Author: Sorting Last Post on Top ↓ Message:
MZZCHIEF's Photo MZZCHIEF Posts: 9,058
7/13/12 3:55 P

My SparkPage
Send Private Message
Reply
hey Amj!
Welcome to our team, I see you've gotten a lot of thoughtful replies.
Sorry that you're having problems, all of us here can relate.

As for being confused... there's a lot of stuff to learn.
Eventually things will fall into place.

Perhaps aim for learning one thyroid fact a day?
Think I'll start a thread on that.

: )
Mzzchief

Never underestimate the value of getting out of your own way.

Team leader of Thyroid Community. www.sparkpeople.com/myspark/groups_i
ndividual.asp?gid=732


New Thyroid Community Team Members, please read:
www.sparkpeople.com/myspark/team_mes
sageboard_thread.asp?board=261x732x489
68909&src=email


 current weight: 149.0 
 
156
150.75
145.5
140.25
135
SUEPERSTARS's Photo SUEPERSTARS SparkPoints: (33,078)
Fitness Minutes: (50,982)
Posts: 442
7/13/12 9:46 A

My SparkPage
Send Private Message
Reply
If you do end up having Graves' Disease, or for anyone who does and wants more information, a book I bought which I found very informative

"Graves' Disease: A Practical Guide" by Elaine Moore

Here's a link to it on Amazon, but I'm sure you could find it many other places, too.

www.amazon.com/Graves-Disease-Practi
ca
l-Elaine-Moore/dp/0786410116


Elaine Moore and Mary Shoman are both well respected people when it comes to Graves' so they are good sources to start your research from.

My mother and half-sister (on my dad's side) both also have thyroid issues, but my mom is hypo, diagnosed when she was 40ish, and my sister had half her thyroid removed because they found a suspicious nodule on it, back in the mid-80's when she was 22. So yes, thyroid issues run in my family, too, but not Graves'! (I was 34 when I was diagnosed.)

Doctors still don't know a lot about where autoimmune diseases come from, or start, but there is probably a genetic component to it. I found out my maternal Grandmother's sister had MS.... autoimmune is also more common in women than in men, too. Lucky us!

If I choose to not do anything differently today, tomorrow is going to be exactly the same as yesterday.

"Shoot for the moon. Even if you miss, you’ll land among the stars!" ~ Les Brown


 July Minutes: 919
 
0
375
750
1125
1500
ROSEDALE777's Photo ROSEDALE777 Posts: 136
7/13/12 9:41 A

My SparkPage
Send Private Message
Reply
I've heard of the Thyroid Revolution Diet but haven't looked at it. Still in my search stage of getting as much information as I can to be educated on my thyroid condition. I steer away from specific diets as they are not one size fits all plans BUT that is not to say that steps of the diet and information may not be beneficial. Keep up the research as each step will help you along the way. That's the best thing here is that we can share our ideas and the information found.

 Pounds lost: 15.0 
 
0
5.5
11
16.5
22
AMJAPU SparkPoints: (361)
Fitness Minutes: (443)
Posts: 11
7/13/12 2:13 A

My SparkPage
Send Private Message
Reply
Thanks so much for all of the information so far! I certainly don't want my thyroid removed if other options are available. That's a scary thought to me. Many of the hyper symptoms (insomnia, anxiety, anger, mood swings, fatigue, heart palpitations, etc.) sound like me. But some of they hypo symptoms sound like me, too (heavy periods, depression, constipation--AND especially the weight issue). I called the doctor's office twice to make sure it really was hyper and not hypo. I knew my mother had thyroid issues and just found out yesterday that my father also has thyroid issues.

I certainly don't understand my weight fluctuations, and I'm not sure if they are related to hyperthyroidism or not. I lost five pounds two weeks ago. A week later, I gained four. And this is normal for me. Literally, I lose one week and then gain the next. Lose, gain, lose, gain. In the past I was successful with Weight Watchers two times (after college and then after having my first child). Since I had my second child over two years ago, I tried Spark People, then online Weight Watchers, going to WW meetings, going back to online WW, and now back to Spark People. I was surprised to see Spark People had kept all of my information from before. I weigh almost the same now as I did then.

Very overwhelming. Any thoughts on specific books or Mary Shomon's (sp?) Thyroid Revolution Diet?

Edited by: AMJAPU at: 7/13/2012 (02:22)
ROSEDALE777's Photo ROSEDALE777 Posts: 136
7/13/12 12:13 A

My SparkPage
Send Private Message
Reply
Thank you Suepers. I too would like to keep my thyroid as long as I can and avoid RAI. I look forward to sharing information and checking out corum

 Pounds lost: 15.0 
 
0
5.5
11
16.5
22
SUEPERSTARS's Photo SUEPERSTARS SparkPoints: (33,078)
Fitness Minutes: (50,982)
Posts: 442
7/12/12 10:04 A

My SparkPage
Send Private Message
Reply
Hello, and welcome!

I was diagnosed with Graves' in April 2010, so I know of what you speak! I've also now had a total thyroidectomy and RAI, so I've dealt with many of the situations.

My first advice - learn as much as you can, and don't let anyone force you into any decisions.

