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MUTTSBARK's Photo MUTTSBARK SparkPoints: (218)
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5/12/13 9:55 A

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Thank you for the reams of advice I have taken from your comments on these thyroid pages. I have been drinking green smoothies lately, exercising daily, and (because I have done a fairly good job eating healthy my entire life) for the first time -- broke my hand this winter and forced to hibernate -- I can't lose. I don't know if it's my age or the thyroid, but it is getting frustrating.
Also, I love the art on your page and my sis, who is artistic -- I think she would be interested in trying that medium. Can you tell me where to go for more info? What a great Christmas gift ... If I could get her started!
I tried to leave a similar comment on your page ... If this is the second or third time you get this, my apologies.
Holly (my name isn't really "Muttsbark.")

REDFAERY2's Photo REDFAERY2 Posts: 13
10/29/12 6:56 P

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My philosophy for dealing with my thyroid (Graves 12 years, RAI 11 1/2 years) issues is to do as much research as possible. That includes looking for medical info from my doctor, online, from others who deal with this. Finding out what works for others, and then trying it in a safe manner to see if it works for me. Keeping on looking until I find a doctor that listens to me, and to my symptoms, to whom I'm not just a thyroid level number, so they can figure out which dose makes me feel the most normal.

Personally I've finally had some success in the weight loss this year. After trying many many things, I'm figuring out what my own body is needing. I started South Beach (phase 2) a few months ago. First time weight loss has been consistent for me ever, first diet I've ever been able to stick to without too much trouble, and first time I've managed to lose weight even when my thyroid levels have been way off. My gynecologist actually recommended it to me as a way to boost energy. I've been suffering from severe and chronic fatigue for the last several years, and I have been desperate for anything to help even a bit. I have to say after a month I did get a boost in energy. It's still not where it used to be, but it's so much better. Turns out I'm one of those people who are sensitive to swings in blood sugar, even though I'm not diabetic. So I eat similar to a diabetic now, avoiding refined sugars and high glycemic index foods and my mood and energy have finally started to come back to more normal. So even if something doesn't work for you that works for others, keep trying things until you find what your body needs.

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MZZCHIEF's Photo MZZCHIEF Posts: 9,058
9/20/12 11:42 A

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It occurred to me that I posted this thread and never revealed my own Thyroid Philosophy!

My deal:

I believe in the power of intention.
Intention being statements that define who I am at my core, what is in my best interests as a human being.
And coming back to that intention whenever I am faced with a choice.

One of my intentions is to educate and to help.
Myself and others.
For me that means research, growing my knowledge base... tweaking established theories when new data comes in. Making modifications where necessary. Sharing. Listening to others problems.More research.

It is my intention not to fall prey to a victim, "poor lil me" mentality.
I look at problems as puzzles with a solution.
When I feel afraid,defeated or puzzled, I remind myself these are temporary reactions/emotions I am feeling.
That they will pass, I will endure.
That they aren't me, any more that the sky is a cloud.

My prime intention is to be healthy.
Towards that end, I choose foods that are good for my particular body.

Specifically:
A whole food diet with as few processed foods as possible.
Lots of fresh, preferably organic fruits and veggies.
"Green Drinks"... blends of kale, parsley, swiss chard, a couple brazil nuts plus supplements is a preferred way to get my leafy greens and supplements.
Lean meats, nuts and seeds in moderation.
Low fat organic dairy. Fatty fish.
Kefir as a probiotic daily. Occasionally fermented foods like kimchi, wheat free soy sauce and miso paste, and yogurt.
Medicinal mushrooms on occasion.
Brewed green and black teas.
I need to be gluten free so that means no bread, pastas, cookies, etc.
Carbs from fruits, vegetables, dairy and occasionally beans, which are soaked and sprouted before cooking, rather than from grains.
Distilled water to which a bit of Diatomaceous Earth is added for minerals.

Chewing food to a paste before swallowing to get the digestive process started.
Moving every day, aerobic activity or weights or both.

I also exercise daily for my body as well as my mind and emotional stability.
Get adequate sleep.

As for Thyroid Management I don't go by numbers as much as by how I feel.

My research supports that the TSH and thyroid levels change thru out the day, and under a variety of circumstances. So I don't put much stock in a yearly blood "snapshot"... which is what a blood test is like... whats in your blood at the time of the draw. No more, no less.
To me its a ballpark number. A diagnostic test when I don't feel right or hypothyroid symptoms reoccur... when I need confirmation that I'm not "making how I feel up".

