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9/15/07 3:45 P

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Sounds like you've had even more fun with it than I have. Luckily, they caught it early enough with me that surgery and one round of the radioactive iodine did the trick.

I couldn't imagine it at 18! 23 was hard enough. I just remember thinking, "I don't have time for this. My senior year starts next week, and I have to work overtime to pay for books." Funny how your brain works at a moment like that.

I'm glad to be part of the group. Makes me feel better to know I'm not alone it the battle.
Thanks, for the warm welcome.

Sara

"Yesterday is history, tomorrow is a mystery, and today is a gift; that's why it's called the present."


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ELYRIAWORMWOOD's Photo ELYRIAWORMWOOD Posts: 108
9/15/07 4:52 A

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Yeah, thank goodness for the good cure rate. Some of the side effects of no-thyroid are a real pain, but better than having some really, really horrible incurable cancer, that's for sure!

I had Stage III papillary thyroid cancer that had spread to other lymph nodes in my neck area. I was diagnosed with that in '98 (days before my 18th b-day..what a gift..lol), had surgery immediately thereafter, had radioactive iodine treatment, had another surgery, and then had a recurrence at the end of 2000, which resulted in more radioactive iodine. But, since then I've been doing well.

The once a year cancer check is a real bummer, especially the first few times because dr.'s discourage the use of Thyrogen early on. After that though, the Thyrogen injections are a life saver for the scans.

Nice to have you in the group here!

5' 9.5" tall


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DEBKAY0923's Photo DEBKAY0923 SparkPoints: (606)
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9/14/07 8:07 P

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hello and welcome to our team. It is difficult with hypo but it can be done losing the excess pounds, I found challenging my body to do more help me shed some of my weight and also sparks, for it where I read the atricle to challenge my body. good luck to both of you on your weightloss and goals

Deb

Believe
Believe in yourself. in the power you have, to control your own life, day by day
Believe in the strength, that you have deep inside, and your faith will help show you the way. Believe in tomorrow and what it will bring.
Let a hopeful heart, carry you through, for things will work out if you trust and believe-
There's no limit to what you can do !!



 
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9/14/07 7:36 P

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I dont remember the exact term ( one of those I can't pronouce) but the ENT and Endo said it was one they weren't worried about so much about spreading elsewhere. They reomoved the gland and got everything along with it. It's been almost 2 years now and I'm doing fine, they just had to up my dose and I gained almost 60lbs afterward since my body is trying to readjust. I still have to do the once a year cancer check for the next 3 years before they will completely clear me, and thats stressful. But all in all, a 98% survival past 25 yrs is what they tell me...sounds like great odds to me.

How long have you been deal with hypothyroidism?

Sara

"Yesterday is history, tomorrow is a mystery, and today is a gift; that's why it's called the present."


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ELYRIAWORMWOOD's Photo ELYRIAWORMWOOD Posts: 108
9/14/07 6:52 P

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Welcome, Sara!

Sorry to hear you've been struggling with thyroid issues for quite some time, but it sounds like you haven't let it get you down and instead have learned about it and how to better manage.

What type of thyroid cancer were you diagnosed with? How are you doing now?

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9/14/07 3:43 P

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Hello everyone,

Let me intro myself. My name is Sara, I'm 25, and live in Southern California,more spcifically orange county. I have been living with hypothyroidism for more than half of my life, having been first diagnosed at age 11. They speculate I was hypo from birth, due to a mother that was hypo and went undetected and untreated.
I've always struggled with my weight, and totally understand all that comes with having this disease. On my 23 bday I got the news I had cancerous nodules on my thyroid gland, and subsequently went through sugery.
I know it's tough and would love to share my knowledge and tricks with others, as well as learn a few new things.
Also, it would be awsome is someone was here in my area and wanted to be a exercise/accountabilty buddy.

Hope you all have a great Friday, and a great weekend!

Sara

"Yesterday is history, tomorrow is a mystery, and today is a gift; that's why it's called the present."


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