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LCDOUGLASAU's Photo LCDOUGLASAU SparkPoints: (16,410)
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12/2/12 6:30 P

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So happy to hear that you are doing well! Waiting for the cycles to get back in check and waiting for hormones to get back to normal is the hardest thing! I'm glad that it sounds like you're upbeat about it all and hope you get your sticky baby soon!

Lisa :)

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MOONLIT's Photo MOONLIT Posts: 1,572
12/2/12 1:08 P

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I'm am so happy for you that you have doctors that are working with you to try and figure this all at. It's great that you are feeling so much better and I wish you the best.
Hang in there and remember we are here when/if you need us.
Peace,
moonlit

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LINDSEYKRISTEN's Photo LINDSEYKRISTEN Posts: 25
12/2/12 1:07 A

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I wanted to update you guys - I started taking a B complex vitamin which has raised my basal body temp. It's still pretty wacky and my cycles aren't back to normal yet. If they still aren't normal by January (when we were planning to try again), we might have to wait a while longer while we get things figured out. I feel amazingly better than I did even a month ago. Hormones are not my friends ;) Waiting three months is hard but it's giving me a chance to relax and get some perspective.

LINDSEYKRISTEN's Photo LINDSEYKRISTEN Posts: 25
10/25/12 12:23 A

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I could probably find someone who would do the testing, but it would be difficult, and expensive. I go back and forth between wanting to do every test available and find out exactly what's wrong and make sure it doesn't happen again, and realizing that that's not even possible and at some point I just have to hope. I really don't know what to do. And I will feel so guilty if I don't do anything and it happens again.. agh! this sucks :(

LCDOUGLASAU's Photo LCDOUGLASAU SparkPoints: (16,410)
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10/24/12 7:56 A

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Definitely... good luck and I also hope that we are all 3rd time is a charm! I'm about to be trying for my 3rd time so I'm going to need some good vibes and luck coming my way! So nervous, but I figure you can't keep the thought of bad things keep you from trying for what you want. Just crossing everything I've got that the next one is my baby!

And I agree with you that hearing about other people's pregnancies is the HARDEST thing through all this. You're recovering emotionally, you're doing great and them BAM... you see a really happy announcement on facebook with about 500 comments of "congrats!" attached to it. It's so hard. And it's so hard to watch those who were pregnant after you reach all the milestones (ultrasounds, finding out the sex, etc...) while you're back to step 1... waiting for that silly smiley face on your ovulation stick. We're not alone, unfortunately... thanks gals for all your support! And I'm cheering for each of you!!

Lisa :)

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GIGERNREZNOR's Photo GIGERNREZNOR SparkPoints: (13,683)
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10/24/12 6:59 A

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Hi again. Where do you live that no one will see you for testing? In my experience, it's up to you if you want testing--though all docs say the same thing in that they tend to say its not considered "recurrent loss" until 3 in a row. Fortunately, our insurance covers all labs and the specialist visits are just a regular copay, so that's why we are doing this. I understand that not all insurances are alike though;(

I do wish you the best and if you choose to do more testing--best of luck! If not, I do hope you are like all of us and the 3rd time is the charm:)

Edited by: GIGERNREZNOR at: 10/24/2012 (07:00)
LINDSEYKRISTEN's Photo LINDSEYKRISTEN Posts: 25
10/23/12 11:53 P

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Me too! I was so hoping my thyroid would be low and that would explain everything. :(

My midwife said that no would see me for special testing without three miscarriages in a row or if I had been trying for a year. I also don't want to spend a ton of money on what might be completely unnecessary tests. I guess there's a good chance that everything will be fine next time, although I'm having trouble believing that.

So I don't know if I should pursue having more tests done or just try to be really healthy for the next few months and then try again.

Also, I found out today that a close friend is pregnant. I'm so excited for her, but all of our conversations are like little kicks in the stomach.