So as long as my TSH is between 1-3, my Free Ts are in range, and I'm feeling healthy, a pox on the numbers.. I have a life to live! LOL


Have a fun day!
: )
Mzzchief





Never underestimate the value of getting out of your own way.

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JACKZON33's Photo JACKZON33 Posts: 47
9/18/12 7:55 A

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Hi Everyone! Not new to sp, but never thought to look for a hypothroid team! Yay, so glad I looked! I have been hypo probably most of my life, but didn't get diagnosed until I was 40ish. Since then, I have researched and have been educating myself on the subject. Until 2 years ago, I was undertreated and finally found a doc that would listen and was willing to look at all my thyroid tests and treat the symptoms. I do have Hashi's and from what I have been reading, all bets are off with thryoid tests. The doc suggested cytomel and that has made a world of difference. Since I started taking it, I have lost over 20 lbs, but still have to watch my diet. Sometimes my appetite is out of control as it is right now. So anyhoo, I just feel like I need to be with some of my thy sisters and brothers to get comfort and support and share some experiences. It really does help with management to have support from the ones who can relate. Love and Light to you all!



"But the fruit of the Spirit is love, joy, peace, patience, kindness, goodness, faithfulness, gentleness and self-control. Against such things there is no law." - Galatians 5:22-23



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WORDZOO's Photo WORDZOO SparkPoints: (600)
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9/12/12 11:49 P

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I think I keep trying to learn about this thyroid dysfunction.
Have been diagnosed 14 years and have been doing a bit
of rdng (as I can remember - brain fog LOL) and there is
much more info now than late 1990s. More developments.
So philosophy is to keep on learning and not get complacent.

WAR4FITNESS's Photo WAR4FITNESS Posts: 9
8/30/12 1:41 P

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I don't take crap from my DR. ever and if I don't like my DR. I get a new one. I have only had 2 endos. So many times I have heard stories from others with thyroid issues that have Doctors that will not listen to how they feel and just go with the numbers. My 1st endo was pretty good besides the complete total hormone with draw that took place every summer for 6 weeks for 5 years. I also had an ultra sound done every year before hormone with-draw...I had never had any issues after IAD or Surgery (i had thyroid cancer). I believe it was the 3rd summer I went in like normal and had the ultra sound done. I told the tech i had a sore throat so the tissue would be enlarged (DUH)....an of course she goes your tissue seems enlarged we will see what your Dr wants us to do. I go back to my Dr. and explain I had a cold..we wait a couple weeks I go back to a different hospital to have the ultra sound done again. I ask the tech, I know you aren't allowed to tell me but, does it look normal, she says yes......the Dr. comes in an goes well....we are going to do a biopsy...i flipped out. They did the biopsy and guess what??? It was normal....at that point I refused to take crap...I know i sound a little crazy, the Doctor was just checking and its better to check then not check...but this was what I went through summer after summer and I was done. Finally I rebelled and refused to go off my hormones for testing.......I got a new Dr. who has fixed my levels and I feel great! We will do something similar to hormone with draw every 3 years but it will only take a week he said! Right now I see him every 3 months!

Edited by: WAR4FITNESS at: 8/30/2012 (13:43)

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WORDZOO's Photo WORDZOO SparkPoints: (600)
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8/29/12 4:00 P

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What a pleasure to graze on these posts. I am dumbstruck. I don't know if I have a philosophy of thyroid self-care management. Sometimes I just grin and bear it. Other times I go into denial. Other times I am super proactive. I would like to keep reading but brain fatigue setting in so must rest. I like how this thread has me asking myself what is my philosophy? I have HAIT/HE, Hashimoto's Autoimmune Thyroiditis/Hashimoto's Encephalopathy.

BUMBLEBEERN's Photo BUMBLEBEERN Posts: 140
8/20/12 10:27 P

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I am so impressed that so many of you have a "philosophy" for thyroid management.

I get up, take my pill, and head off to work. I am going to have to rethink the management portion a little more.

Nothing is too small to know, and nothing is too big to attempt.

william van horne


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BEVY75's Photo BEVY75 SparkPoints: (40)
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8/20/12 11:26 A

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My thyroid was removed 2 years ago. I was diagnosed with Papillary thyroid cancer. I started out with 125mcg of Synthroid . My blood pressure sky rocketed to 180/95. Going down in doses over the next 2 years has set me at 88mcg and 44mcg once a week. I have plenty of energy but have put on 30+ lbs. Loose it??? I think its next to impossible. I have cut out carbs, sugars and eat my protein in the morning. The belly is where it has settled. Im 55 yrs old 5' 6" and now weigh 190 lbs. Is sweat working exercise my answer? Im up for suggestions. Oh sit ups are out of the question. I had abdominal surgery at the same time as my thyroid surgery and they found 3 major hernias. Im all caged in from the belly button up.

