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FDEVINE1's Photo FDEVINE1 Posts: 136
9/24/10 10:40 P

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Hi everyone and welcome new people. I thought I'd check in and give an update. After my iodine scan which showed I had at least one cold nodule, my endo did a needle biopsy to make sure it was benign, The test wasn't 100% conclusive so he won't do the radioactive iodine treatment. He wants me to have surgery. I see the surgeion on Oct. 6th. Has anyone had thyroid surgery in the past two or three years? I'm nervous about it.

Frances

Frances



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AWAYTOGO2 Posts: 335
9/22/10 9:56 A

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emoticon You found a great support network of friends here. Have a great day. emoticon

BORIQUANMAMI's Photo BORIQUANMAMI SparkPoints: (14,718)
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9/22/10 9:44 A

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Hello there! Just wanted to introduce myself to the group and get a chance to tell y'all a little bit about my story. I have to say it's been great reading other's stories both good and bad if only to know that I am not alone in this. I was diagnosed this past March with a goiter and hyperthyroidism. My resting heart rate and tachycardia were through the roof. My mother had been urging me for over a year to go get myself checked out and of course I had all the classic excuses of a working mother of three young children trapped in a bad marriage, "I don't have time," I'm too busy," "I'm not really sick," etc. etc. Methimazole and Propanolol were prescribed and they seem to help. But the honest truth is I have good days and I have bad ones. It gets frustrating as I think about how easily the pounds came off when I wasn't taking care of my thyroid or eating well and how hard it is now to be healthy and at a weight I can live with. But I remind myself about how much pain I was in as my thyroid leached calcium out of my bones and made my bad knees and ankles worse, about how awful it was to have the unnameable cloud of anxiety surrounding me because my heart rate was out of control, how exhausted I was to never be able to relax, and how ugly my neck looked because of the goiter sticking out of it. I too have struggled throughout my life with skin rashes and have only recently realized it may have been due to my thyroid and not allergies or sensitive skin as I've always thought.

After a move across the country with my three boys and starting a new job, I haven't had my numbers checked in several months. But now that my insurance has kicked in, I should be able to got to a new PCP and an Endo soon (as long as I don't make up more excuses for not doing it emoticon ). I still struggle regularly and worry when the heart rate monitor on the eliptical says I'm somwhere near 180 bpm when working out, but I know that I am making changes that will be better for me and my boys in the long run. I look forward to continuing to share our stories, both good and bad, as we work our way through this.

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TWIXXX's Photo TWIXXX Posts: 164
9/15/10 10:03 A

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I just wanted to say HI ALL! Glad to see there is a place for us to relate to one another.

I was diagnosed with Graves in '96. Ptu & beta blockers have been the main meds to treat me with when I have a flair up. My numbers get under control fast with Ptu. I've survived 3 t-storms.

This last time I lost my insurance shortly after being hospitalized. Fortunately my numbers were brought down before the insurance disappeared. I've been without insurance until this past December. Now I'm in the wait mode, wait, wait, & wait for that 18 month pre-existing to be over with. I have no clue what my numbers are. This winter I was freezing but here recently I've been dealing with anxiety. So I think something isn't just right.

They'd love to take my thyroid. I'm stubborn and won't let them have it. I guess what's most misunderstood is that although this may be labeled thyroid disease it isn't specifically just a thyroid disease. Even with your thyroid gone you still have Graves. And Graves I've learned can still affect the rest of you. I've got the lovely shin rash. Thankfully I don't have the eye issues. But my eye doc noticed some weird growths on the back of my eyes, lovely.

My aunt had Graves and cancer. She had hers removed 20+ years ago. Weird thing is some of her thyroid grew back. My mom has both markers for Hashis and Graves, being treated for Hashis. Two of my daughters have Hashis, treated with levo. Another aunt has Hashis but also has markers for Graves. My oldest daughter doesn't have any markers but displays symptoms for Graves, being monitored by endo. I can name off many many more family that have been affected. There's also lupus, fibro, rsd, & diabetes in several family members. If someone were to ask me I'd tell them yes this can be something that is passed through the line.

As for weight loss my last endo in 07 said forget about it. That was even after I told her I had lost 50 on my own. Currently I'm 340 and sloooowly losing. I've been told more than once that I must be eating several horses a day for me to weigh this much. Poor horses!!! I had no clue I was doing that! So when I tell them I want to lose weight or that I'm trying I don't get taken seriously. Bummer.

Anyways, just really wanted to say HI!!!