LCDOUGLASAU's Photo LCDOUGLASAU SparkPoints: (16,410)
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10/23/12 6:57 P

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I know this sounds funny, but I'm sorry to hear that the progesterone and thyroid came back normal. I know how badly you want to be doing something different for next time. I agree with GIGERNREZNOR that there are a LOT of tests that can be done. When I went in they literally took 13 vials of blood and my results were about 5 pages of all kinds of tests. And when they do the antibody testing they do one round and if it comes back + then they do more testing to try to narrow down the issue. That's all up to you though and what you feel comfortable doing right now. But there are a ton of tests that can be done. Thinking about you and hoping for a happier experience next time! emoticon

Lisa :)

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Losing my baby weight one day at a time!


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GIGERNREZNOR's Photo GIGERNREZNOR SparkPoints: (13,683)
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10/23/12 5:37 P

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LINDSEYKRISTEN: Do you have a specialist that you could go see, in your area? I decided to go see a reproductive endocrinologist at a fertility center. I'm at least going for testing. Beyond all the blood tests they can do (and there's a HUGE slew! You may want to look into antibody testing), they can also do all sorts of biopsies.

You're NOT alone--don't forget that:) We're all in this boat together. Take care!

LINDSEYKRISTEN's Photo LINDSEYKRISTEN Posts: 25
10/23/12 12:15 A

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Thank you so much for all of the comments. It feels like I'm the only one going through this and everyone else in my life has problem-free pregnancies. It is comforting to know that other people have dealt with, and overcome, these same problems.

My progesterone and thyroid were both normal. Which is good, but feels like a letdown. Now we have no idea what's wrong and I hate the idea of trying again in a few months without changing anything. I feel guilty enough about the first two, I don't want to add a third knowing I did nothing to try to prevent it. But I have no idea what to do! And it is still possible that the first two were just chromosome issues and the third will be fine. But I know I am going to be a nervous wreck when we try again. I wish I had some more confidence that the next time will be different.

LCDOUGLASAU's Photo LCDOUGLASAU SparkPoints: (16,410)
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10/19/12 8:28 A

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Good luck with your test results! I know the feeling of "hoping" that there is something wrong so that you have something you will do differently. It really almost puts a pep in your step to find out something was wrong and that there's something to do differently next time. Waiting is the hardest. And watching others announce pregnancies in that wait is the worst! I'll be thinking about you and hoping for happy things to come your way!! My doctor told me that getting pregnant is the hardest part and if you've found that part to be easy, then fixing the miscarriage issue is the easier one of the two to resolve! Good luck! Hope your 3 month wait goes by quickly!!

Lisa :)

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ALRITT's Photo ALRITT Posts: 24
10/19/12 12:13 A

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I am glad that your midwife is going to investigate this for you! Good job on being persistent. My basal body temp is always lower than "normal" and since thyroid problems run in my family I have been tested, but nothing odd has ever shown up. I hope they get to the bottom of this for you quickly.

I also know what you mean about it being hard to think about having to wait. I am also in a similar situation with waiting - and it seems so counter-intuitive to what I want to do, but I know it's probably for the best.

Good luck with it all!
-A

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MOONLIT's Photo MOONLIT Posts: 1,572
10/18/12 11:47 P

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I'm glad that she is willing to work with you and do testing. I hope you find out what you need to.
Wishing you the best.
peace,
moonlit

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LINDSEYKRISTEN's Photo LINDSEYKRISTEN Posts: 25
10/18/12 9:01 P

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I went back to see my original midwife today. (I've been dealing with her partner with the miscarriages because she wasn't available.) I feel much better after talking to her. I've used fertility awareness to avoid pregnancy for the past three years, and then to get pregnant. So I'm very familiar with tracking my cycles, which is what led me to think my thyroid is low since I noticed my basal body temp is always about .5 degrees lower than normal. She agreed to test my thyroid and progesterone and I should find out the results tomorrow. She also said that next time I get pregnant I should come in immediately and have the tests done again because they can change quickly with pregnancy.

The sad part is that she said we should wait three months for my body/uterus to get back to normal before trying again. I know she's probably right but it's going to be so hard! I'm kindof hoping that my thyroid is wacky so that we'll have something to fix, rather than just hoping that next time will be different.

GIGERNREZNOR's Photo GIGERNREZNOR SparkPoints: (13,683)
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10/18/12 5:35 P

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Progesterone can be only the tip of the iceberg, however. That's why I think you may not want to blindly take any supplements--including hormones. An endo is a specialist in hormonal issues and will be able to do a full thyroid panel, but also test your testosterone, estrogen and progesterone levels. (Too high testosterone can also cause issues--but those I think are generally associated with PCOS and conception problems.)