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MITECU's Photo MITECU Posts: 6,841
7/24/12 9:59 A

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It's simple- take meds, have regular check-ups to be sure meds are working for you, exercise, eat right.

With God, all things are possible. (Matthew 19:26)

"If we all did the things we are capable of doing
we would literally astound ourselves."
Thomas Alva Edison

The mediocre teacher tells. The good teacher explains. The superior teacher demonstrates. The great teacher inspires.
-William Arthur Ward



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JKELLEY1107's Photo JKELLEY1107 Posts: 60
6/27/12 2:36 P

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It's a battle. You have to find what works for you through trial and error. Listen to you body. Take your meds. Exercise. I am trying a new diet plan that I read was recommended for hypothyroid, to help you feel better. 40-45% carbs, 30%protein, 20% fats, 30-40 grams of fiber. We will see how it goes! :)

http://julie5150.blogspot.com/


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JKELLEY1107's Photo JKELLEY1107 Posts: 60
6/27/12 2:31 P

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Hi! Welcome. Hope you start to feel better soon. Love that MercyMe song, btw. great band. :) That is a good philosophy to start with!! I also love the scripture: I can do all things through Christ who gives me strength. Philippians 4:13

Edited by: JKELLEY1107 at: 6/27/2012 (14:32)
http://julie5150.blogspot.com/


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JKELLEY1107's Photo JKELLEY1107 Posts: 60
6/27/12 2:27 P

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Hi! I glad you are feeling better. I am curious why you don't want to take the meds? Do they cause side effects for you?


http://julie5150.blogspot.com/


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JKELLEY1107's Photo JKELLEY1107 Posts: 60
6/27/12 2:25 P

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Hello! Diagnosed about 10+ years ago as hypothyroid, but was given no info....just a pill. Number fluctuated occasionally, but manageable. These past few years my disease has worsened and I started seeing an endocrinologist. My numbers are so up and down and now I have a small nodule we are watching. My endro tells me I have Hashimotos. I am tired of feeling tired and achy and foggy headed. I don't do well with "sick". I am active and I love life. I want to enjoy it!

I know as soon as my numbers are off- I can feel it. I try to stay in tune with my body. Anyway, my philosophy I guess is to consult with my doctor but listen to my body. I am reading and researching and seeing what works best for me.

http://julie5150.blogspot.com/


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CAPELADY88's Photo CAPELADY88 Posts: 10
3/7/12 5:42 P

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I am taking my thyroid and all of its issues by the horns! I have had Hasimoto's since 2000, my numbers have never been stable, I have arthritis, high cholesterol, hair loss and hot flashes from the thyroid. Last year my gyn said they wouldn't do anything about my hot flashes because it was the thyroid doing it...... so I talked to my endocrine.
She had treated my hot flashes with neurontin in the past - which worked great but caused damage to my vocal cords from the acid reflux it caused.
I asked what will happen to me if I stop taking my thyroid meds cold turkey - she said she didn't know but thought that would be too extreme, so we agreed to cut my 112 mcg to 56 mcg and see what happened. So I cut it in half!
My arthritis is better - only taking one ppill a day of relafin, and I feel amazing - so much less pain.
My hot flashes are not as severe or as long lasting.
My energy level is up! I wake up before the alarm clock now!
Now I am addressing the weight gain from the past ten years - because I do NOT want to be this big!
my current labs are not pretty - my tsh is 22.7 with a normal being 3.4 - my doc is hanging in with me.
Has any one else done this? My next choice is to have the thyroid removed and see what my body does.

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MHUGS15's Photo MHUGS15 Posts: 12
3/5/12 7:25 P

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I wanted to say hello. I had trouble with my thyroid between each of my kids but they thought it was a rare side effect of being on birth control.. Any ways long story short I got diagnosed with a goiter and two nodules two years ago but my levels are staying with in range and my goiter hasn't grown. I see my endo. every 6 months unless I feel I'm having trouble. I know I worry about it a lot of the time. I went to my PCP because I thought I was having trouble with my heart. I was have higher B?P and pulse rate not to mention palpation's. I do wonder if there is a link between this and I had to take infertility meds. to have my kids. I did read something some where that suggested it could be but it seems a lot is not a for sure thing with the thyroid answers for me. My endo. is not in a hurry to remove my thyroid he said I can wait till I get older but I guess time will tell for me. I appreciate any advice or ideas and thank you a head of time.