When I was diagnosed with Graves', I found a website for people with Graves', with a forum, and people on there were VERY helpful (sorry, its been a while and I can't remember what its called, but google it and I'm sure you'll find many). I'm Canadian, and the first thing my doctor suggested to me was to go on medication and see how I did. I went on Methimazole. But from what I read on that forum, many doctors in the States suggest jumping right to RAI (radioactive iodine) which destroys your thyroid so you are no longer hyper. I guess the thinking is that they would rather deal with hypo than hyper. I, personally, wanted to keep my thyroid, and I was determined to learn all i could about it, and work hard to go into remission as naturally as possible, with foods or supplements. Or stay on the drugs if I had to. But I didn't want to lose it - I figured it was better to have something than nothing. And I read about one woman who hadn't achieved remission, but had been on methimazole for over 20 years! So it gave me hope.

And then my tiny little nodule (less than 1 cm) turned out to be cancerous, so I had a total thryoidectomy, followed by RAI 6 months later (thyroid tissue found in the nearby lymph nodes). I'm sad to have lost the opportunity to fight the Graves', but I'm VERY lucky to have such great doctors that they found it so early, and that I feel like I had the best treatment possible.

Symptoms: for me, sleep is my hyper symptom (and I still get hyper, when my meds are being adjusted). When I'm hyper, I wake up frequently and sometimes can't get back to sleep. So even though I'm "hyper" I'm super tired. Another major symptom, which is common, I think, is frequent bowel movements, and they're usually looser, too. This is because your thyroid is speeding up your metabolism, which means its pushing your food through faster. The problem is, that because its going through faster, you're not absorbing all the nutrients that you should be, so that also makes you tired and weak.

And one other thing - B12. I learned (on sparkpeople actually, through the trivia!) about Pernicious Anemia. Essentially your body can't absorb B12 the normal way, through the intestines. I learned that its actually fairly common for people with Graves' to have this, too. I'm sure I have this. My B12 is always really REALLY low, unless I'm getting injections from my family doctor. (Again, I'm lucky to have fabulous doctors). So you could also be low in B12 - its worth looking into - and that could make you tired, too.

sorry if this is a bit rambling (I'm at work and should be working! LOL). If you have any other questions or you think I can help in any way, please let me know!!!

Good luck!!

Sue

EDIT:
I decided to do my own google search to find the message board that I mentioned above. There are several, but the one that I liked (again, personal opinion, you may prefer another one), was this one:

www.livingwithgravesdisease.com/foru
ms
/index.php?/forum/1-graves-disease-aR>nd-thyroid-forums/


Edited by: SUEPERSTARS at: 7/12/2012 (10:16)
If I choose to not do anything differently today, tomorrow is going to be exactly the same as yesterday.

"Shoot for the moon. Even if you miss, you’ll land among the stars!" ~ Les Brown


 July Minutes: 919
 
0
375
750
1125
1500
ROSEDALE777's Photo ROSEDALE777 Posts: 136
7/12/12 8:25 A

My SparkPage
Send Private Message
Reply
emoticon Another Hyper! I was just diagnosed too. Still going through some additional testing as several signs of possible Graves Disease but my symptoms fluctuate with good and bad weeks. Initially dropped some weight but stopped. Look forward to comparing notes and research

 Pounds lost: 15.0 
 
0
5.5
11
16.5
22
SAUNDRELLA's Photo SAUNDRELLA Posts: 845
7/12/12 1:31 A

My SparkPage
Send Private Message
Reply
I don't understand the swings, initially, back and forth, either. Just because you test out hyper, now, does not mean you will stay there, does it? You may bounce back and forth for some time, maybe a couple years, even. I would like to know more about this, too, as this is my daughter's present experience, sounds very much like yours.

Saundrella

 current weight: 118.6 
 
145
137.5
130
122.5
115
HIPPIEGURL's Photo HIPPIEGURL Posts: 4,934
7/12/12 1:05 A

My SparkPage
Send Private Message
Reply
emoticon to the Thyroid Community!

I can't help you with hypERthyroidism, as I am hypOthyroid. However, there are many people on this team who are hypERthyroid who will be able to answer your questions.

Sandy



Work like you don't need the money, love like you've never been hurt, dance like nobody's watching and NEVER fry bacon naked!

You are successful the moment you start moving toward a worthwhile goal.
-Charles Carlson


 Pounds lost: 65.0 
 
0
31.25
62.5
93.75
125
AMJAPU SparkPoints: (361)
Fitness Minutes: (443)
Posts: 11
7/12/12 12:46 A

My SparkPage
Send Private Message
Reply
Hi, I was on Spark People a while ago and have recently returned. My weight is a weekly yo yo of up and down and trying to get a handle on it. I very recently found out I have hyperthyroidism. Just got lab results back this week. Many of its symptoms describe me, but many symptoms of hypothyroidism also describe me (like trouble losing weight).

All of the information I've been reading about levels, medications, surgeries, and special diets are a foreign language to me at this point.

I'm looking for support and education. I appreciate any advice/help I can get. If you'd like to help a newbie, I'm your gal! Thanks!

Page: 1 of (1)  

Report Innappropriate Post

Other Thyroid Community Introduce Yourself to Team Forum Posts

Topics: Last Post:
Student in training 8/17/2013 9:50:50 AM
Hi I'm new to this forum 9/8/2013 10:21:30 AM
Ignored by doctors, frustrated 7/20/2014 11:47:35 AM
Hypothyridiosm and pituitary woes 7/21/2013 1:42:23 AM
MD's Diet tips for Hypothyroid Sufferers 2/4/2014 6:58:27 AM

Thread URL: http://www.sparkpeople.com/myspark/team_messageboard_thread.asp?board=-1x732x48943689

Review our Community Guidelines