BUFFALOSUZANNE's Photo BUFFALOSUZANNE Posts: 107
9/14/10 11:35 A

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I also have Graves disease; was hyperthyroid for over 3 years and struggled with taking my meds (methamizole and atenolol) regularly. When I finally settled on an endo, he said I could not work out and I gained 30 pounds. I finally received the radioactive iodine treatment almost 2 years ago and now take synthroid. I still struggle but I lost 25 pounds over a year ago, gained it back due to injury and stress. However, since April, I have lost 31 pounds! I am still continuing to lose and hope to be at my goal weight (10 pounds away) within 6-8 weeks! You can do it!!

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TUBLADY's Photo TUBLADY SparkPoints: (115,569)
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8/9/10 8:49 P

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I first experienced hyper active thyroid in 1967, my daughter was 6 months old. I thought I had heart trouble. My thyroid was so over active the Doctor called in specialist to see me, I was a rare patient.
I went on medication and stayed on it for a number of years. Then I seemed OK.
In 1979, the hyper active thyroid comeback, this time I was so week, lost so much weight, and my vision was affected. I ended up in the ER.
The Doctors gave me a choice, take pills for life, have an operation or try the Radium pill, to shrink it..I think this was the latest treatment.
The put me in a glass cubical, the Doctor was in a protective suit, carrying the canister with tongs, they put it in the slot, the slot then turned in to me, where I opened the canister and and swallowed the pill. Had to stay clear from people for a five days. They said it would only shrink part of the thyroid. They had taken all kind of measurements. Well it killed it , nothing left. I ended up on pills for life, anyway. Its been one test after another, to keep me at the right level.
That's one bad decision I made I would never chose that treatment again.
I have dry skin, it affects your body temperature. The texture of your hair. I never knew how important the thyroid was until I lost mine and have to make do with levothyroxin for the rest of my life..

Believe in yourself, never give up, you are stronger than you think."
I Believed , I Never Gave Up , I Lost 200 Pounds.


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MUMMYCHICKEN's Photo MUMMYCHICKEN SparkPoints: (7,647)
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8/8/10 5:21 A

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I still suffer from shortness of breath - it is a symptom of thyroid - someone on here told me it was called air hunger and linked me to an article on it - if you look back through various postings you should find the linkor just google "AIR HUNGER" and see what comes up. I always know my hormones are out of sync when my breathing becomes a struggle - it happened when hyper but also now I'm hypo and menopause changes in hormones too. I always thought breathing was a natural thing to do but not any more!!

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PRIYAAA1 Posts: 1
8/8/10 12:00 A

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I got diagnosed with Grave's Disease at the beginning of this year. Somehow they expected me to look like a skinny little model, but I presented to them being 20 pounds overweight... currently on anti-thyroid medication which makes me gain even more weight :(

SEACHELLEFLY's Photo SEACHELLEFLY SparkPoints: (26,305)
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7/28/10 6:03 A

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When you stopped your hyper-thy meds (propylthiouracil to be exact)did anyone get a sick stomach and light headed for about a week after stopping it?
The insurance is being a poop-head and not approving the endo doc, and of course she wont approve another prescription unless I come in (which the insurance wont pay for) - talk about an annoying catch 22!

I like the comparison to the orange skin legs....I too seem to have a rash on my shins that can itch like mad! So they are all scarred up from years of itching, which I can probably tie to high stress times and storms in my life. It also seems to be 'worse' when I drink from an aluminum can. I don't know why, but anytime I do it seems a new itchy spot appears on my shins, or 'blisters' form filled with liquid, like my body is trying to flush the aluminum out.

Also interesting about the beta blockers and asthma...didnt know that! It is hard to know what is going on at times...cause the betas are slowing the heart, which isnt pumping right, so I cant tell if the short breath is too much fluid in the body (backing up into the lungs) or maybe the constricting of the vessels....

crazy! I am totally for vitamin B suppliments and de-stressing the life!

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QTLIONESS13's Photo QTLIONESS13 Posts: 2,339
7/27/10 9:02 P