Thank you,
Maryann



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LADYBUGWINS's Photo LADYBUGWINS SparkPoints: (75)
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1/16/12 5:34 P

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I have had Hashimoto's thyroiditis since 1989. It took years to get it managed; basically, I had to find a doctor who believed in T3 supplementation. With the proper dosage, I was able to keep my weight consistent, have stable energy levels, and feel good!

A year ago, I moved to a new city and had my new endocrinologist decide she didn't believe in what was working. She lowered my cytomel from 25 mcg to 5 mcg and I started gaining weight. I gained 5 lbs a week with the exact same diet. When I went to her, she told me to go on Medifast-- she refused to return the dosage to what worked.

Finally, I found a PCP who would raise my T3... I went from gaining 5 lbs a week to 5 lbs a month. Now my weight is stable. So, I believe in all the normal things to do: healthy eating, portions, exercise, etc. However, I also believe that doctors should not change something that is working, just because they do not believe in using Cytomel (or any other medication).

It has been a challenge to keep doing the right thing despite the scale going up. When I was younger I ate 400-500 calories a day to keep my weight stable before I was on medication, but I am unwilling to do that anymore. Fortunately, my new doc is in agreement. I am eating 1200-1500 a day and trying to be patient with the weight.

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MRSGOAD Posts: 139
11/28/11 1:08 P

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I am only 1 week 3 days into this...so I don't have much of a philosophy yet.
But right now I am taking my meds an hour before I eat.
Going strickly (trying to be strictly) vegan.
And writing down my symptoms that pop up so when I find a new doctor I can tell them.

I need to also add cardio. That would help a lot. But right now, I'm just trying to get out of bed and to work on time.....

Good stuff here! I am glad to see this link

"There's gonna be brighter days! I might bend but I wont break, as long as I can see your face!" -Mercy Me (song 'move')


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ALASKASKY's Photo ALASKASKY Posts: 6,159
10/25/11 12:28 A

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emoticon CHURCHLADY1995

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7/5/11 3:49 P

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I too have hypothyroidism. Have had it for years, had gained weight (which seemed impossible to lose), and had a difficult time getting the meds to the correct dosage. Once the dosage was right, it was up to me to determine to make the changes/sacrifices necessary to lose the weight I had gained. It was not easy learning what foods were compatible with my condition. When I dertermined that I was going to regain control and make the necessary changes, I forged ahead. I have lost all the weight I needed to. I weigh myself every morning, and I journal everything I eat. When I get lax in that discipline, I tend to lose control and gain a pound or two back. If I feel like I have been out of sorts and feel that the meds are off, I contact my endo. for a blood test to see. 95% of the time I am correct because I have learned to listen to my body.
I try to eat very few carbs, very few processed foods, lots of vegetables and fruits and lean protein. I exercise religiously a minimum of 4 times a week. Instead of letting the disease control me, I have taken back the control and feel much better about myself.

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BOBBIEVG's Photo BOBBIEVG Posts: 8
5/24/11 11:20 A

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I am 31 and have had hypothyroidism since I was 15. As I have gotten older and had children I found it more difficult to manage and for about 5 years I have had crazy spikes in my numbers. I have done many combinations of medicines and dosages, t3/ t4. Synthroid brand name verses generic. I have read so much and as everyone has said you have to have a doctor that will listen to your and what your body is telling you but I think it is significant to follow all the rules. Taken your mess as directed, same time everyday, half hour to an hour before or after you eat, don't take with vitamins, make sure other meds don't mix or effect your thyroid medicines, and of course there is more! :)
I am currently on 250 mcg. Yikes, super high and it does effect my weight that in turns effect my attitude but my attitude toasted others, the cold, the tiredness is gone. My doctor recommend taken Selenium, vitamin you can buy from any store. I have not spiked in an year! And I was able to keep my dosage the same.
So really I just got get over being mad at the illness and weight and just do it because it maybe harder road for weight loss and results on the scale my take a while but remember the combination of your health and exercise alone will make you feel better all around, it isn't always about the numbers!
Good luck!!

I am worth it TOO!


