's Photo TWEETSIE16404 Posts: 226
8/1/10 10:59 A

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I too have just found out that I have possible lupus. It is very frustrating and painful. Right now I feel like I am in the middle of the ocean drowning and waiting for a boat to come along and rescue me. I have had Ra for nine years and have fibro and diabetes too. I was put on an insulin pump Memorial day weekend and felt that was the end of most of my problems. Then I awoke one day to find my leg swollen and hurting so bad I couldn't stand on it. My PCP and I discussed the RA and she took blood tests which I found last Monday showed a pattern for lupus. She has taken another test and I will hopefully find out the results on Tuesday when I go back to her. My PCP has lupus herself and diabetes and is priceless to me. She seems to know what and where to look for everything. I just can't believe my Rheumy hasn't checked for this before. Sooo right now I am living on pain killers, MTX and prednisone. Resting the leg with a pillow and ice and wondering what kind of cocktail will be prescribed next for treatment. I wouldn't wish this kind of pain on anyone.

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GABIRUSZCZAK's Photo GABIRUSZCZAK SparkPoints: (131,220)
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6/26/10 2:53 A

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Welcome Alicia!

I think you'll find that most of us went through a roller coaster of a time before getting a definitve diagnosis...unfortunately seems to be the norm...anyone else have a story of diagnostic ups and downs...I will be making this a new topic for discussion...Gabi

Leader: Lupus and Fibromyalgia Butterflies
Co-Leader: SP Class of November 16-22, 2008
FACEBOOK: https://facebook.com/gabriela.ruszczak
BLOG: serendipitysditchdigger.blogs
pot.com/


 current weight: 161.5 
 
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ALICIABARRETT's Photo ALICIABARRETT SparkPoints: (3,258)
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6/23/10 11:53 P

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Hi all, I'm new to your team. I started being treated for lupus 3 years ago, though different doctors give me different opinions.....do I have it or not? Only God knows! I'm glad to have a team now.

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