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Hi all, i'm Ruth. and I have hyper and graves. It has been a roller coaster for me since 2007. I've had the ichy skin (it was so creepy crawly i felt like i was covered in bugs) which I chalked up to my allergies. I had the increase in appetite which depressed me (and depression lead to more eating). I was exhausted all the darn time. and then finally the thing that lead me to see a doctor. the week I got married in 07, my aunt passed away, my niece was born and there was a huge fight in my family at the funeral... silly me I thought it was stress that lead me feel like my heart was racing, and I couldn't sleep and I just felt so bad. Luckily at the time I was working with a nurse who the one day took my pulse and my BP (my pulse, after a 2 hour nap was over 140bpm, and my BP was sky high) she drove me to my doctor and had them do a full work-up... so 2 days after I was married I got the news... it's hyper-thyroidism and even then I had problems. My doctor seemed to forget that beta-blockers are contraindicated when you have asthma (beta-blockers work by narrowing the blood vessels which slows down your heart rate... but they also narrow the bronchi in the lungs as well)... Well a midnight trip to the ER 3 days into my marriage fixes that little problem. The only Endo I could find unfortunatly seemed to think that I was either making up my symptoms or just something... but 2 years later and I was still not even regulated on meds... hehe... then I got pregnant... I basically stopped all meds to make sure everything was OK with my baby (she was born completely healthy on December 1st of 09) since then we have also moved so now I have a new pcp and i need to find a new endo (hopefully one that knows what she's doing) because I can literally feel my thyroid getting bigger (i have such difficulty swallowing sometimes I choke on water)

so right now i'm a little lost trying to find a new doctor and i'm hoping things will start to get better soon. (oh and since about 2006 I've gained 100+ lbs and lost almost none)

pinupinthemaking.blogspot.com/

I'm doing the Dukan Diet and should be at my goal weight by September of 2012

Hugs Everyone, Ruth


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SOOOGOOD Posts: 2
7/15/10 3:53 P

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I was diagnosed with Graves in high school, I was one of the younger patients at my Endocrinologists. My mom made me try homeopathic remedies which were crap. I later went to a regular doctor and did several rounds of meds. Now i'm on my own and I struggle with weight loss horribly. I haven't been to the doctor's in awhile, even though I probably should. Its so hard having something that never levels out and gets worse with stress!

HEFFER2918's Photo HEFFER2918 Posts: 17
7/9/10 3:13 A

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I was diagnosed with Graves June of last year and my first question for my doctor was about my eyes. He told me you should have nothing to worry about if you are not a smoker. He said that is a major risk factor for the "bulging" eyes. I also feel a little pressure behind my eyes, but not a bulge. I noticed you said your skin texture feels like the skin of an orange.. mine isn't too rough, but it is VERY dry and itchy and prone to breakouts. Have you ever experienced severely itchy skin?? It used to be so bad I would scratch till my skin bled. I also had an MRI done of my thyroid after taking a RI pill and my thyroid was glowing it sucked so much iodine up:(

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AWAYTOGO2 Posts: 335
7/1/10 5:58 A

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I too was diagnosed with Grave's Disease back in 1983 I believe due to some stressful times. I was put on beta blocker for the racing heart and anti thyroid. Unfortunately, I had to stop meds due to pregnancy. My daughter was born 6 weeks early then went through a thyroid storm (as they call it.) To prevent any other complications during future pregnancies I had my thyroid and goiter surgically removed in 1984. It's been a rollercoaster ride with symptoms of low and high TSH. I am fortunate to have a PCP who trusts me in letting him know I need an adjustment to meds. (most of the time) I can't convince him about Armour. I'm not sure what I think about it. It sounds like you have a good handle on your situation and a positive attitude. That's half the battle. I do not know anything about coconut oil but I'm interested in learning more. Good luck.

DARK^PRINCESS's Photo DARK^PRINCESS Posts: 50
6/20/10 7:26 P

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I have to admit, I should be extremely grateful my adventure with Graves has been so non-adventurous.

I was diagnosed with Graves around 2003 (probably brought on by a stressful personal time). I had the rapid heartbeat when I laid down to sleep, the heat problem (when it was 50 degrees out, I was wearing shorts and wondering why everybody was saying it was cold!) and eating truckloads constantly. My endo put me on anti-thyroid med and a beta-blocker. When my levels finely got normalized, he took me off the beta-blocker. I still take the anti-thyroid and don't have any more issues aside from a slightly enlarged goiter, so I still won't do the RAI or have it surgicially removed. I guess like everything else, we all react differently to medicine.

I lost a lot of weight prior to my diagnosis, but then as I got normalized, the weight started going up. It was hard on me - I was always underweight.

I've been slowly changing my eating habits over the last couple months - eating more whole grains, limiting dairy (I LOVE milk and butter), more fruits and vegetables, added raw nuts and added coconut oil in place of the butter wherever I can (not on corn on the cob or mashed spuds!). I've gone from 127 lbs to 119 lbs.

Exercise is the next tough issue. I already bike 4.5 miles to work and sometimes the same back (depends on husband's work schedule). I want to add strength training, just not sure what kind I will manage to do consistently - I was born to be contrary and know it will have to be something simple to do.

