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APPEALSTOME's Photo APPEALSTOME Posts: 4,612
2/5/12 11:30 P

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Hi Mzzs,

Is non toxic goiter the same as nodules? A friend has lots of nodules. Her thyroid tests were normal too. She underwent scan, biopsy, etc. Nodules are non cancerous. She has all the hyper symptoms. Can't swallow, wear collar shirts, fatigue, heart palps,weight gain, etc. Her doc recommended removing her thyroid, but won't do it until she is able to take thyroid med successfully. My friend asked me what to do. The best I could advise was to take thyroid medication to see if symptoms subside. Getting second opinion is out since doc she sees is only endo in her plan. Have you ever heard of removing thyroid gland for non cancerous nodules?

Tee

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APPEALSTOME's Photo APPEALSTOME Posts: 4,612
2/5/12 11:18 P

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Smore,

Call and ask your doctor to do the 2 other thyroid tests. I have these tests done several times a year. Sometimes my endo forgets to put an X next to one of the free tests. So, I do it myself. It saves me going back to office to have them check it off. My endo does not know the difference since she usually request all three tests.


Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had choosen it. That frees you


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MZZCHIEF's Photo MZZCHIEF Posts: 9,119
2/5/12 10:25 P

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Smore...

Frankly you should be on thyroid hormone... your free T4 is low... your TSH could be lower... what you;ve got is a "non-toxic goiter"... this means your goiter isn't making massive amounts of thyroid hormone causing you to be hyPEthyroid, its not cancerous.

Nontoxic Goiter often shrinks when thryoid hormone is replaced in people who have low levels of thryoid hormone combined with goiter. People like yourself.

This is because when you take thyroid replacement medication, your thyroid can rest, it doesn't have to make thyroid hormone any more. So it stops growing.

That's what a goiter is, an enlarged thyroid and scar tissue.

I hear ya when you said you don't want to take a medication every day.
Thyroid hormone is not medication... its not given to "cure" a condition... you're not "sick".

Its replacement hormone... a hormone that everyone needs to stay healthy...that your body is having difficulty making.

So you help your body out by providing it.

And yes you do have to take it everyday, just like you have to provide water and eat everyday... because your thyroid isn't making something you need to survive.

Smore, I would talk to your doctor about getting on some thyroid hormone.
If your doctor resists, it may be time to find another doctor?

: )
Mzzchief

Edited by: MZZCHIEF at: 2/5/2012 (22:27)
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2/5/12 5:22 P

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This could be my story almost exactly. Found out about 5 or 6 years ago during a routine gyno exam that I had an enlarged thyroid. Was referred to an endo and have to have blood work and an ultrasound every year to keep an eye on it. I have a "multi-nodular goiter" but no "hot spots" so they are just watching it. No medications here either because like you, my numbers are "normal". My last tsh was 2.270 with free t4 of 1.19. The prior years tsh 1.810 freet4 1.05 and always normal except twp free t4 levels that were 0.46 and 0.59 in 2008 and 2009. So no meds for me, but the symptoms are awful. I could literally stay in bed all day, every day. I can not focus or concentrate at all. My husband swears I have adult ADD, I just cannot focus. I get stressed out so easily over the smallest thing. I hate meds so I am glad not to have to take them every day but sometimes I wish that I just felt better, had a little energy and wanted to do things that I used to. Wish I had some help for you but I am unsure what to do about it myself which is why I came to this board.

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MZZCHIEF's Photo MZZCHIEF Posts: 9,119
9/25/11 3:05 P

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Hey girl!

Loved your blog, one thing that thyroid disease hasn't done is dull your sense or humor!

About being moved around so that no one knows your medical history...many of us keep a copy of our thyroid labs and other blood work in a binder. By Law you are entitled to a copy. It makes it easier when you're asked questions to have it as reference, and you can always make copies to give to your new doc.

If you have an extensive goiter, its removal can be complicated.... in the removal process your parathyroids can be damaged or removed if you don't have an experienced, competent surgeon.

The parathyroids are four small rice sized glands on the back of your thyroid gland that control calcium metabolism in your body... despite their name, they are not a part of the thyroid..."para" means "along side of"... so its a reference to their location.

Sometimes they are removed accidentally because they are so small and the same color of the thyroid tissue itself.

If this is the case, they can be replanted in the arm, or neck, bu tthey are best left in their original location whenever possible.

So I'd suggest ya go to someone that has experience with goiter removal, even if it means going off base to have it done.

And do have the parathyroid discussion with them as a knowledgable patient makes for an honest physician!

Welcome to our team...
: )
Mzzchief

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YIGOBUTTERFLY's Photo YIGOBUTTERFLY SparkPoints: (117,411)
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9/25/11 7:26 A

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Wow, sorry to hear what you have had to go through!

Do keep up posted.

Jane on Guam



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9/24/11 2:51 P

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Keep pushing on- I had normal TSH levels for over 10 years. During another unrelated surgery, they had trouble intubating me and and when I had the u/s and found the multiple nodules/goiters I was scheduled for a total thyroidectomy within 3 months. The goiters would have eventually blocked my airways had they not been removed, yet they ignored them for years. Fight for your rights, you are in charge. Good luck and keep us posted!

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9/23/11 9:47 P

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This would be the time to start finding a good doc. What state are you in and I can look on the good doc list the yahoo natural thyroid group has and will post it here.....

If you get stressed out eat some catnip and go to sleep

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ALLIE_ME's Photo ALLIE_ME Posts: 248
9/23/11 8:45 P

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Oh, wow! So sorry to hear what you're going through. I read your blog and feel it's great that you insisted, didn't take no for an answer and got diagnosed! Kudos to you! Yes, many of us on here have similar issues. I wish you all the best. Please keep us posted!

TERAFORTDRUM1's Photo TERAFORTDRUM1 Posts: 63
9/23/11 6:22 P

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long story short, took me two years to even find a doctor who would give me an ultra sound, found nodules, one to three which may be cancer, found out I have an enlarged or what they call goiter thyroid, have been packing on the pounds slowly over the years and no one will treat me. Not even my endocrinologist because my levels are in the normal range.

Im so tired of this but have taken matters into my own hands, even started a blog as of yesterday in hopes to help me just deal with this nightmare. I have put a ton of research into diet, meditation, yoga, types of veggies I actually should avoid believe it or not and more. I am really hoping to learn something here as well and maybe meet others that are dealing with this crapfest of a thyroid issue too. I have been here off and on over the years and love it, the people are amazing and look forward to meeting people in here and hope that we can help each other out. If anyone is interested here is the link to my blog, its just starting so bare with me lol. beatingthyroidissues.blogspot.com/

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