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GOANNA2's Photo GOANNA2 Posts: 10,939
5/20/11 7:39 P

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I am on Oroxine which is the equivelant here and
I have trouble losing weight and I think more exercise
is the key.

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CARLA-BELGIUM's Photo CARLA-BELGIUM Posts: 73
5/20/11 10:57 A

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I was diagnosed with Hashimoto (so hypo) in 2005 after a three year search. I took another year and a half to get my dose to an OK level. Since then I have changed my endos three times since the first two only looked at the numbers.
I'm on 112Ķgr. L-Thyroxine (European equivalent to Synthroid I guess) now and I feel OK although I occasionally have some symptoms. I don't mind that too much. What I do mind is my inability to stop gaining weight (a little at a time but it adds up after a few years).

So my only option left is exercise more. I sincerely hope it will help. So far, not so good (I've been at it seriously for three weeks with no results whatsoever) but maybe I just need more time than a person with a normal thyroid (I'm 50 and not in menopause yet).

I take my meds in the morning and wait 30 min (at least) before having breakfast. I'm thinking of changing it to bedtime after reading an article on Mary Shomons website. It might get better absorption.

I also have a vit D deficiency so I have to take that orally evevry month. I have my blood tested at least once a year (TSH, T4, T3, vit B12 and D and cholesterol levels).

I'm very gratefull for the websites with information because they helped me a lot ! And for moral support I can always count on my fellow Sparkers ;o)

Carpe diem !


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FRANNIEPAT's Photo FRANNIEPAT Posts: 157
5/6/11 11:58 P

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I take Synthroid at nite, Cytomel in the AM-and I do walking, sprints, Zumba and weight lifting.

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SHARILEE_OHIO's Photo SHARILEE_OHIO SparkPoints: (32,442)
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4/23/11 6:33 P

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Take my medication every morning before eating or doing anything else and before taking any other meds.

Remember patience while they find out why the medication increase is not controlling my thyroid and although I have hit this plateau with my weight, I am not gaining and the plateau will break once the thyroid is under control again.

Pounds lost since July 2010: 48

Pounds to reach goal: 14.0

"Bad habits are like a comfortable bed, easy to get into, but hard to get out of" (unknown)

"Energy and persistence conquer all things" (Benjamin Franklin)




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TOPMUM's Photo TOPMUM Posts: 48
4/23/11 9:12 A

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Hi! I am on Eltroxin 200mcg a day. My weight keeps going up and going down. No matter how hard I try to loose weight. How do I keep my weight under control with an overactive Thyroid?

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GOANNA2's Photo GOANNA2 Posts: 10,939
4/11/11 5:03 P

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Thanks for the information SUNSHINE55.
I'll check it out on Youtube

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CINNAMONCAT9's Photo CINNAMONCAT9 SparkPoints: (6,100)
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4/11/11 8:38 A

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My philosophy...take the med religiously, every day, before food, with coffee. Do NOT forget to refill it. I also do NOT use it as an excuse to not exercise, not eat right. Oh, I do make mistakes all the time. But my thyroid does not excuse me from unhealthy living.

I could let it. The damn thing is mostly responsible for the fact that I have to essentially move three mountains to lose one pound. It has gotten ridiculous.

I may have to go back to almost a strictly vegan / vegetarian diet in order to become the weight that I want. My body responds best to a LOT of vegetables and fruits.

Good luck, all.

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JZPINKGEEK's Photo JZPINKGEEK SparkPoints: (1,836)
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4/6/11 12:46 P

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Hi team!

My personal thyroid management philosophy is "DIY". It took a while to find doctors that wouldn't lecture me on taking more or less hormone as I saw fit, but once a found a holistic MD that gave me an Rx for compounded T3/Cytomel, I was good to go. In addition to that, I take Raw Thyroid for the t4 and other random hormonal bits (I would take Armour but I haven't had labs in a while and the doc didn't want me on t4/t3 quite yet)

T3 only is so great. You can adjust the medication and feel better in a few days. The downside, I am told, is the heart risk. Another downside is mainstream docs going "wtf" when you explain your treatment regimen. But, yeah....getting on t3 was life changing and I highly rec anyone who hasn't tried it out to try it.

I guess the only thing that really gets me is working out hard and not seeing much change when all my friends in karate class have lost weight and all. I also have issues following along in class, like, concentrating and picking up on new moves, but Sensei is very patient with me. I can also tell when my levels are off because I will get way more red in the face when I work out, be puffy, sweat less and etc. Then I adjust things and I have an easier time with my weight goals.