Has anybody else tried the coconut oil?

To be nobody but yourself – in a world which is doing its best, night and day, to make you everybody else – means to fight the hardest battle which any human being can fight; and never stop fighting.
ee cummings


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MELISSA734's Photo MELISSA734 Posts: 23
6/3/10 2:53 P

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hello,
I have read all the messages on this topic and i am so glad( sorry) that I am not the only one with thyroid issues.I have been through it all the beta blockers,nodule getting larger, radiation treatment( was the worst away from my family for four days)ups and downs of medication, now at the final biopsy and surgery.And boy do they make the what could happens sound so great...anybody know does it get easier after that...thanks for letting me vent...

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TOASTIE's Photo TOASTIE SparkPoints: (36,653)
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5/18/10 5:00 P

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ha ha - the jump rope is funny! woo-hoo on getting things balanced so you are able to lose weight. I have had to mentally accept that things just don't work the way they used to. Weight loss is slow, but it does happen if I am diligent at exercise and eating healthier foods. Which I guess I should have been doing all along anyway.

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SHAZZER1976 Posts: 45
5/13/10 5:18 A

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My endochronologist - always a sensitive soul(!) - brought a skipping rope in for another one of his patients who had half a stone to lose!

I'm pleased to say my increased dose of thyroxine appears to be kicking in - ie. I can actually lose a little bit of weight. Slowly, but I think slow weight loss tends to stay off, reflecting a change in lifestyle as opposed to a crash, faddy diet. I'm wearing a dress that used to fit and is now huge in the waste and is even getting bigger in the bust - I'm well endowed and plagued my blouses that either fit around the waste and gape in the bust or fit in the bust and make me look pregnant! emoticon

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MUMMYCHICKEN's Photo MUMMYCHICKEN SparkPoints: (7,647)
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5/12/10 3:17 P

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My cholesterol has also gone up - it is 6 which isn't majorly high but is above what it should be - My GP is not concerned but I try to eat healthily and have very little fat in my diet.

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TOASTIE's Photo TOASTIE SparkPoints: (36,653)
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5/12/10 2:37 P

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I also drank the radio-active iodine. I did not stay in the hospital. I was allowed to come home. I needed to stay about 3 feet away from people (and pets), although just passing by them, like in the store, wasn't a problem -- I just couldn't have prolonged contact -- like snuggling on the couch or sitting in the car, for more than a few minutes -- I wasn't supposed to do that. I could have gone to work, but since I can work from at home when needed, I just did that, and I skipped choir practice that week. For a couple days, I washed my laundry separately, double-flushed the toilet, washed my bedding separately, and pretty much maintained the kinds of distance and care that I would if I had the flu, and didn't want to spread germs. But it really wasn't a big deal for me or my family. I never felt bad.

While my anti-bodies showed I had graves disease, and my tsh was virtually zero, my free t3 and t4 were always normal, and I didn't show any hyper-active symptoms, ie, I can gain weight as easily as anyone! It took many months before my tsh started to climb and got to a point where my endo had me take thyroid medicine.

And, beware -- as my tsh climbed, so did my cholesterol. My doctor and I are still working on figuring out the right combo of medicine to get everything under control -- I have a blood test next week to see how things are doing.

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MISSRICA Posts: 17
5/11/10 10:43 A

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sHARON AND ALL
I am hyperthyroid and I gained weight ever sense I got the disease (11 years ago when I was 16). The disease went into remission, and came back a few months ago. Now I am back on PTU. But yes, I felt very tired all the time, VERY anxious to a point where I had anxiety attacks, just overall feeling down and depressed. I would shake my legs a lot, I would get headaches, feel dizzy. Now its getting back under control and I have started exersizing again, eating foods from the brassica family DAILY, and really taking a proactive approach to my health. Sparkpeople helps too because when you use the nutrition tracker you think more about what you eat each day.

When I was 17 the doctor insisted that I take RAI. I went to the appointment and there were two doctors. An old male and a young intern. I asked questions and the old man blew me off. I asked about the safety of the RAI because they told me not to touch the pills and to stay away from children. At that moment I said NO, I'm leaving, I'm not taking this. Why would I want to be HYPO? That's a whole other disease. Then I left. I went into remission for 10 years!



SHAZZER1976 Posts: 45
5/4/10 4:37 A

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I had a radio-iodine drink. I remember saying to the doctor, 'You expect me to drink this thing and you won't even handle it with your bare hands!' He kept lifting it with tweezers and had protective gloves.

