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YIGOBUTTERFLY's Photo YIGOBUTTERFLY SparkPoints: (127,890)
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1/5/12 3:51 A
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Hafa Adai, glad you found this team and hope we can be of help. Make sure you get hard copies of your lab work and keep it. It will take awhile to get everything the best for you but don't give up.

I wish you well.

Jane on Guam



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GODISMYABBA Posts: 12
1/4/12 11:21 P

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Hi there, I have multiple issues as well. I look back and think I suffered longer than I know. My son is almost 13. Before he was born, my weight was great & I didn't think I had a problem. After he was born, not only had I gained an extraordinary amount of weight, but I couldn't lose it (previously never had this type of problem).

Ten years ago, I finally got them to test me and I was low thyroid. The medicine helped but not a whole lot, they wouldn't adjust my dose because my levels were "normal". I quit taking the prescription and went to an herbal supplement that supported my thyroid. I felt great and lost about 20 pounds.

I started working more stressful hours and my life became more hectic, so when I started gaining weight, sleeping fitfully and a whole host of other problems (dizziness, headaches daily) I chalked it up to stress and eating bad. That was part of it, but the dizziness started getting problematic.

I finally went to an ENT for my ears, thinking the dizziness was that. They didn't find anything so sent me to a neurologist, I thought I should go to my regular doctor for bloodwork and a check up since it had been a while.

It had been 4 years. They called me and told me to quit taking my prescription. When I told them I had not taken it in about 8 years, they ordered a sonogram, which got me to an endocrinologist.

My right lobe had nodules all over it with a big one that had blood vessels feeding it. The left lobe had lesions. The specific bloodwork came back that I did indeed have Hashimoto's, making me low thyroid. The right lobe was making me high thyroid. No wonder I was messed up.

They took my thyroid out last month, due to the factors listed above and I have a family history of thyroid cancer.

Right now, I am just trying to figure out how to survive. They adjusted my meds yesterday and hopefully I will start sleeping better. I am using powdered magnesium to stop my restless legs and taking more vitamin B complex. Hopefully I will lose some weight. I am 50 pounds more than before I had my son.

As you have received Christ Jesus, so walk in Him.
Col 2:6


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PURRBALLS's Photo PURRBALLS Posts: 7,964
12/27/11 10:28 P

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welcome!

My nephew actually had some thyroid tissue in his thymus which is in the upper chest!

If you get stressed out eat some catnip and go to sleep

“Many of life's failures are people who did not realize how close they were to success when they gave up.” Thomas Edison

If you soap or make bath/body/candle products join us at the soapers and chandlers sparkteam!

The Seven Dwarves of Hypothyroidism: Itchy, *itchy, Sweaty, Sleepy,
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YIGOBUTTERFLY's Photo YIGOBUTTERFLY SparkPoints: (127,890)
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12/14/11 1:15 A
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emoticon Glad you joined us. Hope we can be of help.

Jane on Guam



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CHIBIKARATE's Photo CHIBIKARATE Posts: 11,063
12/13/11 12:36 A

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emoticon emoticon

i also love einsteen and the way he got his ideas I love to travel on the spur of the moment and i love portland oregon, hawaii. I enjoy all forms of art and the galleries


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WENDYJM4's Photo WENDYJM4 Posts: 18,908
12/12/11 7:45 P

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welcome to the team and good luck on your weight loss journey. Thanks for all the info. I also have problems with my thyroid one under active and the other is over active (the thyroid and para thyroid). At this stage I am not having treatment. Local doctors recommends treatment but the Specialists do not want to treat it at this stage. The TSH is .01 very low. I also have multiple nodules.

Edited by: WENDYJM4 at: 12/13/2011 (06:48)
Wendy
South Australia



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MZZCHIEF's Photo MZZCHIEF Posts: 9,411
12/12/11 6:59 P

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hey Sueper!
Thanks for an informative post!
Sounds like you've been thru so much, glad to have you on the team as you will be a valuable resource due to your experiences and triumphs.

Welcome to our team...
: )
Mzzchief

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Hello, 60!

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SAUNDRELLA's Photo SAUNDRELLA Posts: 845
12/12/11 5:48 P

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Welcome and make sure your vitamin D is up to where it should be. I've read about 60 - 80. Another means of preventing cancers from growing.

Saundrella

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ILOVETOCRUISE's Photo ILOVETOCRUISE Posts: 8,614
12/12/11 5:43 P

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thyroid.about.com/ This is a good site for thyroid issues.
Good luck.
emoticon emoticon

Edited by: ILOVETOCRUISE at: 12/12/2011 (17:44)
ANOTHERMOMOF2's Photo ANOTHERMOMOF2 Posts: 4,417
12/12/11 1:06 P

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Welcome! Sorry I can't be of any help with your questions.

Karen

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VENISEW1's Photo VENISEW1 Posts: 8,174
12/12/11 10:31 A

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emoticon to the team!

Leader of Moms and Dads At Home
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Team Leader of Southeastern, MA
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SUEPERSTARS's Photo SUEPERSTARS SparkPoints: (33,560)
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12/12/11 10:00 A

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Hi everyone,

I'm glad I've found this thyroid community team. I'm currently a member of hypothyroids unite, but I've got more than just that thyroid issue going on. Sorry - this might be a bit long for an introductory post! lol

In April 2010, I was diagnosed with Graves' disease, went on methimazole, and gained approximately 15 pounds. I didn't realize till after I went on the meds that all those sleep issues I had were related to my thyroid! After about 3 weeks on, I actually woke up feeling refreshed for the first time in about 5 years!

At the same time, my endo also felt a small nodule, so I had an ultrasound, then a biopsy, and in September 2010, I was diagnosed with papillary carcinoma.

Because of the Graves', the surgeon and I decided the best route was to do a total thyroidectomy, so in January 2011, the whole thing was removed.

During the surgery, the surgeon took out some lymph nodes for testing, and it came back that there was thyroid tissue in the lymph nodes, so in June 2011, I did radioactive iodine ablation. Gained another 10 pounds because of the surgery and because I had to go off my medication for 3 1/2 weeks for the RAI.

I also had more ultrasounds and a second biopsy on a lymph node in my neck in September, but thankfully that came back clean and normal!!!

Currently, I'm working towards getting my synthroid levels balanced, but my doctor told me that as I lose weight, the medication will have to be adjusted. And I have lost weight... I'm now back down to where I was before my thyroid diagnosis! (goodbye 25 pounds!!!) But, of course, I'm not done (see ticker below, lol). I guess, for someone who is hypothyroid, I'm kind of lucky in some ways because they want to medicate me to the point where my TSH is around 0.5 or less to prevent any remaining thyroid tissue, and therefore the cancer, from growing back. This should help with my weight issues, but I'm starting to find I'm not sleeping well again, which hopefully means my meds need to be reduced (I see the endo next week).

If anyone is currently going through any of what I've been through, and would like to hear what my experience was like, or perhaps some things they can talk about with their doctor, please don't hesitate to ask. I'm not a medical professional, but I very much encourage people to be active and aware about their conditions and treatments, and that starts with knowing the right questions to ask their doctor.

Sue

If I choose to not do anything differently today, tomorrow is going to be exactly the same as yesterday.

"Shoot for the moon. Even if you miss, you’ll land among the stars!" ~ Les Brown


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