I think martial arts is really great for me mentally and helps exercise my brain as well as body. We all know what that brain fog is like -_- so if anyone struggles with that I'd encourage them to take up something like martial arts, it's very empowering, and a good school is used to dealing with people of all skill levels and ages.

That's me in a nutshell!


Best,
Jamie
_______

Toso Kune Do - Orange Belt
American Heart Association 2011 Heart Walk: 5K Race/Walk


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SUNSHINE65's Photo SUNSHINE65 Posts: 1,360
3/28/11 10:43 P

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OXYCISE is Jill Johnson's method of stretching while breathing fully 4 times. The EASY DOES IT is for those who are inhibited in some way....age, chronic disease, back pain, knee pain, or any disfunction, permanent or temporary. Check out her videos on You Tube. If you can lie on the floor you can do the regular OXYCISE. There is a team dedicated to OXYCISE and a couple of other similar breathing exercises. But only OXYCISE has the EASY DOES IT DVDs. Jill's daughter, Aubrey Lee, does the regular OXYCISE outdoors. Kind of for the younger crowd, but refreshing. I like to mix and match the DVDs.

If the grass looks greener on the other side of the fence it's probably astro turf.
GOANNA2's Photo GOANNA2 Posts: 10,939
3/27/11 1:06 A

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What is Oxycise Easy Does It? I have sore knees too.

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SUNSHINE65's Photo SUNSHINE65 Posts: 1,360
3/26/11 8:28 P

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Koala Bear:
Try Oxycise Easy Does It while the knee keeps you down. You can maintain muscle tone with it. It's great!
Gayle

If the grass looks greener on the other side of the fence it's probably astro turf.
KOALA_BEAR's Photo KOALA_BEAR SparkPoints: (16,966)
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2/26/11 11:44 P

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Hello Everyone, Been low thyroid for years but was on only Synthroid unitl about a year ago.
I am now an on both T3 & T4 equal doses. After being too warm they changed my dosage and now I am a little too cold but much more energized. I take my pills first thing in the AM with a full glass of water, and don't eat for 30 min. Then I take a soy protein drink with extra vitamins & minerals & lots of Vitamin D - 9-10,000 IU.
I eat 25-35 gms of fiber daily & was on So Beach but now follow a modified Weight Watchers plan (the old one by number of servings each day) using SP to track. Recently a dietician where I work recommended I keep my calories just below my maintenance level (about 1500-1600) and to continue to eat 5 or 6 mini meals a day. That normally is some protein with any carb, and I eat only whole grains, and no rice - not even brown rice. Instead I eat barley, oats, and lots of quinoa to keep the glycemic index low.
Lots of water throughout the day and no more than one diet soda a day M - F. Sometimes on weekends I go over that but rarely any alcohol. I do limit fruit & vegetable juice except for carrot juice - it seems to be okay for me if I have a glass early in the day. I eat whole fruits and vegetables. For dessert, I do rely heavily on diet Jell-O and sugar free Murray sandwich cookies, sugar free popsicles, and soy yogurt. I can't have dairy so that is an extra challenge when dieting and looking for filling sweets. Of course I sometimes cheat but am working on managing my stress on the job. Lavender oil with deep breathing helps, and then I come home and meditate for about 10 minutes - just emptying my mind.
I often go to bed early and keep my home life with the other half very simple and uncomplicated.
Due to some knee problems I canít work out right now so that is frustrating and makes weight loss a major battle.
Looking to all of you for support and encouragement. We are having some very cold weather where I live and normally its moderate which is why I moved here so lets all think spring okay? I could use some warmth and sunshine!

K.bear


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GOANNA2's Photo GOANNA2 Posts: 10,939
2/24/11 12:32 P

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Thanks for the good advice ROFOMOM

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ROFOMOM's Photo ROFOMOM Posts: 117
2/22/11 3:13 P

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Take meds regulary and according to directions. (same time each day w/out food)
See Dr. regularly
eat right
exercise
watch out for trouble symptoms!

It's not sooo bad!

Read about my balancing act - healthy living, parenting and daily life!
www.reallifeinrofo.com
I have a good story to tell ;)
GOANNA2's Photo GOANNA2 Posts: 10,939
2/10/11 9:55 A

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I still get tired and every 3 months I get B12 injections - 1 a month for 3 months
then 3 monts off and start again. It is giving me a little more energy.