I too feel better being slightly underactive than very overactive. I dread to think what might have happened had I not attended the doctor on account of what I thought was my asthma!

Ironically, when my thyroid was at its worst, I gained weight rather than lose it. I felt so weak and low in energy, I kept reaching for sugary snacks to perk me up.

Did anyone else have this experience?

Sharon

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MUMMYCHICKEN's Photo MUMMYCHICKEN SparkPoints: (7,647)
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5/1/10 7:06 A

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I definitely took a pill and there was no inpatient stay - just had to keep away from people for a while - I am in the UK so don't know if this makes a difference? Having been both hyper and hypo I find hyper far worse and the symptoms far more frightening - although I get similar symptoms with both hyper is more severe - rapid heart beat, problems breathing, extreme tiredness etc etc. I didn't get severe mental problems but it is recognised as a symptom and people presenting with a first episode of paranoia and depression should have their thyroid tested to rule it out. I suffer from ongoing low grade depression which sometimes accelerates and these days I find myself blaming everything on thyroid or menopause!

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UMOGRAD83 Posts: 17
4/30/10 5:39 P

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There's a pill for the radioactive iodine? When I had thyroid cancer, I had to drink radioactive iodine and then stay in the hospital for three days so I wouldn't affect anybody else. I was hyperthyroid when I had the cancer. My doctor told me the hyperthyroidism and the cancer were not related. Whatever! Hyperthyroidism was awful. I was so hyper that I was having mental issues - I really thought I was going crazy. Anybody else experience this? It's been 26 years now that I've been on Synthroid. You can lose weight while on this medication. Now that I'm perimenopausal, it's tough to lose weight. My endocrinologist asked me last year if I'd ever heard of Weight Watchers. He suggested it because I'd gained quite a bit of weight. Ha! I told him I was a lifetime member. He won't be happy with me this year, either. Although I go to the gym and exercise, my eating is out of control. I'm trying to get a grip, but so far it hasn't worked. I see him at the end of June. Oh, joy!

FDEVINE1's Photo FDEVINE1 Posts: 136
4/27/10 9:47 A

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Thanks for the information. At least I know what to expect now. I think they're going to destroy the thyroid, so I'll have to watch for those symptoms of hypo.

Frances



Trying harder in 2010.


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ILOVEMY2BIRDS's Photo ILOVEMY2BIRDS Posts: 2,646
4/27/10 6:36 A

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There is another team just for hyperthyroid/Graves disease. It is not very active but it is there.

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MUMMYCHICKEN's Photo MUMMYCHICKEN SparkPoints: (7,647)
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4/26/10 5:56 P

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I had RAI 15 years ago and the actual treatment is easy - swallow a pill. You then have to spend 14 days being careful who you come into contact with ie pregnant women and a few days where you can't cuddle children and other precautions re cutlery and flushing the loo. Other than that I had no symptoms like sore throat etc. Over the next 3 months I was un medicated and gradually became hypo - lacking in energy, aching joints, lethargy etc but blood tests confirmed I was now hypo and I started on 150mgs of thyroxine straight away and it didn't take long to kick in. I had a large dose of RAI to completely kill off my thyroid so there was never any doubt I'd go hypo - some people are given a smaller dose in the hope that will stabilise the thyroid and medication won't be needed but I don't know how often this is the case.

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FDEVINE1's Photo FDEVINE1 Posts: 136
4/26/10 5:45 P

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Thanks, Mariah. That doesn't sound good. Anyone else?

Frances



Trying harder in 2010.


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STRONGMAMA3's Photo STRONGMAMA3 Posts: 190
4/25/10 10:38 P

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Just went through RAI in November and it was a "success". The treatment itself is not as draumatic as it seems. I did not have the throat pain or really any symptoms until my thyroid started shinrking over the next couple of months. It is normal for your levels to go up when you are taken off of the medications before the scan, and your doctor may have you take your thyroid meds for a few weeks after the treatment until it starts working.

My greatest struggles came as I went from Hyperthryoid to hypothyroid and this is not fun! I became increadibly weak, tired, could not work out, no appetite but still gaining weight, extremely heavy menstrual periods, muscle cramps, and frequently my bones would go "out of joint" and need to be popped back in (this did not hurt though it just felt funny, my memory is still not what it was and I am a bit scatter brained at times.

About 6 weeks ago I started Synthroid (hormone replacement) and most of those symptoms are getting better. I am still gaining weight with no appetite and I am not as strong as I was before, but I see the doctor tomorrow and he will adjust the dose and hopefully things will continue to get better.