Also, I'm not sure if you may have read this yet, but a luteal phase defect can be an issue with holding onto the pregnancy due to the defect (I think this is the one that IS progesterone-related) not allowing the embryo to implant correctly. This can cause the early MCs that so many of us have been having. Unfortunately, however, testing for progesterone issues and a possible resulting luteal phase defect involves weeks or even months of testing your levels because you have to go in throughout your cycle to get tested to see if your luteal phase is too short. But, if you have good insurance, this could be your best bet if you do not want to risk a 3rd consecutive loss (which I certainly do not.)

Sorry, I know this is all overload. I've overloaded myself with info as well. I hope any tiny bit of what I said helps.

EMOLESUGAR's Photo EMOLESUGAR Posts: 61
10/18/12 5:20 P

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I know, no one wants to share this news or experience. I've done SO much reading on possible tests and answers that I might be in overload. Your advice about seeing an endocrinologist is helpful and I might just do that. My doctor said taking progesterone definitely can't hurt and might help and has already offered to prescribe it sans testing so I'll probably take her up on that next time we are trying.

It feels strange to be at work - physically I'm fine, but emotionally I don't feel like myself at all. This group is so comfortable. I rarely post on sparkpeople, but am finding the messages and experiences of others here make me feel understood. Thank you for the response. I have hope for all of us!

GIGERNREZNOR's Photo GIGERNREZNOR SparkPoints: (13,683)
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10/18/12 4:55 P

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EMOLESUGAR: Uuuugh I was so hoping to NOT hear this sort of news from you:((( You're losing your babies around the same time frame as myself, however--around the 6 wk mark. Was your first around the same time?

RE: your doc not doing testing until a 3rd--are you demanding testing? I demanded testing and also am going to a reproductive endocrinologist because I absolutely REFUSE to be "forced" to have a 3rd consecutive MC before I start getting tested for things. Especially, being that I have a history of thyroid/hormonal issues.

Have you ever seen an endocrinologist? I have in the past, but never a reproductive endo. If your OB/GYN isn't willing to write a lab slip for you for testing, can you or are you willing to seek out a 2nd opinion or a doctor that will at least support you getting testing (if that is even something you wish to do.)? I've heard of women getting testing after their very FIRST loss even--for progesterone mainly, but also potentially for antibodies like antiphospholipid that can cause early pregnancy loss.

Feel free to vent away, if you like. Please hang in there and realize that there is still lots of hope at the end of this seemingly dark tunnel.

Take care,
~R

EMOLESUGAR's Photo EMOLESUGAR Posts: 61
10/18/12 4:33 P

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LINDSEYKRISTEN - I'm so sorry to hear about your second loss. Unfortunately, I'm right there with you. I had my second miscarriage this weekend at around 6 weeks. I saw my doctor on Monday and, like others have said here, they won't/don't do testing until a woman has had 3 consecutive losses.

She did run some blood tests and it turns out my TSH (thyroid stimulating hormone) level is high and she wants me on a supplement. Something maybe to ask your doctor? Like others have mentioned here she also said that low progesterone could be a factor and said I could take a supplement from the time of ovulation next time we try. I wanted to share these details in case they are helpful.

Mostly, I find comfort knowing that you all are out there and can understand this experience and how hard it is. If only we didn't have to share it.

LCDOUGLASAU's Photo LCDOUGLASAU SparkPoints: (16,410)
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10/12/12 8:59 A

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I agree as well with what the other girls have said! The hard part for you is that you keep losing so early that they are unable to run a lot of tests on you before you lose. I would see someone who might think about running tests on you to see if there might be something you can do before next time. If it's something like low progesterone, that is such a easy fix (for me they want me taking as early as ovulation), but until it's noticed, you might have a rough time if that's the issue. Just a thought :) You know yourself what is best for you! Hope are you doing okay... I know it's rough!