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CATVICKIE's Photo CATVICKIE Posts: 180
2/1/11 8:46 P

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I have had both kinds, so they fried my thyroid with radioactive iodine and I am on synthroid. I had gained 30 pounds before diagnosis. Now I have decided that it is stupid of me to keep it on, and I will get it off. I only have myself to blame for bad habits. It has been 15 years since diagnosis. I have more to lose than that, but this is a great start for better health.

"There is no reason for any individual to have a computer in his home. "

Ken Olsen, President, Digital Equipment, 1977
US computer engineer & industrialist (1926 - )

Actually he meant the controlling kinds like HAL of SciFi fame, but the quote is still funny!


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SERASOCIAL's Photo SERASOCIAL SparkPoints: (0)
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2/1/11 9:40 A

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My strategy manage my disease(I have Hypothyroidism and been dealing with it for close to three years) and its symptoms. I take my medication daily. I visit my doctor regularly every 6 months to a year. If I get a symptom that comes back I take note of my symptoms. Manage them. Keep in mind its not unusual for symptoms to come back. when they do keep a log on what symptoms and when you get them. Go back to the doctor. Have both your types of levels(especially you h4) checked. make sure there isn't something else causing your symptoms. Your body might have came resistant to the medication. Another tip I have is I wait one hour sometimes more after I take my medication.

LIBILOU's Photo LIBILOU SparkPoints: (12,462)
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1/24/11 10:09 A

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Since I'm fairly new to this life, my philosophy is read as much as possible, learn as much as possible, pay attention to my body, so I can learn what works for me.

Right now I'm on 100mcg. I am losing weight steadily and fairly easy (for me, at least) and I feel great.

Goals in chunks of 10's
246-6/11/13
236-7/10/13
226 1/10/14
221-3/20/14
210-6/19/14
201-
191-
181-
171-
161-
151-
141-
131-
125!!! -


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CHEERHOLLADAY's Photo CHEERHOLLADAY Posts: 48
1/14/11 1:26 P

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For a really long time (over two years), I had this nagging feeling that something was wrong, but they just couldn't find what it was. Eventually the doctors determined that it was Graves Disease and I went from having an overactive thyroid to an under-active thyroid. At this point in my thyroid journey, I have come to the conclusion that there are many things that I am just going to have to live with. It's going to take time to get my medication regulated, take time to work off the weight I've gained and take time to get used to having a thyroid that is in the 'normal' range. So far my doctor has been really good with all of this and I hope that will continue, because I know it is a long road ahead of me.

"It's not the size of the dog in the fight, it's the size of the fight in the dog." -Mark Twain

healingsoulwritingcafe.wordpress.com
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APPEALSTOME's Photo APPEALSTOME Posts: 4,506
12/31/10 6:49 A

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I am more energetic, etc. since discontinuing cholesterol medication. My experience has been that eating carbs increases cholesterol not meat, cheese, etc. My cholesterol was normal when I followed high protein diet.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had choosen it. That frees you


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GAELICQUEEN's Photo GAELICQUEEN SparkPoints: (15,317)
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12/30/10 12:15 P

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I was on cholesterol meds, but did not renew script. I feel alittle more energtic, just be sure to watch amount you get from food. I take multivitamin. I'm over 55.

Pain is weakness is leaving the body.


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APPEALSTOME's Photo APPEALSTOME Posts: 4,506
12/14/10 6:08 A

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I was tired on synthroid and levoxyl. Sleeping 10-12 hours daily. Talked endo into prescribing a little cytomel with levoxyl a few months ago. I continued feeling tired and gaining weight and Cytomel was increase slightly. I feel more energetic but nowhere near normal. I read that thyroid patients require higher dose of medication in winter months and lower in spring/summer.

Do you take other medication that might cause fatigue? In my case, cholesterol medication made me tired, etc. I had more energy, strength, etc when I forgot to take it one day.

Do you take vitamin supplements? My endo recommended I take vitamin D-3, omega 3, selenium, B-12 (Type that dissolves under tongue) in addition to multi vitamin daily.

All my hormone levels where checked and I lack estrogen, but endo and GYN won't do anything about this.

Tee

Middle age is when broadness of the mind and narrowness of the waist change places.