I'm not trying to scare you, but no-one really warned me about all of those things that can happen and how long it might take for the hormone to kick in, but it really does get better and as scary as that little pill may be, it really does get better, it just takes a little time!

Mariah

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FDEVINE1's Photo FDEVINE1 Posts: 136
4/25/10 7:31 P

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hyperthyroid spark team? You mean besides this one?

Edited by: FDEVINE1 at: 4/25/2010 (19:31)
Frances



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FDEVINE1's Photo FDEVINE1 Posts: 136
4/25/10 7:29 P

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Well after being off the thyroid meds, sure enough, my levels went up again, so I'm scheduled for the iodine scan and then probably the 'treatment'. What can I expect from the iodine treatment that burns the thyroid away? My internist said dry throat and a little pain. Can anyone else tell me more? I'm a little nervous. So he put me back on the beta blocker but today I had an episode wiht fast heart beat and it still hasn't calmed completely down. Is this normal when you're off the PT med waiting for the scan?

Frances



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ILOVEMY2BIRDS's Photo ILOVEMY2BIRDS Posts: 2,646
4/17/10 9:06 A

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I have graves and my eyes are ok. I sometimes feel they are being pressured but I never got bulging. I also do not have a goiter... I had an ultrasound done of my thyroid and it is slightly enlarged but does not protrude.
The skin on my shins resemble orange peels (not the color but how it looks and feels) and this is also another manifestation of Graves. I am also very sweaty.
The doctor can run blood tests to check for anti-bodies to determine if hyperthyroidism is graves or not.

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SHAZZER1976 Posts: 45
4/14/10 6:38 A

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Hi,
You can be hyper without having Graves. Graves is an auto-immunne disease where you body produces antibodies that attack both your thyroid gland and the tissue and muscles at the back of the eyes. Graves patients have both a goitre and eye disease where the eyes bulge.

Hope this helps.

Sharon

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SHAZZER1976 Posts: 45
4/14/10 6:05 A

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This was my experience. Being hyper is no fun. it really irritates me when people treat being hyperthyroid almost as a blessing! I was really sick and I think my health was extremely jeopardised by this episode in my life!

Sharon

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KELLYJOY15's Photo KELLYJOY15 Posts: 58
4/11/10 1:56 A

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I have Hasimoto's thyroiditis. I am usually hypo, but a few weeks after I get a cold, my thyroid usually releases all of it's stored hormones, and I get very hyper for a few weeks. This is not Graves, because my thyroid isn't taking up any iodine during these times. It is just releasing everything it stored up. The roller coaster really sucks. Because of this, my endocrinologist has been hesitant to start me on sythroid, even though I am usually hypo. He says that eventually my thyroid will stop working enough that I won't have these hyper episodes.

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ILOVEMY2BIRDS's Photo ILOVEMY2BIRDS Posts: 2,646
4/9/10 6:26 A

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I heard about her (and her husband Georgr Sr. has Graves too) It came out around the time I was diagnosed in 2007. They said it was extremely unusual that a husband & wife have the same condition.

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SEACHELLEFLY's Photo SEACHELLEFLY SparkPoints: (26,305)
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4/4/10 3:23 P

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Did anyone else know SHE was a 'hyper'???? This was in this week's medical highlights report!



Barbara Bush Released From Hospital

A mild relapse of a thyroid condition called Graves disease may have caused the symptoms that kept former first lady Barbara Bush in Methodist Hospital in Houston since last weekend.

Doctors adjusted her medication, and she was discharged from the hospital Wednesday morning, the Houston Chronicle reported.

A statement released by Methodist said Bush, 84, was "alert, talkative and appeared to be getting stronger," as she got ready to leave the hospital. She's expected to make a full recovery and should soon resume her normal activities, the hospital said.

She was taken there Saturday by her husband, former President George H.W. Bush. At the time, a spokesman said Mrs. Bush didn't have any pain but wasn't feeling like herself, the Chronicle reported.



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ILOVEMY2BIRDS's Photo ILOVEMY2BIRDS Posts: 2,646
4/4/10 8:23 A

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There is also a hyperthyroid spark team, if anyone is interested.