Lisa :)

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GIGERNREZNOR's Photo GIGERNREZNOR SparkPoints: (13,683)
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10/11/12 9:07 P

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I agree with MOONLIT. New doctor and demand testing if your insurance covers it or you are willing to pay it. I am demanding testing after this second MC and even though my OB thinks its probably another random loss, she accepts the fact that I do not agree with her and supports my decision to see a reproductive endocrinologist for in-depth testing. (Not that I need her blessing, but cool that she is good with me going to another doctor.)

Edited by: GIGERNREZNOR at: 10/11/2012 (21:10)
MOONLIT's Photo MOONLIT Posts: 1,572
10/11/12 8:33 P

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I would really suggest finding a new doctor and insisting on test being done. I would hate for you to have to go through this again just because your doctor doesn't see an issue. Sometimes we need to stand up and demand answers this is one of those times.
I wish you the best.


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LINDSEYKRISTEN's Photo LINDSEYKRISTEN Posts: 25
10/10/12 10:28 P

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My doctor wasn't very helpful. They don't really recognize what I've had as a miscarriage because it was SO early. They don't want to do any tests or anything, and I'd have to see someone else instead of the midwife I like. So I think my best option is to eat a really healthy diet, exercise a lot, and look into some extra supplements. I am suspicious that my hormone levels aren't right, and I know that in many cases better nutrition can correct that. I don't really know what else to do.

GIGERNREZNOR's Photo GIGERNREZNOR SparkPoints: (13,683)
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10/9/12 1:55 P

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I'm SO sorry to hear about your 2nd:( I just had my 2nd a couple weeks ago as well and have also been dealing with pregnant 2 sisters in-law:( It's hard and nothing I say can help, BUT, I've just been starting to think about all the ways I can finally take control of this and demand testing for everything. I made an appt with a fertility clinic for Nov 12. I also just got a couple of labs from my D&C and the one test said my progesterone was SUPER low...so, i'm hoping that means they can start to investigate the possible reasons for my progesterone being that low and pinpoint the cause for the losses. Mine were both lost at around 6 weeks. The nurse at my doctor's office said that progesterone can cause the embryo not to implant correctly and that can cause the early loss. Here's hoping!

Take control over what you can--like your health--mental and physical. Let (or FORCE) the doctors to do their part. Just take care of you and talk about it if/when you can. That's all the advice I can give, and it's somehow been helping me get along these past few weeks.........

Edited by: GIGERNREZNOR at: 10/9/2012 (13:56)
JUST_DUCKIE's Photo JUST_DUCKIE Posts: 7,000
10/9/12 1:14 P

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I'm sorry to hear about your losses. I can only imagine how difficult it is to hear about your boss's DIL when you were due the same time. I have a couple of friends who have children the same age as my daughter would be, and it is a challenge to see them grow and develop.

I would echo what has been said already. Take good care of yourself, be gentle with yourself, and allow every emotion you're experiencing (including anger!).

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MOMIN09's Photo MOMIN09 Posts: 22,432
10/8/12 9:25 P

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I'm so sorry for your losses. I'm here if you want to talk or vent.

emoticon

-Nicole

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MOONLIT's Photo MOONLIT Posts: 1,572
10/8/12 6:27 P

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Oh sweetie I am so sorry for your loses. I hope your doctor can give you some answers. I wish I could give you a hug. Be kind to yourself and know what ever emotion you are feeling is normal. Know that you can always vent on here and if you want to contact me personally please feel free to do so.
I wish you peace,
moonlit

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LINDSEYKRISTEN's Photo LINDSEYKRISTEN Posts: 25
10/8/12 5:04 P

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I just had my second miscarriage - both at about 5 weeks. I know I'm lucky in that sense, because I can only imagine how much harder it is later on. But now I know that it wasn't a fluke, that there is actually something wrong with me that is causing this. How can I not be depressed about that? I'm trying to stay positive and get in to see my doctor and see if we can check for some of the most likely causes, like PCOS and low thyroid. And I'm really hoping they find something that is simple to fix so I can be less terrified of it happening again.

My boss's DIL is pregnant and due in April, which is when I was due with my first. So I get to hear about how she's doing and be reminded of where I should be at in my pregnancy.

I feel so angry. I have a coworker who has had 3 accidental pregnancies (all perfectly healthy) with 3 different fathers. And every time she mentions her kids I want to strangle her. I know this is ridiculous, but it's so unfair!

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