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HLTHYLIVNCCJ's Photo HLTHYLIVNCCJ Posts: 5,366
2/5/10 12:29 P

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I was in a bit of a rush when I posted yesterday....son was wanting to get out of the house and kept telling me to hurry up. So wanted to explain that only during the episodes have I had severe dizziness that I couldn't stand up and just had to lay still a bit. When they subsided, I felt better, though a tad drained. Once the diuretic kicked in, I felt/feel better, though I have good days and bad days,usually just with a touch of dizziness and the ringing, but always manage to keep pushing through. I had to learn not to go full throttle at things anymore and instead pace myself, which is a good thing as I am a Type A personality and I need to be a Type B personality. So having this is not a curse, but sometimes a blessing in disquise.

My doctor states that it will eventually burn itself out in about five or six years, I keep counting down the days! The hearing fluctuates as does the pressure in my ear, but it is something you just learn to deal with.

I was skeptical about how much the low sodium diet would help, but it works wonders. On days where I keep the sodium low, I feel so much better. On days where it is higher...well not so good. But, in keeping the sodium low, I have also started losing weight again and my blood pressure has come down considerably, where I hardly have to use any medication. My hubs, who is a salt addict, started eating how I have to eat and without doing anything else differently, he lost 5 pounds in three months. So there are great things to be said about a low sodium diet.

It is hard to watch the sodium, as it is hidden in everything. But, you will do fine!

There are both of us on here with Meniere's and one other individual too.

-Cindy-
Member of Living Healthy with Insulin Resistance/Low GI Diet Team

Member of Lowering Salt Intake Team

The greatest success is the ability to rise from failure.

"All our dreams can come true, if we have the courage to pursue them. " - Walt Disney


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MSHELEN21's Photo MSHELEN21 SparkPoints: (146,816)
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2/4/10 5:02 P

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Hi teammates.... emoticon all so much for sharing your posts with me. emoticon

Wow....Cindy, I would say you have Meniere's worse then I do. I saw my ENT doctor back Dec of 2008 and he ran an extensive test to determine if I had Meniere's Disease, yes I do, but he calls it "not true Meniere's disease since I have excellent hearing. I do get the vertigo and ringing in the ears sometimes. The VERTIGO is the real drag for me!! I work so even having it I get up and get to work. I exercise and try and go for walks 2 - 3 times per week and lift weights the other days.

Yes, the ENT wants me to also watch my sodium intake and I put me on the diuretic med on 9/9/09 due to having fluid in the inner ear and getting the vertigo going. emoticon

So I wanted to check and see how many others here have this condition and how you are dealing with it.

I know it is so HARD to watch the sodium and I am working on the reading labels.

Well thank you all again I sure do appreciate all your great responses. emoticon

Looking forward to getting to know you all too. emoticon





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HLTHYLIVNCCJ's Photo HLTHYLIVNCCJ Posts: 5,366
2/4/10 2:00 P

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Welcome MsHelen21!!

Actually, I too have Meniere's. Was diagnosed in January 2009, though looking back, had some of the symptoms for a year or two prior. There are differing levels of Meniere's from just a touch of it where you function ok without medicine to that of severe, where you fall down a lot and pass out from the dizziness. Where do you fall with the Meniere's?

As for myself, I am in between. For the longest time, I had my left ear feel like it was always infected, fullness and a ringing in the ear. I kept getting dismissed with it, until I had a week with repeated Meniere's episodes, one dizzy spell after another, where I couldn't eat, couldn't stand up without assistance and just had to lay down and be still as the whole room was spinning. I went to my Ear, Nose and Throat specialist (ENT or otolaryngologist), and he did a hearing test on me and suspected an inner ear episode, which you can have one episode and then clear up and have no further problems. He stated if it never came back it was an inner ear episode, if it came back it was Meniere's. Anyhow, my hearing showed a decrease in one ear that day and sadly, three months later, had another episode with further decreased hearing and a diagnosis of Meniere's.

At that point I was put on a diuretic daily and told to strictly watch my salt. I went to see an inner ear specialist in our area that actually specializes in treating Meniere's, vertigo, etc. So he uped my diuretic to two pills a day and stay on the low sodium diet around 1500 mg to 2000 mg a day.

After a couple of weeks, the diuretic kicked in, as it pulls fluid off the inner ear where there is less fullness, less dizziness, etc. But, the key is the low sodium diet. I find that I do best when I stick to 1500 mg of sodium a day, though on very good days, can get away with a little more, though not often. I make sure I stay between 500 to 800 mg per meal.

The best way to keep the sodium low is to read all labels, cook from scratch and definitely drink a lot of water to help flush the sodium from your system. If I dare get a touch to much sodium, I get dizzy, nauseated and unbalanced on my feet quickly. I guess as a result of the Meniere's I am now sodium sensitive.

I was first overwhelmed by trying to keep the sodium low, but the more I researched, the more I started cooking from scratch and being aware of all sodium out there, including those found in nature (fresh fruits and veggies), plus planning carefully when going out to eat (which is hard to do with Meniere's, but not impossible), I started feeling better.

Another downfall of Meniere's is that you might feel drained from energy. I asked my specialist about this and he said it is common with the disease, as your good ear is overcompensating for the loss of balance in your bad ear and using up more energy as a result, thus draining you. I asked what I could do to help with this and believe it or not, he said exercise and pushing through on days you feel bad will help. Though he recommended a treadmill or stationary bike to do these things and resist anything that requires a lot of head bobbing, as that only aggrevates the problem. So if I am out and about and wanting to walk the malls or grocery stores, I grab a cart to steady myself and walk or luckily, my son is still young enough that he can sit in a stroller and let me push while I walk.

Sorry to be long winded about this. Hopefully some of this information helps. Feel free to ask questions, share comments, etc. here on the posts or write me personally. I know there are a couple of us on here that have Meniere's, as well as other issues. But, we are all in this together and reducing the sodium in the diet definitely helps!

Best wishes!

-Cindy-
Member of Living Healthy with Insulin Resistance/Low GI Diet Team

Member of Lowering Salt Intake Team

The greatest success is the ability to rise from failure.

"All our dreams can come true, if we have the courage to pursue them. " - Walt Disney


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CRUZINCARIL's Photo CRUZINCARIL SparkPoints: (8,285)
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2/4/10 12:12 A

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i think it involves vertigo and maybe tinnitus

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LITTLEWIND53's Photo LITTLEWIND53 Posts: 15,258
2/3/10 10:01 P

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Cindy, the team leader has minieres. She is a real fountain of knowledge. People have many different reasons for joining this team, ranging from High Blood Pressure to Menieres to Congestive Heart Failure and a whole host of other problems in between.

The people are nice and friendly and very supportive. You will learn a lot here, check out the other threads and see what has already been discussed, and if you have any questions, don't hesitate to post.

I wish you much success on your jouney to a healthier you.
emoticon

Linda

Leader: Living with Diabetes
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SONYA_J's Photo SONYA_J SparkPoints: (14,862)
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2/3/10 9:11 P

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Welcome to the team! emoticon

If that is the inner ear thing, pretty sure I saw someone mention it just in the last few days, here or on the high blood pressure team.



�onya


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MSHELEN21's Photo MSHELEN21 SparkPoints: (146,816)
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2/3/10 7:03 P

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Is there anyone on this team dealing with Meniere's Disease? If so, what are you doing for it?





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