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LIFESABREEZE's Photo LIFESABREEZE Posts: 94
4/3/10 3:53 P

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I'm happy to see that there is a "hyper", group!! I was diagnosed about 3 years ago with Graves disease. I was on a generic form of Tapazole and was weaned off a couple of times, the 2nd time worked! I hope I stay in remission;-) People think that if you are hyper that you will lose weight, which is not always true. You can actually gain. I was constantly eating, as everything was working so fast that I was famished all the time! I do drink coffee, its my one vice....I hate to give up! It is amazing how the thyroid affects so much within our bodies! I am glad that I don't have the racing heartbeat anymore...it can be very scary. Stress seems to trigger this disease! emoticon

www.sparkpeople.com/resource/motivat
ion_articles.asp?id=1062
www.sparkpeople.com/mypage_public_jo
urnal_individual.asp?blog_id=3292455
One of my favorite quotes from a SP article:
"Don’t let one night of gluttony, one weekend of debauchery, a vacation of unwholesome habits, consume your thoughts and defeat you. Reinstate your healthy lifestyle ASAP. All is not lost. "



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MUMMYCHICKEN's Photo MUMMYCHICKEN SparkPoints: (7,647)
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3/31/10 7:59 A

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I was hyper and it couldn't be controlled and so I had RAI 14 years ago. I have to say that hypo is easier to manage than hyper and I recently was over medicated and went hyper again - awful. Having had both conditions I can honestly say I found hyper far more difficult than hypo and far more stressful on my body. Hypo isn't good either and can make you feel very unwell but it isn't as scary - my heart was pounding and it was exhausting being so hyper all the time - I didn't even get the only benefit of losing lots of weight!

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ILOVEMY2BIRDS's Photo ILOVEMY2BIRDS Posts: 2,646
3/31/10 7:04 A

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Hi. I was diagnosed with Graves in 2007.
I am still taking PTU (for thyroid), propanolol (a beta blocker) and Diovan (for blood pressure). I have not been able to obtain remission. I am petrified of RAI (I don't see a reason to "kill" my thyroid and end up on a different medication for being hypo instead)
I am glad you are talking about hyperthyroid people like me, because I think most people assume that if you are hyper then you can lose weight easily. This is true to some extent... when you are not being treated and other aspects of your health are going haywire like pulse rate & blood pressure.
But those of us who are or have been treated are like everyone else & some of us even had RAI or our thyroids burned out so are now hypo.
I am hoping to keep things at an even keel. I have lost a lot of muscle and am very weak as far as strength (and I used to be very strong for a lady my size of 5 ft 1)
I rejoined spark to get back into a good exercise routine and just lose a few pounds that I have put on from my inactivity.
Once again, thanks for opening this up to hypers a little more... I think we need a voice too. emoticon

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SEACHELLEFLY's Photo SEACHELLEFLY SparkPoints: (26,305)
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3/17/10 8:36 P

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that would be so awesome to have a chart like that....but that may be too logical for the vitamin industry????

I hadnt heard of the cholestreal going up with the no-thyroid thing......that is scary!

There are so many things that seem related to the thyroid....it is quite the gland! I take an extra B complex vitamin...but am hit and miss on the multi (it doesnt have enough calcium or iron or B or Omega 3's in it). Good point on the vitamins over the day (and withfood is better too I hear)

Are you able to still give blood even tough you are on the no-thyroid medicine? were you able to give when you were high?

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TOASTIE's Photo TOASTIE SparkPoints: (36,653)
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3/17/10 10:44 A

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Seems like we need a chart that gives us minimal daily recommended amounts for vitamins based on having a whacky thyroid -- and is it different for over-active (which I was) vs under-active (which I am)? And also, what besides my thyroid medicine and calcium and iron is all trying to be absorbed by the same itty bitty receptors -- which is why we spread our meds out across the day?

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TOASTIE's Photo TOASTIE SparkPoints: (36,653)
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3/17/10 10:41 A

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I haven't heard of the relationship with B-vitamins, but I do take a multi-vitamin with plenty of B (well, I assumed plenty of B - perhaps I need more?)? I know I have to take lots of iron to keep my hematocrit level high enough so that I can donate platelets. And my doctor has me on fish oil as my cholesterol went up right along with my tsh after I lost my thyroid.

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SEACHELLEFLY's Photo SEACHELLEFLY SparkPoints: (26,305)
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3/16/10 10:48 A

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Has anyone else heard about a relationship between B vitamins and thyroids and energy levels?

I thought I came across something that said hyperthyroids ate up the levels of B vitamins in our bodies, so to help mitigate it, having a steady supply of B vitamins helped the thyroid do better....

Thought of this after reading the post below...and the low energy levels of low/no thyroids.