Whatever you do in life, think higher and feel deeper. C. Artias

Your personal history is not your true identity. Don't let the past define who you are.. Eckart Tolle

You are the architect of your actions, words and voice. What an opportunity for love, truth and purpose to shine. Sister Andrea Jaegar

Accept each moment as if you had choosen it. That frees you


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CARRIESYMES Posts: 5
11/3/10 1:12 P

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By reading some of these posts on hear I really ned to switch doctors again! I started 5 years ago with high BP and dr couldn't find anything wrong. Just chalked it up to a 23yo has high bp! My mom is an RN and she kept pushing for all different doctors. After doing some internet research I told the dr to check ALL of my hormone levels, wow they actually listened! I have been on 25 mg. synthroid for a year, been having levels checked every 6months, and just still feel tired. My last check was about a month ago and they were fine according to DR. I am so tired of fighting with these dr, I really need to get one that listens!!

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SAFARI63's Photo SAFARI63 SparkPoints: (0)
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10/19/10 10:18 P

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I think the most important thing for Thyroid management is a doctor that listens! You have to be your own best advocate.
I was diagnosed 2 years ago and for 18 months my life was hell. I was exhausted, could barely function. Even after my numbers were in acceptable ranges, I still was exhausted on Synthoid alone. I was blessed with a doctor that listens. He didn't just rely on the numbers. After much discussion I was able to get him to try a mix of Synthroid and Cytomel. The last six months I finally feel like I have gotten my life back.
I work on stress management. I also limit my intake of goitrogenic foods.
Melanie

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JOON1954 Posts: 39
10/13/10 6:09 P

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I have been fighting hypothyroidism for years now and I began thinking my life was never going to get better, but then I changed doctors. She changed my medication and increased the dosage but most of all she listened. It has only been a few months but I feel better already. I take levoxyl every morning and a thyroid complex multiple vitamin at night. I joined weight watchers like the doctor suggested and I started walking. Finally I feel like I am in control of my health and life aain.

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MITECU's Photo MITECU Posts: 6,841
8/17/10 7:20 A

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Listen to your body's signals and let your doctor know. She'll know what adjustments to medications will help. If she can't, find another doctor.

With God, all things are possible. (Matthew 19:26)

"If we all did the things we are capable of doing
we would literally astound ourselves."
Thomas Alva Edison

The mediocre teacher tells. The good teacher explains. The superior teacher demonstrates. The great teacher inspires.
-William Arthur Ward



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GOANNA2's Photo GOANNA2 Posts: 10,939
8/15/10 6:17 P

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I keep hearing about Cytomel so must get the GP to give me some as the oroxine alone does nothing and I am feeling so tired all the tiome.

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GAELICQUEEN's Photo GAELICQUEEN SparkPoints: (15,317)
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8/15/10 9:48 A

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I am lucky I have 3 doctors that actually listen to me and we discuss what's working or not working for me.
Of course, all 3 are on me to drop some pounds. I'm trying but it seems to be painfully slow process. I've started testing blood glucose and may be insulin resistant or pre-diabetic. Internist will be testing everything when I see him next month. Endocrinologist recently changed meds to compensate for Armour not being available here. I feel about as good as I was previously on Armour. He prescribed Synthroid AND Cytomel. Synthoid alone wasn't working - I was tired all the time. Cytomel has given an energy boost.
Weight loss is still a SLLLOOOWWWWWW journey. emoticon

Pain is weakness is leaving the body.


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DARINGDIVA's Photo DARINGDIVA Posts: 223
8/14/10 12:59 P

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Hi Joniebee1

Your story is very interesting, to be sure! I agree, you look so young for your age. i am surprised that the vegan diet has had such a positive influence on your arthritis, and your thyroid issues. Most people see a marked drop in inflammation by dropping wheat based foods and legumes, such as soy, peanuts, and beans. As I understand it, the hypo thyroid diet should be protein heavy, low in grains, with the emphasis on dairy sources of proteins. Of course, every BODY responds a bit differently. Where do you get your protein?

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DARINGDIVA's Photo DARINGDIVA Posts: 223
8/14/10 12:47 P

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I love Phil. 4:13, but am concerned about your adjusting your meds yourself. What medication are you on? Are you following the dietary guidelines for your particular thyroid condition?

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GRANDMABABA's Photo GRANDMABABA SparkPoints: (120,475)
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8/10/10 9:30 A

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I wrote a long note and it somehow disappeared before posting. So will just say I have learned thyroid is again out of order and will need to increase meds. Since doc is not good at getting back to me I have just increased some on my own.
My philosophy for dealing with this is the same one for dealing with everything else: "I can do all things through Christ who gives me strength." Phil. 4:13

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