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VDURANGOGIRL's Photo VDURANGOGIRL Posts: 7
3/13/10 3:41 P

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Hello every one, I am new to Spark, I had my thyroid removed in 1993, I weighed 135 lbs when it was removed, every time they took me off of my medication ( levoxol 200mcg )to do the iodine therapy I gained weight. I am now at 265 lbs and going to be a grandma. I was holding my weight at 250 lbs until I quit smoking in November 2009 then I gained 15 more lbs. I am looking for any suggestions about any natural engery boosters cause I have no energy to do much of any thing. I do good just keeping my house clean. Thank you in advance of any suggestions

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SEACHELLEFLY's Photo SEACHELLEFLY SparkPoints: (26,305)
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3/13/10 6:38 A

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Hi,

Been reading on your posts a little bit here and am finding them interesting.

I am surprized how many are on Atenolol...how many of you also have to do the water pill aspect of that drug? And I am curious how much you all take....I keep wondering if it is possible to slow the heart down way too much

I was diagnosed hyper 12 years ago, triggered by a stress event in my life. Stress does play a huge role in this. The thought of killing it off seems like such a bad idea and I cant seem to want do it.

I will have to look into the 18 month time limit on the one med....as I am approaching one year mark and wasnt aware of it attacking white blood cells....

I have gone off soda and most caffine and lowerd salt intakes. Not sure if it helps the heart more or the thyroid....I have also read there is a possible link to the amount of aluminum exposure in our diets (I drank coke out of the can).

Nice to meet you all....glad I paused by the front page for a minute today!

Edited by: SEACHELLEFLY at: 3/13/2010 (06:40)
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FDEVINE1's Photo FDEVINE1 Posts: 136
3/6/10 9:03 A

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Did someone say caffeine and sugar make it worse? I didn't know that. I drink coffee constantly. Half-cafe, but still... that's a lot of caffeine. Guess I'd better do some research and start getting off coffee. sigh.

Frances



Trying harder in 2010.


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FDEVINE1's Photo FDEVINE1 Posts: 136
3/6/10 9:01 A

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I've been on the Pt....whatever for a couple of months with a beta blocker to control the tachycardia since I was diagnosed by my GP. I went to a thyroid doctor last week. He did find nodules and was going to make me an appointment for an iodine scan, but the blood tests showed my thyroid has leveled off, so he took me off the meds and wants to retest me in 8 weeks. I hope it took care of it for good, but from what I'm reading I don't know. At least my doctor said I can get back on the treadmill. But my heartbeat seems to be going back up some, so I'm not sure if that's a good idea.

Edited by: FDEVINE1 at: 3/6/2010 (12:20)
Frances



Trying harder in 2010.


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MUMMYCHICKEN's Photo MUMMYCHICKEN SparkPoints: (7,647)
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2/21/10 2:31 P

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I was diagnosed with hyperthyroid 15 years ago. At first I thought it was a reaction to the death of my husband (I have no doubt it was the trigger) but when my legs started swelling I thought "stress doesn't do this". My heart was racing so much I couldn't sleep at night because of the pounding and I also couldn't breathe - very scary. Luckily thyroid problems run in my family so I asked my GP to check it and I was right - very hyper. I was initially treated with beta blockers and something to slow the thyroid down - can't remember the name but I could only stay on the meds for 18 months as they start to attack the white blood cells. During this time I gained 5 stone which i was told showed the meds were working - never mind what it did to me psychologically! After 18 months they hoped my thyroid would have stabilised itself. It didn't and within 3 months I was sky high again. I then had a high dose of radio active iodine to kill the thyroid gland off completely and had to wait for it to take effect - about 3 months if I remember correctly, by which time I was very hypo. Once I became stabilised on thyroxine I then set about losing the weight. Initially I did this by following a meal replacement diet through my doctor - Lipotrim. It worked very quickly and the weight was gone in 3 months. Ever since I have had struggled to keep the weight off. I had never had a weight problem before but for the last 15 years I really have to work at it. I am about a stone over weight now -do you use stones in America? It's 14lbs. I remember the cardiologist saying to me that she thought thyroid disease was the most under rated disease as it is an outpatient disease and yet efects every part of your body from your hair to your toes and I think she's right!

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KAREN_NURSE_09 Posts: 32
2/14/10 5:02 A

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I have been living with Hyperthyroidism for close to 3 years. My Endo put me on Tapazole (Methimazole) and I have leveled off. I also take Atenalol for the tachycardia. My Endo told me that if I take my medication as prescribed and stay off stimulants for 18 months that my hyperthyroidism may go in to remission. I am hoping I am in remission because I have gained 20 pounds in the last 5 months. My best advice is to take your medicine daily and stay away from stimulants (caffiene, sugar, ect. basically all the good stuff )

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